There is more than one way of sharing our autism story! In this episode of Autistic POV, I talk about my experience sharing my own story through memoir writing and online media—with a focus on what did and didn't work for me and why
I also chat about my substack blog, my special interest blog and other resources. I promised to provide links these, so here they are:
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AutisticPOV.comEPISODE 6 TRANSCRIPT:
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AutisticPOV.comWelcome to Autistic POV. My name is Barbara Graver and I started this podcast to share a bit of my journey as a late diagnosed autistic. Hi everybody, this is Barbara Graver. Thank you for joining me today on Autistic POV. Today we're going to be talking about sharing our story.
0:29
And I specifically called this episode sharing our story versus writing our memoir because I think it's important to acknowledge that there are a lot of different ways we can share our autistic experience. And writing a memoir is only one of those ways. So I love autistic memoirs.
0:50
I've read a bunch of them and I really, really enjoy them. And I decided that I should try to write one too. I wanted to talk about my experience growing up as an undiagnosed autistic and I started it. I actually wrote it. But I had a lot of trouble with it.
1:09
I had a lot of trouble with it for different reasons. And this is something that a lot of autistics struggle with. It's kind of ironic because I am a writer. I consider myself a writer. I've written a couple of novels, but I really, really struggle with writing novels. And there's a reason for this.
1:31
And writing the memoir was easier in a way because it's chronological. You don't have to struggle with structure to the same degree you do a novel. But there is still kind of a genre expectation, I think, with a standard memoir. And maybe this is something that needs to be challenged.
1:51
But the idea with a standard memoir is usually that there will be a theme. It's not an autobiography. A memoir is not an autobiography. It's not someone's story from birth to the point they write it. It's the story of a specific aspect of their life.
2:10
So with the autism memoir, the expectation is going to be that aspect is autism. And I think that's what made it hard for me because as an autistic person, Everything in my life is related to autism because my autistic way of looking at the world is global. There's no way I could step away from that.
2:34
Everything I've done in my life has been, and everything I've seen and experienced has been through an autistic lens. So I found when I tried to write a memoir about is that I just couldn't stay in my lane. And that's something, I read a book, and I think I mentioned it before,
2:52
but it was by a literary critic named Julie Brown, and the name of the book was Writers on the Spectrum. And in that book, she analyzed the writing of eight different very famous writers who are widely thought to be autistic. And she came up with these problems that all of them had, and they all had these problems.
3:11
And reading that was really helpful for me, Because at the time, I was struggling with writing fiction. And I saw a lot of those issues in my own writing. And it was helpful for me. I've written a couple novels. One is going to be coming out, I think, before the end of the year.
3:28
But they were so hard for me to write. And I actually think if I try another one, when I try, I've already got another fiction novel. story started, but I think the next time I might actually try a short story cycle because of issues I have around narration.
3:47
And this is common, and I'm not sharing this to discourage anyone. I mean, obviously a lot of people write autism memoirs. They write them brilliantly. I have an episode called autistic POV reading roundup where I talk about four books that I really love that
4:04
I read recently and three of them are autism memoirs and I love them and I think everyone should read them especially if you think you might want to write one you should definitely read a bunch that's the best thing you can do as a writer to prepare you to write is to read what other people do
4:21
But I think the issues I have personally with narration, and obviously every autistic does not have these problems, but the problems I have are not uncommon. And one of them is fulfilling genre expectations. This was something Julie Brown actually identified when she did literary analysis of the work of these writers.
4:44
one way this is a problem is because of what Bernard Rimland, who's a researcher, calls the autistic tendency to view life as an incoherent series of unconnected events. And that makes structuring anything difficult, even a story you tell, even a podcast, even to a degree a blog post.
5:05
But the longer the piece, the more difficult this could be. And a memoir is essentially a chronological story and you can tell it chronologically but what I found is that I still had trouble staying in the quote autism lane I kept veering into spirituality and that's another issue because if you have somebody buying an autism memoir they
5:32
know this was my problem they don't necessarily want to read a book that's like half or two thirds about the author's spiritual experiences that's not why they bought it And it's not fair to them and it's not fair to you because odds are you're not going to get great reviews from that.
5:46
But mostly it's not what it's supposed to be. And that was the problem I ran into. And I have this debate with fiction. Do we really as autistics want to be about fulfilling traditional neurotypical genre expectations? I'm not sure. I think that's a good conversation to have. And I'd be curious what other people think about it.
6:08
But if you're looking to write a traditional memoir, you may have problems staying in your lane, potentially, or you may not. This isn't everybody. But you may find it a little bit difficult to structure things. And this is something that has been identified as an issue at times for some autistics. And autism researcher Matthew Belmont says,
6:33
and I love this, that we move from chaos to meaning through narration. So in other words, that's how we make sense of our lives. And it makes me wonder if the difficulties some autistics may have with narration, the difficulties I have with narrating,
6:49
might have to do with the difficulty I have in having a coherent sense of self. I was listening to This Jungian Life, which is a great podcast. And they were talking about, and I forget the name of the episode, but they were talking about your narrative, your life narrative and how that, impacts your sense of identity.
7:10
So it's all connected. I think it's all connected. And I do think that writing a memoir, like I'm glad I wrote it, even though I'm not going to publish it, at least not in its present form. I think writing a memoir is good because I think it helps you reflect on your life.
7:26
I think it helps you see your
