Description

ITP: More Than a Diagnosis

The Relationships, Support and Community That Carry Us Through

Being diagnosed with ITP can feel incredibly isolating.

Suddenly you're navigating specialist appointments, blood tests, treatment decisions, and a condition most people have never heard of. But for many patients, one of the most important things they discover is that they don't have to do it alone.

In this episode of Beyond the Count, Danielle Boyle is joined by ITP advocate and long-time community volunteer Stassi Austin to talk about the role support, connection, and community have played in their own journeys with ITP.

 Together they discuss:

• Finding support after diagnosis
• Connecting with other people who understand ITP
• Why community matters
• Conferences, patient stories and friendships
• The practical resources available through ITPANZ
• Helping patients through difficult moments
• Supporting families and caregivers
• The future vision of ITPANZ

 This conversation is about much more than information. It's about belonging, connection, and discovering people ready to walk beside you when life with ITP feels overwhelming.

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Thanks for listening to Beyond the Count

For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au.

📱 Follow us on social media:
Instagram: @ITP_ANZ
Facebook: facebook.com/ITPANZ
LinkedIn: ITP Australia & New Zealand
YouTube: @ITPANZ

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Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au