As a new Mom, Amanda couldn’t have imagined that she would be facing a diagnosis of her then 18 month old daughter like she was. New parents usually have heightened awarenesses about their young children, getting in to a routine and learning how to manage sleeplessness and eating schedules. But Amanda and her husband were faced with a much bigger battle when their daughter Emma was diagnosed with an inoperable tumor on her brain stem.
Tedious and exhausting (and pregnant with their second child), Amanda and her husband, surrounded by an army of family and friends, forged onward through surgeries, blood draws, steroid treatments, and everything in between for their sweet Emma. Considered malignant by location, Emma’s tumor was treated by radiation soon after she recovered from complications that began during her initial biopsy. Being sedated 5 days a week for radiation became their families normal for 6 weeks. Within a quick 2 month period of time, Emma had experienced so much in her little body while Amanda and her husband stood by doing all they could to support every change that would come with each passing day.
Now a beautiful and thriving 12 year old, Emma is aware of her journey and understands how her medical past has a history that will always be a part of her life. For Amanda and her husband and Emma’s siblings and extended friends and family, there is such gratitude for Emma’s health. Because of her process and the treatments she endured while her brain was rapidly growing, Emma has to work harder than her peers at claiming her attention span and achieving gross motor skill movements in sports that she takes part in. But Amanda is quick to say that the gift in all of this for their family has been perspective…it’s something not everyone gets the opportunity to understand.
Amanda feels confident that she was meant to be Emma’s Mom. She is thankful for the outpouring of love and support for Emma and knows that every moment is a beautiful gift.
Everyone has a story, and every story matters!
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