Part 2 of our conversation on the NMOSD diagnosis, we discuss the personal 'what now?' element...On the individual level, what does coping and living with a newly obtained NMOSD diagnosis look like? What can you do about it? To answer these questions, Demystifying NMO is delighted to have guest Taylor Ann Macey on the pod to discuss her personal patient experience with her NMOSD diagnosis.
Taylor is a wife, mother, Brigham Young University graduate and life coach, with an educational background in fitness and nutrition, Taylor is candid about her NMOSD diagnosis story:
What her journey to the NMOSD diagnosis looked like
How she coped with her new life post NMOSD diagnosis
Controlling what you can by implementing an integrative approach to NMOSD:
Building a trusted clinical care team that incorporates acute relapse management with preventative treatment based on shared decisions
Movement! Being mindful and respectful of your body's capabilities and limits, while moving/exercising as you can to show your body love and improve outcome
Good, well-balanced nutrition
Focusing on your mental and emotional health! Going inward to process difficult life events like an NMOSD diagnosis is critical, and finding a trusted therapist can be impactful and helpful.
Approaches to identifying all the misinformation on the internet!
