In this episode Ben's parents: Jeff and Erinn share their journey navigating the challenges of eczema, ARFID, Autism and ADHD. They also discuss eczema's impact on their family dynamics and the tension they experienced because due to Ben's condition. They share with us the struggles of managing Ben's eczema from infancy, the emotional toll it took on them, and the transformative role of Dupixent in Ben's treatment. We'll get to hear the ups and downs as well as the uphill battle with insurance wanting to take Ben off therapy after a year of good results. The conversation highlights the importance of advocacy in healthcare, the challenges posed by insurance companies, and the overall impact of eczema on childhood and family life.
Chapters
00:00 Welcome & Intro to Ben's Story
02:20 ARFID (Avoidant/Restrictive Food Intake Disorder)
04:43 Parenting Struggles
06:36 Time & Financial Investments for Eczema
08:19 ADHD & Autism Diagnosis, Tactile Sensitivities
09:15 Rage Monster on Oral Steroids
10:48 Pets, Autism, ADHD and Eczema
12:15 Rebound After Oral Steroids & Skin Reaction
14:05 Family Eczema Burden
18:03 Dupixent Discussion
20:56 Pediatric Dermatologist, Referrals, Insurance
22:39 First Dupixent Injection, Nutella Allergy
25:55 Changes After Dupixent
27:40 Obstacle Course Bluey
28:22 Insurance Stops Covering DupixentÂ
31:48 Letter to Insurance
34:04 Insurance Manager Apologized
34:46 Ben's Life Now
35:12 Aron Regimen
35:33 ConjunctivitisÂ
39:03 Ben's Written Story
40:30 Words of Wisdom
43:07 In Good vs. Evil, Good Wins
43:55 Thank you and Closing
Keywords
eczema, ARFID, Autism, ADHD, Dupixent, pediatric dermatology, insurance challenges, childhood eczema, eczema treatment, eczema advocacy, eczema management
The information shared on this podcast is for educational purposes only and is not a substitute for personalized medical advice. Always consult your physician regarding your health.
