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Seasoned ProfessionalSeasoned ProfessionalInternational Women's Day: The Final Chapter with Clare FullerIn honour of International Women’s Day, I’m excited to re-release a very special episode. I also want to take a moment to thank all the incredible women who have given their time to come on the show and share their life stories. Your experiences, wisdom, and honesty continue to inspire me and so many others. Today, we dive into an inspiring career journey with Clare Fuller. Starting as a hospice nurse and advancing through the healthcare system, she earned her master’s degree at 50, launched her own business, and created a podcast about advanced care p...2025-03-081h 47Conversations About Advance Care PlanningConversations About Advance Care Planning123 Advance Care Planning with Dr Emma ClareIn this episode it is my pleasure to talk with Dr. Emma Clare. Emma is a chartered psychologist specialising the development of death competency. Her PhD and MSc research to date has focused on improving communication in end-of-life care, psychological influences on healthcare professional’s coping responses to patient death events factors, which support death competency and the impact of healthcare professional's own death anxiety.   You’ll find an extra to Emma’s podcast as we recorded Emma’s Advance Care Planning to date in a separate discussion. The recording kit failed in our original meeting a...2025-02-1742 minConversations About Advance Care PlanningConversations About Advance Care Planning#120 ACP Day 2025: James and Clare share how you can be involvedIn this episode it is my pleasure to catch up with James Norris. James is the founder of MyWishes and the Digital Legacy Association.  He is also the Digital Research Fellow at Michael Sobell Hospice (London).  It’s a chance for us to reflect on the 2024 Advance Care Planning Conference and to share news of the UK's second National Day dedicated to Advance and Future Care Planning. Listen to hear how you can be involved, through attending in person, live streaming or making a pledge.There’s a wealth of resource on the Advance Care PLan  website too and...2025-01-2739 minConversations About Advance Care PlanningConversations About Advance Care Planning115 Conversations About Advance Care Planning 2024 Round UpMartin here (podcast editor)... In this special, unplanned episode, we hear lots of important messages from episodes throughout 2024. Clare is unwell, but she's promised she'll be back very soon! An opportunity then to hear from the amazing guests we've had on this year. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting...2024-12-2312 minConversations About Advance Care PlanningConversations About Advance Care Planning114 Better End of Life Report 2024. What we can learn about the current experience of end of life care in England and Wales with Professor Fliss Murtagh In this episode it is my pleasure to catch up with Fliss Murtagh, Professor of Palliative Care at the Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull. Fliss talks through the 2024 Better End of Life Report and, to be frank, it’s a hard listen. The gaps and inadequacy of care are identified, with clear next steps for how we can and must do better. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care he...2024-12-1636 minConversations About Advance Care PlanningConversations About Advance Care Planning112 Lasting Power of Attorney: a younger person’s perspective with Robyn FullerIn this episode it is my pleasure to talk with the most special guest I have had so far - my daughter Robyn. We talk about Lasting Power of Attorney through the eyes of a younger person, challenge common perceptions and talk about ways that could make LPAs more relevant to young people. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you...2024-12-0215 minConversations About Advance Care PlanningConversations About Advance Care Planning111 Clare & Dani explore public awareness of DNACPR & ReSPECTIn this episode it is my pleasure to catch up with Dani and explore public awareness about  DNACPR and ReSPECT. We highlight some key challenges, share what’s happening in our local patches and would love to hear from anyone with experience of delivering a public awareness ReSPECT campaign. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find inf...2024-11-2520 minConversations About Advance Care PlanningConversations About Advance Care Planning108 Advance Care Planning: Reflecting on collaborations with Dani Ayre and the Waiting Room Revolution TeamThis episode features a conversation and great catch up with Dani Ayre and the Waiting Room revolution Team. We discuss how the Advance Care Planning Conference developed, and the joy of working together for the Hope for the Best Plan for the Rest UK road tour. We also explore the next steps in bringing the principles of the Waiting Room Revolution to the UK. You can access the podcast in full at:  https://www.waitingroomrevolution.com/podcast/episode/2a73fb01/s9-episode-95-clare-fuller-and-dani-ayre    The Waiting Room Revolution podcast theme song is May...2024-11-0629 minThe Waiting Room RevolutionThe Waiting Room RevolutionS9: Episode 95: Clare Fuller & Dani AyreThis episode features our conversation with Clare Fuller & Dani Ayre, Advance Care Planning Experts and advocates from the UK. We discuss how they organized a conference for Advance Care Planning in the UK earlier this year, public awareness and empowerment.   Learn more about Clare's work on her website:  https://speakforme.co.uk/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/  2024-10-2928 minThe Care & Dementia PodcastThe Care & Dementia PodcastEnd of life care, making empowering decisions - with Clare Fuller, Founder of Speak For MeHello, and welcome to the Care and Dementia Podcast, where we dive deep into the topics that matter most when it comes to caring for your loved ones. I’m your host, Gemma Clay, and today we’re exploring an incredibly important and often difficult subject—end of life care, and how to empower both you and your family when navigating this delicate time.When a loved one is nearing the end of their life, making decisions about their care can feel overwhelming. You’re faced with practical tasks and tough conversations, all while wanting to be pre...2024-10-2546 minConversations About Advance Care PlanningConversations About Advance Care Planning102 Clare & Dani reflect: Interventions and CPRI am thrilled that Dani will be joining me as a regular guest on the podcast. We’re going to be reflecting on updates, resources and our experiences around Advance Care Planning. In this episode we explore recent research into radiological tests in the last six months of life. We also discuss the Dr Kathryn Mannix TED Talk, Heart Stopping moments and how this could be used in your practice If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life ca...2024-09-2316 minConversations About Advance Care PlanningConversations About Advance Care Planning100 Planning not panicking: Advance Care Planning with Martin WhiskinIn this very special 100th episode I talk with Martin Whiskin, an award winning voiceover artist and podcast editor. Martin  is very importantly  the technical expertise behind Conversations About Advance Care Planning. We reflect on episodes 75 to 100 and how they have impacted us both personally and professionally. As ever, I am blown away by Martin’s revelations and how Advance Care Planning has become such a normal and comfortable part of his life planning.  If you are a team looking to provide better end of life care, or set up a one off or complete educa...2024-07-0149 minConversations About Advance Care PlanningConversations About Advance Care Planning99 The Victoria & Stuart Project: helping people with learning disabilities plan for the end of their lifeIn this episode it is my pleasure to meet the team behind the Victoria and Stuart Project, a tool kit and resource for end of life planning for people with learning disabilities within all care settings. I learn about the triggers for the project, how the work developed and find out about the incredible resource that has been created.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk w...2024-06-2456 minConversations About Advance Care PlanningConversations About Advance Care Planning98 Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of JohnIn this episode I talk with Louisa Nicoll, wife of John and palliative care nurse. Louisa generously shares their family experience following John's sudden and life changing diagnosis of cancer.    We talk about what it felt like for John to receive chemotherapy and the decision to stop palliative chemotherapy. We also explore what the word treatment means and the changing nature of hope.    If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head...2024-06-171h 02Conversations About Advance Care PlanningConversations About Advance Care Planning97 The End of the Road Show - how the arts can support Advance Care Planning with Su SquireIn this episode it is my pleasure to talk with Su Squire. Su is a storyteller, poet, theatre-maker and Death Cafe facilitator. Her performance company, Off the Twig, creates work that encourages conversation and positive action around themes of death, dying and grief. We explore the catalyst that led to Sue’s creative work and the impact that storytelling has on Advance Care Planning.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to...2024-06-1036 minConversations About Advance Care PlanningConversations About Advance Care Planning96 Advance Care Planning: making it real with Tara HumphreyIn this episode it is my pleasure to talk with Tara Humphrey, founder and CEO of THC Primary Care. It is a super episode in which we explore why Advance Care Planning is so important to Tara and how to use the model of Getting Your House in Order to guide planning ahead. Our conversation shows how to normalise Advance Care Planning and I am so grateful to Tara for having such an important conversation so publicly.  If you are a team looking to provide better end of life care, or set up a one off or c...2024-06-0335 minConversations About Advance Care PlanningConversations About Advance Care Planning95 Organ donation with Dr Radha SundaramIn this episode it is my pleasure with Radha Sundaram an NHS consultant in intensive for the last 16 years in Scotland. Radha is an advocate for organ donation and improving awareness amongst our diverse society. She has had a long-standing interest in end of life care and has been responsible for the guidelines in NHS Greater Glasgow and Clyde. Radha also does pro bono work for a charity called Pallium in India which was described in the Lancet as model for end of life care and for the Mohan Foundation which is India’s largest organ donation ad...2024-05-2740 minConversations About Advance Care PlanningConversations About Advance Care Planning94 What we can learn about S46 funerals and Advance Care Planning with Evie KingIn this episode it is my pleasure to talk with Evie King, author of the incredible book Ashes to Admin. I learn from Evie what it means to have a Section 46 council funeral and, most importantly, that nobody is nobody. Evie describes the care and detail that goes into a council funeral dispelling myths about what it means to die alone and sharing what the role has taught her about planning ahead. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end...2024-05-2054 minConversations About Advance Care PlanningConversations About Advance Care Planning93 Dying Matters with Dr Lucy PainIn this episode it is my pleasure to talk with Dr Lucy Pain, who is this year’s Dying Matters Awareness week expert. I have the chance to thank Lucy publicly for recommending Conversations About Advance Care Planning as part of the recommended books (and more) for Dying Matters Awareness Week. We explore the importance of week, why language matters and what resource is available through Hospice UK. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to...2024-05-1335 minConversations About Advance Care PlanningConversations About Advance Care Planning92 Getting Your House in Order: Planning End of Life Care with Clare Fuller & Dani AyreIn the final episode of our series of podcasts,  we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This episode focuses on Advance Care Planning associated specifically with End of Life Care. We explore what is meant by End of Life Care and break down care into the last years, months and days of life.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care he...2024-05-0653 minConversations About Advance Care PlanningConversations About Advance Care Planning91 Getting Your House in Order: Legacy & memory making with Clare Fuller & Dani AyreIn the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource section for this podcast.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.s...2024-04-2927 minConversations About Advance Care PlanningConversations About Advance Care Planning#90 Getting Your House in Order: Thinking about who would speak for you with Clare Fuller & Dani AyreIn the fourth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and build on our discussions  to start thinking about who would support you to make decisions or make decisions on your behalf if you ever lost the ability to speak for yourself.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life car...2024-04-2223 minConversations About Advance Care PlanningConversations About Advance Care Planning#89 Getting Your House in Order: Thinking about what you don’t want with Clare Fuller & Dani AyreIn the third episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you don’t want and how this can be documented in an Advance Decision to Refuse Treatment. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk...2024-04-1526 minConversations About Advance Care PlanningConversations About Advance Care Planning#88 Getting Your House in Order: Thinking about the things you do want with Clare Fuller & Dani AyreIn the second episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you do want and how this can be documented.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I c...2024-04-0818 minConversations About Advance Care PlanningConversations About Advance Care Planning#87 Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani AyreIn this episode we explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We start at the very foundations and talk about why What Matters Most is at the heart of Advance Care Planning.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting P...2024-04-0126 minConversations About Advance Care PlanningConversations About Advance Care Planning86 Think, Talk, Act with Wendy HillsIn this episode it is my pleasure to talk with Wendy Hills. Wendy has over 30 years’ experience as a Nurse qualifying in 1992, and specialising in Cancer and Chemotherapy.  For a decade she developed chemotherapy services, including developing Nurse led chemotherapy and intravenous access in East Kent Hospitals.  Wendy is currently the Director of Nursing and Care Services for Pilgrims Hospices. I learn about the Advance Care Planning Project Think, Talk Act and why this is so important to Wendy.  We talk about upstreaming Advance Care Planning, the importance of identifying patients who may benefit from Planning earlier and s...2024-03-2542 minConversations About Advance Care PlanningConversations About Advance Care Planning85 The Safari Concept with Dr. Christian NtizimiraIn this episode it is my pleasure to talk with Dr. Christian Ntizimira, author of “The Safari Concept: An African Framework on End-of-Life Care” and Founder/Executive Director of the African Center for Research on End-of-Life Care. Christian shares the journey which led him to write the Safari Concept and we explore how culture and belief impact communication and care. It is a powerful episode with messages about bias, development of culturally appropriate models and recognition of Ubuntu – I am because we are.     If you are a team looking to provide better end of life c...2024-03-181h 07Conversations About Advance Care PlanningConversations About Advance Care Planning84 Alison Gardner & Sophy Horner Last Days MatterIn this episode it is my pleasure to talk with Alison Gardner & Sophy Horner from St John's Hospice about their incredible programme Last Days Matter. The programme aims to support people in looking after their loved ones at home and is very much a compassionate community approach to care. I learn how the programme was developed, what it includes and how to access the Last Days Matter resource. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of...2024-03-1146 minConversations About Advance Care PlanningConversations About Advance Care Planning83 Lasting Power of Attorney with Gary RyecroftIn this episode it is my pleasure to talk with Gary Ryecroft, a solicitor and resident legal expert on Rip Off Britain. Gary has also been a trustee for what was the National Council for Palliative Care and later a chair of the Dying Matters Forum. This is a supper conversation, we talk about the podcast  Gary created as part of the We Need to Talk About Death series with Dame Joan Bakewell and we talk about Gloria Hunniford’s live televised Lasting Power of Attorney signing. We also cover capacity, digital assets and Advance Decisions to Refuse Treatment and...2024-03-0437 minConversations About Advance Care PlanningConversations About Advance Care Planning82 What living well with dementia looks like with Peter Berry and Deb BuntIn this episode it is my pleasure to talk with Peter Berry and Deb Bunt. Peter was diagnosed at 50 with early onset Alzheimer’s. Previously the owner of a thriving timber business, Peter’s life changed upon the diagnosis.  He has emerged through depression and two suicide attempts to be a passionate advocate of living well with dementia.  A keen cyclist, Peter has used his cycling to raise money for and awareness of Alzheimer’s.  He is often seen cycling around rural Suffolk on his penny farthing bike. Deb retired to Suffolk from London and found a n...2024-02-2655 minConversations About Advance Care PlanningConversations About Advance Care Planning81 Talking through the intersection between critical care & EoLC with paramedic Jim WalmsleyIn this episode it is my pleasure to talk to Jim Walmsley, a specialist paramedic in critical care. Jim talks about how Advance Care Planning impacts the work he does, sharing stories and experience.Jim also explains why he is fundraising for the  Intensive Care Society and how you can follow and support his iconic high alpine challenge.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on...2024-02-1945 minConversations About Advance Care PlanningConversations About Advance Care Planning80 Why I started a Death Café with Ewout Van-ManenI’d heard about Death Cafés but never attended one and have always wanted to learn more about the movement. In this episode I have the pleasure of talking with Ewout, facilitator of the Death Café Suffolk Transitions.  We talk about the origins of Death Cafés, how they run in practice and what drew Ewout to become involved.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provi...2024-02-1229 minConversations About Advance Care PlanningConversations About Advance Care Planning#79 Helping to see the person behind the patient with OT Justine RobinsonIn this episode it is my pleasure to talk with Justine Robinson, Occupational Therapist and Wellbeing Services manager at the Pilgrims Hospice. I learn about the role of an Occupational Therapist and we talk about how therapy work can help find the person in a patient. I learn too about the innovative Blackbird project, the story behind the project and how it is helping to make precious memories. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head...2024-02-0539 minConversations About Advance Care PlanningConversations About Advance Care Planning78 Advance Care Planning: Listening not box ticking with Professor Alison LearyIn this episode it is my pleasure to talk with Professor Alison Leary. Alison is a Senior Consultant at the World Health Organisation, Human Resources for Health, and the Chair of Healthcare & Workforce Modelling at London South Bank University. It’s an important episode and based on Alison’s family experience. We talk the impact of receiving a form in the post to initiate Advance Care Planning, what it felt like and how valuable messages and nuances were lost. We also acknowledge the importance of having conversations and listening to cues as the basis for pers...2024-01-2927 minConversations About Advance Care PlanningConversations About Advance Care Planning77 What Matters Most in action and the power of Communication and kindness with Caroline EnglandPeter Camrass of Camrass Wills kindly supplied sponsorship to produce this episode.  Peter has had no influence in the creation, development or content of this podcast and full control remains the responsibility of Clare Fuller.This is an important episode of Conversations About Advance Care Planning. It’s a very reflective episode with learning for us all. I met with Caroline England, founder and writer of Featherbed Tales, over a year ago – we recorded an episode called Featherbed Tales and the power of voice which you can access in the show notes. This time, as the saying goes...2024-01-2230 minConversations About Advance Care PlanningConversations About Advance Care Planning76 Companion Voices with Judith SilverIn this episode it is my pleasure to talk with Judith Silver, founder of Companion Voices. I learn about the origins, development and current work of Companion Voices. Judith shares what Companion Voices offers to people who are dying and describes how groups normalise conversations around death and dying. We talk about raising awareness of Companion Voices and how this could fit with a person’s Advance Care Planning.   If you are a team looking to provide better end of life care, or set up a one off or complete education pro...2024-01-1548 minThe Waiting Room RevolutionThe Waiting Room RevolutionS7: Episode 81: Clare FullerThis episode features our conversation with Clare Fuller, a Registered Nurse with a passion for advance care planning. Clare owns Speak for Me a Lasting Power of Attorney consultant service in the UK. She is also the host of the Conversations about Advance Care podcast. We talk about what shes learned from hosting her podcast and some of the tools shes developed to help people plan for the future. Learn more about Clare's work and check out her podcast here: https://speakforme.co.uk/ For more information visit: www.waitingroomrevolution.com Our theme song is...2023-11-2842 minConversations About Advance Care PlanningConversations About Advance Care Planning75 Having fun with Advance Care PlanningIn this episode it is my pleasure to catch up with Martin and look back at episodes 51 to 74 of Conversations About Advance Care Planning. We talk about the episodes that have had the greatest impact on Martin and address barriers to creating Martin’s Lasting Power of Attorney. As ever, I am surprised and blown away by Martin’s creative approach to Advance Care Planning, and even the fun he is having in planning ahead.   If you are a team looking to provide better end of life care, or set up a one off or compl...2023-10-2337 minConversations About Advance Care PlanningConversations About Advance Care Planning74 Changing plans, anticipatory grief and planning aheadThis is the last in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about changing plans, anticipatory grief and being prepared.    Dying at home, what you need to know and how to be prepared 1. Re...2023-10-1611 minConversations About Advance Care PlanningConversations About Advance Care Planning73 What we need to do after a person has died at homeThis is the sixth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what to do after a person has died at home and the difference between verifying and certifying a death. Dying at home, what you...2023-10-0921 minConversations About Advance Care PlanningConversations About Advance Care Planning72 What changes are there as someone approaches the end of life?This is the fifth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what changes to be aware of as someone approaches the last days of life.  Dying at home, what you need to know and how t...2023-10-0227 minConversations About Advance Care PlanningConversations About Advance Care Planning71 Symptom control and medication as someone approaches the end of life at homeThis is the fourth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about how to recognise when someone might be approaching the last stages of life and why this matters.   Dying at home, what you n...2023-09-2520 minConversations About Advance Care PlanningConversations About Advance Care Planning70 What equipment might be needed to help look after a person who is dying at homeThis is the third in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what equipment might be needed to help look after a person who is dying at home. If you are a team looking to provide...2023-09-1812 minConversations About Advance Care PlanningConversations About Advance Care Planning69 What support is available to help look after a person who is dying at homeDying at home, what you need to know and how to be prepared - What support is available to help look after a person who is dying at home. This is the second in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In...2023-09-1116 minConversations About Advance Care PlanningConversations About Advance Care Planning68 Recognising when someone might be in the last stages of lifeThis is the first of a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about how to recognise when someone might be approaching the last stages of life and why this matters. If you are a team looking to...2023-09-0415 minConversations About Advance Care PlanningConversations About Advance Care Planning67 Why we need to talk more about Ordinary Dying with Lizzi CollingeIn this episode it is my pleasure to talk with Lizzi Collinge. We talk about what happened following her Grandma's stroke focusing on missed opportunities to talk about Ordinary Dying and the difference this would have made. We discuss the emotive subject of Clinically Assisted Hydration and Lizzi explains what she has learned about her Grandma's death and how different conversations at the time could have helped. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to...2023-08-2840 minConversations About Advance Care PlanningConversations About Advance Care Planning66 Terminology and language around discontinuing dialysisIn the previous episode I spoke with Dr Barny Hole and Dr Emma Murphy about the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like. We realised there was so much more we had to talk about and met again to explore the complexity of language associated with Palliative and End of Life Care, focusing particularly on language around discontinuing dialysis. You can hear our discussion in this episode; it was so interesting to explore the variance in our thoughts and highlight the importance of effective...2023-08-2159 minConversations About Advance Care PlanningConversations About Advance Care Planning#65 Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma MurphyIn this episode it is my pleasure to talk with Dr Barny Hole and Dr Emma Murphy. Barny is a kidney doctor currently studying for a PhD. Barny’s research looks at how older people with kidney failure decide between dialysis and comprehensive conservative care. Emma is an Associate Clinical Professor in Nephrology Nursing with a combined clinical and academic role. Emma is currently leading the QUALYCARE Kidney study which aims to understand the variations in the quality of end-of-life care for patients with kidney disease on dialysis. We explore the trajectory of kidney disease, co...2023-08-1448 minConversations About Advance Care PlanningConversations About Advance Care Planning64 Mental Capacity: it’s decision specific, not a binary concept with Dr Maggie KeebleIn this episode it is my pleasure to talk with Dr Maggie Keeble, a retired GP with a special interest in End of Life Care. Maggie spent the later part of her career working in care homes and during that time became involved in many Lasting Power of Attorney discussions. We have a great conversation and Maggie really breaks down the Mental Capacity Act in relation to making a Lasting Power of Attorney and explains how we assess capacity to make the different types of Lasting Power of Attorney. If you are a team looking to provide...2023-08-0733 minConversations About Advance Care PlanningConversations About Advance Care Planning63 Advance Care Planning through the lens of a surgeon, daughter and patient with Dr Liz O’RiordanIn this episode it is my pleasure to talk with Dr Liz O’Riordan. We talk about Advance Care Planning through three very different lenses, from Liz’s experience as a surgeon, a daughter and as a patient. Liz shares what she has learned through these experiences and why we should all have the conversation and start planning early. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide deta...2023-07-3144 minConversations About Advance Care PlanningConversations About Advance Care Planning62 David Bowie & Advance Care Planning: a conversation with Prof. Mark TaubertIn this episode it is my pleasure to talk with Professor Mark Taubert, palliative care consultant, founder of Talk TalkCPR.com and chair of a national strategy group for Advance and Future Care Planning. We cover the famous Thank you to David Bowie Letter, Advance Care Planning in Wales and acknowledge both the complexity and simplicity of Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I...2023-07-2457 minConversations About Advance Care PlanningConversations About Advance Care Planning61 Living with the end in mind with Wendy MitchellIn this episode it is my pleasure to talk with Wendy Mitchell, author of the best-selling books Somebody I Used to Know, What I wish people knew about dementia and the recently published One Last Thing; How to live with the end in mind. We connected back in 2022 to explore Wendy’s Advance Care Planning and spoke about the work we did together in an earlier podcast. Wendy writes about her Advance Care Planning journey in her recent book and in discussion today we reflect on missed opportunities to plan ahead, the importance of language and of no...2023-07-1736 minConversations About Advance Care PlanningConversations About Advance Care Planning#60 Advance Care Planning: a relational context with Dr Julian AbelIn this episode it is my absolute pleasure to talk with Dr Julian Abel who became a consultant in palliative care 2001, working initially at a district general hospital and a hospice. For more than a decade he has become increasingly involved in finding ways of building compassionate communities around people at end of life. He has run projects at local, regional and national levels. He was Vice President of Public Health Palliative Care International. He is an international keynote speaker and has published regularly on models of public health palliative care. He is the editor, along with Professor Allan...2023-07-1040 minConversations About Advance Care PlanningConversations About Advance Care Planning59 Advance Care Planning from Student Nurse to PhD StudentStephanie Craig is a Registered Nurse and a PhD Student at Queen’s University Belfast. Since qualifying Steph has worked on a number of projects including the implementation of an Advance Care Planning educational tool for undergraduate nursing students. I connected with Steph on Twitter and was keen to learn what was covered in Steph’s education about Advance Care Planning as a student nurse and how this translated into practice. We talk about the fabulous project work that Steph has been involved with since qualifying and the difference this is making for nurses of tomo...2023-07-0327 minConversations About Advance Care PlanningConversations About Advance Care Planning#58 The challenges of Advance Care Planning for people experiencing homelessness with Dr Naheed DosaniIn this episode it is my pleasure and honour to talk with Dr. Naheed Dosani. Naheed is a palliative care physician and health justice activist dedicated to advancing equitable access to healthcare for people experiencing structural vulnerabilities like poverty and homelessness. Naheed’s achievements include founding the Palliative Education and Care for the Homeless (PEACH) Program at the Inner City Health Associates, serving as the Medical Director of Kensington Hospice in downtown Toronto, a Health Equity Expert Advisor at the Canadian Partnership Against Cancer and as a palliative care physician at St. Michael’s Hospital at Unity Health Toronto. 2023-06-2641 minConversations About Advance Care PlanningConversations About Advance Care Planning#57 The legal framework that underpins Lasting Power of Attorney and Deprivation of Liberty with Victoria Butler-ColeIn this episode it is my pleasure to talk with Victoria Butler-Cole KC , a barrister at 39 Essex Chambers. TorShe specialises in health and social care law, in particular the Court of Protection.  She is a member of the Nuffield Council on Bioethics and an advisor to the Open Justice project. This episode is the third in a series exploring a family’s experience at the Court of Protection and what we can learn from it. In the first episode I talk with Anna about her experience at the Court of Protection, I hear how Anna and her fam...2023-06-1958 minConversations About Advance Care PlanningConversations About Advance Care Planning#56 The Court of Protection: Experience of a daughterIn this episode it is my pleasure to talk with Mary about how it felt as a daughter to experience the Court of Protection, and what she learned about being an attorney for her Mum. I talk with Mary about what it felt like to experience the Court of Protection, the challenges, the positives and what impact the Open Justice Court of Protection Project had.  This is the second in a series of three podcasts; previously I spoke with Anna, Mary’s sister about the interplay between Lasting Power of Attorney and Deprivation of Liberty Safeguards. I lea...2023-06-1225 minConversations About Advance Care PlanningConversations About Advance Care Planning55 Lasting Power of Attorney, Deprivation of Liberty Safeguards and the Court of Protection - a family's experienceIn this episode it is my pleasure to talk with Anna about her experience at the Court of Protection. I hear how Anna and her family were unprepared for the experience and we explore the tension between deprivation of liberty and appropriate compassionate care and supervision of a person. This is the first in a series of three podcasts; in the next episode I talk with Anna’s sister Mary about how it felt to experience the Court of Protection and in the third I talk with Victoria Butler Cole KC who explains the terminology and legal fr...2023-06-0530 minConversations About Advance Care PlanningConversations About Advance Care Planning54 Anticipatory Prescribing: what it is, what research tells us and what we can do better with Dr Ben BowersIn this episode it is my pleasure to talk with Dr Ben Bowers. We talk about Ben’s research focusing on Anticipatory prescribing, the practice he found and what we can learn from this to deliver more personalised care. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and th...2023-05-2934 minConversations About Advance Care PlanningConversations About Advance Care Planning53 The power of Memorial Jewellery with Ros WoodIn this episode I talk with Roslyn Wood. Ros is a specialist metalworker and artisan jeweller. For over a decade she has been helping families capture precious moments in life through the art of jewellery-making. I talk with Ros about how her passion for memorial jewellery began, the variety of work she creates for people and how memorial jewellery can help with grief. You can see Ros’s work and some of her beautiful creations at roslynjewellery.co.uk  In our discussion Ros shares the joy she experiences in creating unique work which reflects so bea...2023-05-2246 minConversations About Advance Care PlanningConversations About Advance Care Planning52 The Elephant in the Room Advance Care Planning simulation training with Dr Anna SteelIn this episode of Conversations About Advance Care Planning it is my pleasure to talk with Dr Anna Steel. Anna is a Consultant Geriatrician at Barnet Hospital and co-founded the “Elephant in the Room” Advance Care Planning simulation course. We talk about what led Anna to create the course, how it is delivered and the impact it has made.. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I pr...2023-05-1536 minConversations About Advance Care PlanningConversations About Advance Care Planning51 Marking anniversaries and walking alongside a person who is grieving. I first met Jo in 2023 to record how Fast Track Continuing Health care supports Advance Care Planning. We spoke about the importance of adapting to rapidly changing needs, and the care required to support her husband Barry to die at home after he was diagnosed with an aggressive glioblastoma. In this special episode, released during Dying Matters 2023, we talk about the challenges in knowing how to mark anniversaries, what walking alongside a grieving person looks like and the importance of workplace support for bereavement. There’s a link to Jo’s first episode in the show...2023-05-0820 minConversations About Advance Care PlanningConversations About Advance Care Planning#50 Conversations that are making a difference with Martin WhiskinWell that was fun! Way back in June 2021 I reflected with Martin, the editor of Conversations About Advance Care Planning, on the podcasts produced and how they had impacted him. If you haven’t listed yet – do! It really is a super episode and sums up perfectly how we can normalise these important conversations. During our 2021 discussion, Martin mentioned a number of things he was planning and we pledged to catch up in a few months to see what had been put in place. Talking with Martin today I was blown away by what he has...2023-03-1337 minConversations About Advance Care PlanningConversations About Advance Care Planning#49 Reflecting on Conversations About Advance Care Planning with Martin WhiskinIt is with great pleasure that I am re -releasing episode 25 this week. This was a hugely popular episode in which Martin sets out the steps he will take for his Advance Care Planning and challenges me to produce episodes on Ordinary Dying, financial planning and alternative funerals. In next week’s episode, you can follow up the pledges Martin makes and hear how subsequent podcasts have met the challenges he set for me. You’ll also hear the very real impact Conversations in Advance Care Planning is having. If you are a team look...2023-03-0647 minConversations About Advance Care PlanningConversations About Advance Care Planning#48 To dialyse or not to dialyse? How research can support decision making with Dr Lucy SelmanIn this episode it is my pleasure to talk with Dr Lucy Selman. Lucy is Associate Professor in Palliative and End of Life Care and a social scientist who has published extensively on experiences of serious illness; decision-making and communication; family care-giving and bereavement; and widening access to services. Lucy is currently conducting the OSCAR study focussed on improving how renal clinicians communicate with older people about their treatment options and we dive into some fascinating early findings in our discussion. Lucy is based at the University of Bristol and works closely with researchers Dr Ryann Sowden...2023-02-2734 minConversations About Advance Care PlanningConversations About Advance Care Planning47 The importance of having a will in place with Sara SheppardIn this episode it is my pleasure to talk with Sara Sheppard, an Estate Planning Consultant. We talk about wills, probate and some common myths that surround this area. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.2023-02-2027 minConversations About Advance Care PlanningConversations About Advance Care Planning#46 Clare talks on the Magnificent Midlife podcast with Rachel Lancaster https://magnificentmidlife.com/podcast/132-later-life-planning-clare-fuller/  I was delighted recently to be a guest on the Magnificent Midlife podcast. I talk all things Advance Care Planning with Rachel Lancaster, including triggers for Advance Care Planning and how to have Important Conversations. To listen in full head to https://magnificentmidlife.com podcasts. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help yo...2023-02-1300 minMagnificent MidlifeMagnificent MidlifeLater life planning with Clare Fuller Clare Fuller talks about the importance of later life planning and what that can look like. Clare is a Registered Nurse with 30 years’ experience in End-of-Life Care for which she is a Care Quality Commission Specialist Advisor. She campaigns for proactive Advance Care Planning and is the host of the Conversations about Advance Care Planning podcast. Most of us leave these tricky issues until it’s too late, whereas actually it’s never too early to start. None of us knows what tomorrow may bring. This is a powerful and inspiring podcast about the benefits of planning ahead...2023-02-0751 minConversations About Advance Care PlanningConversations About Advance Care Planning#45 Fast Track CHC: Accessing Care to support Advance Care Planning with Jo ArmstrongIn this episode it is my pleasure and honour to talk with Jo Armstrong. Jo is a physiotherapist with an interest in rehabilitation and spinal injury. Jo cared for her husband Barry following the  sudden diagnosis of a rapidly deteriorating brain tumour supporting him in his wish to die at home.    We talk about the care needed to look after Barry, specifically Fast Track Continuing Health Care. Issues around assessment, responsiveness and flexibility are covered with the acknowledgement that without the correct care in place advance planning wishes cannot be met. If you...2023-02-0634 minConversations About Advance Care PlanningConversations About Advance Care Planning44 Why you need a Lasting Power of Attorney - Clare is a guest on the Medics Money podcastI first heard Dr Tommy Perkins talk about Medics Money on The Business of Healthcare Podcast with Tara Humphry in 2020. I have followed the growth of Medics Money with interest ever since and was delighted to guest on their podcast to talk about what a Lasting Power of Attorney is and why we ALL need one. Listen to the episode: https://www.medicsmoney.co.uk/ep-139-why-you-need-a-lasting-power-of-attorney/ If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life c...2023-01-3000 minConversations About Advance Care PlanningConversations About Advance Care Planning43 Clair Fisher re-releaseClair Fisher advocated for the benefits of early intervention palliative care, more open conversations around death and dying and normalising Advance Care Planning. Clair made these aims part of her retirement project after she was diagnosed with stage 4 bowel cancer.  I had worked with Clair and was aware of how thoroughly she had addressed her Advance Care Planning, to hear her shout out on Twitter that her wishes were not being heard inspired the podcast. We recorded in the final weeks of Clair’s life and the episode has since been downloaded over 500 times.  Many of the podc...2023-01-2340 minConversations About Advance Care PlanningConversations About Advance Care Planning#42 Advance Care Planning across ages - Common ground and challengesIn this episode I talk with Dr Annabel Howell, Medical Director of Children’s’ hospice across Scotland, Trustee/Vice Chair at the My Name’5 Doddie Foundation and keen sportswoman. We talk about how sport has influenced Annabel’s practice as a Dr, what Advance Care Planning with children looks like, and the differences and similarities with adult Advance Care Planning. We talk about Advance Care Planning when living with Motor Neuron Disease and explore sensitive decision making around the withdrawal of ventilation. We also explore Annabel’s work with the My Name’s Doddie Found...2023-01-1639 minConversations About Advance Care PlanningConversations About Advance Care Planning41 How to find a voice for Advance Care Planning when you can’t talk, with Speech and Language Therapist Sophie WhiteheadHow to find a voice for Advance Care Planning is dedicated to the memory of Keith, an incredible gentleman I met many years ago and who taught me about the power and importance of voice in truly seeing a person. In this episode I talk with Sophie Whitehead, a speech therapist specialising in palliative care. We talk about the crucial role Speech Therapists have on patient wellbeing, dignity and quality of life as well as supporting Advance Care Planning. This episode links to previous podcasts, check out episode 34 in which Caroline England discusses voice recording...2023-01-0930 minConversations About Advance Care PlanningConversations About Advance Care Planning40 Working when living with a terminal illness with Joanne Smithson and Sam RoystonIn this episode it is my pleasure to talk with Joanne Smithson from What Works Wellbeing and Sam Royston from Marie Curie about working when living with a terminal illness.  We reflect on the legacy of Clair Fisher and how Clair spoke so passionately about the impact on working on wellbeing. We talk about the research that has grown from this legacy and what the next steps look like. This is a great episode which challenges many assumptions of working while living with a terminal diagnosis. If you are a team looking to provide b...2022-11-2835 minConversations About Advance Care PlanningConversations About Advance Care Planning#39 ReSPECT and Advance Care Planning with Dr Zoe FritzIn this episode it is my pleasure to talk with Dr Zoë Fritz, a Consultant Physician at Addenbrooke’s Hospital and ethicist. Zoe shares the catalyst for and development of the ReSPECT process, and why ReSPECT is so much more than a decision about resuscitation.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasti...2022-11-2138 minConversations About Advance Care PlanningConversations About Advance Care Planning38 Advance Care Planning and dementia with Wendy MitchellIn this episode it is my pleasure to talk with Wendy Mitchell, bestselling author of “Somebody I Used to Know” and “What I wish People Knew about Dementia”. Wendy also has young onset dementia following a diagnosis aged just 58. We talk about the words that were used when Wendy received her diagnosis and how framing this differently could have significantly improved Wendy’s experience. We also discuss Wendy’s Advance Care Planning journey and why it is so important to her. This is an inspirational episode and has learning for us all. If you are a te...2022-11-1441 minConversations About Advance Care PlanningConversations About Advance Care Planning37 Choice is meaningless unless you know all the options with Holly Lyon Hawke holistic funeral directorIn this episode it is my absolute pleasure to talk with Holly Lyon Hawke, a multi award winning holistic funeral director. I learn the difference between the process and ceremony of a funeral, what a true natural burial is and hear about the innovative work Holly does with pets as well as her book aimed at supporting children with the process of death and dying. Talking with Holly was eye opening and I think will be the first of many conversations we have as I learn about the choices we have in caring for those we love...2022-11-071h 00Conversations About Advance Care PlanningConversations About Advance Care Planning36 If I get dementia, will they serve me meat? Advance Care Planning for vegans and vegetarians with Amanda WoodvineIn this episode it is my pleasure to talk with Amabda Woodvine, CEO of Vegetarian for Life.I learn about the surprisingly high number of older vegans and vegetarians living in care homes, the challenges that can be experienced and I find out about some of the great resources available to help.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. Y...2022-10-3128 minConversations About Advance Care PlanningConversations About Advance Care Planning#35 When doing nothing is doing everything with Dr Erica BorgstromWhen doing nothing is doing everything. In this episode it is my pleasure to talk with Dr Erica Borgstrom, we explore research that led to the amination Not Intervening as a Form of Care and the complexities of language in advance care planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of...2022-10-2434 minConversations About Advance Care PlanningConversations About Advance Care Planning34 Featherbed Tales and the power of voice with Caroline EnglandFeatherbed Tales and the power of voice with Caroline EnglandIn this episode I talk with Caroline England, founder of Featherbed tales. Caroline shares the inspiration behind Featherbed Tales, how the books, cards and poetry can be used and the power of voice in memory making. Caroline also describes the innovative work with libraries, childrens’ hospitals and the Motor Neuron Disease Association and how the Featherbed Tales  technology can support Advance Care Planning.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk w...2022-10-1734 minConversations About Advance Care PlanningConversations About Advance Care Planning#33 How Conversation Analysis can support Advance Care Planning with Professor Ruth ParryIn this episode it is my pleasure to talk with Professor Ruth Parry about Conversation Analysis. I learn the science behind skilled conversations and we discuss how this can be applied to Advance Care Planning.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for or...2022-10-1052 minConversations About Advance Care PlanningConversations About Advance Care Planning#32 Using tender conversations in Advance Care Planning with Dr Kathryn MannixIn this episode it is my pleasure and honour to talk with Dr Kathryn Mannix, retired palliative care consultant and best-selling author. We talk about the tender conversations that underpin Advance Care Planning, how to initiate Important Conversations with people you care about, and reflect on the influence and legacy of Deborah James and Clair Fisher. Kathryn describes the process of Ordinary Dying, breaking down myths and describing the universally similar yet profoundly individual experience of dying.  If you are a team looking to provide better end of life care, or set u...2022-10-031h 08Conversations About Advance Care PlanningConversations About Advance Care Planning31 Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fee. A special episode re-released for Organ Donation Week 2022.This episode has been re-released to raise awareness and discussion during Organ Donation Week 2022. It was humbling to listen to Vicki share her experience of Organ Donor Fi and I am honoured to share Fi’s message and legacy. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and th...2022-09-2645 minConversations About Advance Care PlanningConversations About Advance Care Planning30 Following up Zoe’s pledge to sort out her Digital LegacyIn this follow up episode I talk with Zoe Harris, founder of My Care Matters and creator of My Future Care Handbook and Buddy service. The podcast follows up a conversation I had with Zoe six months ago in episode 8 of Conversations About Advance Care PLanning. Like every guest, I asked Zoe what she had sone as part of her planning ahead and what was on her to do list. Zoe identified a need to sort out her Digital Legacy and we agreed to check in in 6 months to see Zoe’s progress. If you are a...2022-09-2015 minConversations About Advance Care PlanningConversations About Advance Care Planning#29 Why an Advance Care Plan should include your finances with Toby FreemanIn this episode it is my great pleasure to talk with Toby Freeman. Toby describes himself as a “financial advisor fortunate to have called rugby his job for 15 years”. We talk about transitioning from professional rugby player to Financial Planner, how personal experiences impacted Toby and the things that could be considered as part of financial planning ahead. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on h...2022-09-1233 minConversations About Advance Care PlanningConversations About Advance Care Planning28 The Platinum Rule and Advance Care Planning with Dr. Harvey Max ChochinovCare for others how you would wish to be cared for yourself. It sounds a great and is a maxim embedded in healthcare, but is there a better way? In this episode I talk with Dr. Harvey Max Chochinov about The Platinum Rule, Advance Care Planning and truly personalised care. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You...2022-09-0540 minConversations About Advance Care PlanningConversations About Advance Care Planning27 Frailty and Advance Care Planning with Dr Patricia CantleyIn this episode I talk with Dr Patricial Cantley, Consultant Geriatrician, about frailty, triggers for Advance Care Planning in frailty and Dr Cantley describes the famous Paper Boat story. Dr Cantley shares her personal experiences of Advance Care Planning with family members, too and we reflect on how we can plan ahead as part of everyday life.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on...2022-08-2953 minConversations About Advance Care PlanningConversations About Advance Care Planning26 Advance Care Planning in Diabetes Care with Dr David Strain David reflects on the professional interest shown in Advance Care Planning and End of life Care when we presented at the 2022 Diabetes Professional Care Conference, and acknowledges these are subjects shied away from. Advance Care Planning should be about every patient that we see A person living with diabetes has a higher risk of dementia, renal impairment and infections which can impact quality of life and could be considered in Advance Care Planning Knowing what complications can come down the road helps us to focus on the here and now and make sure when that arrives we are prepared for...2022-08-2241 minConversations About Advance Care PlanningConversations About Advance Care Planning25 Reflecting on Conversations About Advance Care Planning with Martin WhiskinWe talk about the history of the podcast and which episode had the greatest impact on Martin and why. Martin shares the actions he has taken as a direct result of listening to the episodes and some very personal reflections on how it has changed his views on talking about death and the importance of planning ahead. Martin uses the term Speaking, Listening and Planning (and Talking, Listening and Planning!), a phrase which perfectly summarises Conversations About Advance Care PLanning. If you are a team looking to provide better end of life care, or set...2022-06-2047 minConversations About Advance Care PlanningConversations About Advance Care Planning24 Sally and the Brain BankIn this very personal episode I talk with Professor Steve Gentleman, director of the Parkinson’s Brain Bank, and Dr George Gverich - Tissue Bank Manager the tissue bank manager. We talk about the unique Parkinson's Brain Bank work and  also hear from my family members impacted by Parkinson’s Disease.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will al...2022-06-1342 minConversations About Advance Care PlanningConversations About Advance Care Planning#23 Anticipatory Care Planning in Scotland with Dr Tony DuffyIn this episode we explore Advance Care Planning, or Anticipatory Care Planning as it’s called in Scotland and discuss the challenges of ACP conversations in a Community setting as well as the steps to a successful ACP conversation. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the...2022-06-0646 minConversations About Advance Care PlanningConversations About Advance Care Planning22 The role of End of Life Doulas in Advance Care PlanningIn this episode I talk with EoL Doula Aly Dickinson. I learn more about the role of an EoL Doula and explore how they can help people and organisations in Advance Care Planning.  Our conversation highlights the components of Advance Care Planning, and Aly’s approach shows how to create a practical plan from your initial thoughts. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I ca...2022-05-3034 minConversations About Advance Care PlanningConversations About Advance Care Planning21 How Joy Lists can help Advance Care Planning with Andrew SaundersonHave you ever wondered just how to start an Advance Care Planning conversation? In this episode I talk with Andrew Saunderson about how Joy Lists can be an  effective way to elicit values on which to base Advance Care Planning decisions. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy an...2022-05-2337 minConversations About Advance Care PlanningConversations About Advance Care Planning20 Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor FiOrgan Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fi. This very special episode explores a mother’s lived experience of traumatic and unexpected death of losing a child, saying yes to organ donation and the transition to finding hope and a new way of living. The podcast is released to coincide with the second anniversary of Max and Keira’s Law (on 20.5.2022), which brought the change to an opt out system for organ donation. If you are a team looking to provide better end of life care, or set up a...2022-05-1645 minConversations About Advance Care PlanningConversations About Advance Care Planning19 Advance Care Planning in Canada & running a national Advance Care Planning Day with Karine DiedrichIn this episode I talk with Karine Diedrich about Advance Care Planning in Canada. We discuss how the Advance Care Planning Canada movement evolved and how to run a national Advance Care Planning Day. There are links to the fabulous resource in the show notes, many of which are transferable to the UK. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. Y...2022-05-0947 minConversations About Advance Care PlanningConversations About Advance Care Planning18 Making Memories with Karen PardoeIn this episode I talk with Karen about the many innovative and creative ways that memories can be kept. This episode will be of interest to those working in a specialist hospice environment but also shows how some memory making can be used in a  generalist environment too. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information ab...2022-05-0236 minI Am IMAI Am IMAI Am IMA Episode 10 Clare StevensonAndrew Fuller chats to Clare Stevenson Senior scientist at the John Innes Centre about her background, role in the technician commitment and how she moved from industry to academia. 2021-09-2038 minThe Business of Healthcare Podcast with Tara HumphreyThe Business of Healthcare Podcast with Tara Humphrey#92: Lasting Power of Attorney with Clare FullerClare Fuller is a Business Owner, Nurse and Lead Practitioner for Palliative and End of Life Care and has over 30 years of experience. She is a mum and yoga enthusiast, and this is her second appearance on the Business of Healthcare Podcast because Clare has something new to share… Clare joins me for the second time to talk about her new business venture ‘Speak For Me LPA’. Clare shares why she has started her own business providing Legal Power of Attorney (LPA). She shares the details of what an LPA is, how it can provide peace of mind...2020-12-0841 minThe Business of Healthcare Podcast with Tara HumphreyThe Business of Healthcare Podcast with Tara Humphrey#55: End of Life Care with Clare FullerClare Fuller is a Nurse and Lead Practitioner for Palliative and End of Life Care with over 30 years of experience in this area. She is a mum and yoga enthusiast and is also a good friend of mine, and I wanted to talk about this topic with a friend and someone I really trust because it’s close to my heart. Clare joins me this week to share her experiences of working in End of Life Care. Unfortunately, most of us will be able to relate to this either as a professional, an adult, a child or a...2020-07-3036 minA Word with God PodcastA Word with God PodcastVerity Service June 21 - Clare FullerVerity Service June 21 - Clare Fuller by Word with God2020-07-0825 min