Shows
A Mama’s Xtra LoveQ&A Part 1: Fragile X Treatments, Anxiety and more!Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!2025-05-0816 minA Mama’s Xtra LoveRare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including Fragile X Syndrome!2025-03-2321 minA Mama’s Xtra LoveThe Raw Realities of Grief & More!Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!2025-03-1419 min
Love to be... The Global Connection ShowLove to be... The Global Connection Show 220 | Trimtone with Illyus & BarrientosThe Love to be...Global Connection Show 220.
Trimtone are joined by Illyus and Barrientos for 2 hours of the very best house music from around the globe.
Part 1 – Trimtone
Tommy Gustav - Keep Movin (Deeplomatik Ade Deep Remix) [Taste The Music]
Random Soul Feat Laura Vane - Sway Me (Saison Remix) [Random Soul Recordings]
Darren Crook - Club Wurk [Drop Dance Society]
Gustavo Fk - Classic Touch [Salted Music]
Maffa - Woman [Onako]
Waze X Life On Planets - Bang [Second Phase]
Liiba - Wo You [Tropical Disco]
Sam Karlson...2024-11-262h 00A Mama’s Xtra LoveA Fragile X Family’s Diagnosis JourneyIt’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more! 2024-11-2534 min
The Xtra Sznd PodcastSZN 1 EP 1: Leanna Ah Loo HansenSZN 1 EP 1 features the one and only Leanna Ah Loo Hansen! She's a hair stylist that owns her own salon here in SLC, Utah and I've had the pleasure of working with her on multiple projects. Along with sharing about her passion for hair and her love for celebrity gossip tea, she opens up about her journey with IVF and the impact it has had on her mental health.
I'm so lucky to call Leanna a friend of mine and am so thankful that she felt comfortable enough to share her story on the very first episode...2024-10-0856 min
The Xtra Sznd PodcastWelcome to The Xtra Sznd Podcast!Welcome to The Xtra Sznd Podcast! A podcast for people who are xtra and love their food sznd. It's for those with a taste for creativity, a thirst for tea and a disdain for bland conversation.
This is a quick intro episode that talks about what inspired this podcast to be created and what you can expect from future episodes. So have a seat! Things are bout to get xtra!2024-10-0109 minA Mama’s Xtra LoveAn Update on our Fragile X Journey!During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!2024-07-0521 minA Mama’s Xtra LoveAn Important Message from Talk Fragile XIt’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!2024-07-0121 minA Mama’s Xtra LoveTalk Fragile X is Back with News!It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!2024-05-3116 min
Xtra XtraEmbracing Change and Rediscovering Passion
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In the tapestry of life, change is the thread that weaves through our experiences, transforming the mundane into moments of growth and renewal. Embracing change is akin to embarking on a thrilling adventure, where each twist and turn brings new opportunities for self-discovery and reinvention. It is in these moments of flux that we have the chance to shed our old skin and rediscover our passions with a newfound vigor.
Like a phoenix rising from the ashes, embracing change allows us to spread our wings and soar towards new horizons, unearthing hidden talents and desires along...2024-04-0200 minXtra XtraAging Out: Exposing the Truth
Unveiling the Marvels of Aging Out: Embracing the “Old” in You!
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Ah, growing old – the undeniable but oh-so captivating journey that we all embark upon eventually. Aging out, as they call it, is indeed a fascinating adventure filled with delightful surprises at every turn. So, let’s set our sarcasm mode on high and dive headfirst into the joys of embracing our wrinkly, silver-haired selves!
1. The “Old” Enigma
Turning the spotlight towards the ever-elusive concept of “old,” we find ourselves caught up in endless quagmires. But hey, who doesn’t love a little mystery? Should we fear wri...2024-02-2918 minXtra XtraEmbracing Your Authentic Self: The Key to Finding Happiness
Unlock Your Full Potential: Embrace Your Authentic Self
In a world that often encourages conformity and fitting into societal norms, it can be easy to lose sight of our true selves. We may find ourselves constantly trying to please others or striving for an image that doesn’t align with who we really are. However, embracing our authentic selves is the key to finding true happiness and fulfillment in life. When we let go of the need for approval and start living in alignment with our true values and desires, we unlock a world of joy and contentment.2024-02-1514 minA Mama’s Xtra LoveWhy Should We Advocate for Inclusion in the Workplace and in the Community?October got away from me, but I still wanted to share this important episode with you all! After all, Disability Employment Awareness shouldn’t just be focused on for one month out of the year, but rather every day! It’s an ongoing effort that needs our support!2023-11-0620 minXtra XtraFriend or Foe: Discover Your True Colors
Friend or Foe: Discover Your True Colors
In the intricate tapestry of life, we encounter a myriad of individuals who shape our experiences, influence our decisions, and leave an indelible mark on our souls. These encounters often lead us to question the intentions of those around us, prompting us to ponder the age-old question: friend or foe? The dichotomy between these two archetypes has been a subject of fascination for generations, captivating the minds of poets, philosophers, and thinkers throughout history. As we delve into the depths of this enigmatic topic, we uncover the complexities of human nature...2023-10-2519 minXtra XtraThe Hard Truth About the Struggles of Working Out
The Hard Truth About the Struggles of Working Out: A Hilarious Journey to Fitness
Ah, working out! The never-ending battle between our desire for a perfectly toned body and our love for Netflix marathons and pizza nights. We all know the struggle is real, and boy, is it a struggle! From the moment we decide to embark on this fitness journey, we are faced with a series of hurdles, both physical and mental. So, let’s lace up our sneakers, put on our stretchy pants, and dive headfirst into the hilarity that is working out.
First things fi...2023-10-2316 minA Mama’s Xtra LoveSpecial Guest: Rob Snow, Director of the CEO Commission for Disability EmploymentThe CEO Commission for Disability Employment was created to increase opportunities for individuals with disabilities to obtain and/or maintain employment. The CEO Commission for Disability Employment focuses on three main goals: Policy, Practice and Culture! Tune in to learn more about CEO Commissions purpose, current focuses, and what Disability Employment Awareness Month means to them! You don’t want to miss this opportunity to hear from such a kind and mission driven Director, Rob Snow!2023-10-1255 minA Mama’s Xtra LoveDisability Employment Awareness Month 2023This month is Disability Employment Awareness Month! I'm SO passionate about this very topic! As an Employment Specialist who sees and experiences firsthand the challenges and difficulties of promoting inclusion in the workplace for our neurodiverse peers, I share my experiences, encouragement and support! Tune in and share with your friends, family members, educators and even your boss! 2023-10-0522 minXtra XtraThe Hidden Side: Misunderstood People, Not Good or Bad
Beyond Labels: Exploring the Complexity of Misunderstood People
Oh, the misunderstood people of the world! They are the unsung heroes of our society, the ones who are constantly judged and labeled without ever being given a fair chance. These poor souls are often seen as nothing more than a nuisance or a burden, but let me tell you, there is so much more to them than meets the eye. In this article, we will dive deep into the hidden side of these misunderstood individuals, and hopefully, shed some light on their true nature.
Let’s start addressing th...2023-09-2716 minXtra XtraBreak Free from Past Relationships: Mastering the ZoneMastering the Zone: How to Break Free from Past Relationships
In the journey of life, we often find ourselves entangled in the webs of past relationships. These relationships, whether romantic or otherwise, have the power to shape our present and future. The memories, emotions, and experiences associated with them can either propel us forward or hold us back. It is in our hands to break free from the shackles of the past and master the zone of our lives.
Past relationships can be a source of immense pain and heartache. The wounds they leave behind can linger, affecting...2023-09-2113 minXtra XtraCracking the algorithm code: Secrets to staying authenticThe secret to staying authentic: Cracking the algorithm code
Have you ever felt like you’re living in a world where authenticity is a rare commodity? Where everyone seems to be putting on a facade just to fit in or gain popularity? Well, fear not my friend, for I am here to reveal the secrets to staying authentic in this algorithm-driven era. And let me tell you, it’s no easy feat! But with a little bit of humor and a whole lot of determination, you too can crack the algorithm code and stay true to yourself.
Now, befo...2023-09-1917 minXtra XtraHow smiling on ID pictures can ruin your lifeThe Secret Behind Smiling on ID Pictures
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Introduction:
Ah, the dreaded ID picture. A moment frozen in time, forever etched in the annals of bureaucratic history. Who would have thought that a simple smile could wreak such havoc on our lives? Brace yourselves, dear readers, as we embark on a journey through the absurdity of smiling on ID pictures and the catastrophic consequences it can have on our existence.
The Smile That Spells Disaster:
Let’s start acknowledging the sheer audacity of those who dare to flash a smile on their ID pictures. How da...2023-08-3017 minXtra XtraEmbracing Love: Overcoming Haters with KindnessEmbracing Love: Overcoming Haters with Kindness
Ah, love! The magical feeling that makes the world go round. It’s like a warm, fuzzy blanket that wraps around your heart and fills you with joy. But wait, what’s that? Oh no, it’s the haters! Those pesky little creatures who just can’t seem to handle all the love in the air. Well, fear not my friends, for today we shall embark on a journey to conquer these haters with nothing but kindness and a good sense of humor. So buckle up, because we’re about to dive into the world...2023-08-2916 minXtra XtraThe Path to Happiness: Embracing Your True SelfEmbrace Who You Are: Find the Path to Happiness
In a world that constantly bombards us with expectations, judgments, and pressures, finding true happiness can often feel like an elusive quest. We are constantly told what we should do, who we should be, and how we should live our lives. But what if the key to happiness lies not in conforming to societal norms, but in embracing our true selves? What if the path to happiness is paved with authenticity and self-acceptance?
Boldly stepping onto the path to happiness requires a willingness to break free from the shackles...2023-08-1615 minA Mama’s Xtra LoveAn Update from FRAXA Research Foundation’s Katie Clapp & Holly Roos!I had the pleasure of welcoming Katie Clapp and Holly Roos from FRAXA Research Foundation on this weeks episode of Talk Fragile X! Katie and Holly talked all things World Fragile X Day 2023, as well as FRAXA’s significant research advancements that have been made this year, and what they look forward to in 2024. You don’t want to miss this episode!2023-08-1224 minA Mama’s Xtra LoveFragile X Awareness Month & A Suprise Announcement!Fragile X Syndrome is the leading genetic cause of Autism. It's caused by a mutation of the FMR1 gene responsible for cognitive and behavioral development. Fragile X is often passed on unknowingly. The month of July is Fragile X Awareness Month! An opportunity to continue to spread more awareness of Fragile X, and celebrate the organizations like FRAXA Research Foundation and The National Fragile X Foundation and their efforts to support and find effective treatments for individuals living with Fragile X. It's also an important opportunity to spread awareness of Fragile X to those who may not have otherwise...2023-06-3027 minA Mama’s Xtra LoveLife Update!I'm back! It's been several months since I've released a new episode. It's been a hard last couple of months for so many reasons. I shed some more light on this in the episode, and I hope you'll take a listen. Don't worry, I'm not missing Autism Awareness Month!!2023-04-1227 min
A Mama’s Xtra LoveThe One Where It's The First Episode of 2023!!It's crazy that we are in 2023 now! I had a great time off my podcast duties for the last month or so of December, and now I'm ready to get to work! What better way to kick off the new year with a rare vulnerable episode. I don't often share life updates, but this one in particular I felt was important. Tune in to hear more! 2023-01-1917 minA Mama’s Xtra LoveThe One Where It's The Last Episode of 2022!If you caught the Friends reference in the title, big thumbs up to you! If not, it's okay, you're still welcome here! It's crazy to think this is our last episode of 2022, but we are here! I will be taking a break from the podcast world for the remainder of the year to spend time with family. I will also be taking this time to continue making plans for 2023. I'm excited for another year of growth, advocacy, and connecting with all of you in the Fragile X community. Be sure to tune into this week's episode. There's so much...2022-12-1420 minA Mama’s Xtra LoveIt's Disability Employment Awareness Month!In this week's episode, I talk about the importance of Disability Employment Awareness Month, and how it's an opportunity to talk about the transition for our neurodiverse peers from high school to competitive integrated employment. Which is one of the biggest changes our neurodiverse peers face! For many of our children, routine is an essential part of their day to day lives. As well as a consistent environment. Both of these consistencies change once they face adulthood. As well as the opportunity for our neurodiverse individuals to experience employment and all that it entails. As a CRP (Community Rehab...2022-10-2628 minA Mama’s Xtra LoveWhat More Special Needs Families Should Be Talking About! With Special Guest: Ashley ZazuetaSomething that doesn’t seem to be talked about enough is the journey of finding the right therapists for our special needs children! For so many families, this can be a very challenging and emotional process. Ashley shares her journey of finding the right therapists for her full-mutation Fragile X son, Sebastian. She shares her emotional journey, as well as encouragement of important characteristics to look for in a therapist! She also shares a powerful reminder of why momma’s know their kiddo’s best!2022-10-1459 min
A Mama’s Xtra LoveLife Update!Happy September! On this weeks episode of Talk FX I share some life updates and the importance of encouraging our neurodiverse peers to expand their comfort zones, and how I've been able to see this first hand. Tune in and subscribe to Talk Fragile X Podcast!2022-09-0921 minA Mama’s Xtra LoveA Raw Conversation with Andrea MillerAbout a year ago, I had the pleasure of meeting Andrea when she reached out to me on social media one day. We ended up connecting on a phone call and talked about life, family, faith, and of course Fragile X for over an hour! Since then, we talked about continuing our conversations on a future podcast episode. However, life got busy for both of us, and Andrea and her husband welcomed a precious baby girl to their now family of 5. The timing of us getting together to do this episode could not have been better! I’m so grateful fo...2022-08-221h 09A Mama’s Xtra LoveWe Must Do Better!This is an important episode that I hope you will listen to, share, and be encouraged by. I also hope that you will hear my heart in why we have work to do to continue to work towards a more inclusive environment for our neurodiverse peers!2022-08-1525 min
A Mama’s Xtra LoveHow do we maintain hope? (Part 1)Maintaining hope in our lives is a daily journey. Whether you're a parent of someone with Fragile X, self-advocate or full-mutation carrier. Often times the amount of hope we have is dependent on how our day is going, how our children are behaving, or discouragement in general. Not to mention our hope in having better treatments for our children affected by Fragile X, or even a cure! On this week's episode of Talk FX, I share from a raw and personal perspective of my own journey of maintaining hope and how it's been going lately. I also share what...2022-08-1025 minA Mama’s Xtra LoveSpecial Guest: Stephanie Hanrahan Blogger & Founder of the Non-Profit Labeled and LovedStephanie Hanrahan was just your seemingly average housewife until she grew tired of pretending and decided to make her private journal public. Since sharing her story, Stephanie has achieved viral success with her website Tinkles Her Pants, which chronicles her journey as a wife to a husband with chronic illness, mother to two children with Autism, and a woman who often unravels then finds her footing again. She can be found sharing nothing but the truth on the Today Show, CNN, Yahoo! News, The Daily Mail, and most recently her TED Talk: The problem with being perfect. Stephanie is also...2022-07-2836 minA Mama’s Xtra LoveFear & Anxiety Part 2 With Kirsten FowlerI can’t say enough about Kirsten Fowler! She’s a mother to three children with full-mutation Fragile X, is a female Full-Mutation carrier just like myself, and is overall just one of the most kind and genuine individuals that I’m so blessed to have met! When thinking about how I wanted to create part 2 of the Fear & Anxiety episode, I immediately sent Kirsten a message asking if she would be willing to join me in talking about fear and anxiety not only from a carrier perspective, but also from her three kids perspectives as well. Fear and anxiety are no...2022-07-1550 minA Mama’s Xtra LoveTHIS is why inclusion is important!This is an important episode that I hope each and every one of you will take the time to listen to! Please share with your friends, family and whoever else that you feel could benefit from hearing this message. Let's continue to create a more inclusive, understanding and supportive environment for our neurodiverse community! 2022-07-1520 minA Mama’s Xtra LoveFear & Anxiety Part 1As we continue Fragile X Awareness Month, I think fear & anxiety as it relates to being a carrier of Fragile X Syndrome is so important to talk about and encourage one another in! It's not always easy for me to be open about the effects of Fragile X in my life, but I hope it will encourage even just one listener! Awareness is not just for a month, it's every day we wake up in the morning! Subscribe to Talk Fragile X Podcast and leave your review on Apple Podcast. 2022-07-0818 min
A Mama’s Xtra LoveIt's Fragile X Awareness Month 2022!Fragile X Awareness Month is here! For the whole month of July, we are going to be releasing weekly episodes in effort to be a part of supporting, educating and creating more awareness of Fragile X Syndrome! I'm so excited to kick off awareness month joined with my husband Moe! We talk about what it means to be an advocate, female full-mutation carrier, National Fragile X Conference, and much more! Share Talk Fragile X podcast with your friends, family, educators, neighbors, etc.! Help us make this an impactful awareness month of 2022!!2022-07-0130 minA Mama’s Xtra LoveWorld Fragile X Day with Special Guests: Katie Clapp & Holly Roos with FRAXA Research FoundationOn this weeks episode of Talk FX, I’m joined with President & Co-Founder of FRAXA Research Foundation, Katie Clapp! As well as the Community Services Director, Holly Roos! We chat about all things World Fragile X Day 2022, research, the re- naming of the FMR1 gene responsible for Fragile X, and more!2022-05-2328 minA Mama’s Xtra LoveA Conversation with Kirsten Fowler, Author of Family, Faith & Fragile XIn this weeks episode I’m joined with Author, Kirsten Fowler! Mother of four children, with three having Full-Mutation Fragile X Syndrome. Kirsten shares about her vulnerability and inspiration behind writing her book, what it’s like being a mother to three children with fragile x, and much more!2022-05-1640 min
The Jen Marples Show for Midlife WomenUnapologetic Confidence & Living Life on Your Own Terms with Christina Glickman, TEDx Speaker & Creator of XTRA Love ArmyThe moment you stop the pursuit of trying to please everyone is the moment you will find your freedom. This week, episode 58 of The Jen Marples Show is about unapologetic confidence & living life on your own terms!In this episode of The Jen Marples Show, my guest Christina Glickman, TedX speaker and author, shares the value in letting go of caring what other people think and the actionable steps you can take right now to live the life you have always wanted to live. Some of the talking points Christina and I go over in t...2022-04-2847 min
A Mama’s Xtra LoveExciting News for The Fragile X Community!!This week's episode is a special one!! I'm sure so many of you have seen the news of the change in name of the FMR1 gene responsible for Fragile X Syndrome! This has been a long time coming! I'm looking forward to how this positive step forward creates a more appropriate and factual description of Fragile X Syndrome and moving away from the negative connotations. In this episode, I talk about the history of the FMR1 gene, why this is an important step forward as a female full-mutation carrier, and much more! You don't want to miss this episode!!!2022-04-1822 min
Multidimensional with Christina The Channel517: Christina Glickman on Confidence & the Art of Being XtraChristina Glickman is the mother of four, TEDx speaker, host of the podcast Xtra: Life & Style Unscripted, author of the best selling book Xtra: The Art of Being, and founder of the women’s movement, The Xtra Love Army.After leaving the world of advertising Christina focused her talents on becoming a champion of women. Christina works with women around the country, dedicated to helping them walk through life with unapologetic confidence. Her powerful message on reclaiming your voice inspires women to intentionally show up for themselves, every day. To live a life with a lit...2022-04-181h 20A Mama’s Xtra LoveSpecial Guest: Kate Swenson Author of Forever Boy: A Mother’s Memoir of Autism and Finding JoySurprise!!! On this weeks episode of Talk FX, I had the pleasure of chatting with Author, Blogger, and Mother of 4 children, Kate Swenson! Kate was recently on the Today Show promoting her new book and sharing a snippet of her and her son Cooper’s story! Since then, her new book has become a Best Seller on Amazon!! When she agreed to be a guest on Talk FX, I about jumped out of my chair! It was such a pleasure to welcome Kate on the podcast and talk about her journey in writing Forever Boy, her blog Finding Cooper’s Voic...2022-04-1126 minA Mama’s Xtra LoveAutism Awareness MonthIt's Autism Awareness Month!! On this week's episode of Talk FX, we not only discuss the mission of Autism Awareness Month, but we also break down what Autism is and how individuals with Fragile X Syndrome are often co-diagnosed with Autism. I also share a bit of my 13-year-old cousin's journey of being diagnosed with both Autism and full-mutation Fragile X. You don't want to miss this episode!2022-04-0524 minA Mama’s Xtra LoveAnother Fragile X Diagnosis Story with The Knudson Five family!On this weeks episode of Talk FX, I’m joined with Sara Knudson, a passionate mom of three children, with two of the three being affected by Fragile X Syndrome. Sara shares about her children’s diagnosis stories, the struggles, the joys, and the amazing resources and support they have available in their home state of Illinois! It was such a pleasure to have Sara on Talk FX! You don’t want to miss this episode!2022-03-2341 minA Mama’s Xtra LovePrioritizing Self-Care in Your LifePrioritizing self-care is not always simple! Whether you're a mom of a fragile x child, self-advocate, or full-mutation carrier, it can be challenging to find time for yourself to be alone or do what helps you to reset or re-energize! In this week's episode of Talk FX, we discuss not only the importance of prioritizing self-care in your life, but also the different forms of self-care to consider implementing into your daily, weekly, or monthly life.2022-03-1422 minA Mama’s Xtra LoveAdvocacy Day 2022 is here!!On Tuesday, March 1st the National Fragile X Foundation will be having their annual Advocacy Day virtually! This is an opportunity for families affected by Fragile X Syndrome, caregivers, self-advocates, doctors, and researchers to meet with their members of congress and be an advocate for fragile x. Whether that's sharing your fragile x diagnosis story or advocating for continued funding in research! It's an empowering opportunity to be a part of the fragile x community! On today's episode we also talk about the other important aspects of advocacy! We hope you leave this episode feeling encouraged as a self-advocate...2022-02-2222 min
A Mama’s Xtra LovePreparing your Fragile X child for EmploymentIf you're reading the title of this episode and you're thinking "this doesn't pertain to us yet, think again!" In this week's episode of Talk FX, we discuss what it looks like to prepare our children for employment. We understand that there is a pretty big spectrum of families in the Fragile X community with children that have either had employment experience, volunteer experience only, or maybe even hasn't had a job before! Well, we are not only going to discuss what the employment process can often look like for individuals with developmental delays, but we are also going to...2022-02-0944 minA Mama’s Xtra LoveA raw conversation with family about Fragile X SyndromeOn this weeks episode of Talk FX, it was so special to welcome my Aunt Michelle and Uncle Jeff, and my cousin Nathan for a raw family conversation about Fragile X Syndrome. We discussed the education system, advocacy, fragile x experts, supports and much more. I’m so thankful for my family and their willingness to join me on Talk FX. We hope this episode brings you encouragement and hope for your family.2022-01-2447 minA Mama’s Xtra LoveHow FRAXA Research Foundation is keeping hope alive for a cure for Fragile X!Joining us for our second episode of 2022 is President & Co Founder of FRAXA Research Foundation; Katie Clapp! She shares with us the exciting research proposals coming up for FRAXA to support, the 2nd annual World Fragile X Day on July 22nd, 2022 and how you can be involved, and much more!2022-01-1850 minA Mama’s Xtra LoveMy Fragile X Diagnosis Story with Special Guest: My Husband Moe Smith!What better way to start off the new year then kicking off Season 5 of Talk FX with a very personal episode! I'm excited to have my husband Moe on with me for the first time ever! We talk about my diagnosis story, how fragile x has affected our relationship, the hardships, and more. In the countless episodes of Talk FX that I've done, I have had yet to get more personal or vulnerable. However, last year I was so encouraged and inspired by the many families that boldly and courageously shared their FX diagnosis stories with me on Talk...2022-01-1046 minA Mama’s Xtra LovePreparing for Doctors AppointmentsCheers to our very last episode of 2021!! I've had many conversations with Fragile X families in the last few months regarding a topic that is so important. I've also seen so many families reaching out for support on this topic as well. That is on preparing our children for doctor's appointments! There are so many factors that come into play in preparing our children for doctor's appointments. I hope that the encouragement we offer is helpful to our fragile x community in supporting your child in the best way possible! You don't want to miss this episode! 2021-12-2121 minA Mama’s Xtra LoveTransition from Grade School to Adulthood: Part 2!In this episode of Talk FX, we dive deeper into the important topic of transitioning from grade school to adulthood for our FXer's! Where do I start? What questions do I ask? What services are available in my state? Whether you're a newly diagnosed family, self advocate, full-mutation carrier, or you just stumbled upon this podcast, you don't want to miss this episode!2021-11-2930 minA Mama’s Xtra LoveGiving Tuesday!On Tuesday, November 30th it’s National Fragile X Foundation’s Giving Tuesday! We discuss how this annual day of giving is an amazing opportunity to make a difference in the lives of families affected by Fragile X Syndrome. Tune into this weeks episode to learn how you can be apart of Giving Tuesday!2021-11-2411 minA Mama’s Xtra LoveWhy Advocate?On this weeks episode of Talk FX, we focus on one of the most impactful aspects of Fragile X Syndrome, and that’s Advocacy! With Advocacy Day a few months away, it’s important to start thinking about how you can participate! But that’s not all, we can be apart of advocacy in other ways as well that make a difference in the lives of individuals with FX. Tune in to find out what those are!2021-11-1716 minA Mama’s Xtra LoveTransition from Grade School to AdulthoodWhat does the transition from grade school to adulthood look like for your FX child? In this weeks episode, we talk about what challenges are involved in this particular transition in an individual with FX’s life, and the supports that are available! It is so vital to provide these resources, and ensure the best transition possible for our children! This is a topic that can’t be discussed and shared on enough!2021-10-0121 minA Mama’s Xtra LoveWe’re back! With Special Guest: Dr. Randi HagermanIn this weeks episode of Talk FX, we are joined with a very special guest, Dr. Randi Hagerman! She is a distinguished professor of Pediatrics at the University of CA Davis Medical Center, and is the director of the Fragile X Research and Treatment Center at the MIND Institute. It doesn’t end there! Randi Hagerman has made, and continues to make a significant impact in the fragile x community because of her efforts! You don’t want to miss this episode!2021-09-2843 min
Off The Chart: Xtra’s L Word podcastCringe, the Musical“I ain't singing no damn karaoke song, okay? This voice is reserved for the shower” —Sophie SuarezTo our patron saints Tegan and Sara: We are sorry. This week’s episode of The L Word: Generation Q was deeply chaotic, and yet our favourite L.A. lesbians still managed to find time to butcher a classic queer bop. At least we’ll always have “Love Shack.” Plus: Micah and Maribel miscommunicate, Dani and Gigi heat up and Alice and Tom get it on. Xtra's senior editor Erica Lenti and managing producer of video Chelle Turingan host.Featuring: 2021-09-1424 minOff The Chart: Xtra’s L Word podcastEverybody Loves Gigi“You look like you could use a night out.” —Gigi GhorbaniOh,The L Word: never change. Three episodes into Generation Q Season 2 and we’re already back in love-triangle territory. In the Bette-Gigi love ring, a new fighter has emerged—and it’s, shockingly, Dani. Plus, Angie has a sister, Alice has an editor, Bette has an artist crush and Shane and Tess have a lot of moola. Xtra's senior editor Erica Lenti and managing producer of video Chelle Turingan host.Featuring: Erica Lenti @ericalentiChelle Turingan @chelleturinganProducer and editor: Chell...2021-08-2316 minA Mama’s Xtra LoveWorld Fragile X DayWe’re excited to be back with a new episode of Talk FX, after taking a pause. What better way to kick things off then to have special guest Katie Clapp, Founder of FRAXA Research Foundation on with us to share about the launch of World Fragile X Day. She shares how this idea came about, how others can get involved, and how other organizations across the nation have joined World Fragile X Day. You don’t want to miss this episode!2021-06-0326 min
Xtra Time Podcast#121 FA Cup Loves Me and I Love the FA CupLeicester City have reached their first FA Cup final since 1979 and Kelechi had some choice words to say about it.Is football about to change forever? In this episode we breakdown on the Introduction of the ESL and how it changes football as we know it. Your favorite news segment is also back on this one as well as preview and review of the stand out games across Europe. Comment below on your thoughts on the ESL as well as any other topics you feel we missed out.Listen and share with a football fan.2021-04-2056 min
Rec Room Radio XtraValentines Music Special With 'The Autistic YT'Chandler is here today on Valentine's Day, across Rec Room Radio on Zeno FM to provide you with some greatest love songs of all time. Missed the show, listen to the show on 'Rec Room Radio Xtra on YouTube & Mixcloud.2021-03-1434 minA Mama’s Xtra LoveSpecial Guest: Brandy - Two boys with Full-Mutation Fragile X SyndromeIn this weeks episode, we chat with our Instagram Giveaway winner Brandy! Her and her husband have two boys (ages 3 & 6) with Fragile X. She shares how they navigate life, how much support they’ve found in their tight nit community, and talk about what being a Fragile X Parent is all about - the joys and the struggles!2021-02-2538 minA Mama’s Xtra LoveSpecial Guest: Katie Clapp (President & Co-Founder of FRAXA Research Foundation)We’re back with another episode of Talk FX! What better way to kick things off after a short break from our weekly episodes then to have Katie Clapp, President & Co-Founder of FRAXA Research Foundation join us! She shares with us the history of FRAXA, the motivation behind starting the foundation, how they choose Fragile X related research to fund, and much more!2021-02-1330 minA Mama’s Xtra LoveADVOCACY DAY 2021!It’s a new year, that means another Advocacy Day is upon us! We are excited about what 2021 holds for the Fragile X Community, and gaining more awareness and support for FX! Even though this year’s Advocacy Day will be virtual, we know it’s going to be just as impactful of a day, if not more! So on today’s episode, we go into details on what this year’s Advocacy Day is going to look like, why it’s so important to participate, and more!2021-01-1410 minA Mama’s Xtra LoveApproaches to Handling Aggressive Behavior & DisciplineIn this weeks episode we’re joined with Debbie! She has a 13 year old son with Full-Mutation Fragile X and she shares with us her experiences with aggressive behavior & discipline as a Mother, and as a Paraeducator! We talk about the importance of patience and communication! As well as helpful resources like PEC’s if your child is non verbal. We also talk about physical approaches to relieving your FX Child of anxiety or hyperarousal. Such as a weighted blanket, a swing, or beanbag chair! We hope you are encouraged by today’s discussion!2021-01-0944 minA Mama’s Xtra LoveWhat Has Fragile X Taught You??In our first episode of 2021, I’m joined with Talk FX Podcast Team Member and FX Mom Kelsie! We wanted to start off the new year by talking about what Fragile X has taught us! We also talk about how to make the most of socializing our kids during this Pandemic, as well as successful and non-successful medications for things like anxiety and sleep aid! You don’t want to miss this encouraging episode!2021-01-0435 minA Mama’s Xtra Love2020 Wrap Up!In our last episode of Talk FX of 2020, we go over our top 5 most listened to episodes!! You don’t want to miss it! Thank you to each and every one of our listeners for your support since starting Talk FX in May of this year! This podcast wouldn’t be possible if it weren’t for you tuning in every week! We hope you’ve been encouraged by this podcast, and we look forward to continuing to encourage, and create more awareness of Fragile X in 2021! Happy Holidays and we’ll see you in the New Year!!2020-12-2013 minA Mama’s Xtra LovePerspective From a Single Mom of Fragile X Full Mutation Carrier JaxonIt’s our 20th episode of Talk FX and we’re joined with Amy, Mom to 10 Year old son Jaxon with Fragile X Syndrome! We talk about his diagnosis story, education, potty training, milestones, bullying, and more!! You don’t want to miss this episode!2020-12-1247 minA Mama’s Xtra LoveNavigating Distance LearningIn this weeks episode of Talk FX, we wanted to discuss a current topic that we’ve been seeing a lot of Fragile X Families needing some support with, and that’s navigating distance learning! Is your child currently participating in distance learning? Or are they doing half distance learning and half in person? Tune into this weeks episode as we chat with Debbie, Mom of Skyler with full-mutation FX! She shares with us what her son’s journey with distance learning has looked like, some encouragement for other parents, and some tips we hope will be helpful to our FX Com...2020-09-2633 min
The XTRA PodThe XTRA Pod #5: Nadine Verceles & Xyron HernandezSay hello to the first Clubber Couple of The XTRA Pod! Mio's got his pair of lovely friends Nads and Xyron to come on the show as they share their takes on relationships, quarantine behaviors and all other things fun and wholesome for anyone single or taken, straight from the heart of two lovers.
Timestamps
0:00 Introduction
1:05 How Xy and Nads met
4:27 How they ended up dating
8:54 Should couples be friends first before they start dating?
10:27 Pre-quarantine dating life
13:12 Thoughts on Philippine...2020-09-2454 minThe XTRA PodThe XTRA Pod #3: Anton VenturaIn this third episode of the XTRA Pod, Jay is on call today with beatmaker/producer Anton "justo" Ventura to talk about all things related to music. Pop in this episode if you want to hear music recommendations, musings on the local music industry, gatekeeping, J-Coasta, struggling artists, the emerging online gig movement and many more!
You can catch Anton's 2017 album on Bandcamp through this link: https://buwanbuwancollective.bandcamp.com/album/catching-orbits
*For transparency, some names were censored here at the request of the guest speaker!
Timestamps
0:00 Frontliners’ Ki...2020-09-1253 minA Mama’s Xtra LoveFragile X Author Series: Jayne Dixon WeberJayne Dixon Weber is no stranger to the Fragile X Community! She has been a member of the National Fragile X Foundation since 2007! She has authored and edited multiple books on Fragile X. She is also a Mother to an adult son with Fragile X Syndrome. On this weeks episode of our Fragile X Author series, Jayne talks with us about what moved her to write her books on Fragile X, her experience as a mother to a son with FX, and her impactful work with NFXF! Don’t miss this amazing interview with the one and only Jayne Dixon We...2020-09-1039 minA Mama’s Xtra LoveFragile X Author Series: Cindi RogersCindi Rogers is the mother of two sons with Full-Mutation Fragile X Syndrome, ages 29 and 31. Jake, her oldest son was diagnosed in 1991, just days after her youngest son was born, at which time he was also diagnosed. After some years of grieving, she and her husband, with the help of many experts in the Fragile X field, found ways to create a manageable, productive, and relevant life as a family. It has been her personal mission to share these strategies in hopes of generating ideas that families can implement in their own lives, while living with Fragile X Syndrome. Thus...2020-09-0238 minA Mama’s Xtra LoveFragile X Author Series: Elizabeth GriffinElizabeth Griffin is the author of the book Fragile X Fragile Hope, and is the Mother of Zack, a 23 year old young man with Fragile X Syndrome. Learning that she was a Fragile X Carrier in her mid- 30’s helped her to understand a lot about herself and her responses to life. Parenting Zack and his older brother, who is a carrier, has made her a better person by the grace of God. You don’t want to miss this episode!2020-08-2739 minA Mama’s Xtra LoveA Fragile X Diagnosis Story Series: Episode 4On this weeks episode of Talk FX, we’re joined with Ashley, mom of her 2 year old son Sebastian who has full- mutation Fragile X. She shares the process of receiving the FX diagnosis and all the emotions that come with it. Ashley also shares how important it is to be an advocate for Fragile X, and what that looks like. You don’t want to miss this LAST episode of our series Fragile X Diagnosis Stories! It is so important to have support as a newly diagnosed FX family!2020-08-2341 minA Mama’s Xtra LoveA Fragile X Diagnosis Story Series: Episode 3On this weeks episode of Talk FX, we continue with episode 3 of our serious “Fragile X Diagnosis Stories.” We have the pleasure of talking with Katie, Mom of Quinton who was diagnosed with Fragile X at 16 months old. Katie learned about FX when she was pregnant with Quinton. She found out her sisters were premutation carriers during that time. It was definitely a shock for her and her family, but Katie’s outlook is inspiring! We know it will be inspiring for the FX community as well!2020-08-1130 minA Mama’s Xtra LoveA unique Fragile X Diagnosis StoryIn this week’s episode of Talk FX, we’re joined with Ashley, who has a 19 month old boy named Austin with the full-mutation Fragile X Syndrome. She shares with us her sons unique diagnosis journey that started at only 1 month old.2020-08-0434 minA Mama’s Xtra LoveA Fragile X Full-Mutation Diagnosis story from a Mom of 2 FX Children - Boy & GirlIn this weeks episode of Talk FX, we are joined with special guest Erika Vasquez who shares with us her FX diagnosis journeys for her son and daughter! She also shares her perspective on the upcoming school year and the important decision on virtual education vs. in-person education for children with Fragile X!2020-07-3056 minA Mama’s Xtra LoveStep Up for Fragile X with FRAXA Research FoundationIn this weeks episode, we welcome back the FRAXA Research Foundation! We talk with Elle Skala, creator of The Step Up for Fragile X Virtual Event for Fragile X Awareness Day! She discusses the purpose of the event, how YOU can get involved, and much more!2020-07-2015 minA Mama’s Xtra LovePotty Training & Life Skills for children with Fragile XIn this weeks episode of Talk FX, we’re joined with Wendy and Debbie, Both Mom’s of boys with Fragile X Syndrome. They get real about the journey of potty training children with FX! The successful and non-successful approaches, and recognizing that every child’s journey is different! Wendy and Debbie also share their children’s life skills strengths and their capabilities of being independent! July is Fragile X Awareness Month!2020-07-1529 minA Mama’s Xtra LoveFragile X Awareness Month & The NFXF International Fragile X Conference Virtual SeriesIn this weeks episode of Talk Fragile X, Mom’s of Children with FX, Kelsie and Debbie share the importance of Fragile X Awareness month, and ways to create more awareness of FX even during these current times of social distancing! We also talk about how the NFXF International FX Conference has been impactful so far, and the importance of utilizing these virtual series as resources - whether you’re a newly diagnosed FX family, self-advocate, sibling of a child with FX, or a full-mutation carrier!2020-06-3035 minA Mama’s Xtra LoveA Fragile X Carrier’s journey using IVF (In Vitro Fertilization)In this weeks episode of Talk Fragile X, Priscilla shares her journey of finding out her Fragile X Carrier status, and how her and her husband decided to use IVF (In Vitro Fertilization) in their journey of having children. This is a procedure that is used to aid in fertility or prevent genetic complications. As well as to assist in the conception of a child.2020-06-1636 minA Mama’s Xtra LoveFrom the Perspective of a Newly Diagnosed Fragile X FamilyIn this weeks episode of Talk FX, we have the pleasure of talking with Samantha and Paul, parents of their 18 month old son who was diagnosed with Fragile X Syndrome just 2 months ago! We are excited for you to be encouraged by their perspectives on this new journey of theirs, and the way they advocate for their son on a daily basis. This episode can be especially encouraging for other families who have received a new diagnosis.2020-06-0925 minA Mama’s Xtra LoveSpecial Guest: AMP (Autism Movement Project) Sports & FitnessWe had the privilege of getting to know all about AMP (Autism Movement Project) Sports & Fitness! They’re an organization that works with kids and adults with developmental delays (such as Autism, Fragile X Syndrome, Down Syndrome, etc.) We talk about their mission, success stories, envisions for AMP, the importance of inclusion for special needs individuals, and much more!2020-06-0237 minA Mama’s Xtra LoveSpecial Guest: FRAXA Research FoundationIn this weeks episode, we talk with David Bjork, Director of Community Relations at FRAXA Research Foundation. He shares on the background of FRAXA, where they were at when they started, and where they are today with FX clinical trials and their efforts to find a cure for Fragile X Syndrome!2020-05-2922 minA Mama’s Xtra LoveFinding out you’re a Fragile X Carrier!When you find out the news that you’re a Fragile X Carrier, it is often a difficult time, especially for those that may not have even heard of FX before! Well you’re not alone! In this weeks episode of Talk FX, Nicole shares her journey of how Fragile X has affected her life, and how she has used her story to create more advocacy and awareness of FX in her community!2020-05-2210 minA Mama’s Xtra Love“Fragile What??”When families receive the diagnosis that their child has Fragile X Syndrome, you often hear “Fragile What??” In this episode, Michelle and Kaitlyn, both Mom’s of Fragile X Children, share their inspiring FX diagnosis stories!2020-05-1325 minA Mama’s Xtra LoveSibling of Full Mutation Fragile X Child InterviewIn this weeks episode, 14 year old Annabelle answers questions on what it’s like being the sibling of a Fragile X Child. As well as how important it is to her to be an advocate for her younger brother who has the full mutation of Fragile X Syndrome.2020-05-0808 minA Mama’s Xtra LoveAn Intro to Talk FXThank you for tuning into our very first episode of Talk FX! In this episode you will hear about how Talk FX was formed, our mission & purpose, and what you can expect in episodes to come! We are excited to connect with fragile x families in the NW Region and be able to share our resources, encouragement, our individual Fragile X stories, and more! Look out for our next episode regarding important topics on Fragile X Syndrome coming soon!2020-05-0307 minOff The Chart: Xtra’s L Word podcastWelcome Back, Kennard“Look around. I’m wrong all the fucking time.” — Bette PorterShe’s baaaaaack! Tina Kennard, the other half of the famed TiBette, has returned to the cast of our favourite L.A lesbians—and in typical The L Word fashion, things are getting saucy. In this sixth episode, Bette and Tina hash out the past, Dani does damage control on Bette’s mayoral campaign, Angie confesses her love for Jordi, Shane makes a big decision on parenthood, Sophie and Finley get closer during bro night, and Alice and co. continue to navigate their throuple. And where’s Micah, you ask...2020-01-1318 minOff The Chart: Xtra’s L Word podcastThe Uncle Shane and Mama B Show“We never get any good words. Vulva, labia, throuple!” — Alice PieszeckiNever mind what you want; Episode 5 of The L Word: Generation Q is begging you to tell us what you need. We catch up with our hungover favourites post-Shane McCutcheon 40th birthday bash, and everyone’s trying to get their priorities straight: Alice is navigating throupledom, Bette’s trying to be a better mom, Shane’s forced to contemplate parenthood, Dani is shutting down her daddy and Micah’s exploring love and sex with Jose. Poor Finley, meanwhile, is still a hot mess—and in desperate need of some gui...2020-01-0613 minOff The Chart: Xtra’s L Word podcastGood Things Come in Threes“I got divorced on my birthday!” — Shane McCutcheonWe’re halfway through the season and it’s one big reveal after another in the fourth episode of The L Word: Generation Q. Bette finally explains why she’s running for mayor (rest in power, Kit). Finley gets drunk and tells Rebecca she’s in love. Dani finds out Bette is still sleeping with Felicity. Jose shows Micah what he really wants. Tess figures out what’s been going on between Lena and Shane. Shane clarifies why she and Quiara broke up just before Quiara makes a surprise entrance at Shan...2019-12-3121 minOff The Chart: Xtra’s L Word podcastL to the Q“That hiatus felt really long. It felt like a decade, right?” — Alice Pieszecki It’s finally here! This episode we look ahead at The L Word: Generation Q. No spoilers, we promise! We talk about what’s changed for queer women and trans people in politics and visibility in the 10 years since the original series wrapped in 2009. We share our hopes for Generation Q: Better trans representation! More racial diversity! Lots of queer drama! We offer our first impressions on the new series and get to know the new characters, Dani, Sophie, Finley and Micah. We pour one out for...2019-12-0426 minOff The Chart: Xtra’s L Word podcastLesbian Whisperer“It’s not my job to make you a better man” — Jenny Schecter Whew girl, that is the truth! And there’s a whole lot more truths (and lies) in the second season of The L Word. We recap the love triangles—Bette/Tina/Helena; Dana/Tonya/Alice; and Jenny/Carmen/Shane—as well as some dark truths about our beloved L.A. queer women. We explore the rubble left in Bette and Tina’s explosive breakup—and Tina’s pregnancy; Kit’s alcoholism; Jenny’s traumatic childhood; Shane’s inability to just commit; and a super gross voyeurism/lesbian fan...2019-11-0631 minOff The Chart: Xtra’s L Word podcastLez Begin“Am I crazy? Am I drunk? Am I hallucinating?” — Jenny Schecter It’s the “Off The Chart” pre-party! Before we start our season-by-season recapping, this premiere episode digs into lesbian, bisexual and queer culture circa 2004 and breaks down the impact of The L Word’s launch. Meet our recap crew, two who watched the original series as it aired, and two youngster late-comers. (There’s even one of us who loves Jenny.) Revisit the Riot Grrrls and New Queer Cinema, remember that summer we all said, “That’s hot,” regret those low-rise flares—and get ready to live, laugh, love and lis...2019-10-3025 min
Music FridayLive!We are Twin: XTRA LOVE released. Willodean debut albumWE ARE TWIN.. Germany-raised Sri Lankan multi-instrumentalist and producer Nicholas Balachandran met New York-born and bred singer songwriter Gabi Christine during a 2009 songwriting session and the result was fifteen songs and WE ARE TWIN. In 2013 Zackary Smith (Bass, Keys, vocals) & Justin Frazier (drums) joint the group. The group just finished their debut album called "xtra love" release this November, blazing a trail for a punk rock, soul & Pop aesthetic that stood out immediately. And they have a musical webisode series. We will talk about all of it this Friday.
LA-based three-man band, Willodean, chronicles longing, loneliness, and lost loves, Willodean is...2014-12-1200 min