Description

On this episode, Molly shares her personal experience with her Aunt Cathy, and advice about caring for a loved one with Alzheimer’s. 

She emphasizes the importance of:

• Meeting them where they are and getting rid of expectations to improve quality of life 
• Decreasing stressors, because stress can be detrimental as cognition declines
• Being present, and being in the moment, to help you find peace in the midst of caregiving
• Joining them in activities for better engagement and outcomes
• Joining them in their reality to reduce isolation (and to have fun!)
• Finding the joy, because this journey can bring beautiful joys that you wouldn’t have known or experienced otherwise
• Recognizing that caregiving can create deep and meaningful bonds
• Knowing that you are not alone in this journey

Resources that Molly found helpful:

Teepa Snow https://teepasnow.com/resources/for-families-and-friends/#resources

Be Light Care—follow her on social

Adult Down Syndrome Center Resource Library https://adscresources.advocatehealth.com/

NDSS https://ndss.org/resources

Down’s Syndrome Scotland (especially the "Let's Talk About" booklet series) https://dsscotland.org.uk/resources/

We want to hear from you! Get in touch at: podcast@agingwithdownsyndrome.com