Shows
Rockin the DifferenceEpisode 18: Defying the Odds: A Father’s Fight for His Son and the Rare Disease Community with Christopher VelonaIn this powerful episode of Rockin’ the Difference, I sit down with my dear friend Chris Velona — a devoted father, rare disease advocate, and founder of Project Sebastian, a nonprofit inspired by his son Sebastian, who was diagnosed with Batten disease, a rare and terminal neurodegenerative disorder.
Chris shares his family’s emotional journey, the heartbreaking diagnosis, and how he chose to turn pain into purpose by creating a platform for awareness, connection, and hope. We talk about the emotional toll of caregiving, and what it's like to live day by day when the future is uncertain — yet stil...2025-06-201h 05
The Rare hour with Christopher VelonaGina Mundy~ "Life Changing author."Gina Mundy is an attorney specializing in childbirth cases. For over 20 years, her focus has been investigating and analyzing mistakes that arise during labor and delivery. She has spent countless hours meticulously scrutinizing childbirth cases, conducting interviews with delivery teams, and thoroughly examining medical records to understand every decision made during labor and delivery. Throughout her career, Gina has traveled nationwide, engaging with healthcare professionals such as doctors, nurses, and midwives to explore all aspects of labor and delivery. These interactions have provided her with invaluable insights, enabling her to appreciate the diverse perspectives in different regions of the...2024-04-2343 min
In The BunkerThe Necessity Of Starting A BusinessSummary:In this episode of "In The Bunker," we're joined by Christopher Velona, CEO of CSG Consulting. Christopher discusses the unique challenges of being a single dad to a child with a rare disease while trying to grow his consulting business. He shares his journey of starting a business out of necessity, his continuous struggle with client acquisition, and the importance of family during these trying times.Our episode highlights:Christopher's personal story of becoming a stay-at-home single father and starting his business.The ongoing challenge of attracting clients in a competitive digital marketing...2024-02-0221 min
The Rare hour with Christopher VelonaMental Health support has a new face.David has a rare disease called Cowden Syndrome and is from the U.K. He set up a rare disease men's mental health group three and a half years ago to give men a chance to share their experiences and listen to others going through similar experiences.
He has currently increased the meetings to two times a month and is working with Eurordis in a mental health partnership network and social policy group.
To reach out to David for more info you can email him at:
dsross2013@gmail.com2024-01-3030 min
The Rare hour with Christopher VelonaNasty People in Rare...What gives? On today's Rare Thoughts, I give my opinion about the summer conferences so far. Also, I discuss why people are so nasty in Rare diseases.2023-08-0514 min
The Rare hour with Christopher VelonaWes Michael~ Giving families the opportunity where it is most needed. Their opinion. Welcome to our summer series. You probably noticed a change in the intro right? Lol. We believe summer should be full of fun, good vibes, and great tunes!
Was Michael A founded Rare Patient Voice in 2013 to give patients and family caregivers with rare diseases, the opportunity to voice their opinions and research studies. This year the company celebrates its 10th anniversary. Rare Patient Voice has now conducted thousands of studies and rewarding patients and family caregivers with over $10 million dollars for their participation. Many have been recruited in person by West himself at...2023-06-3040 minThe Rare hour with Christopher VelonaRare thoughts on the #Rarewarrior 5 x 5 challenge! In this episode, we break down all of the sponsors and the fun day for the second, annual Rare warrior 5 x 5 challenge2023-05-0318 minThe Rare hour with Christopher VelonaConference SeasonDo better, be better!2023-03-3118 min
The Rare hour with Christopher VelonaEnd of 2022 Re Cap ShowJoin us, as we recap the best in the worst of 2022 through Project Sebastian, CSG, relationships, addiction, mental health, family, and the difficulties of living in rare.
You can find us on Social Media here:
https://www.instagram.com/projectsebastian1/ ~INSTA
https://www.facebook.com/projectsebi ~ FaceBook2023-01-0155 min
The Rare hour with Christopher VelonaI AM ANGRYToday I talk about why am angry in this rare disease space.2022-11-3028 min
The Rare hour with Christopher VelonaRare Thoughts...First 2 weeks of september.The first two weeks of September or very painful and challenging. However, what does not kill you makes you stronger right? Thank God for my friends at global genes. The rest of the month should be easy!2022-09-1618 min
The Rare hour with Christopher VelonaHow social media helps awareness with Megan LodenMegan is changing how rare disease families interact. With the help of social media, Megan's spin on the day-to-day lives of rare diseases has us laughing a bit more. You can see in her Instagram reels as she tells the truth through deadpan humor.
You will like this creator for sure on today's show!
Megan is a mom to twins — identical 18-year-old girls — and a 14-year-
old son. She, her husband, and her kids live just outside of Phoenix. She is
a writer, caregiver, and mom. Maybe most impor...2022-08-2939 min
The Rare hour with Christopher VelonaRare Thoughts/ Stop wasting time!Stop wasting time and waiting on others to help you or your children. It's time for you and others to start moving this needle and start helping other children and families with support.2022-08-1108 min
The Rare hour with Christopher VelonaDrydocked- How early detection in a routine exam saved his life and his rare life beganIn today's episode, we chat with a gentleman who was diagnosed with a rare disease in mid-life!!
Meet Dan Dry-Dock Shockley (Veteran)
Retired Navy, Operation Desert Storm; Enduring and Iraqi Freedom veteran and 10-year rare disease virtual international live-case presentation. Diagnosed w/hereditary colon cancer syndrome, attenuated FAP, in 2012. As a result of hereditary colon cancer syndrome diagnosis and colon removal surgery, I have an ostomy. An ostomy is a type of surgery that creates an opening in the abdomen that causes a change in the way stool exits the body. So I wear a p...2022-08-0844 minThe Rare hour with Christopher VelonaRare Thoughts...The Birthday one.Today we celebrate a new milestone for sebastian… His 19th birthday!2022-07-2007 min
The Rare hour with Christopher VelonaGrandma in rareOn today's show, we have my Mom, Michelle Velona. She is a grandmother, mother, widow, friend, and rare disease advocate. During her lifetime of service work, just like all families, she had no idea what type of grandma she was to be. Listen as she tells her story of how a rare diagnosis changed her life as a grandparent.2022-07-0936 min
The Rare hour with Christopher VelonaThe Batten update(reality) #08Just a quick check-in to let you know what's going on with Sebastian and his Batten disease… This episode just seemed to roll off my tongue. I finally was able to put my thoughts into a microphone without having to worry about what you think. I think the therapy is helping LOL
2022-06-2918 min
The Rare hour with Christopher VelonaToday was a good day...Well, there are some good days and then there are some bad days here in rare diseases. Here is one amazing day!2022-05-2806 min
The Rare hour with Christopher VelonaWhen the promise of Gene therapy does not apply to your childOn today's show, our guest is Batten CLN8's dad, Muhammad Dawood, who talks with us about Hannah, his terminally ill child.
From a normal life to a nightmare of testing to broken hopes for therapy. Muhammed explains what it was like, what happened and what is like now in today's rare disease world and gives a few important tips for parents just coming into this disease.
To support Hannah and follow her on social media:
Instagram: @hanna_cln8
2022-05-1849 minThe Rare hour with Christopher VelonaRare thoughts... FrustrationRecorded this episode right before my first 5K fundraiser. You can hear the anger, resentment, and frustration all around me. Tonight more than ever I need my rare disease support group!
To join us for our rare disease support group on Zoom head over to projectsebastian.org and hit the meetings tab and click on join now at 7 PM Pacific.2022-05-1206 minThe Rare hour with Christopher VelonaRare thoughtsMostly random thoughts that I am struggling with at this very moment!2022-04-2608 minThe Rare hour with Christopher VelonaThoughts of the day...What am I thinking about today...do you even want to know??2022-04-2108 min
The Rare hour with Christopher VelonaWe all want CURES!Today's guest: Monica Dudley-Weldon Her son was the 6th child diagnosed in the world!
In November of 2012, Monica's twin son, Beckett, was the first to be diagnosed at Texas Children's Genetics Clinic with the gene mutation SYNGAP1. When Beckett was 4 months old, we noticed he was not meeting the same milestones as his twin sister. We then began a journey to find answers to help our son. She began to blog about his progress & this led to building a community of parents & caregivers & a strong support group. She is the Founder, President/CEO of Bridge the Gap – SY...2022-03-1546 min
The Rare hour with Christopher VelonaThe Special Needs SenseiMeet sensei Richard Dolan, a 3rd-degree blackbelt in the art of Kenpo. Rich is a resident of Santa Clarita Valley California and gave up his radio career to be an instructor in the self-defense arena. Along that way, he realized that making people happy was his calling. Listen on as he describes his greatest joy by including the special needs and rare disease community inside his dojo.
To get a hold of Sensei Rich and find his social media:
Z-ULTIMATE SELF DEFENSE STUDIOS - VALENCIA
25844 Mcbean Parkway, Valencia, Ca 91355
Phone (661) 414-90702022-02-0128 min
The Rare hour with Christopher VelonaWelcomeWelcome to a new era, and a new show. On the Rare hour with Christopher Velona, we will share people's struggles, stories and discuss relatable topics in the rare disease communities. This will be a part interview and part topic-based show about all things Rare. Special needs families will bring to the attention of the casual listener what is like in dealing with their rare child, friend, sibling, or job. Doctors, family, and friends are welcome to be on the show and or just listen in. We want to bring the entire rare disease community together. Let's face it...2022-01-1016 min
The Rare hour with Christopher VelonaEFFIE PARKSI recorded the show prior to finding the perfect name for this podcast. The new name of the show is "The Rare Hour" with Christopher Velona. I dedicate this new beginning to our premier guest… Mrs. Effie Parks
Effie Parks was born in the magical land of Montana, where she was raised with her 12 loving siblings. After moving to Washington and marrying her husband, Casey, they were blessed with the birth of their son, Ford Canon Parks. When she learned that Ford had been born with an extremely rare genetic condition – CTNNB1 syndrome – she dove into the world of...2021-12-2053 min
The Rare hour with Christopher VelonaDr. DrewDr. Drew tells all...
"It's the leadership... that's the problem..." Listen on as Dr. Drew talks about his early days from humble beginnings as a doctor to create a new space in the addiction recovery arena. From doctor to national TV host to Podcaster, Drew has never forgotten why he got into this profession...To help others.
You can find Dr. Drew on these platforms and of course at his website Dr. Drew.com
Adam and Drew show
https://adamanddrdrewshow.com/DrDrew podcast
...2021-11-0450 min
Once Upon A GeneRaising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher VelonaONCE UPON A GENE - EPISODE 105Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona Christopher Velona is a rare dad on a mission, driving the goals of Project Sebastian. He joins me to share open, honest and vulnerable experiences from his life since his son Sebastian was diagnosed with Battens disease.EPISODE HIGHLIGHTSCan you tell us about your family?I have two boys, ages 16 and 18, Gage and Sebastian. S...2021-10-2140 min
The Rare hour with Christopher VelonaNew Show.We are changing things up around here. We have a new podcast and an entirely new show. Welcome to CSG consultants. Where we create time for you. This podcast was created around the idea of helping others connect. The new show is titled connections with purpose. Give us a listen and tell us what is your purpose…?2021-01-0903 min
Connections with purposeDr. Drew Pinsky"Its the leadership... that's the problem..." Listen on as Dr. Drew talks about his early days from humble beginnings as a doctor to creating a new space in the addiction recovery arena. From doctor to national TV host to Podcaster, Drew has never forgotten why he got into this profession...To help others.
You can find Dr. Drew on these platforms and of course at his website Dr. Drew.com.
Adam and Drew Show
DrDrew podcast
DrDrew After Dark
Daily Dose
drdrew.com2020-09-1850 min
Connections with purposeChandra Padover... Your Arbonne girl.Chandra Padover - Arbonne International
Fourteen years in corporate recruiting left Chandra wanting out of the rat race and with time freedom, but also with an opportunity to replace a professional-level income.
Three impactful and unforeseen events (a divorce, a car accident, and an illness) added unplanned financial concerns. She realized she needed a safety net — something she could work from her bed, if necessary. After watching her friend build a successful network marketing business, Chandra decided that forty-year-old vegan health and beauty company, Arbonne International, offered what she needed.
As...2020-07-3138 min
Connections with purposeQuincy, the woman to travel with!This vibrant young woman had to make a decision not once, but twice to change her life. Some may say getting sober before the age of 18 would be a very dumb move; like you are going to miss out on your best "party" years. Listen as Quincy tells us that it was very smart move for her, although it did take her two tries, it ultimately saved her life. This inspiring story is filled with regret, loss of a family, and even divorce. But in the end, she is stronger, smarter, and happier than ever.
A...2020-06-0746 min
Connections with purposeR.J. Orr tells me his reason behind his success...truly shocking.A family man with a passion for success. But his definition might be different than you think.
While building his business a family was created. Well, actually two, His home life where he is married to his Wife Lida (the rock) and has three beautiful children.
Then there is his work family. A parent to over 100 plus employees in multiple states, yet R.J. still finds the time to help others every day.
From supporting local schools and charities to created life-saving PPE products through his company Bluemedia.
Just a bit...2020-05-1545 min
Connections with purposeStacey Roth, The woman who said no...I can do more.Stacey Roth, LCSW/life coach/mental health care advocate
Specializing in mental health services specifically children affected by trauma, child development, play therapy, sand tray therapy, severe and chronic mental illness, child abuse
Executive coach, mentorship, leadership training for women
I’m in and always willing to help good people!
In her position as executive vice president and chief operating officer, Stacey Roth, a licensed clinical social worker, oversees Hillsides behavioral health division; campus-based services, including Hillsides Education Center; community-based outpatient services, which includes all Family Resource Center programs; foster ca...2020-05-0840 min
Connections with purposeTony G.Tony G. No other title required. Just hit play and become addicted to the Voice, the man, and the message.
Truly one of my inspirations. Like him or hate him he is one of the good guys. As you listen you will understand his purpose... with connections.
Tony Grebmeier is a husband and father first. Then an entrepreneur, podcast host, journal creator, and host of the BeFulfilled Community. He may be most well-known for building a multi-million dollar business.
However, It’s Tony’s mission in life to create a community where entrepreneurs know...2020-04-2942 min
The Rare hour with Christopher Velona"We knew nothing about this..." Kristen GrayWife, mother, advocate, and businesswoman, Kristen Gray shares her story about the heartbreaking battle into the unknown...Batten Disease.
"In my wildest of wildest fears did I ever think what it ultimately would be"
From normalcy to misdiagnosis to MRIs, Kristen Finds strength and power in her partner.
Kristen and Gordon Gray have paved the way for many doctors, physicians and pharmaceutical companies to start thinking outside the box, as both of their children fight for their lives.
Gordon Gray, a Hollywood producer, turned childhood disease advocate was able to rally som...2020-04-181h 08
Connections with purposeMeet Pete. This guy leaves a dream job for a career in helping others to achieve their dreams.An ex-football jock quits a dream job at a major network to help out his mom and dad.
This real estate professional tells us about a journey from humble beginnings to today's challenges with the pandemic environment and how you should be looking at real estate. Peter is a true gentleman with a way to help others make the right move in uncertain times.
How to get in touch with Peter:
Facebook:
Peter Stamison - Real Estate
Instagram:
@Scvpete
Website:
2020-04-1447 min
Connections with purposejomjaiFrom housewife to entrepreneur to an art dealer to money manager, this tenacious woman helps those with a special purpose...from the heart.
Find out why she still listens to her mom, whom she calls her hero.
Jomjai Srisomburananont holds a bachelor's degree in Managerial Economics from the University of California Davis and a Bachelor of Art Management and MBA in Strategy and Finance from Claremont Graduate University.
Jomjai Srisomburananont has been in the financial services industry since 2001 and joined Merrill Lynch in 2018.
Just some of her skills...
Business...2020-04-0943 min
Connections with purposeThe introductionFind out who, what and why CSG Inc. is all about. This episode will bring you closer to an understanding of our company and our desire to connect with others. This consultant group's mission is to help you get your answers a lot quicker than you would on your own. We are here to help you not waste time but to create it.
Follow us:
https://www.facebook.com/VelonaInt/ or CSGinc.
Linkedin: CSG INC.
Instagram: CSG INC.2020-03-3121 min
The Rare hour with Christopher VelonaThe Cystic fibrosis financial plannerMeet Steven Lee. A Man that has three full-time jobs. Father, husband and brings community and awareness through his financial services. But let's talk about why Stephen is on the project Sebastian podcast. The father of two children Rebecca 8 and Sampson 5, Steven works from home while taking care of his two children. One of which requires treatments twice a day for breathing to counteract the cystic fibrosis.
Cystic fibrosis affects the cells that produce mucus, sweat, and digestive juices. These secreted fluids are normally thin and slippery. But in people with CF, a defective gene causes the...2020-03-2142 min
Connections with purposeJacob Evans "One conversation can change everything".Behaviors and addiction can take you to some very crazy and dark places. From being popular and having it all together on the outside, but the guy on the inside was an opioid addict. Jacob was student body VP, in his second year of law school, managing a suit store, and a highly decorated National Model United Nations delegate. He knew his life was a sham. Empty. Didn't think anyone was noticing... One conversation with a teacher changed everything for him. Almost 5 years later, a husband, father, motivational speaker, peer recovery coach, life coach, certified drug...2020-03-0534 min
The Rare hour with Christopher VelonaJosh the super uncle!Joshua Ervasti, otherwise known as a super uncle. Listen today as Josh tells the story of one courageous little girl battling brain cancer and the sport that spiked a movement.
Maddie Cunningham had Medulloblastoma at the age of three. This Horrible type of brain cancer attacks the cerebellum creating a very difficult life of cognitive loss and fine motor skills as well as balance. Through a loving family and a super uncle, they created Maddie Cunningham's classic volleyball Challenge to bring awareness and funds to help all children suffering from medulloblastoma. Maddie has been in remission for s...2020-03-0434 min
The Rare hour with Christopher VelonaMelissa and Haley~HerosMeet Melissa Pollman: Mom, wife, entrepreneur, advocate and holds an MBA in Management. Listen in as we hear this family gal's story from Oregon about her daughter Haley, and the change that would come from a horrible diagnosis of Batten disease CLN1. From the business owner to Batten advocate she not only created a foundation but took on TEDx speaker series earlier this year to raise more awareness to find a cure.
You can follow Melissa on these social media platforms:
Facebook: Melissa Pollman
Haley Heros Foundation
Instagram: https://www.instagram.com/haleysheroesfoun...2020-02-1948 min
The Rare hour with Christopher VelonaAccountability and AutismListen today as our guest Jessica Calhoun keeps it real through accountability, weight loss, sobriety and motivating others through the truth and obstacle courses! You can follow Jessica on social media!!
Instagram: www.instagram.com/jessicalhoun2020-02-1151 min
The Rare hour with Christopher VelonaThe year in reviewListen as we recap the highs and the lows of 2019. From multiple seizures to shutting down an NFL raffle, Throwing out the first pitch at the Dodgers game, standing toe to toe with Dana White and the UFC, to creating the most awareness to date in the state of California with Assemblywoman Christy Smith.
Please visit www.projectsebastian.org to make a donation today to save a child tomorrow.2020-01-0134 min
The Rare hour with Christopher VelonaBreaking down Epilepsy with Dr. Shaun HussainDr. Hussain, Director of Infantile Spasms Program and Associate Professor of Pediatrics at UCLA, Breaks down epilepsy in its rawest form. From newborn screenings, to why false positives are on the rise and the struggle to talk more about epilepsy as a whole. Join us as Dr. Shaun Hussain brings not only his experience in the infantile spasms world but as it directly relates to his personal life.
To find out more about what Dr. Sean Hussain is doing click here:
www.InfantileSpasmsProject.org
To donate today and support funding a...2019-11-1437 min
The Rare hour with Christopher VelonaThe UpdateSebastians MRI...:(
The rest of the years going forward. :)2019-07-1619 min
The Rare hour with Christopher VelonaBDSRA Family Liaison Tracy KirbyListen as Tracy Kirby discusses her role as one the Nations largest advocates in helping families affected by Batten disease find love, hope and support.2019-06-1823 min
The Rare hour with Christopher VelonaBill BusseyA former police officer, Rodeo superstar, sheriff dispatcher and all-around guys guy, Shares his story. As we listen to him overcoming life's challenges through his own loss of sight, We are reminded that sometimes we just should not wait. Today's guest is almost blind and an advocate and independent contractor for a great company called eSight. Bill Bussey. To reach out to Bill for anything from eSight to coping with blindness call him at +1 (830) 388-08322019-04-2844 min
CausepodsThe Uphill Battle of Batten Disease
Sebastian Velona is a happy kid. He is tough and resilient in the face of adversity, something many kids his age struggle to embody. Sebastian has it especially tough, however. He was diagnosed at a young age with the CLN8 variant of Batten Disease, a rare genetic condition that causes seizures, blindness, and cognitive decline.
After Sebastian received the diagnosis, his father, Christopher, did what any caring parent would do: he exhausted all avenues in search of treatment options, and when he didn’t find what he was looking for, he spearheaded his own movement to fundraise fo...2019-04-1124 min
The Rare hour with Christopher VelonaIn my opinionWhy do we react so badly, Why do we run? Why are we crippled with fear?
Its ok ....It just is...2019-04-0309 min
The Rare hour with Christopher VelonaEpisode 12Todays episode...The amazing Dr. Jill Weimer!
Jill Weimer, Ph.D.
Associate Scientist and Senior Director of Therapeutic Development
Sanford Research
Dr. Jill Weimer is a developmental neuroscientist and oversees the management and continued development of the translational arm of Sanford Research in Sioux Falls, South Dakota. She started at Sanford Research in 2009 as an assistant scientist, and her research program focuses on the molecular mechanisms mediating development of the cerebral cortex and how disruption in these processes can lead to a whole host of neural pediatric disorders, including Batten’s disease and Neurofibromatosis Type 1. Dr. Weimer grew up in nor...2019-02-2842 min
The Real Stories Behind SuccessFacing Batten Disease Head On - Christopher VelonaWhat would you do if you got news today that your child was going to die? What would that cause you to do, would you drop everything and run in the opposite direction or would you face it head on? On this episode of BEFULFILLED, you’ll hear from the director of Project Sebastian, Christopher Velona. In his conversation with Tony, Christopher opens up about his son Sebastian and his fight against Batten Disease, his definition of success, fundraising goals they’ve reached, how their family has rallied together, and so much more.......2019-02-0328 min
The Rare hour with Christopher VelonaVERNON MAXXWELLENTREPRENEUR, WORLD TRAVELLER, DJ, CELEBRITY PODCASTER, & LIFE ENTHUSIAST AND SPECIAL NEEDS ADVOCATE. Vernon tells his story about helping his family from across the country while discovering his true calling.2019-01-1837 min
The Rare hour with Christopher VelonaHoliday message with Sebastian and GageListen as my boys give all of us a holiday message!2018-12-2406 min
The Rare hour with Christopher VelonaJohn Montazeri: Father, Advocate, BusinessmanTake a listen as this father of autistic child describes his life full of challenges, Depression, Marriage, Money, the current state of insurance with special needs ad how he is dealing with the loss of a very special person.2018-12-1255 min
The Rare hour with Christopher VelonaGageToday we talk to a sibling of a special needs kid. Gage, my son, goes deep into his relationship about his brother and talks candidly about the challenges of being a younger brother were anger and resentment played a part in the downfall of most of his relationships. Throughout his brothers challenges in life Gage found himself left out only to become one of sebastian‘s biggest supporters.2018-11-1757 min
The Rare hour with Christopher VelonaDenaDena bogrow •Listen as this special-needs mom tackles and 18-year-old suffering from several forms of autism. Attacking the day-to-day challenges of divorce, daily activities, home based business as well as finding the spiritual aspect to survive2018-10-2632 min
The Rare hour with Christopher VelonaVanessa severanceBatten disease cln2 mom discusses the hardships of full-time care with full-time jobs2018-10-0146 minThe Rare hour with Christopher VelonaWelcomeGetting to know your host, Christopher Velona2018-09-2907 min
The Rare hour with Christopher VelonaBatten disease...Greg Lopez~We discuss the everyday challenges of an Autistic adult and a father of 5 who is relentless in helping others in the batten community2018-09-1934 min
The Recovery RevolutionSHAIR 176: Against the Odds with Christopher VelonaToday we have Christopher Velona on the show. He is a sober father, philanthropist, CBD advocate, and Gene Therapy enthusiast, and Founder Project Sebastian. Project Sebastian is a charity that is racing for a cure to Batten Disease, a fatal and degenerative neurological disorder that is taking his son’s life bit by bit each day. Chris is a grateful recovering alcoholic. He grew up in a wealthy family in California and fell into heavy drinking early on in life. He was able to skirt the consequences because he was well-connected. The party did not stop until he...2018-06-261h 28
The SHAIR Recovery PodcastSHAIR 176: Against the Odds with Christopher VelonaToday we have Christopher Velona on the show. He is a sober father, philanthropist, CBD advocate, and Gene Therapy enthusiast, and Founder Project Sebastian. Project Sebastian is a charity that is racing for a cure to Batten Disease, a fatal and degenerative neurological disorder that is taking his son’s life bit by bit each day. Chris is a grateful recovering alcoholic. He grew up in a wealthy family in California and fell into heavy drinking early on in life. He was able to skirt the consequences because he was well-connected. The party did not stop until he...2018-06-2600 min