Many of you have been traveling Rosie’s journey with us.
In case you haven’t…our daughter Rosie, who is now an adult, was diagnosed with Cerebral Palsy when she was a toddler
And while those early years were nothing short of nightmarish…
navigating specialists, therapists, diagnosises and hospitals
What we couldn’t have been prepared for is that there will be a time when this entire support system simply goes away
It’s the craziest thing really…
In their early 20’s, the highly curated, connected network of physicians, specialists, and therapists suddenly disappears
And once they “age out” of medical care and facilities that have followed them their whole lives
these adults -with lifelong disabilities- are somehow expected to find a new team of physician and basically fend for themselves
While, I understand these medical centers might be geared for children’s care,
the part that makes ZERO sense is that there are VERY few doctors and specific medical centers that are willing to take on adults with complex special needs
Ya’ll it’s the craziest thing!
And I feel it speaks to the larger conversation of how we, as a society, view adults with disabilities.
Ep 34 #AdultingwithDisabilites isn’t the earliest conversation but it brings you on along for a small part of the ride as Reggie and I attempt to navigate the deeply frustrating aspects of this journey
Expand your awareness on Adulting with Disabilities and listen today on Apple, Spotify or Google
