Description

Happy Fathers Day to all the dads out there! This week, instead of having a mom share her story, we invited a dad to the show! Daniel introduces us to his family, he talks about what it feels like to be a rare disease father as he faces the ‘it’s not fair’ moments as well as the waves of grief. Daniel is one of the founders of the Rare Disease Film Festival and the Disorder Channel where they showcase rare stories. 

Topics discussed that you do not want to miss:

• What we felt when we heard our children could be nonverbal
• Timing throughout the journey
• “This isn’t fair” vs “why me” mindset
• Career change for rare
• Waves of grief 

Links and resources:

• You can watch films on The Disorder Channel with a Roku or Fire Stick
• Learn more about Disorder Channel: www.thedisordercollection.com
• Connect with Daniel: www.instagram.com/disorderrarediseasefilms
• Freebies for you: www.SuzGeoghegan.com/Freebies 
• Follow us on Facebook: www.facebook.com/WhenAutumnComesPodcast
• Join the WAC Society to talk about all things pod related: www.facebook.com/WhenAutumnComesSociety
• Follow us on Instagram: @WhenAutumnComesPodcast
• Catch up with Suz: @suzgeoghegan on insta

Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community. 

And, if you enjoyed this episode, please leave us a 5 star rating and a review!  Thank You!