AUDIO Epi 9. This IPZO facto, Innovation: No Way But Forward Podcast Episode 9 (Patient Advocates: The Lived Experience) features Sabina Kineen, a dedicated *patient advocate* for the rare disease community, sharing a compelling *chronic illness story**. Her family's journey began with her father's unexpected diagnosis of **Fabry's disease**, a **genetic disease* that highlighted significant *healthcare challenges**. Sabina's work within pharma and biotech ecosystems aims to amplify patient voices in drug development and promote greater patient **lived experience* data for optimal clinical trials and therapies.
Sabina provides a poignant account of her family's journey with *Fabry's disease**, shedding light on the struggles faced by the **rare disease community**. She emphasizes the critical role of a **patient advocate* in amplifying patient voices within drug development, especially for conditions like this *genetic disease* where *clinical trials* are scarce. This narrative underscores the significant *healthcare challenges* and the urgent need for greater understanding and support for rare disorders.
🎯 Join the InnoPathwayZ waitlist now to access new content first + Founder's bundle. https://innopathwayz.myflodesk.com/ip...
=============================================
📣 Subscribe and Listen to the IPZO Podcast here to get notified when released. / @innopathwayz
=============================================
➡️ Connect with us!
Sabine Kineen, Rare Disease Patient, Caregiver, and Advocate / sabina-kineen
InnoPathwayZ (IPZ) / innopathwayz-llc
Zina Manji, Founder & Principal, Regulatory Strategist, InnoPathwayZ / zina-manji
Because with healthcare Innovation, there is No Way But Forward!
