Al Freedman
“We’re lucky to have our kids to however long we have them, and that’s how I feel about my son… think about what our kids can do.” - Dr. Al Freedman
Having a support system from friends and families for our people who are diagnosed with SMA is the most wonderful way we can build a better community for them.
We are joined by Dr. Al Freedman who is a psychologist by profession and a loving father to his son, Jack, who has SMA.
Listen in to our discussion about the following topics:
Dr. Freedman’s inspiring story about his son, Jack (0:54/ 3:41)
What advice we can share to families with children diagnosed with SMA (1:30)
Global SMA conference by Cure SMA (3:30)
The SMA Community and Support Groups (5:02)
Upcoming SMA conference with Dr. Freedman in Australia (5:49)
Peer-to-peer discussions between kids with SMA (6:55)
Stigma around SMA (Spinal Muscular Atrophy) (8:08)
Parenting advice from Dr. Freedman (8:56)
And there are more discussions at the end of this episode!
Know more about Dr. Al Freedman at http://www.drfreedman.com/
Cure SMA - http://www.curesma.org/
Call us (03) 9796 5744
Email us at reception@smaaustralia.org.au
Visit our website at http://www.smaaustralia.org.au
Facebook Page: https://www.facebook.com/SpinalMuscularAtrophyAustralia
