Sarah's brother Alexander drowned in the family pool, accidentally. She was not home that day. He was only 9, nearly 10 years old. He couldn't walk talk eat or see, he had leukodystrophy and was the first person in the world to have his kind of disease. Sarah discusses her role as a Carer for her brother, the challenges faced with this extremely rare disease, and how she grieved following his accidental passing.
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Resources
Lifeline: 13 11 14 | lifeline.org.au
Beyond Blue: 1300 22 4636 | beyondblue.org.au
Griefline: 1300 845 745 | griefline.org.au