Shows
Base by Base275: MIPseq/WES of 11,555 CHD probands implicates 60 dominant genes with NOTCH1 cysteine‑altering and transmitted MYH6 missense variantsSierant MC et al., PNAS - MIPseq and exome sequencing of 11,555 human congenital heart disease probands implicate 60 dominant CHD genes, with NOTCH1 cysteine‑altering and transmitted MYH6 missense variants driving distinct defects.
Study Highlights:We analyzed 11,555 human CHD probands from PCGC and PHN using a 248‑gene MIPseq panel and whole‑exome sequencing. A meta‑analysis of de novo and very rare transmitted/unphased damaging variants identified 60 genes with significant burden, accounting for damaging variants in 10.1% of probands with similar DNM and transmitted contributions. Mechanistically, NOTCH1 missense mutations that introduce or remove cysteines in EGF domains were highly e...
2026-01-3019 min
Heart to Heart with AnnaA Parent’s Guide To CHD, Neurodevelopment, And Resilience(00:00:00) Introduction and Welcome
(00:00:50) Heartfelt Holiday Wishes and Personal Announcement
(00:02:34) CHD News: Neurodevelopment and Congenital Heart Disease
(00:04:28) Introducing Dr. Dawn Ilardi
(00:05:54) Dr. Ilardi's Work with the Adult CHD Community
(00:07:23) Challenges and Variability in CHD
(00:08:28) Parenting Kids with CHD: New Online Program
(00:12:41) The Importance of Family-Centered Care
(00:15:20) Supporting Parents and Families
(00:33:59) The Power of Resilience and Love
(00:41:03) Conclusion and Farewell
What if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to conn...
2025-12-2842 min
Heart to Heart with AnnaA Parent’s Guide To CHD, Neurodevelopment, And ResilienceSend a textWhat if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to connect the dots between CHD, early brain development, medical trauma, and the everyday choices that help families thrive. From prenatal influences on cognition and behavior to the protective force of stable routines and responsive parenting, we translate research into practical moves you can make this week.We explore why CHD outcomes are shaped long before surgery and how heterogeneity makes each child uniq...
2025-12-2842 min
The CHC Podcast: CHD ConversationsLiving Authentically: Trans Journeys with CHDIn this powerful episode of The CHC Podcast: Congenital Heart Conversations, host Anna Jaworski and co-host Ayrton Beatty honor Trans Awareness Month by delving into the intersection of congenital heart defects (CHD) and trans identities. Featuring heartfelt discussions with three unique guests—Hope Jaworski, Helen, and Kai Ayscue—the episode sheds light on the challenges faced by those living with CHD while navigating their gender identities. The episode also highlights the emotional and psychological impacts, including medical trauma, and the importance of support from both family and healthcare providers. With raw and inspiring stories, this episode aims to foster greater unde...
2025-11-2847 min
Tiny Little Hearts Podcast12. From Patients, For Patients: How EmpowerMyCH is Transforming the CHD JourneyThis episode could truly be a game changer for our CHD community. As parents and patients, we spend so much time navigating the challenges of congenital heart disease in the present — managing appointments, procedures, and uncertainty. But many of us also think about the future. How can we help our children grow into adults who confidently manage their own care? How can adult patients find the resources they need to stay informed and supported through every stage of their journey?Today, we’re highlighting a project that’s answering those questions in groundbreaking ways: EmpowerMyCH, a web and mo...
2025-10-2732 min
Heart to Heart with AnnaCHD Connects Hearts: A Grandmother’s Mission to Unite Us AllSend a textWhat happens when a grandmother's love collides with a broken system? When Christy Pace's grandson Hunter was diagnosed with Hypoplastic Left Heart Syndrome before birth, she found herself thrust into an unexpected role – not just as a supportive grandmother, but eventually as a visionary determined to transform how the CHD community connects.Our conversation pulls back the curtain on the rarely discussed perspective of grandparents in the CHD journey. Christy's raw honesty about her emotional response – moving from shock to protection, anger to fear – reveals the complex ripple effects when a heart diagno...
2025-09-2946 min
Heart to Heart with AnnaCHD Connects Hearts: A Grandmother’s Mission to Unite Us AllWhat happens when a grandmother's love collides with a broken system? When Christy Pace's grandson Hunter was diagnosed with Hypoplastic Left Heart Syndrome before birth, she found herself thrust into an unexpected role – not just as a supportive grandmother, but eventually as a visionary determined to transform how the CHD community connects.Our conversation pulls back the curtain on the rarely discussed perspective of grandparents in the CHD journey. Christy's raw honesty about her emotional response – moving from shock to protection, anger to fear – reveals the complex ripple effects when a heart diagnosis enters a family. When COVID restri...
2025-09-2746 min
Crazy Hockey Dads PodcastEpisode 33: From the Bench to the Blueprint (with Alec Marsh)A player’s journey. A coach’s perspective. A parent’s wake-up call.This week, Scott and Jamie sit down with Alec Marsh, former Penn State hockey forward and current assistant coach at Hobart College, for one of the most honest, insightful interviews CHD has ever aired.Alec walks through his own path from elite youth hockey to college then pro. Now as a coach, he’s on the other side of the glass, helping kids chase their goals without losing who they are.In this episode:- What kids actually remember about the...
2025-09-241h 22Crazy Hockey Dads PodcastEpisode 31: What High School Hockey Gets RightA team, a town, a letter on the jersey and why it still matters.This week, Scott and Jamie bring on CHD dad and coach Brad for a conversation that flips the usual script. Instead of chasing the “next level,” they ask: what if the best thing for your kid is right in front of them?It’s not about exposure. It’s not about rankings. It’s about belonging, identity, and the kind of growth that happens when you play for more than just yourself.In this episode:- Why high schoo...
2025-09-091h 28Crazy Hockey Dads PodcastEpisode 29: Calm Down, It’s Just Week OneAnd its a marathon not a sprint...Day 5 of CHD Mini-Camp: Be the Chill You Want to SeeIt’s one thing to tell your kid to stay composed, it’s another to actually model it. In the final day of Mini-Camp, Scott and Jamie talk about staying calm when emotions spike, mistakes pile up, and your parent brain wants to explode in the parking lot.Because your kid doesn’t just need feedback, they need an anchor. And your energy sets the tone.In this episode:Why your stress become...
2025-08-2926 minCrazy Hockey Dads PodcastEpisode 28: Don’t Let Confidence Die in the Locker RoomDay 4 of CHD Mini-Camp: Mindset & Mental RecoveryOne bad shift. One rough weekend. One emotional post-game chirp from the backseat. That’s all it takes to send a kid’s confidence into a spiral.In Day 4 of Mini-Camp, Scott and Jamie go deep on what it really takes to keep your player mentally upright when things get messy. From post-game meltdowns to “two stars and a wish” feedback, this episode is your guide to protecting confidence without sugarcoating or making it worse.In this episode:Why post-game critiques often do more harm than goo...
2025-08-2821 minCrazy Hockey Dads PodcastEpisode 27: Stop Comparing Your Kid to Joey (Seriously, Stop)Day 3 of CHD Mini-Camp: Managing ExpectationsIf you've ever told your kid, “Why can’t you skate like Johnny?”, this one’s for you.Today, Scott and Jamie get honest about the silent killer of youth hockey joy: comparison. From slapshot envy to AAA pressure spirals, this episode is a call to stop parenting the imaginary prodigy in your head… and start supporting the actual human in your house.In this episode:Why “progress, not perfection” needs to be your new family mantraHow comparison poisons confidence (for both kids and parents)Real stories about...
2025-08-2721 minCrazy Hockey Dads PodcastEpisode 26: Say It Out Loud, Before You Text Something StupidBecause bottling it up never helped anyone.Day 2 of CHD Mini-Camp is here, and today’s tool might just save your sanity: communication.Scott and Jamie break down what happens when parents don’t say the thing they’re dying to say and what usually happens when they say it too soon. From 24-hour rules to sideline showdowns, this is your guide to keeping it together, getting it out, and doing it the right way.In this episode:Why staying silent can make everything worse (even with good intentions)The power of the 24...
2025-08-2620 minCrazy Hockey Dads PodcastEpisode 25: Remember Your Why (Before You Lose Your Mind)Day 1 of CHD Mini-Camp: Resetting your parent brain for the season aheadWelcome to the first-ever Crazy Hockey Dads Mini-Camp! Five days, five quick hits to help you kick off the season without losing your damn mind.In this episode, Scott and Jamie break down one of the easiest things to forget (and the most important to remember): why you signed up in the first place. Because before the standings, the car rides, and the goalie drama... there was a good reason you said yes to youth hockey.In this one:Finding y...
2025-08-2517 min
The One Percent HeartEpisode 11: Women's Health & CHDBe advised: This episode discusses medical trauma including loss of autonomy and denial of care. Listener discretion is advised. Episode 11: Women's Health & CHDA candid look at how “risk management” can morph into control, and what self‑advocacy looks like as a woman with with CHD.Jillian Tait and returning guest Aliza Marlin join to talk about the thin line between appropriate caution and medical gaslighting in CHD care, especially during pregnancy. Jillian recounts a straightforward pregnancy that turned into a medical‑care nightmare and the effects that followed; Aliza contrast...
2025-08-2553 min
The CHC Podcast: CHD ConversationsLove Beats On: Marriage & CHD JourneysIn this episode of 'The CHC Podcast Congenital Heart Conversations,' host Anna Jaworski, a heart mom to an adult with a single ventricle heart, is joined by her co-host Nicholle Bilodeau, who was born with a bicuspid aortic valve. The episode explores the unique challenges faced by individuals living with congenital heart disease (CHD) who are also married. Two couples, Jason and Jen Crutchley, as well as Mark and Michelle DeRoo, share their stories of navigating marriage, medical uncertainties, and daily routines while dealing with CHD. They discuss how communication, mutual support, and understanding have helped them s...
2025-08-2453 minCrazy Hockey Dads PodcastEpisode 19: The Upside of the GrindIt’s not just about hockey. It’s about who they’re becoming.This week, Scott and Jamie slow it down - just a little - to zoom out on what this sport actually gives back. Yes, the weekends are chaos, and yes, the skates still don’t fit right. But in between the hotel breakfasts and 3v3 tournaments, something bigger is happening.In this episode:- Independence, confidence, and resilience - how hockey shapes kids for life- The hidden wins: tying skates, bouncing back from cuts, finding your crew- What p...
2025-07-161h 12Crazy Hockey Dads PodcastEpisode 17: Fireworks, Faceoffs & Dad FightsHappy Fourth of July all! In this episode Scott and Jamie dig into the emotional explosions that come with youth hockey - from player-on-player scuffles to dads losing it in the stands. It’s a red, white, and bruised look at how things blow up… and what to do when they do.In this episode:- Teammates getting physical with one another and what adults should do about it- Dads going toe-to-toe over insecurity, game play, and hurt feelings- A CHD rant on USA Hockey: what does it actually do, and does...
2025-07-041h 14Crazy Hockey Dads PodcastEpisode 13: When Coaches Go Full Psycho (and Your Kid’s Stuck There)New team, new coach, new... personality disorder?This week, Scott and Jamie lace up for one of the wildest corners of youth hockey: crazy coaches. You know the type - micromanaging 10-year-olds like it’s the Stanley Cup and making kids cry over line changes. We’ve seen it, lived it, and now we’re talking about it.In this episode:- Red flags that your kid’s coach might be a certified lunatic- How crazy coaching affects confidence, development, and family sanityPlus: The CHD boys pitch “The Crazy Hockey Dad...
2025-06-111h 11Crazy Hockey Dads PodcastEpisode 12: Watered Down Hockey, Gear Crackdowns & Rink Dad Side HustlesThis one started with a simple question: has youth hockey gotten too soft? But before long Scott and Jamie spiral into full rink chaos, mouth guard drama, neck guard debates, and the rise of refs enforcing rules no one seems to agree on.Along the way:- Rant alert: Why skills might be up, but the grit is gone- Jamie becomes a rinkside mouthguard dealer- Velcro neck guards vs. shirt style: the great debate- Plus: CHD goes international - what’s up, London?
2025-06-031h 04
The Incubator#290 – 🫀 From the Heart - Preemies with CHD, Post op Brain Injury & The Neonatologist’s Role in Cardiac CareSend a textIn this episode of From The Heart, hosts Dr. Nim Goldshtrom and Dr. Adrianne Bischoff explore the latest research in neonatal cardiac care, focusing on congenital heart disease (CHD) and its impact on premature infants. They discuss a study analyzing survival trends in preterm infants with CHD, highlighting the “double jeopardy” these babies face due to both prematurity and congenital cardiac anomalies. Another study compares neurodevelopmental outcomes between preterm infants and those with CHD, revealing that term infants with CHD exhibit similar motor and cognitive challenges as preterm infants, yet receive less developmental support. The...
2025-03-1645 min
The CHC Podcast: CHD ConversationsFrom Patients to Professionals: CHD Survivors Healing OthersWhat if your personal journey with a congenital heart defect could shape a meaningful career in healthcare? Join us as we explore this compelling intersection of life experience and professional aspiration. Our guests, including Lorrie Hill, Christy Stillman, and Roslyn Rivera, share their remarkable transitions from CHD patients to healthcare professionals. Their stories illustrate not just the resilience and determination demanded by their journeys, but also the unique perspective they bring to their roles as medical caregivers and advocates.Lorrie, Christy, and Roslyn provide insights into how personal history fuels their passion for advocating better care and support...
2025-02-2459 min
Geboren met CHDPsychosociale zorg bij CHD: in gesprek met medisch maatschappelijk werker Daniel StuitDeze aflevering staat in het teken van Daniël Stuit, medisch maatschappelijk werker & contextueel therapeut in het Erasmus MC-Sophia Kinderziekenhuis in Rotterdam. Daniël werkt toe naar herstel van de veerkracht van ouders van een kind met een erfelijke aangeboren aandoening, waaronder CHD. Wat kan psychosociale hulp aan ondersteuning bieden? En wat kan daarin nog verbeteren? Deze - en meer - vragen komen aan bod in deze aflevering. Speciaal voor ouders van kinderen geboren met CHD organiseert PlatformCHD online trainingen over gedrag-en gezinsdynamiek bij CHD onder leiding van een gedragsdeskundige en trainer. Voor leden van PlatformCHD is de...
2024-09-2334 min
Cosmic Reality PodcastAni Avedissian interviewed by CHD Bus Tour 2024 - "Energy Worker Specialist""Energy Worker Specialist" Ani Avedissian
“Fear is the food for the darker side of the establishment,” Ani Avedissian declares. In this CHD.TV video, she shares her thoughts on medicine and why she believes a darker agenda is at play. http://aniavedissian.com/Ani on Cosmic Reality Radio Wednesdays 7-8 pm EST https://www.cosmicreality.com/radio.html
Watch More CHD Bus Stories LIVE: https://live.childrenshealthdefense.org/chd-tv/bus/Check out the FULL TOUR SCHEDULE: https://live.childrenshealthdefense.org/chd-tv/bus/schedule/Tell Us Your Story! Contact the CHD Bus: https://chil...
2024-04-2316 min
The Hope and Courage Podcast for CHD Parents37 - CHD Adult & Author Emily Falcon: Making the Most of Every Opportunity on the CHD JourneyIn this episode we talk to the incredibly inspiring CHD adult and author of From the Sidelines to the Finish Line: A Chronic Illness Survivor’s Challenges and Everyday Triumphs Emily Falcon! She has an amazing story of overcoming struggle and achieving what she never dreamed she could. We discuss her Benjamin Button-like life story and how she learned to make the most of every opportunity she was given. She truly displays how to live life to the full while having a CHD diagnosis. We were so inspired by Emily and we know you will be too!
2024-03-2859 min
The CHC PodcastThe Role of Mindfulness and Gratitude in Navigating Life with CHDAs we journey through the complexities of life with a Congenital Heart Defect (CHD), our guests - Anna Marie Taylor, Nicholle Bilodeau, and Djinni Yancy - offer personal insights and shared experiences. Their powerful stories, filled with struggles and triumphs, underscore the significance of gratitude, resilience, and unwavering support from loved ones. Together, we unpack the latest advancements in medical treatments and affirm the integral role mindfulness plays in navigating the challenges posed by CHD. Being your own advocate when it comes to managing your medical conditions is crucial. That's the message Djinni, Anna Marie, and N...
2023-12-0156 min
The CHC Podcast: CHD ConversationsThe Role of Mindfulness and Gratitude in Navigating Life with CHDAs we journey through the complexities of life with a Congenital Heart Defect (CHD), our guests - Anna Marie Taylor, Nicholle Bilodeau, and Djinni Yancy - offer personal insights and shared experiences. Their powerful stories, filled with struggles and triumphs, underscore the significance of gratitude, resilience, and unwavering support from loved ones. Together, we unpack the latest advancements in medical treatments and affirm the integral role mindfulness plays in navigating the challenges posed by CHD. Being your own advocate when it comes to managing your medical conditions is crucial. That's the message Djinni, Anna Marie, and Nicholle passionately...
2023-12-0156 min
The CHC Podcast: CHD ConversationsTransplantation in the CHD CommunityToday’s Town Hall Meeting deals with cardiac transplantation. The first heart transplant was done in South Africa in December of 1967 by Dr. Christiaan Barnard, with pediatric heart transplants following close behind. Through the years, the operation itself, donor and recipient matching procedures, and post-transplant management have evolved to what it is today. Heart transplantation is becoming more common in the CHD community as CHDers are living longer and running out of palliative surgical options. Research is being done to develop new surgeries and protocols to increase quality and quantity of life for CHDers, but in the meantime, transplant can be...
2023-11-0159 minThe Hope and Courage Podcast for CHD Parents36 - CHD Adult & Creator of The Heart Dialogues Leigh Kamping-Carder: CHD Identity & The Importance of Sharing Unique CHD StoriesIn this episode we talk to CHD adult and creator of The Heart Dialogues Leigh Kamping-Carder! She is a journalist located in New York with a master's in journalism from NYU and runs the newsletters team at a big media outlet. You will hear her thought-provoking perspective on the part CHD plays in a person's identity, and how the presence of it affects all parts of their life. We discuss the importance of various CHD narratives being shared with the CHD community, exploring the nuances of their stories and appreciating their perspectives. We loved gaining her insight on all...
2023-10-1548 min
From The Heart: The HeartKids PodcastExercise Physiology and CHD - Fitness for Life: Dr Derek TranThis episode, Sami chats to Dr Derek Tran, about exercise physiology, and supporting fitness for those with Congenital or Childhood-Onset Heart Disease (CHD)Dr Tran is a lecturer at the University of Sydney School of Medicine and Senior Exercise Physiologist at the Department of Cardiology, Royal Prince Alfred Hospital. Derek is also the co-coordinator of the world’s largest, and most inclusive CHD exercise clinical trials, called CH-FIT – striving to optimise exercise prescription and delivery for those with CHD. HEARTKIDSFrom The Heart is brought to you by Hea...
2023-09-1625 minThe Hope and Courage Podcast for CHD Parents35 - CHD Parent Grace Harvey: Cultivating Empathy While Working Full Time on the CHD JourneyIn this episode we talk to CHD parent Grace Harvey! She & her husband live in Michigan where they both work full-time jobs as they try to navigate their family's CHD journey. Grace shares her story about how they make their heart warrior's health, family, careers, relationships, and mental health all priorities along the way. She has some great insights on authenticity and empathy in her work life as well. So CHD families who have two full time working parents, listen up, because you will gain a lot from this episode!
Our book Hope and Courage: Six Life L...
2023-09-051h 05
The CHC PodcastCandid Conversations with CHD Dads: Strength, Support, and SurvivalWhat does it take to be a father in the CHD (Congenital Heart Defect) community? We sat down with three amazing dads—Chris Harris, Dylan Henricks, and Michael McKelvey—to find out. Each of these men has a unique story to tell about parenting a child with CHD. Chris is the father of a baby born with a double outlet right ventricle, while Dylan is both a father and a person born with CHD himself. Michael, also born with CHD, recently became a dad to a heart-healthy child and brings a different perspective to the table.Duri...
2023-07-3150 min
The CHC Podcast: CHD ConversationsCandid Conversations with CHD Dads: Strength, Support, and SurvivalWhat does it take to be a father in the CHD (Congenital Heart Defect) community? We sat down with three amazing dads—Chris Harris, Dylan Henricks, and Michael McKelvey—to find out. Each of these men has a unique story to tell about parenting a child with CHD. Chris is the father of a baby born with a double outlet right ventricle, while Dylan is both a father and a person born with CHD himself. Michael, also born with CHD, recently became a dad to a heart-healthy child and brings a different perspective to the table.During our cand...
2023-06-3050 minThe Hope and Courage Podcast for CHD Parents33 - Heart Dad & Author Todd Hosea: Strengthen Your Relationships and Pursue Your Dreams on the CHD JourneyIn this episode we talk to heart dad and author of the books Steal the Reaper & Hunt the Reaper Todd Hosea! Todd has been a heart dad since 1999 and has so much wisdom to share on taking care of your relationships, letting go of normalcy, and pursuing your dreams on the CHD journey. He also encourages CHD parents that they are capable of so much more than they can imagine. Todd is so inspiring so go listen to this episode immediately!
Todd's Books on Amazon: Steal the Reaper & Hunt the Reaper
Todd's Website: toddhosea.com
2023-05-2356 minThe Hope and Courage Podcast for CHD Parents32 - Heart Warrior & Psychotherapist Tracy Livecchi: Healing Hearts & Minds - Discovering CHD Mental Health Challenges & Providing Tangible SolutionsIn this episode we talk to heart warrior & psychotherapist Tracy Livecchi, LCSW ! Tracy shares about her new book Healing Hearts and Minds: A Holistic Approach to Coping Will with Congenital Heart Disease that she co-authored with Dr. Liza Morton. The focus of their book is mental health challenges in the CHD community and it gives tangible solutions for each of those challenges that may arise on the CHD journey. You'll heart a bit about Tracy's CHD story and how she & Liza wrote this book together without having ever met in person. She has such a unique perspective as a...
2023-05-0949 min
Global ValueChurch & Dwight Stock Analysis | CHD Stock | $CHD Stock Analysis | Best Dividend Stock to Buy Now?In this video, we'll perform a CHD stock analysis and figure out what the company looks like based on the numbers. Is Church & Dwight one of the best dividend growth stocks to buy at the current price? What about is Church & Dwight one of the best consumer staple stocks to buy at the current price? Find out in the video above! Global Value's Church & Dwight Co., Inc. stock analysis.
Check out Seeking Alpha Premium and score an annual plan for just $119 - that's 50% off! Plus all funds from affiliate referrals go directly towards supporting...
2023-05-0110 minThe Hope and Courage Podcast for CHD Parents29 - CHD Parent & Pediatric Cardiology Echo Tech Brittany Freese: Live in the Now with Your Heart WarriorIn this episode we chat with Heart Mom & Pediatric Cardiology Echo Tech Brittany Freese. We discuss her unique position as a heart parent & a medical profession in the cardiology world, and what kind of perspective that gives her on her family's CHD journey. She encourages us & other CHD parents to enjoy the moment we're in with our heart warriors and to not let the past or future hinder it. You'll love hearing from Brittany as much as we did!
Our book Hope and Courage: Six Life Lessons from the Parents of a Child with Congenital Heart Disease...
2023-03-1441 minThe Hope and Courage Podcast for CHD Parents28 - Heart Warrior Letitia Aloysius: Your Child is More Than CHDIn this episode we chat with Heart Warrior Letitia Aloysius! She is 21 years old and is wise beyond her years. You will learn so much from her about how to talk to young heart warriors about their CHD, and how to make sure they know that they are MORE than their CHD. We loved learning about what her day to day looks like as a young adult heart warrior & more about who she is!
Our book Hope and Courage: Six Life Lessons from the Parents of a Child with Congenital Heart Disease is available HERE on Amazon! T...
2023-02-2834 min
Heart to Heart with AnnaCHD Spotlight #3: Tetralogy of FallotThis is the 3rd episode in our CHD Spotlight mini-series and we'll be talking about Tetralogy of Fallot. Our expert Guest is Roslyn Rivera and she is a pediatric cardiology nurse who was also born with a congenital heart defect. In this episode, Roslyn shares with Anna what tetralogy of Fallot is, who coined the term for this complex congenital heart condition, what methods are used to palliate the condition, what some possible causes of the condition are, and survival rates for babies born with ToF. In the second segment, Roslyn even shares the name of...
2023-02-1621 min
Heart to Heart with AnnaCHD Spotlight #2: Holes in the Heartn our second CHD Spotlight episode, we'll discuss holes in the heart—atrial septal defects (ASDs), ventricular septal defects (VSDs) and more!Today's CHD Spotlight is on the most common type of heart defect commonly referred to as "holes in the heart." This episode features Dr. William Novick—an internationally-known cardiothoracic surgeon and the head of the Novick Cardiac Alliance, a nonprofit organization providing life-saving heart surgeries to children around the world.In this episode, Dr. Novick shares the names of some specific congenital heart defects (they are commonly referred to as "holes in the heart") and...
2023-02-0937 min
Heart to Heart with AnnaCHD Spotlight #2: Holes in the HeartSend a textIn our second CHD Spotlight episode, we'll discuss holes in the heart—atrial septal defects (ASDs), ventricular septal defects (VSDs) and more!Today's CHD Spotlight is on the most common type of heart defect commonly referred to as "holes in the heart." This episode features Dr. William Novick—an internationally-known cardiothoracic surgeon and the head of the Novick Cardiac Alliance, a nonprofit organization providing life-saving heart surgeries to children around the world.In this episode, Dr. Novick shares the names of some specific congenital heart defects (they are commonly referred to a...
2023-02-0937 min
The CHC PodcastThe CHD PodcastWhat is "The CHD Podcast: Congenital Heart Defect Conversations? Who are Anna Jaworski and Joe Flowers? Why did they start this podcast? More importantly, how can you get involved?In this inaugural episode, Anna and Joe talk about who they are, why they started this podcast, and what the first season is going to look like. January -- Inaugural EpisodeFebruary -- Heart Month! Meet the Scoggin Family and learn about the "Wear Purple for CHD" campaign!March -- The History of CHDs and CHD SurgeriesApril...
2023-02-0114 min
From The Heart: The HeartKids PodcastBEST OF 2022 #2: Neurodevelopment and CHDCounting down our most popular episodes of 2022... #2!What is neurodevelopment?What is the connection between CHD and neurodevelopment in children?What are the early indicators that a child may be experiencing neurodevelopmental difficulties?How are neurodevelopmental issues diagnosed?What sort of treatments and therapies are available?What research is happening in this area?What is the CHD Life+ research program and how could it transform neurodevelopmental care for young cardiac patients in Australia?Cardiologists Rob Justo and Will Parsonage answer these questions and more in this information-packed episode.
2023-01-2125 min
From The Heart: The HeartKids PodcastBEST OF 2022 #3: Exercise and CHDCounting down the most popular episodes of 2022... #3!Should I exercise if I have a heart condition?The answer is, almost everyone with a congenital or childhood heart condition can benefit from exercise. When done safely, regular exercise is one of the best things you can do for your heart and overall health. Cardiologist Rachael Cordina joins us to bust some exercise and CHD myths and help all listeners learn more about exercise.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting...
2023-01-0723 minThe Hope and Courage Podcast for CHD Parents26 - Healthcare Expert & Author Tom Dahlborg: Healing the Healthcare Provider & CHD Patient Family RelationshipIn this episode we had the honor of talking to Tom Dahlborg, and expert & leader in the world of healthcare. He is the President and CEO of the Dahlborg HealthCARING Leadership Group with 40 years of experience in positioning leaders (in healthcare and beyond) to engage heart and mind in all they do, to embrace and embody compassion, care and love, while leveraging science and evidence, to honor their callings and achieve betterment for all. We chat a lot about how the working relationship between healthcare providers and CHD patient families. He had so many great insights and advice on...
2022-11-0853 min
Heart to Heart with AnnaDr. John Calhoon on Doctor Burnout in the CHD CommunitySend a textWhat are warning signs a doctor may be experiencing doctor burnout? How are some nonprofits affected by doctor burnout? What can members of the CHD community do to try to reduce doctor burnout? Today's program is 'Dr. John Calhoon on Doctor Burnout in the CHD Community' and our Guest is Dr. John Calhoon.Dr. Calhoon is both a congenital and adult cardiac surgeon and was my Heart Warrior’s surgeon. He also wrote the Foreword for my first book: “Hypoplastic Left Heart Syndrome: A Paren...
2022-11-0135 min
The Hope and Courage Podcast for CHD Parents25 - CHD Parent & Author Debi Lewis: Overcoming Obstacles to Feed Your Heart Warrior & Knowing When to AdvocateIn this episode we have a great conversation with CHD Parent & author Debi Lewis. Her book is called Kitchen Medicine: How I Fed My Daughter out of Failure to Thrive. You can buy it HERE! In our chat with Debi you will hear about her heart warrior Sammy, and Debi's challenge to feed her in the midst of her CHD diagnosis. It took seven years of advocating and problem solving to figure out the exact help Sammy needed, and Debi learned so much about food along the way. She is a well of knowledge on advocating for your child...
2022-09-2756 min
PiekvragenGeboren met CHDWat betekent de diagnose Congenitale Hernia Diafragmatica voor jouw kind, je eigen leven en dat van broertjes en zusjes?
Kun je het ver schoppen in de sport, met een breuk in je middenrif? Kun je als opa of oma het verschil maken voor je kleinkind dat na de geboorte aan de beademing moet? En hoeveel ruimte is er straks om als jongere met een beperkte longcapaciteit onbezonnen de kroeg in te duiken?
Dit is Geboren met CHD, een podcastserie over Congenitale Hernia Diafragmatica. Patiënten, familieleden én behandelaars delen hoopvolle verhalen, op basis van hun ke...
2022-09-1600 minPiekvragenGeboren met CHDWat betekent de diagnose Congenitale Hernia Diafragmatica voor jouw kind, je eigen leven en dat van broertjes en zusjes?
Kun je het ver schoppen in de sport, met een breuk in je middenrif? Kun je als opa of oma het verschil maken voor je kleinkind dat na de geboorte aan de beademing moet? En hoeveel ruimte is er straks om als jongere met een beperkte longcapaciteit onbezonnen de kroeg in te duiken?
Dit is Geboren met CHD, een podcastserie over Congenitale Hernia Diafragmatica. Patiënten, familieleden én behandelaars delen hoopvolle verhalen, op basis van hun ke...
2022-09-1600 min
Geboren met CHDGeboren met CHDWat betekent de diagnose Congenitale Hernia Diafragmatica voor jouw kind, je eigen leven en dat van broertjes en zusjes?
Kun je het ver schoppen in de sport, met een breuk in je middenrif? Kun je als opa of oma het verschil maken voor je kleinkind dat na de geboorte aan de beademing moet? En hoeveel ruimte is er straks om als jongere met een beperkte longcapaciteit onbezonnen de kroeg in te duiken?
Dit is Geboren met CHD, een podcastserie over Congenitale Hernia Diafragmatica. Patiënten, familieleden én behandelaars delen hoopvolle verhalen, op basis van hun ke...
2022-09-1600 min
The Hope and Courage Podcast for CHD Parents24 - CHD Parent & Author Susan May: Living Well While Raising a Heart Warrior with a Heart TransplantIn this episode we have a great conversation with CHD Parent Susan May. She is an amazing CHD advocate and the author of several books. The book about her & her family's experience with her Heart Warrior Nick is entitled Nick's New Heart: 30 Years and Counting. You can buy it HERE! In our chat with Susan you will hear about her book, and also her incredible wisdom on how to live well in the midst of having a child with congenital heart disease and a heart transplant. Her son Nick is the 2nd longest living person with a pediatric heart...
2022-09-131h 09