Zolgensma drug by Avexis brought into Australia
Roche - https://www.roche.com/research_and_development/what_we_are_working_on/neuroscience/approaching-sma.htm
Parliament date to be announced, looks like some time in August 2019 (Awareness Month)
Gala in Melbourne and Brisbane. Purchase tickets here: https://smaaustralia.org.au/get-involved/upcoming-events
Please contact us if you would like to see a Sydney event
Be SMA Aware App currently in development. Please share what are things that you are struggling with and need support with.
Currently working on a dedicated SMA Conference for May 2020 (potentially on the Gold Coast)
Newborn Screening fact sheet:
https://www.facebook.com/SpinalMuscularAtrophyAustralia/photos/a.370736359243/10157422001809244/?type=3&theater
