Arya Singh grew up with a child’s-eye-view of hospitals, operating rooms, and clinical trial sites. As someone with the rare and progressive neuromuscular disorder spinal muscular atrophy type 2, Singh knew what it meant to be isolated and frightened by both as a patient and a clinical trial participant. Now a student at Yale University with plans to pursue her interests in law and public policy in health, she has written Courageous Calla and the Clinical Trial. We spoke to Singh about the surgeries and clinical trials she endured as a child, her new book Courageous Calla, and her interest in humanizing medicine.
