Listen as I talk with Brittany, parent of two children with Cobalamin G and the head of the Cobalamin Steering Committee for HCU Network America. Brittany will discuss her reasons for advocacy, her role on the steering committee, and the issues faced by those with Cobalamin Disorders.
Chapter Markers
00:00 Intro
06:19 Why Britany advocates for the Medical Nutrition Equity Act
08:18 Callenges of Cobalamin G
12:53 Difference between a regular B-12 shot and Hydroxycobalamin
18:07 Key Goals for HCI Network Americ to advocate for change
21:05 obsticales patients face with access to nutrition
30:34 How the death of drew helped drive Britany towards policy change
32:27 Misconceptions
36:04 Bridging the political divide for the Medical Nutrition Equity Act
37:58 How you can support the push for the Medical Nutrition Equity Act
39:33 Story that reafirms the significance of Brutany's work
45:09 Call To Action
46:53 How the HCU Network America resources are created
49:39 Conclusion
