Join us for a compelling episode of Rare Awareness Radio as we welcome Sunita Malipadi — attorney, advocate, and mother — who shares her powerful journey through the rare disease world. 🌿
Sunita's daughter was born with a mutation on the CACNA1A gene, leading to developmental challenges and a two-and-a-half-year diagnostic odyssey. Instead of giving up, Sunita turned her family’s experience into action. She co-founded the CACNA1A Foundation and the Buffalo Initiative, leading the charge in patient-driven rare disease research.
For more information, please visit https://www.cacna1a.org/
In this episode, Sunita talks about:
🔹 The emotional rollercoaster of their diagnostic journey.
🔹 Why patient-led advocacy is essential for driving innovation.
🔹 The mission of the Buffalo Initiative to tackle the 'valley of death' in genetic medicine.
🔹 Her hopes for a more equitable and accessible research ecosystem.
💙 Follow us for more inspiring stories from the world of rare disease advocacy.
#RareAwarenessRadio #RareDisease #GeneticMedicine #CACNA1A #PatientAdvocacy #BuffaloInitiative #HealthcareInnovation
