Description

Channing is a rare disease mama who has faced many ups and lots of downs over the last decade of motherhood. Her daughter, Peytan, has a condition called Cystinosis and is in need of a kidney donation. Today Channing is bravely opening up with us about how her anxiety has affected her and her family as they face the unknowns of a rare disease. 

Topics we talked about that you do not want to miss:

• Peytan was diagnosed with Cystinosis at 15 months old
• Parenting a rare disease child and a healthy child together
• Living vs deceased kidney donor
• Knowing your anxiety and taking care of your needs
• How you can help Peytan (organ transplant process OR buying a cozy blanket!)

Links and resources:

• Find out if you are eligible to be a kidney donor: sentara.donorscreen.org (You must list Peytan Taylor as the specific recipient.) 
• Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast
• Join the WAC Society to talk about all things pod related: www.facebook.com/WhenAutumnComesSociety
• Follow us on Instagram: @WhenAutumnComesPodcast
• Catch up with Suz: @suzgeoghegan on insta
• See what Diane is up to: @diane.kay.erdman on insta

Make sure you hit SUBSCRIBE so you don't miss out on our upcoming stories from other members of our medical and disabled community. 

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