Rebel Patients and Caregivers Podcast – Part 1
- Speakers
- Susannah Fox, Author, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, USA
- Matthew Sakumoto, MD, CMIO, Sutter West Bay Region, and Assistant Clinical Professor, UCSF, USA
- Moderator: Sarah Bell, RN, MSN, MHA, Vice President, Product and Clinical Evaluation, Biofourmis, USA
Do you or someone you know feel alone, forgotten, or lost in the shadows of suffering, whether navigating a new diagnosis, or life with a chronic condition? Inspiring patients are creating solutions and setting new standards for what’s possible in health and outcomes.
If you’re a patient, survivor, or caregiver, join speakers to learn valuable new skills, and how to deploy them.
Discussion Topics
- Providing guidance for those suffering from new diagnosis or chronic conditions on how to leverage patient-led groups to find answers and change their course of care
- Clinician experiences with patient-led groups and patient-led healthcare
- Learn about the four patient archetypes – Seeker, Networker, Solver, and Champion
- Advice for patients, caregivers, and survivors who want to learn how to navigate roadblocks and the lack of information in their healthcare journey
- Advice for how “Seekers” can get started
- Clinicians advice on facing unknowns to patients and how to navigate the healthcare system
- Concerns about potential misinformation in patient and caregiver-led groups
- Data on patients self-regulating and accuracy of reports
- Turning to online sources such as “Dr. Google” or patient-led groups for information
