Shows
Dementia DiscussionsReimagining Dementia Care: How the Hummingbird Project Sparks Joy, Connection, and PurposeIn this episode of Dementia Discussions, I am joined by Elizabeth Fluck and Meredith Eden of The Hummingbird Project, and what a meaningful conversation this turned out to be. If you’ve ever wondered how to truly enhance quality of life for someone living with dementia—not just manage symptoms, but spark joy—this episode is for you.We talk about the power of social connection, therapeutic engagement, and why isolation can be so detrimental, especially for seniors and those who cannot easily advocate for themselves. Elizabeth and Meredith share how their strength-based, individualized approach is transforming dement...
2026-02-1153 minDementia DiscussionsNavigating Dementia From Afar: Lisa Jo on Caregiving, Grief & Unexpected BlessingsIn this episode of Dementia Discussions, I sit down with Lisa Jo, a longtime member of the support group I co-lead at the Mary S. Easton Center for Alzheimer’s Disease Research at UCLA. Lisa has been navigating the complex, emotional, and often overwhelming role of long-distance caregiving, and today she opens up about her mother’s dementia journey, her father’s decline, and what it was like to step into full-time caregiving during one of the most difficult times in her family’s life.Lisa shares so honestly about the unexpected challenges she face...
2026-01-1443 minDementia DiscussionsThe Soul Doesn’t Get Dementia: Connecting Beyond Words in CaregivingIn this episode, I sit down with dementia counselor, educator, and author Tami Anastasia for a deeply meaningful conversation about what really drives behavior in dementia care. We go beyond surface-level symptoms and talk about the powerful role personal history, emotional patterns, and past trauma play once the brain can no longer filter or suppress them. This is one of those conversations that can completely change how you see dementia caregiving.Tami joins me to discuss her newest book, Dementia Caregiving & Personal History: How to Help Cope, Connect, and Heal, and why this...
2025-12-1742 minDementia DiscussionsWhen Words Fade: Christine's Story of Love, Loss, and AdaptationIn this heartfelt episode of Dementia Discussions, I sit down with Christine, a member of my Alzheimer's Los Angeles caregiver support group and a wife navigating the difficult journey of her husband Steve's early-onset dementia. Christine and I talk about their 46-year marriage, how his brilliant legal career slowly unraveled, and the emotional toll that comes with losing the person you love in pieces.Christine shares her personal reflections with honesty, humor, and wisdom. From the early warning signs she didn't recognize, to the agonizing process of telling their adult children and his law firm, to letting...
2025-11-0559 min
Dementia DiscussionsDementia, Caregiving & Exit Strategies: A Conversation with Madeline JayeThis week on Dementia Discussions, I sit down with someone very close to my heart—my childhood best friend, Madeline Jaye. We reconnected after many years, and I was deeply moved to learn that she’s been navigating her own journey as a caregiver to her mother, Bonnie, who now lives with Alzheimer’s and other forms of dementia. Madeline doesn’t just share her caregiving story—she’s also transformed her experience into a one-woman play that’s as hilarious as it is heartbreaking.In this episode, Madeline and I reflect on what it means to care for someo...
2025-09-1753 minDementia DiscussionsA Son’s Devotion — Steve Lavapies on Navigating Caregiving, Decline, and ConnectionI’m honored to welcome Steve Lavapies, a devoted son and a thoughtful member of one of our UCLA caregiver support groups. Steve shares the deeply personal journey of caring for his mother, a brilliant and resilient woman who immigrated to the U.S., became a physician, and faced a long and complex decline due to physical illness and dementia.In this episode, Steve opens up about the realities of caregiving as an only child, the emotional and logistical weight of moving his mom through assisted living, memory care, and ultimately hospice. We talk about guilt, grief, re...
2025-09-1150 minDementia DiscussionsCaring Through Chaos: Lorena Llamas' Journey as a Daughter and CaregiverWelcome back to Dementia Discussions. In this heartfelt episode, I sit down with my dental hygienist, Lorena Llamas, who opens up about a deeply personal journey—caring for her beloved father, recently diagnosed with Alzheimer’s. What started as small, everyday memory lapses soon led Lorena down a path of advocacy, navigating doctors, family dynamics, and the emotional rollercoaster of watching a parent change before your eyes.Lorena shares tender stories about her dad's lively spirit, his close bond with family, and how a recent family cruise turned into a powerful wake-up call about the realities of deme...
2025-08-1456 minDementia DiscussionsNavigating Dementia with Compassion and Clarity: A Candid Talk with Dr. Miriam WinthropWelcome back to Dementia Discussions! I’m so grateful to be back with you after a bit of a hiatus, and today’s episode is a truly meaningful one. I sit down with Dr. Miriam Winthrop, an adult and geriatric psychiatrist whose compassionate approach and wealth of knowledge make her a true gem in the dementia care world. We open up about the recent California fires that disrupted both our lives and how trauma and caregiving intersect, especially in these unpredictable times.This conversation dives deep into the emotional, medical, and behavioral complexities of dementia. Dr. Winthrop shar...
2025-07-1753 minDementia DiscussionsAlzheimer’s Caregiving: A Journey of Love, Patience, and ResilienceWelcome to the first episode of season three of Dementia Discussions! In this heartfelt episode, I sit down with Charlene, a dedicated caregiver navigating the emotional and practical challenges of supporting her sister-in-law with Alzheimer’s. Charlene brings a unique perspective as a sister-in-law and sibling, sharing deeply personal stories about her family's journey through this devastating disease.We explore the complexities of caregiving, from handling denial and family dynamics to managing difficult conversations and making tough decisions. Charlene’s resilience, compassion, and humor shine through as she offers practical tips, emotional insights, and a dose of insp...
2025-01-0951 minDementia DiscussionsNavigating Love and Loss: A Caregiver's Tale of Resilience with Andrew BloomenthalIn this poignant episode, I sit down with Andrew Bloomenthal, a writer and caregiver, to delve into his heartfelt story about navigating his father’s journey with Parkinson’s-related dementia. Andrew’s article in Boston Magazine struck a chord with readers, and today he joins us to share the deeply personal moments that shaped his caregiving experience. From navigating family dynamics to finding moments of levity and grace in the midst of confusion, Andrew’s story is one of resilience, vulnerability, and love. This episode is a testament to the strength of caregivers and the unbreakable bonds of family.
2024-12-1245 minDementia DiscussionsUntil There’s a Cure, There’s Community: Wine, Women, and DementiaIn this heartfelt episode of Dementia Discussions, I’m joined by the incredible Kitty Norton, a former assistant editor turned caregiver, blogger, and filmmaker. Kitty shares her inspiring journey from her mother’s dementia diagnosis to becoming her primary caregiver, a role that profoundly changed her life. We explore her transition into advocacy through her candid blog, Stumped Town Dementia, and her documentary film Wine, Women, and Dementia, which is now airing on PBS.Kitty brings her signature humor and raw honesty as we discuss caregiving challenges, family dynamics, and how humor can be a lifeline in even...
2024-11-1952 minDementia DiscussionsNavigating Changes with Lewy Body DementiaIn this episode, I had the pleasure of speaking with Sherri, a devoted caregiver whose husband Ray has been diagnosed with Lewy body dementia. Sherri shares her journey, from noticing the first subtle changes in Ray's behavior to the emotional and practical challenges they face today.We delve into how Ray's fearless personality and active lifestyle shifted dramatically as the disease progressed, and how Sherri has had to adapt to these changes. This episode is a touching reminder of the resilience and love that caregivers embody, and it offers insights and advice that can help others facing...
2024-09-1053 minDementia DiscussionsRebuilding Relationships Through DementiaIn this heartfelt episode of Dementia Discussions, I'm joined by Robin Degtjarewsky, a listener who reached out to share her inspiring story about caring for her mother, who lives with dementia. Robin opens up about her journey from dealing with her mother's hoarding issues to managing her care from a distance and navigating the challenges that come with dementia. Robin shares the unexpected silver linings that have brought her closer to her mom and offers valuable tips for other caregivers facing similar challenges.Join us as we delve into Robin's personal experiences, the emotional rollercoaster of caregiving...
2024-08-1354 minDementia DiscussionsLove and Resilience while Caregiving for Multiple System Atrophy and DementiaIn this episode, I sat down with Melanie, a member of my dementia with Lewy body support group at the UCLA Mary S. Easton Center. Melanie bravely shares her journey as the sole caregiver for her husband, Monty, who's facing a multitude of health challenges, including multiple system atrophy (MSA), diabetes, and dementia.Through our candid conversation, Melanie opens up about the daily struggles and joys of caring for her beloved husband while striving to maintain her own identity. Her story is one of resilience, love, and finding gratitude in the face of adversity. Monty is a...
2024-07-0946 minDementia DiscussionsA Daughter's Journey Through Dementia CaregivingIn today's episode, we go on a personal journey of caregiving with my guest, Kim, a long-time listener of our podcast and a daughter navigating the complex world of dementia care for her mother. Kim's story is not just moving—it's filled with insights that only a dedicated caregiver can offer. Whether you're a caregiver yourself or just someone interested in understanding the reality of living with dementia, this episode promises to enrich your perspective. Episode Highlights:[00:25] - Kim shares how the podcast has been a lifeline in dealing wit...
2024-06-111h 00Dementia DiscussionsSupporting a Parent with Dementia in Your TwentiesIn today's episode, I have the pleasure of welcoming Skylar, a young caregiver who has been navigating the complex world of dementia care for her mother. Two years ago, Skylar stepped into the role of primary caregiver, a journey filled with both adversity and profound personal growth. Join us as we explore Skylar's experiences, from managing daily care challenges to making tough decisions about assisted living. This conversation promises insights not only into the practical aspects of caregiving but also into the emotional resilience required in such a role.Episode Timeline:[00:32] - Introduction to...
2024-05-1451 minDementia DiscussionsCannabis for Dementia: An Introduction with Dr. Sherry YafaiDr. Sherry Yafai joins me to discuss cannabis as a treatment for many symptoms that arise with dementia. As an emergency room physician turned cannabis clinician, Dr. Yafai shares her expertise on using cannabis for issues like anxiety, sleep disturbances, and pain. We discuss appropriate dosing, cannabis formulations, and most importantly - seeing a specialist versus experimenting on your own.Dr. Yafai stumbled into the world of medical cannabis while working in the ER, with patients mentioning using cannabis for issues like arthritis pain and chemotherapy side effects. She was skeptical at first but dove into the...
2024-04-0945 minDementia DiscussionsBringing Dental Care Home with Gabrielle Mahler, DDSIn this episode, I speak with Dr. Gabrielle "Dr. Gabby" Mahler, a mobile dentist who makes house calls to patients, the majority of whom have varying stages of dementia. Dr. Gabby explains how she can perform cleanings, fillings, crowns, extractions, and denture fittings in clients' homes and residential facilities. She also shares creative strategies for providing oral hygiene care to those who refuse it or cannot do it themselves. About my Guest: Dr. Gabrielle “Dr. Gabby” MahlerDr. Gaby has been practicing mobile dentistry for 14 years. She started working with retirement homes...
2024-03-121h 04Dementia DiscussionsA Comprehensive Look at Dementia with Kevin Jameson, Founder of The Dementia Society of AmericaJoining me in this episode is Kevin Jameson, founder and CEO of the Dementia Society of America. Kevin shares his personal journey of caring for his wife who was diagnosed with dementia, which led him to start this organization. He provides an in-depth look at the various types of dementia, the importance of early diagnosis, and lifestyle changes we can make to reduce our risk. About My Guest, Kevin JamesonKevin started the Dementia Society of America after his wife was diagnosed with dementia in her late 50s. He became her primary c...
2024-02-1340 minDementia DiscussionsBelieving in Yourself as a Caregiver with Tami AnastasiaIn this episode, we invite back special guest, Tami Anastasia. I had the pleasure of meeting Tami at an Aging Life Care Association Conference, where Tami's expertise in dementia care stood out. Tami is not just a dementia consultant; she's also an educator and the author of "Essential Strategies for the Dementia Caregiver: Learning to Pace Yourself." Tami's primary focus is on supporting primary caregivers or care partners, those who shoulder the responsibility of caring for a loved one with dementia. Through her private practice, she offers a wide range of support services. This includes counseling and emotional assistance...
2024-01-0950 min
Dementia DiscussionsCreating a Meaningful Holiday Season with Tami AnastasiaThe holidays can be an especially difficult time for dementia caregivers. In this compassionate episode, expert Tammy Anastasia shares her top strategies to reduce caregiver stress, honor feelings of grief, and create new meaningful traditions.I had the pleasure of meeting Tami at an Aging Life Care Association Conference, where Tami's expertise in dementia care stood out. Tami is not just a dementia consultant; she's also an educator and the author of "Essential Strategies for the Dementia Caregiver: Learning to Pace Yourself." Tami's primary focus is on supporting primary caregivers or care partners, those who shoulder the...
2023-12-1241 minDementia DiscussionsPlacing My Wife With Alzheimer's in Memory Care with Jay SwerdlowIn this heartfelt episode, I welcome back Jay Swerdlow, a longtime support group member. Jay shares the difficult journey of placing his wife Andy, who has Alzheimer's disease, into memory care. He discusses the challenges of caring for her at home as her disease progressed and delusions worsened. Though it broke his heart, Jay knew he had to make the difficult decision to move Andy to a care facility for both of their wellbeing. He talks about visiting her regularly, dealing with her not always recognizing him, and finding acceptance with where they are in this ongoing journey of...
2023-11-1433 minDementia DiscussionsSupporting Your Loved One Through the Journey of Lewy Body DementiaToday I welcome Debbie, a dedicated wife caring for her husband who is living with Lewy body dementia (LBD). Debbie shares the daily ups and downs of managing her husband's diagnosis, coping strategies that help her stay resilient, and advice for other caregivers walking a similar path.Debbie’s husband was diagnosed with LBD about 5 years ago but exhibited some mild symptoms 10 years prior. He was once an outgoing, successful man who is now grappling with memory loss and confusion. Debbie describes her husband’s strong denial about his diagnosis and his insistence that he’s fine, despit...
2023-10-1034 minDementia DiscussionsNavigating Caregiver Stress and Guilt with Clinical Psychologist Dr. Genifer GoldsmithI had the pleasure of sitting down with clinical psychologist Dr. Genifer Goldsmith to discuss the immense stress and guilt that comes with being a caregiver. Our collaboration in co-facilitating a caregiver support group at UCLA for Alzheimer's Disease Research and care has been nothing short of enlightening. As someone who facilitates a caregiver support group, we see these struggles firsthand. Dr. Goldsmith provides research-backed insights on how to cope. One key element emerges as a cornerstone to enhancing a patient's journey: caregiver support. Join us as we unpack the pivotal role caregivers play and discover the p...
2023-09-1225 minDementia DiscussionsFinding Balance: Self-Care and Compassion in Dementia Caregiving with Beth LanieIn today’s episode, I speak with another member of my support group, Beth Lanie, a devoted caregiver to her husband Howard, who has been diagnosed with dementia with Lewy bodies. Beth shares her heartfelt experience, providing insights into the challenges, triumphs, and evolving dynamics of caregiving for a loved one with a progressive neurological condition.Beth discusses Howard's background as an aerospace engineer and their 42-year marriage. She opens up about the initial signs of Howard's memory problems, including difficulties with directions and completing projects. Beth recounts the haunting hallucinations that plagued Howard's nights, and the le...
2023-08-0858 minDementia DiscussionsFinding Joy in the Present: Embracing Dementia's Silver Lining with Valerie RennertMy special guest this week is Valerie Rennert, who opens up about her father's journey with dementia. She shares how their family first became aware of his condition and the ways they tried to support him. Despite the challenges, Valerie emphasizes the silver lining: her father's happiness in the present moment, free from stress. Valerie fondly remembers her father, who was larger than life and incredibly intelligent. However, as the years went by, they began to notice changes in his memory and cognitive abilities. While his short-term memory is affected, he surprises everyone with his ability to e...
2023-07-1129 minDementia DiscussionsBringing Care Home: The Dos and Don'ts of Hiring a Caregiver for Your Loved One with DementiaToday I'm joined by Noma Kaz, a seasoned caregiving professional specializing in dementia care. Throughout our conversation, Noma shares her extensive knowledge and experience in the field, helping us explore the intricate dynamics of caregiving for dementia patients, the qualities to seek in an ideal caregiver, and the necessary steps to ensure their effective integration into your loved one's life. I'm confident that this episode will provide you with both comfort and practical advice for navigating the often challenging journey of dementia care.[0:04] How care is activities of daily living.[1:57] How the COVID-19 pandemic has significantly...
2023-06-1357 minDementia DiscussionsThe Power of Music, Yoga, and Seizing the Day in CaregivingFranne Golde opens up about her journey with her husband, Paul, who was diagnosed with a disease they knew very little about. Our conversation covers the challenges of finding care for Paul, the timing and benefits of hospice care, and several tools and book recommendations for all caregivers. It's a show that addresses difficult topics, but it's also an important conversation to have. It all began with an early misdiagnosis from a doctor, who called her "a neurotic Jewish housewife." Franne shares how she wrote an article about their journey and how Maria Shriver contacted her, which...
2023-05-091h 19