Behind the scenes of a project giving teenagers a voice in their ITP journey.
Being diagnosed with ITP as a teenager can feel overwhelming, and finding the right information at the right time makes a big difference. In this episode, Danielle speaks with Professor Nichola Cooper, Dr Alice Hart, and Mervyn Morgan about ITP and Me: A Teen Guide to Living with ITP.
They share how the book was developed with teens, for teens, why age-appropriate resources matter, and how hearing directly from young people has helped shape a resource that is both practical and reassuring. Whether you’re a teen, a parent, or part of a healthcare team, this conversation highlights the impact of collaboration and the importance of giving young people a voice in their care.
Thanks for listening to Beyond the Count
For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.
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Instagram: @ITP_ANZ
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LinkedIn: ITP Australia & New Zealand
YouTube: @ITPANZ
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Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au
