In This Episode, You’ll Hear About
Robin Roberts is a health IT consultant and the co-host of the HIT Like A Girl podcast. She sits down as a guest on this inaugural episode to share her story about how her son Carter came down with a rare disease two years ago that turned her family’s world upside down. Robin discusses the challenges of navigating the insurance world to provide Carter with equipment that will increase his quality of life. She opens up about how she’s taken for granted the advantages of being physically able and neurally typical.
Robin Roberts: @RRobertseHealth
HITlikeaGirl: @HITlikeaGirlpod
Joy Rios: @askjoyrios
Links And Resources Mentioned In This Episode:
Carter’s Coalition
Acute Flaccid Myelitis
IVIG
G-Tubes
Plasmapheresis
Nebulizers
Percussion Therapy
Cough Assist
PowerChair
Value-based Care
Interoperability
MCO – Managed Care Organization
LMN – Letter of Medical Necessity
National Organization for Rare Diseases (NORD)
Carter Roberts
Thanks For Listening
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