Take a moment to imagine the unimaginable. Imagine being told that your three year old child has a rare disease that will very likely result in death. You can slow the progression of the disease, but unfortunately it’s too late for any type of treatment to cure the disease or stop the progression. This unimaginable situation was the new reality for Nick & Shanna Quimby and ultimately resulted in the devastating loss of their son Gavin when he was five.
They turned this unimaginable and devastating situation into a mission to help other families facing something similar. Their tireless efforts have led to the expansion of the newborn screening list and the Minnesota Rare Disease Advisory Council. But they won’t stop until their dream of getting MLD added to the newborn screening list is fulfilled. They also started the Gavin Quimby Research Fund at the University of Minnesota to support research and gene therapy for kids. If interested, you can donate to the Gavin Quimby Research Fund by mailing a check to the address below. Miller Scrap & Disposal is also making a donation to the Gavin Quimby Research Fund for every new customer who signs up for Miller Disposal's local trash service during the month of November.
Nick and Shanna's efforts in memory of their son Gavin are already helping save lives here in Minnesota and across the country.
Gavin Quimby Research Fund
Dr. Troy Lund
MMC 366
420 Delaware St SE
Minneapolis, MN 55455
Make checks payable to: “University of Minnesota Foundation.”
Memo: ALD Research Fund UMF 11967
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