🎙️ Life with a SWASH Brace: What Parents Should Know
When my daughter was prescribed a SWASH brace, I didn’t expect to cry—but I did. In this episode, I’m sharing our honest experience with this hip-stabilizing orthosis: the emotions, the pros and cons, and how we’re learning to cope day by day.
You’ll hear:
💚 What the SWASH brace is and why it's used
💚 My unfiltered reaction as a special needs mum
💚 The practical side—how we put it on, adapt it, and prevent wear and tear
💚 Emotional & mindset strategies to stay grounded
💚 A free downloadable tool I created to help you track your child’s brace usage, side effects, and improvements
🎁 Grab the spreadsheet here: https://www.mykabukigirl.com/hip-brace-tracker
This is not medical advice—just a mum sharing her journey through Kabuki Syndrome and everything that comes with it. If your child is starting with a brace or you’re just feeling overwhelmed by one more thing, I see you. I’m with you. And I hope this episode brings you some clarity and comfort.
💌 Let’s connect on Instagram: @MyKabukiGirl
📺 You can also watch the full video on YouTube: https://www.youtube.com/watch?v=1EobfkRxaH4
Or you can read it on my blog 👉 https://www.mykabukigirl.com/post/life-with-a-swash-brace-what-parents-should-know
#SWASHbrace #SpecialNeedsParenting #KabukiSyndrome #Orthotics #ParentingAChildWithDisabilities #HowWeSpecialNeeds
🎙️ ENJOYED THIS EPISODE?
If this episode resonated with you, please subscribe and leave a review on Apple Podcasts or Spotify — it helps other families find us when they need it most. 🙏 Share it with a fellow mum, carer, or anyone who might feel less alone after listening. 💚
🎧 LISTEN TO SPECIAL NEEDS DIARIES
▶️ Apple Podcasts: https://podcasts.apple.com/au/podcast/special-needs-diaries/id1782035233
▶️ Spotify: https://open.spotify.com/show/2zp384wlxzIZyYAEEEqZlh
⚠️ CONTENT WARNING
This episode may contain discussions of [medical challenges/grief/diagnosis/mental health]. Please listen with care if these topics are sensitive for you.
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🌐 Website: https://www.mykabukigirl.com
▶️ YouTube: https://www.youtube.com/user/mykabukigirl
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