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SCI Care: What Really Matters
What Influences Quality of Life During Inpatient Rehabilitation Early After Spinal Cord Injury?
Send us a textThe SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInThe SCI Care: What...
2025-04-14
58 min
Poet - Der Podcast
224 - Die Alten - Volker Weber - Hildegard Iverson - Cord König - Ursula Patschke - Dieter Kleffner
Monika Lorenz liest die Kurzgeschichte "Mitternacht" von Volker Weber, Hildegard Iverson spricht ihre selbst verfasste Kurzgeschichte "Herbstzeitlos" und Cord König präsentiert seine Musik "Jammerlappen". Annelie Floßdorf liest die Kurzgeschichte "Endstation" von Ursula Patschke und Dieter Kleffner stellt seine Kurzgeschichte "Grübeln lohnt sich" vor.
2025-04-09
25 min
SCI Care: What Really Matters
How to Transfer from being a SCI patient to an Individual with SCI
Send us a textThe International Spinal Cord Society and Wellspect present a transformative discussion on changing care perspectives for individuals with spinal cord injuries, featuring leading medical experts Dr Charalampos Konstantinidis from the National Rehabilitation Centre and Dr Christina-Anastasia Rapidi from the General Hospital of Athens. Host Kristijan Kesinovic guides the conversation through critical aspects of rehabilitation and long-term wellbeing, with particular emphasis on bladder management during both acute and chronic phases.These experts share valuable insights on transitioning from initial care to long-term independence, including crucial discussions on sexual health and fertility options...
2025-01-27
30 min
Have The Nerve: A Podcast About Disability
Episode 48: Is That... Actually Accessible?
Send us a textIn October this year Professor Shane Clifton wrote a piece for The Conversation titled, 'When even fringe festival venues exclude people with disability, cities need to act on access' after a series of accessibility issues to attend events at one of Sydney's biggest festivals on the calendar.Shane is the Associate Professor of Practice, School of Health Sciences and the Centre for Disability Research and Policy, University of Sydney and you can listen to him on Episode 40: Faith, God, Diversity and The Journey - https://scia.org.au/resource-hub/faith-god-diversity-and-the-journey/
2024-12-12
43 min
Have The Nerve: A Podcast About Disability
Episode 44: What It Is Like To Be A Researcher In Spinal Cord Injury?
Send us a textGetting research off the ground is probably more complex than you'd expect. Doctor Claire Boswell-Ruys is a physiotherapist and senior research fellow at Neuroscience Research Australia (NeuRA) and has worked in the area of spinal cord injuries for the past 20 years. We talk about all things research, we discuss what it takes to set up a research trial, how it's funded, why it can't be everywhere and why medical research in Australia for people with spinal cord injuries may be different from overseas research. Information in...
2024-08-06
1h 18
Have The Nerve: A Podcast About Disability
Episode 43: Something To Think About - Why Invest In Medical Research for Spinal Cord Injury?
Send us a textThis is Have The Nerve Shorts - The short episodes between the longer ones. However, today isn't short at all #SorryNotSorry. Duncan Wallace, Executive Director of SpinalCure Australia is on to chat about why you should consider investing in medical research for spinal cord injury and why you should consider the next generation of medical researchers. Having a spinal cord injury himself just over 40 years ago, Duncan discusses his observations of how society perceives disability, securing funding and the roll out of a world first medical research trial happening...
2024-07-17
30 min
SCI Care: What Really Matters
The ISCoS 2024 Antwerp Annual Scientific Meeting
Send us a textAs anticipation builds for the 63rd Annual Meeting of the International Spinal Cord Society, Professor Micheal Fehlings shares his excitement with Dr Stolwijk-Swuste, a Rehabilitation specialist and Associate Professor at De Hoogstraat Revalidatie. Our hosts invite the spinal cord community to this unique event, located in a charming and inspiring venue: A Room with a Zoo at Flanders Meeting & Convention Center, Antwerp.This 3 day event unites leading experts in spinal cord injury care and research to share groundbreaking advancements and innovative solutions in the pursuit of bettering the lives o...
2024-07-08
04 min
SCI Care: What Really Matters
2nd ISCoS International Regional Symposium : Sharing world knowledge for practical advancements
Send us a textThe Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver, in addition to a number of webinars and podcasts, educational support for the ISCoS International Regional Symposia.In this webinar, the 2nd ISCoS International Regional Symposium - Sharing world knowledge for practical advancements will be discussed by the panel:Dr. R...
2024-06-27
29 min
SCI Care: What Really Matters
The Future of the Journal: Spinal Cord
Send us a textWelcome to the future of Spinal Cord. In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord. Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal insights and support those within the SCI community. Appearing monthly, both online and in print, Spinal Cord invites contributions on spinal cord anatomy, physiology, injury and associated disease management, and importantly, improving the quality of li...
2024-06-17
09 min
SCI Care: What Really Matters
What role does the nurse have for successful bladder and bowel management?
Send us a textManaging bladder and bowel health is a critical, yet often overlooked aspect of patient care, especially for those with spinal cord injuries (SCI). In a recent podcast episode host, Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia is joined by Josefin Oja, a nurse and urotherapist at the spinal cord injury department Umeå, Sweden and Maria Moschovou, a specialist rehabilitation nurse at the Linköping University Hospital Rehabilitation department. They discuss and explore factors important for being compliant with the therapy and long-term compliance, the possible barriers tha...
2024-05-30
30 min
SCI Care: What Really Matters
SCI Patient Perspectives: Life Before, During, and After Participation in SCI Clinical Research
Send us a textIn this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation at Harvard Medical School and Director of the spinal cord injury division at Spalding Rehab Hospital, and the director of the Inspire Lab at Spaulding Rehab Hospital. We also have a participant, Arthur Holt, who will share his experience with Dr Trumbower of the ANEUVO E...
2024-04-25
53 min
SCI Care: What Really Matters
How Women Can Support Their Bladder and Bowel Health from Youth to Later Years
Send us a textThis webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening.This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break the taboo in discussing such issues, the challenges and risks of becoming a mother with a spinal cord injury and the importance of a good bladder and bowel routine will have on your self-confidence all leading to empowerment...
2024-03-28
35 min
Hollywood is calling
Folge 26 SPECIAL Zurück in die Erinnerung Teil 2
Der Inhalt von Folge 26: In dieser Folge setzen wir an Folge 24 an und Björn und Cord führen diesmal durch die Zeit zu interessanten Fragen, die auch euch als Hörer einladen werden, wie es bei euch war. Wir sprechen über die erfolgreichsten Kinofilme aller Zeiten, welche Filmstudios am einflussreichsten sind und stellen diesmal Björn und Cord dem guten Christof jeweils mehrere zugeschnittene Fragen, in denen man sich zwischen zwei Dingen entscheiden muss. Folgt uns auf eine spannende Reise durch die Zeit unseres eigenen Erlebens mit dem Film. Als besonderes Highlight reden Björn, Ch...
2024-03-14
1h 43
SCI Care: What Really Matters
Exploring Sexuality and Fertility After Spinal Cord Injury with Dr. Marcalee Alexander and Dr. Gianluca Sampogna
Send us a textThis episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy.Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives after spinal cord injury.From discussing the role of sex toys in enhancing pleasure to emphasising the importance of bladder and bowel management for sexual activity, Drs Alexander and Sampogna offer practical advice and explore misconceptions surrounding sexual function post-injury.Listeners will...
2024-02-14
33 min
SCI Care: What Really Matters
Little Leaks to Big Wins: Paediatric Bladder and Bowel Management
Send us a textIn this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction.They discuss physical health alongside social health and lifestyle factors that need to be considered, especially when working with children and teenagers. Being a teenager is challenging enough without the disruption of incontinence. Ultimately, the team aims to help their patients achieve a high quality of life and strive for independence as early as possible....
2023-12-19
26 min
SCI Care: What Really Matters
Interview with SCI Grant recipient about the new work-care rehabilitation pathway for spinal cord patients in Bangladesh
Send us a textIn this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInThe SCI Care: What Really Matters podcast aims to provide valuable insights and the most...
2023-12-13
03 min
SCI Care: What Really Matters
In conversation with Julian Taylor and Kathy Zebracki on setting up the first-ever Paediatrics SIG
Send us a textIn this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS.Kathy and Julian reveal their ambitions of gathering an international team of experts to focus on this niche medical field, emphasising the need for a multidisciplinary approach.The opinions of our host and guests are their own; ISCoS does not endorse any individual...
2023-12-12
09 min
SCI Care: What Really Matters
In conversation with the Praxis team at ISCoS 2023
Send us a textIn this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation. They also discuss the challenges and strategies of involving those with lived experience in planning and participation programs, particularly in regions with prevalent SCI. We hope you enjoy listening. The opinions of our host and guests are their own; ISCoS does not endorse any ind...
2023-10-27
08 min
SCI Care: What Really Matters
In conversation with SRI grantees Jacob Schoffl and Kiera Tranter
Send us a textIn this episode, Christine Hendry, CEO of the Spinal Research Institute, chats with two standout grant recipients for ISCoS 2023, Jacob Schoffl and Kiera Tranter to discuss their research. Jacob discusses research on the effects of spinal cord injury on autonomic and psychosocial health. Meanwhile, Kiera, a physiotherapist shares her invaluable insights on clinical practice guidelines. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInThe SCI Care: Wha...
2023-10-17
03 min
SCI Care: What Really Matters
In conversation with Dr. Haleluya Moshi: Revolutionary Research in SCI Care
Send us a textIn this episode, Spinal Research Institute CEO, Kristine Hendry interviews grant awardee Dr. Haleluya Moshi from Tanzania. Dr Moshi discusses his research on traumatic spinal cord injury in rural areas. Listen as he shares his experience at ISCoS 2023.The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us on Twitter and LinkedInThe SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing c...
2023-10-16
03 min
SCI Care: What Really Matters
A conversation with Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig about a new research project on the length of stay for rehabilitation
Send us a textIn this bonus episode, we talk about a new federally funded research project that involves ISCoS members Professors Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig. They are working on an international comparative study of rehabilitation length of stay for people living with spinal cord injuries. What's the ultimate balance between prolonged stays and swift discharge for spinal cord injury patients?The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies. You can follow us o...
2023-10-15
13 min
SCI Care: What Really Matters
Challenges and Triumphs: Robert Buren in conversation with ISCoS 2023 Keynote speaker Claire Lomas MBE
Send us a textClaire Lomas MBE welcomed over 900 participants to the recent 62nd ISCoS meeting in Edinburgh. She shared her moving story from her life before a spinal cord injury to the difficulties she faced immediately after to the triumphs she enjoys since she grieved the life she lost and accepted the life she now has, ultimately changing her future. In this episode. Rober Buren shares his own challenges and triumphs as Canada's first paraplegic Iron Man and continues the conversation with Claire. We hope you enjoy listening. The opinions of our ho...
2023-10-13
11 min
SCI Care: What Really Matters
Advancements in Spinal Cord Injury Research with Nigel Henderson
Send us a textIn this enlightening discussion, host Dr Ram Hariharan, a consultant at the Princess Royal Spinal Cord Surgery Centre in Sheffield and Chair of the UK Spinal Cord Surgery Research Network, speaks with Mr Nigel Henderson, a former consultant at Stoke Mandeville Hospital and later the clinical director of the National Spinal Injury Centre. He was appointed Clinical Director of the NSIC for 5 years before his retirement from the NHS in 2018. This gave him the opportunity for closer involvement in developing spinal cord injury services locally and nationally. He served as a member, then...
2023-07-22
39 min