(00:00:00) Introduction and Episode Overview
(00:00:17) Meet the Hosts and Co-Producer
(00:01:04) Introducing Today's Guests
(00:03:34) Misconceptions About Hospice Care
(00:06:14) Psychological Perspectives on Hospice
(00:09:32) Palliative Care for Children
(00:17:59) Communicating with Children About Death
(00:22:19) Balancing Emotional, Spiritual, and Physical Needs
(00:24:30) Changing Society's Approach to Death
(00:31:46) Navigating Uncertainty with Congenital Heart Defects
(00:35:05) Small Acts of Kindness
(00:35:49) Learning from Life's Experiences
(00:36:04) Hope and Quality of Life
(00:36:34) Acknowledging Life's Realities
(00:37:26) Panelists' Closing Remarks
(00:38:09) Heartwarming Stories and Resources
(00:39:01) End of Life Care Discussion
(00:39:50) Importance of Acceptance and Preparation
(00:40:59) Personal Experiences with End of Life
(00:44:34) Role of Medical Professionals
(00:53:08) Children and End of Life Conversations
(00:58:37) Final Thoughts and Takeaways
(01:03:10) Upcoming Changes and Farewell
In this heartfelt episode of The CHC Podcast: Congenital Heart Conversations, hosts Anna Jaworski and Annie Ulchak, both deeply connected to the congenital heart defect community, delve into the sensitive topic of end-of-life care. Joined by expert panelists, including pre-planning specialist Rosa Hernandez, mental health professional Dr. Michael Groat, and palliative care nurse Maureen Groden, they explore misconceptions about hospice care, the psychological and emotional aspects of end-of-life discussions, and the importance of normalizing conversations about death. Personal stories, practical advice, and a focus on honest communication provide listeners with valuable insights into navigating these challenging times.
Maureen Groden's book is entitled, When a Loved One is Dying: Conversations about Care, Connection, and Coping. Available at Amazon, Bookshop, and Barnes & Noble.
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