Today we chat with Joni Brown about her family’s journey with not only autism but also PCDH19, a rare epilepsy disorder. Today Allie is 20 years old, and Joni discusses their diagnosis story. We dive into the heartache of the life-changing diagnosis, Joni’s tenacity in finding answers, and the triumphs they have made as a family. We also discuss Joni’s book, Don’t Sing Happy Birthday, which has quickly become one of our favorites! We shed some tears, but there is also laughter. Come and join us in the convo!
Find Joni on IG: https://www.instagram.com/dontsinghappybirthday/
Find “Don’t Sing Happy Birthday”: https://a.co/d/1i3HHZ6
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