Full disclosure: I recorded this at 4:30am when my head was full of frustration and my heart was very heavy.
But I needed you to know. You CANNOT give up. You CANNOT stop asking questions. You CANNOT stop fighting.
No matter how amazing your medical team is. It's not their life, it's yours. So it's up to you... and that is a heavy burden to carry sometimes. I cried the whole day before I recorded this because of the anger and frustration.
It's never easy to fight this fight, because you feel like crap and are exhausted ALL THE TIME already. I feel you my friend. So if you need help. If you need tips, tricks, or just someone to tell you it's not in your head and don't give up. I'm here. You aren't alone.
