Listen

Description

In the twenty seventh episode of HC&U, we interview Alex Orange Drink who is a musician/songwriter and adult HCU patient and advocate.

We discuss the mental health challenges that growing up with a rare disorder presents and how we have coped over the years.

We miss out on Low Pro Bitesss in this episode, but be sure to check our @lowprobites on Instagram to see a new recipe!

Please share the podcast and give us a 5 star rating and review!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

Email the podcast!

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Check out Alex's music here!

Alex on Instagram

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u