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We talk with Jessica Patay about the moment a diagnosis changes a family’s life and what “bravery” looks like when caregiving becomes a daily reality. We share how community support can protect caregiver mental health and why her book, "Suddenly Brave Together" aims to meet moms right at the defining moment.
• founding We Are Brave Together to reduce isolation for caregiving mothers
• defining bravery as showing up, facing grief and advocating
• naming altered motherhood and the hidden roles moms take on
• using a private online group, connection circles, retreats, podcast and books for support
• explaining the “suddenly” shift after diagnosis and the learning curve that follows
• describing Prader-Willi syndrome, food security and anxiety-driven behaviors
• navigating adulthood after school services end and the shortage of supports
• shifting from "why me?" to "what now?" through validation and community
• building confidence through doing, writing, networking and fundraising
• funding retreats and scholarships through donors, grants and sponsors
Find her website at WeAreBraveTogether.org
You can order this book and previous books directly from their website.
And if anyone out there listening has any ideas about how to get this book into the hands of NICUs and pediatricians and geneticists, reach out to Jessica at WeAreBraveTogether.org
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