Jared Griffin, CEO and Founder of Annabelle’s Challenge, shares his experience with getting his daughter’s diagnosis of Vascular Ehlers-Danlos Syndrome (VEDS), and experience starting Annabelle’s Challenge, a UK Charity for VEDS, more than 10 years ago.
Learn more about VEDS and Annabelle’s Challenge at https://www.annabelleschallenge.org/
Find more information about VEDS, including support groups and medical webinars, at https://TheVEDSMovement.org.
If you would like to share your story with VEDS on this podcast, visit
https://staying-connected.blubrry.net/contact/
Links mentioned in the episode:
Otto Nitschmann, who passed away April 20, 2023, shares his story with VEDS
https://staying-connected.blubrry.net/2022/04/16/otto-nitschmann/
REDS4VEDS Day, hosted by Annabelle’s Challenge
VEDS Camp, hosted by the Ehlers-Danlos Society in partnership with The VEDS Movement
https://www.ehlers-danlos.com/events/veds-family-camp/
The Marfan Foundation Conference:
https://marfan.org/conference/
The Marfan Foundation Walk for Victory:
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Adventuresinlove4Andie
Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services.
