Craig Escude - Podcast Details

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Friends For Life PodcastTraining Nurses for Better IDD Care with Michael SigelmanIn this insightful episode of IDD Health Matters, Dr. Craig Escudé is joined by nurse educator Michael Sigelman, who brings a wealth of experience and passion to improving healthcare practices for people with intellectual and developmental disabilities (IDD). Michael shares how his early experiences shaped his career and how he now plays a crucial role in training registered nurses and direct support professionals across his state. Together, they discuss the importance of structured nurse education, the value of trained medication employees (TMEs), and the essential role of accurate documentation in providing consistent and person-centered care. Michael also emphasizes the p...2025-06-2519 min

IDD Health MattersEp 99: Improving Psychiatric Care for People with IDD | Dr. Mike Cummings on Polypharmacy, START & EmpowermentIn this powerful episode of IDD Health Matters, host Dr. Craig Escudé sits down with Dr. Mike Cummings, Vice Chair of Psychiatry at the University of Buffalo School of Medicine and Medical Director for several psychiatric programs across New York State. Dr. Cummings brings a wealth of experience from leading New York’s busiest psychiatric ER to developing innovative programs like START and APEC that provide person-centered psychiatric support for individuals with intellectual and developmental disabilities (IDD). Together, they unpack the challenges of polypharmacy, the importance of understanding behavior as communication, and how to empower families and indi...2025-06-0720 min

IDD Health MattersEp 97: Training Nurses for Better IDD Care with Michael SigelmanIn this insightful episode of IDD Health Matters, Dr. Craig Escudé is joined by nurse educator Michael Sigelman, who brings a wealth of experience and passion to improving healthcare practices for people with intellectual and developmental disabilities (IDD). Michael shares how his early experiences shaped his career and how he now plays a crucial role in training registered nurses and direct support professionals across his state. Together, they discuss the importance of structured nurse education, the value of trained medication employees (TMEs), and the essential role of accurate documentation in providing consistent and person-centered care. Michael also e...2025-05-2419 min

Friends For Life PodcastFrom Rock & Roll to Rhythmic Healing: Eddie Tuduri’s JourneyIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with Eddie Tuduri, a world-class drummer whose career included playing with legends like The Beach Boys, Loggins & Messina, Del Shannon, and Ricky Nelson. But in 1997, a life-altering accident left him paralyzed—an event that ultimately led him to create the Rhythmic Arts Project (TRAP), a groundbreaking program that uses rhythm and percussion to enhance learning, communication, and rehabilitation for individuals with intellectual and developmental disabilities (IDD). Eddie shares his inspiring story of resilience, the impact of music in therapy, and how his passion for...2025-03-1733 min

IDD Health MattersEp 88: From Rock & Roll to Rhythmic Healing: Eddie Tuduri’s JourneyIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with Eddie Tuduri, a world-class drummer whose career included playing with legends like The Beach Boys, Loggins & Messina, Del Shannon, and Ricky Nelson. But in 1997, a life-altering accident left him paralyzed—an event that ultimately led him to create the Rhythmic Arts Project (TRAP), a groundbreaking program that uses rhythm and percussion to enhance learning, communication, and rehabilitation for individuals with intellectual and developmental disabilities (IDD). Eddie shares his inspiring story of resilience, the impact of music in therapy, and how his passion for...2025-03-1733 min

IDD Health MattersEp 87: Improving Healthcare for Individuals with IDD: Communication, Training & Advocacy with Rachel PottsIn this episode of IDD Health Matters, Dr. Craig Escudé sits down with Rachel Potts, a dedicated nurse and Director of Nursing for ICF homes, to discuss the challenges and rewards of providing healthcare for individuals with intellectual and developmental disabilities (IDD). Rachel shares her journey into the field, beginning as a school nurse for children with autism, and how she quickly developed a passion for understanding and communicating with non-verbal individuals. Throughout the conversation, Rachel and Dr. Escudé explore the critical need for better training and resources for healthcare professionals, the importance of observation skills in di...2025-03-1015 min

Friends For Life PodcastImproving Healthcare for Individuals with IDD: Communication, Training & Advocacy with Rachel PottsIn this episode of IDD Health Matters, Dr. Craig Escudé sits down with Rachel Potts, a dedicated nurse and Director of Nursing for ICF homes, to discuss the challenges and rewards of providing healthcare for individuals with intellectual and developmental disabilities (IDD). Rachel shares her journey into the field, beginning as a school nurse for children with autism, and how she quickly developed a passion for understanding and communicating with non-verbal individuals. Throughout the conversation, Rachel and Dr. Escudé explore the critical need for better training and resources for healthcare professionals, the importance of observation skills in di...2025-03-1015 min

IDD Health MattersEp 86: Improving Healthcare for People with IDD | Chris Helfrich & Dr. Craig EscudéIn this episode of IDD Health Matters, Dr. Craig Escudé sits down with Chris Helfrich, a dedicated nurse and an integral member of the Developmental Disabilities Nurses Association, live from the DDNA annual conference in New Orleans. Chris shares her unexpected journey into the field, her experiences navigating healthcare for individuals with developmental disabilities, and the critical need for better education and training for healthcare providers. Chris also discusses her groundbreaking work in Illinois, where she has been instrumental in opening specialized community-based homes for individuals with Prader-Willi syndrome. She highlights the challenges of healthcare disparities, the i...2025-03-0319 min

Friends For Life PodcastImproving Healthcare for People with IDD | Chris Helfrich & Dr. Craig EscudéIn this episode of IDD Health Matters, Dr. Craig Escudé sits down with Chris Helfrich, a dedicated nurse and an integral member of the Developmental Disabilities Nurses Association, live from the DDNA annual conference in New Orleans. Chris shares her unexpected journey into the field, her experiences navigating healthcare for individuals with developmental disabilities, and the critical need for better education and training for healthcare providers. Chris also discusses her groundbreaking work in Illinois, where she has been instrumental in opening specialized community-based homes for individuals with Prader-Willi syndrome. She highlights the challenges of healthcare disparities, the i...2025-03-0319 min

IDD Health MattersEp 85: Bob Sattler on Transforming Person-Centered Care in Developmental DisabilitiesIn this dynamic episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Bob Sattler—whose extensive experience and passion for person-centered care have transformed developmental disability services. Recorded live at the NASD Conference in Portland, Oregon, this conversation delves into Bob’s unique journey from a camp counselor and direct support professional to a pioneering consultant and co-founder of Support Development Associates (SDA). Bob Satler shares how his career evolved alongside the movement toward true person-centered practices, emphasizing that treating individuals as people first is far more than a buzzword—it’s a transfor...2025-02-2423 min

Friends For Life PodcastTransforming Person-Centered Care in Developmental Disabilities: Bob Sattler on Organizational ChangeIn this dynamic episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Bob Sattler—whose extensive experience and passion for person-centered care have transformed developmental disability services. Recorded live at the NASD Conference in Portland, Oregon, this conversation delves into Bob’s unique journey from a camp counselor and direct support professional to a pioneering consultant and co-founder of Support Development Associates (SDA). Bob Satler shares how his career evolved alongside the movement toward true person-centered practices, emphasizing that treating individuals as people first is far more than a buzzword—it’s a transfor...2025-02-2423 min

IDD Health MattersEp 84: Telling the Stories That Matter with John SilfiesIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous. John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real s...2025-02-1715 min

Friends For Life PodcastTelling the Stories That Matter with John SilfiesIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous. John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real s...2025-02-1715 min

Friends For Life PodcastBridging Gaps in IDD Healthcare: Insights from Rory Sheehan and Professor Angela HassiotisWelcome to another insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility. In this episode, we explore pioneering approaches to healthcare for individuals with intellectual and developmental disabilities. Join us as Dr. Escude welcomes two distinguished guests from the international arena: Professor Angela Hassiotis from University College London and Dr. Rory Sheehan from King's College London. Professor Hassiotis, a seasoned consultant psychiatrist in the NHS, delves into her groundbreaking research and clinical work aimed at personalizing interventions for aggressive challenging behaviors in adults with IDD. She shares the promising beginnings o...2025-01-2728 min

IDD Health MattersEp 81: Bridging Gaps in IDD Healthcare: Insights from Rory Sheehan and Professor Angela HassiotisWelcome to another insightful episode of IDD Health Matters, hosted by Craig Escudé, MD, FAAFP, FAADM, president of IntellectAbility. In this episode, we explore pioneering approaches to healthcare for individuals with intellectual and developmental disabilities. Join us as Dr. Escude welcomes two distinguished guests from the international arena: Professor Angela Hassiotis from University College London and Dr. Rory Sheehan from King's College London. Professor Hassiotis, a seasoned consultant psychiatrist in the NHS, delves into her groundbreaking research and clinical work aimed at personalizing interventions for aggressive challenging behaviors in adults with IDD. She shares the promising beginnings o...2025-01-2728 min

IDD Health MattersEp 73: John Dickerson: Innovator in IDD Advocacy and Founder of Quillo | Inspiring Positive ChangeIn this special episode of IDD Health Matters, Dr. Craig Escudé is joined by John Dickerson, a lifelong advocate and innovator in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). Recorded live at the NASDDDS conference in Portland, Oregon, John shares his inspiring journey that began in 1973 with The Arc, his commitment to empowering individuals with IDD, and the pivotal moments that shaped his career. John discusses the creation of Quillo, a transformative platform designed to inspire and educate families, individuals, and staff through microlearning. Learn how Quillo is addressing key c...2024-12-0224 min

Friends For Life PodcastEmpowering Lives: Insights from DSP Kelley Shepherd on Advocacy and Personal GrowthIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives. From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual’s unique potential. She shares inspiring stories of empowerment, such as helping individuals explore new experiences and advocating for person-centered care during healthcare visits. Kel...2024-11-2517 min

IDD Health MattersEp 72: Empowering Lives: Insights from DSP Kelley Shepherd on Advocacy and Personal GrowthIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives. From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual’s unique potential. She shares inspiring stories of empowerment, such as helping individuals explore new experiences and advocating for person-centered care during healthcare visits. Kel...2024-11-2517 min

IDD Health MattersEp 71: Deb Davis on Person-Centered Care and Advocacy for Individuals with IDDIn this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care. Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She...2024-11-1820 min

Friends For Life PodcastDeb Davis on Person-Centered Care and Advocacy for Individuals with IDDIn this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care. Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She...2024-11-1820 min

IDD Health MattersEp 70: Julie Foster Hagan on Advancing Health Equity for DisabilitiesIn this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana’s State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana’s health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state’s Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects...2024-11-1119 min

Friends For Life PodcastJulie Foster Hagan on Advancing Health Equity for DisabilitiesIn this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana’s State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana’s health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state’s Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects...2024-11-1119 min

IDD Health MattersEp 69: Mary Brogan on Advancing Developmental Disability Services and Medicaid Waiver Programs in HawaiiIn this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii. Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can va...2024-11-0423 min

Friends For Life PodcastMary Brogan on Advancing Developmental Disability Services and Medicaid Waiver Programs in HawaiiIn this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii. Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can va...2024-11-0423 min

Friends For Life PodcastElevating Direct Support: John Raffaele on Professional Development for DSPsIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP’s m...2024-10-2819 min

IDD Health MattersEp 68: Elevating Direct Support: John Raffaele on Professional Development for DSPsIn this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP’s m...2024-10-2819 min

IDD Health MattersEP 67: Valerie Bradley on Deinstitutionalization, IDD Community Integration, and Workforce SolutionsIn this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation i...2024-10-2119 min

Friends For Life PodcastValerie Bradley on Deinstitutionalization, IDD Community Integration, and Workforce SolutionsIn this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation i...2024-10-2119 min

IDD Health MattersEp 66: Improving IDD Healthcare: Valerie Chadwick on Advocacy, Inclusive Training, and Future GoalsIn this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care. Together, they discuss the importance of training healthcare p...2024-10-1420 min

Friends For Life PodcastImproving IDD Healthcare: Valerie Chadwick on Advocacy, Inclusive Training, and Future GoalsIn this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care. Together, they discuss the importance of training healthcare p...2024-10-1420 min

IDD Health MattersEp 65: Dr. Kelly Nye-Lengerman on Disability Inclusion & Health EquityJoin Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with d...2024-10-0723 min

Friends For Life PodcastDr. Kelly Nye-Lengerman on Disability Inclusion & Health EquityJoin Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with d...2024-10-0723 min

IDD Health MattersEp 64: Improving Healthcare for People with IDD: Dr. Michele Cantanzerite on Integrated CareIn this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michele Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michele’s journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care. Michele highlights the unique mission of...2024-09-3019 min

Friends For Life PodcastImproving Healthcare for People with IDD: Dr. Michele Cantanzerite on Integrated Care SolutionsIn this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michele Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michele’s journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care. Michele highlights the unique mission of...2024-09-3019 min

Friends For Life PodcastInnovative Healthcare for Individuals with IDD: Dr. Toni Benton on Collaborative CareIn this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years. Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic...2024-09-2319 min

IDD Health MattersEp 63: Innovative Healthcare for Individuals with IDD: Dr. Toni Benton on Collaborative CareIn this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years. Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic...2024-09-2319 min

Friends For Life PodcastTransforming IDD Care: Ann Hardiman on Deinstitutionalization, Healthcare & Leadership ChallengesIn this episode of IDD Health Matters, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the r...2024-09-1623 min

IDD Health MattersEp 62: Transforming IDD Care: Ann Hardiman on Deinstitutionalization, Healthcare & Leadership ChallengesIn this episode of *IDD Health Matters*, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the r...2024-09-1623 min

IDD Health MattersEp 60: Enhancing Health Equity in IDD Care: Insights from Pharmacy Leaders Nanette Wrobel & Jessica JacobsWelcome to another insightful episode of the IDD Health Matters Podcast with Dr. Craig Escude. In this episode, Dr. Escude is joined by two remarkable guests, Nanette Wrobel and Jessica Jacobs from Tarrytown Expocare Pharmacy, a leading provider of pharmacy services for individuals with intellectual and developmental disabilities (IDD). Nanette, a seasoned pharmacist with nearly 40 years of experience, and Jessica, a pharmacy technician with a strong background in mental health and IDD, share their unique journeys into the IDD field. They discuss the critical role that specialized pharmacy services play in supporting individuals with IDD, emphasizing the...2024-09-0228 min

IDD Health MattersEp 59: Career Opportunities and Health Equity Insights with Catherine ThibedeauJoin Dr. Craig Escude in this insightful episode of IDD Health Matters, recorded live from the ANCOR conference in Chicago. In this episode, Dr. Escude welcomes Catherine Thibedeau, who shares her remarkable journey from entering the field of supports and services for people with intellectual and developmental disabilities (IDD) by necessity, to becoming the executive director of Independence Advocates of Maine. Catherine discusses the array of services her agency provides and highlights her dual role in influencing policy and professional development through state and national provider networks. Catherine's story illustrates the career opportunities within the IDD service...2024-08-2618 min

IDD Health MattersEp 58: Art Dykstra's Journey in IDD Support and the Power of Interdisciplinary Care In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Art Dykstra, a veteran in the field of intellectual and developmental disabilities (IDD). Art, who currently serves as the director of the Trinity Foundation and has previously led Trinity Services as CEO, shares his inspiring journey from an unexpected start in the IDD field to becoming a pivotal figure in providing support and resources for individuals with disabilities across Illinois. Art's story begins with a simple job posting that led him to work with a young man with autism, a transformative experience that steered h...2024-08-1921 min

IDD Health MattersEp 57: Understanding Trauma-Informed Care for IDD: Insights from Karyn Harvey PhDIn this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Karyn Harvey, a passionate advocate for trauma-informed care in the field of intellectual and developmental disabilities (IDD). Recorded live from the ANCOR conference, Karyn shares her deep understanding of the behavioral challenges often faced by individuals with IDD, revealing how these behaviors are frequently symptoms of unrecognized trauma, such as post-traumatic stress disorder (PTSD). Karyn discusses the critical need for access to therapeutic support for those with IDD, emphasizing the profound impact of trauma on their mental health. She delves into...2024-08-1221 min

IDD Health MattersEp 56: Integrated Care & Advocacy with Meera Gandhi at Kramer Davis HealthIn this episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Meera Gandhi, the dedicated Clinic Director at Kramer Davis Health Clinic in Nashville. Meera shares her inspiring journey, from coaching Special Olympics athletes in California to becoming a passionate advocate and leader in healthcare for people with intellectual and developmental disabilities (IDD). She discusses how her early experiences shaped her career and led her to Kramer Davis Health, where she now plays a pivotal role in providing comprehensive care. Dr. Escude and Meera delve into the unique, holistic approach of Kramer Davis...2024-08-0521 min

IDD Health MattersEp 55: Unlocking Health Equity: Dr. Steven Merahn on Transformative Care in the IDD SpaceIn this insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude, we welcome Dr. Steven Merahn, Medical Director at Partnership Solutions, to discuss the crucial aspects of healthcare and support services for people with intellectual and developmental disabilities (IDD). Dr. Merahn shares his journey from medical school at Albert Einstein College of Medicine to his current role, highlighting the pivotal moments that shaped his dedication to this field. Dr. Merahn delves into the significance of understanding diversity of ability rather than viewing it as a disability, stressing the importance of adapting environments to...2024-07-2925 min

IDD Health MattersEp 54: Innovative Approaches to IDD Health with Nurse Natalie Symons from Milestone HCQU WestJoin Dr. Craig Escude in this insightful episode of IDD Health Matters, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Natalie Symons, a dedicated registered nurse and the director of the Milestone Health Care Quality Unit (HCQU) in Western Pennsylvania, shares her extensive experience and innovative approaches to supporting individuals with IDD. In this episode, Natalie discusses her role in providing training and technical assistance to agencies across nine counties in Pennsylvania. She highlights the critical work her team does, including offering over 250 medical and behavioral...2024-07-2227 min

Exploring Different BrainsTraining Doctors in Neurodivergent Healthcare, with Dr. Craig Escudé | EDB 326Dr. Craig Escudé discusses the importance of training doctors to care for the IDD and neurodivergent communities. Dr. Craig Escudé is a board-certified Fellow of the American Academy of Family Physicians and the American Academy of Developmental Medicine with over 20 years of clinical experience providing medical care for people with intellectual and developmental disabilities and complex medical conditions. He is the president of IntellectAbility, the mission of which is to “…provide tools and training to those who support people with vulnerabilities, helping them replace risk with health and wellness.” Dr. Escudé’s pursuit of educating clinicians led him to create the Curricu...2024-07-2027 min

IDD Health MattersEp 53: Unlocking Health Equity: Expert Insights with Nurse Consultant Terry BrodaWelcome to another episode of the IDD Health Matters Podcast with Dr. Craig Escudé. In this episode, Dr. Escudé is joined by Terry Broda, a seasoned nurse consultant with over 30 years of experience in the field of intellectual and developmental disabilities (IDD). Terry shares her unique journey into the field, which began unexpectedly and evolved into a lifelong passion. Together, they delve into critical topics such as health equity, the importance of understanding medical issues like constipation and seizures, and the vital role of proper diagnosis in improving the quality of life for individuals with IDD. Terry's ex...2024-07-1516 min

IDD Health MattersEp 52: Empowering People with Disabilities: Insights & Innovations: Elizabeth Martin of Living Resources In this episode of IDD Health Matters, Dr. Craig Escude is joined by Elizabeth Martin, the CEO of Living Resources, recorded live at the New York Alliance for Inclusion and Innovation annual conference. Elizabeth shares her experiences and insights since joining Living Resources in September 2020, navigating the challenges of the pandemic and her transition from working with physical disabilities to intellectual and developmental disabilities (IDD). Elizabeth details the wide array of services offered by Living Resources, an organization with nearly 50 years of history in empowering individuals with disabilities. She highlights their residential programs, day programs, community habilitation...2024-07-0818 min

IDD Health MattersEp 51: Unlocking Disability Rights: Insights on Workplace Accommodations with Federal Employment Lawyer Eric PinesWelcome to another episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, Dr. Escude talks with Eric Pines, Esq., a nationally recognized federal employment lawyer, mediator, and attorney business coach. Eric discusses his work in advocating for reasonable accommodations for federal employees, particularly veterans, and those with disabilities. Eric Pines provides insights into his legal practice, emphasizing the importance of understanding and asserting one's rights under laws such as the Americans with Disabilities Act (ADA) and the Rehabilitation Act. He shares real-world examples, including helping veterans with PTSD secure work-from-home arrangements...2024-07-0124 min

IDD Health MattersEp 50: Revolutionizing IDD Healthcare: Dr. Matt Holder on Transformative Patient-Centered Care at Kramer Davis HealthWelcome to "IDD Health Matters," the podcast dedicated to exploring health, wellness, and health equity for individuals with intellectual and developmental disabilities. Hosted by Dr. Craig Escude, each episode delves into the unique challenges and innovative solutions within this specialized field of healthcare. In this episode, Dr. Escude takes a road trip to Hermitage, just outside of Nashville, to visit Dr. Matt Holder, the driving force behind Kramer Davis Health. Dr. Holder shares his journey from the Lee Specialty Clinic in Louisville, Kentucky, to establishing Kramer Davis Health, a pioneering transdisciplinary outpatient healthcare center dedicated to adults...2024-06-2442 min

IDD Health MattersEp 49: An Insightful Discussion with Ernest "Ernie" McNutt on Health Equity for IDDWelcome to another insightful episode of the IDD Health Matters Podcast, hosted by Dr. Craig Escude. In this episode, we delve into the critical aspects of health, wellness, and equity for individuals with intellectual and developmental disabilities (IDD). Our special guest, Ernest "Ernie" McNutt, joins us from the New York Alliance for Inclusion and Innovation, where he plays a pivotal role in care coordination for people with IDD. Ernie shares his journey into the field, which began during his college days working in a group home. He discusses the evolution of care coordination organizations (CCOs) in New...2024-06-1720 min

IDD Health MattersEp 48: Empowering Neurodiversity: Dr. Harold Reitman Discusses Health Equity Join Dr. Craig Escude on this enlightening episode of "ID Health Matters," where we delve into health, wellness, and health equity for individuals with intellectual and developmental disabilities. In today's episode, we are thrilled to welcome Dr. Harold Reitman, affectionately known as "Hackie," joining us from Fort Lauderdale, Florida. Dr. Reitman shares his inspiring journey from a young aspiring doctor in Jersey City to becoming a renowned orthopedic surgeon and an advocate for neurodiversity. Listen as Hackie recounts his unique path through medical school, his unexpected venture into the world of boxing as a Golden Gloves champion...2024-06-1035 min

IDD Health MattersEp 47: Improving Health Equity for Individuals with IDD: Insights from Lorene Reagan Welcome to the IDD Health Matters Podcast with Dr. Craig Escude, where we explore health, wellness, and health equity for individuals with intellectual and developmental disabilities (IDD). In this episode, Dr. Escude hosts Lorene Reagan, a seasoned professional with 40 years of experience in IDD nursing. Lorene shares her journey into the field, which began by chance in 1984 when she took a job at a school for children with IDD. She describes her diverse career, from clinical nursing and working in group homes to serving as the Nurse Coordinator for the New Hampshire Department of Health and Human...2024-06-0319 min

IDD Health MattersEp 46: Revolutionizing Adaptive Health: TruFit's Innovative Solutions for Disabilities with Adam WhiteIn this episode of IDD Health Matters, host Dr. Craig Escude is joined by Adam White from TruFit, a company dedicated to creating adaptive health and wellness solutions for individuals with intellectual, developmental, and physical disabilities. Adam discusses the innovative TruFit app, which customizes exercise programs and activities based on individual needs, offering a holistic approach to health that includes physical fitness, emotional wellness, life skills training, and nutrition. The conversation covers TruFit's pilot programs in schools and collaborations with nonprofit organizations, assisted living homes, and therapy providers, aiming to enhance the overall well-being of people with disabilities. Adam...2024-05-2722 min

IDD Health MattersEp 45: Expanding Horizons in Autism Support: A Conversation with Patrick PaulIn this engaging episode of IDD Health Matters, Dr. Craig Escude welcomes Patrick Paul, a dynamic leader in the field of intellectual and developmental disabilities, at the New York Alliance for Inclusion and Innovation conference. Patrick, the seasoned Executive Director/CEO of Anderson Center for Autism, and shares his comprehensive journey from being a CPA conducting audits for the organization to leading it. He delves into the challenges and successes faced by those with autism, particularly around accessing healthcare and the risk of diagnostic overshadowing—a critical issue highlighted by a recent Joint Commission alert. Throughout the discussion, Patrick ou...2024-05-2020 min

IDD Health MattersEp 44: Enhancing Dental Care for Individuals with IDD: Elizabeth Thompson & Meelin D. Chin Kit-WellsIn this engaging episode of "IDD Health Matters," Dr. Craig Escude, broadcasting from the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into the innovative integration of dental and occupational therapy for patients with intellectual and developmental disabilities. His guests, Dr. Meelin D. Chin Kit-Wells DDS, M.Ed., a pediatric dentist, and Elizabeth Thompson, an occupational therapist, share their pioneering approach to specialized dental care. Dr. Wells highlights the unique setup of their practice, which incorporates a full-time occupational therapist to enhance patient care. This collaboration has proven essential in understanding and meeting...2024-05-1316 min

IDD Health MattersEP 43: The Burden and Impact of Tardive Dyskinesia (TD) in People with IDD with Dr. Sharon Cahoon-MetzgerWelcome to another enlightening episode of IDD Health Matters, where we delve into crucial health topics for individuals with intellectual and developmental disabilities. In today's episode, sponsored by Neurocrine Biosciences, we shed light on the often overlooked issue of Tardive Dyskinesia (TD) in people with IDD. Join Dr. Craig Escude as he welcomes Dr. Sharon Cahoon-Metzger, an expert in the field, to explore the burden and impact of TD. Dr. Cahoon-Metzger expertly guides us through the complexities of TD, describing it as a condition characterized by abnormal involuntary movements resulting from prolonged use of certain medications. She...2024-05-0620 min

IDD Health MattersEp 42: Transforming Care: Andrew Kelly on Integrating Technology in Health Services for Individuals with IDD In this episode of IDD Health Matters, Dr. Craig Escude welcomes Andrew Kelly to discuss health services for individuals with intellectual and developmental disabilities (IDD). With a background in healthcare insurance and pharmacy management, Kelly shares his unintentional but impactful journey into the IDD field. Initially joining a pharmacy owned by a large agency, he moved through various roles that emphasized the importance of accessible and effective medication management for IDD individuals. His career progression led him to a technology-based company, where he currently focuses on improving documentation and operational efficiencies through electronic health records and other tech solutions.2024-04-2918 min

IDD Health MattersEp 41: Integrative Healthcare Approaches for Intellectual and Developmental Disabilities: Expert Insights from Dr. Jennifer Lecomte and Dr. Wendy AitaIn this enlightening episode of IDD Health Matters, Dr. Craig Escude engages with two specialists, Dr. Jennifer Lecomte and Dr. Wendy Aita, who are making significant strides in healthcare for individuals with intellectual and developmental disabilities. The discussion centers on their innovative practice in Southern New Jersey, which uniquely integrates primary medical care with behavioral health services. Key Discussion Points: Interdisciplinary Care: Dr. Jennifer Lecomte, a med-peds physician, outlines her practice's approach to providing comprehensive care for patients with both intellectual disabilities and mental health conditions. This includes embedded behavioral health within the primary care...2024-04-2230 min

IDD Health MattersEp 40: Empowering IDD Advocacy: Lisa Burck on Supported Decision-Making and Disability Services In this enlightening episode of IDD Health Matters, host Dr. Craig Escude is joined by Lisa Burck from The Arc of Mississippi. With decades of experience in the field of intellectual and developmental disabilities (IDD), Lisa shares her profound insights into the dynamic and responsive nature of advocacy work. The conversation delves into the multifaceted roles that The Arc plays in Mississippi, from handling abuse investigations and training direct support professionals, to innovative programs like their Archangel Christmas initiative and addiction programs tailored for community integration challenges. Lisa highlights the transformative power of supported decision-making—a dignified al...2024-04-1521 min

IDD Health MattersEp 39: Empowering DSPs: Insights from NADSP's Joe MacBethIn this insightful episode of the IDD Health Matters Podcast, host Dr. Craig Escude welcomes Joe MacBeth, President and CEO of the National Alliance for Direct Support Professionals (NADSP), to discuss the crucial role and challenges of direct support professionals (DSPs) in supporting individuals with intellectual and developmental disabilities. Joe shares the origins and mission of the NADSP, founded in the mid-1990s with an influential push from John F. Kennedy Jr., focusing on advocating for the direct support workforce amidst ongoing workforce issues. The conversation delves into the persistent systemic failures to adequately address workforce challenges...2024-04-0829 min

IDD Health MattersEp 38: Overcoming Barriers: Kirsten Sanchirico's Journey in Disability Advocacy and EducationIn this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude welcomes Kirsten Sanchirico, a graduate of the University of Vermont's LEND (Leadership Education in Neurodevelopmental Disabilities) program. Kirsten shares her unique experiences navigating the intersection of disability, policy, and education, particularly highlighting the challenges she faced attending the Disability Policy Seminar in Washington D.C. due to her physical disability and the accommodations required for travel. Kirsten's story sheds light on the broader issues of accessibility and inclusivity, from the difficulties of securing appropriate accommodations on flights to the financial implications of receiving a...2024-04-0122 min

IDD Health MattersEp 37: Advancing IDD Healthcare: Insights from Nursing Leaders Dina Pizzurro-Smith & Daleigh TallentIn this enlightening episode of IDD Health Matters, Dr. Craig Escude is joined by Dina Pizzurro-Smith, BSN, RN, CDDN, Director of Client Services at IntellectAbility, and Daleigh Tallent, MSN, RN, CDDN, Clinical Quality Coordinator at IntellectAbility. Both guests share their unique journeys into the field of nursing for individuals with intellectual and developmental disabilities (IDD), highlighting the challenges and rewards that come with serving this underserved population. Dina and Daleigh discuss the critical need for specialized training and education for nurses in the IDD field, emphasizing the lack of IDD-specific content in traditional nursing curricula. They explore...2024-03-2519 min

IDD Health MattersEp 36: Transforming Lives Through Intellectual Disability Nursing: Insights from Dr. Owen DoodyIn this enlightening episode of IDD Health Matters, host Dr. Craig Escude sits down with Dr. Owen Doody, an Associate Professor at the University of Limerick and a registered Intellectual Disability Nurse. Dr. Doody shares his extensive experience and passion for intellectual disability nursing, a field he has been dedicated to since qualifying in 1997. With a career spanning over three decades, Dr. Doody has made significant contributions to nursing management, education, and research, focusing on the well-being of individuals with intellectual disabilities and their families. Recorded at the Developmental Disabilities Nurses Association annual conference in New Orleans...2024-03-1819 min

IDD Health MattersEP 35: Navigating Health and Housing for Individuals with Disabilitieswith Patricia CalandraIn this episode of IDD Health Matters, Dr. Craig Escude welcomes Patricia Calandra, a passionate advocate for individuals with intellectual and developmental disabilities. Broadcasting from the New York Alliance for Inclusion and Innovation conference, they delve into Patricia's personal journey as a parent of two adult children with autism, her role as a self-direction broker, and her innovative work as a Master Housing Navigator. Patricia shares her family's experiences navigating the complexities of self-direction and residential living, highlighting the challenges and triumphs of seeking independence and appropriate support for her children. She emphasizes the importance of personalized...2024-03-1119 min

IDD Health MattersEp 34: David Ervin's Vision for Health Equity and Accessible Services In this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes David Ervin, a seasoned expert in the field of supports and services for individuals with intellectual and developmental disabilities (IDD). With a career sparked by a pragmatic need that turned into a lifelong passion, Ervin shares his journey from a direct support professional to becoming the CEO of a community-based organization in Rockville, Maryland, named Mome. This episode delves into the critical importance of health equity, wellness, and the development of health care systems tailored to the unique needs of the IDD community. David...2024-03-0430 min

IDD Health MattersEp 33: Transforming Perceptions: Rick Guidotti on Celebrating Diversity in IDD Health Matters Podcast In this enlightening episode of IDD Health Matters, host Dr. Craig Escude engages in a captivating conversation with Rick Guidotti, a former fashion photographer turned advocate for changing perceptions of beauty. Guidotti, the founder of Positive Exposure, shares his journey from capturing the glitz and glamour of the fashion world to spotlighting the unique beauty of individuals with intellectual and developmental disabilities (IDD). Positive Exposure, a nonprofit organization, leverages photography, film, and educational programs to foster a more inclusive society by celebrating human diversity and challenging the stigmas associated with IDD. Guidotti recounts his pivotal moment of...2024-02-2612 min

IDD Health MattersEp 32: Advancing Alzheimer's Treatment in IDD: Breakthroughs and Hope with Dr. Seth KellerIn this episode of IDD Health Matters, Dr. Craig Escude welcomes back Dr. Seth Keller for a deep dive into the latest advancements in the treatment and understanding of dementia, particularly in individuals with intellectual and developmental disabilities. Dr. Keller, a seasoned expert in neurology with a focus on Alzheimer's disease, shares groundbreaking insights into the diagnosis and management of dementia, emphasizing the significant strides made in research over the past few years. The conversation begins with an overview of the challenges faced in diagnosing Alzheimer's disease, highlighting the shift towards more accurate diagnostic methods through biomarkers...2024-02-1921 min

IDD Health MattersEp 31: Cathy Ficker Terrill's Quest for IDD Inclusion & EquityJoin Dr. Craig Escude on a compelling episode of IDD Health Matters, where he engages in an enlightening conversation with Cathy Ficker Terrill, a seasoned expert with 48 years of experience in the field of supports and services for people with intellectual and developmental disabilities (IDD). This episode delves into Cathy's extensive career, highlighting her roles from a direct support professional to an influential figure in promoting inclusion, quality, and employment within the IDD community. Cathy shares transformative stories and insights from her journey, including her pivotal role as a court monitor in a landmark case that led...2024-02-1219 min

IDD Health MattersEp 30: Understanding Alzheimer's in Down Syndrome: Early Signs, Diagnosis, and Caregiver Insights with Dr. Beau Ances Used Video Captions The podcast "IDD Health Matters" hosted by Dr. Craig Escude features an episode with Dr. Beau Ances, an adult neurologist specializing in adults with Down syndrome, particularly focusing on the early detection of Alzheimer's disease in this population. Dr. Ances explains that individuals with Down syndrome are at a higher risk of developing Alzheimer's disease at a younger age due to having three copies of chromosome 21, which leads to an overproduction of amyloid precursor protein, a hallmark of Alzheimer's. Key points discussed in the episode include: Early Signs of Alzheimer's in Down Sy...2024-02-0524 min

IDD Health MattersEp 29: Voices of Inclusion: Empowering the IDD Community with Tony Stuart and Craig Escude MDWelcome to another insightful episode of IDD Health Matters, hosted by Dr. Craig Escude, a renowned expert in the field of Intellectual and Developmental Disabilities (IDD) healthcare. In this episode, we are honored to have Tony Stuart, the dynamic CEO of Friends for Life, as our special guest. Tony Stuart, a visionary leader and advocate in the IDD community, joins Dr. Escude to discuss the transformative work being done at Friends for Life. This organization is at the forefront of providing support and resources to individuals with intellectual and developmental disabilities, ensuring they lead fulfilling and empowered...2024-01-2916 min

IDD Health MattersEp 28: Addressing Health Equity in IDD and Exploring Dementia in Down Syndrome w Dr Seth KellerIn this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Dr. Seth Keller, a neurologist specializing in the care of adults with neurological complications, including those with intellectual and developmental disabilities (IDD). The episode, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado, delves into Dr. Keller's journey in the field, his insights on health equity, and his extensive work on dementia, particularly in individuals with Down Syndrome. Key Topics Covered Dr. Keller's Background and Evolution in IDD Care: Dr. Keller shares his transition from a general adult...2024-01-2251 min

IDD Health MattersEp 27: Transforming Lives in the IDD Community with Suzanne Meiklejohn of Schenectady ArcIn this insightful episode of "IDD Health Matters," host Dr. Craig Escude engages in a profound conversation with Suzanne Meiklejohn, a seasoned professional in the field of intellectual and developmental disabilities (IDD). With over 38 years of experience, Suzanne shares her journey from starting as a Direct Support Professional to her current role overseeing operations at Schenectady ARC. Key Discussions: Career Journey: Suzanne recounts her unexpected entry into the field of IDD support and services, highlighting her progression through various roles and the deep fulfillment she found in her work. Impact of COVID-19: The...2024-01-1520 min

IDD Health MattersEp 26: Transforming IDD Care: Dr. Benjamin Margolis & Innovative Neurobehavioral Strategies in IDDIn this insightful episode of IDD Health Matters, host Dr. Craig Escude engages in a deep and meaningful conversation with Dr. Benjamin Margolis, MD, a colleague and expert in neurobehavioral care for individuals with intellectual and developmental disabilities (IDD). Dr. Margolis, who also specializes in psychiatry and neurology, shares his journey into the field of IDD, highlighting the importance of understanding and addressing the unique health needs of this population. Throughout the episode, Dr. Margolis emphasizes the critical role of communication in providing effective care. He discusses the challenges and rewards of working in this specialized area, including the...2024-01-0830 min

IDD Health MattersEp 25: Empowering Voices in Healthcare with BJ StasioIn this enlightening episode of IDD Health Matters, host Dr. Craig Escude welcomes a remarkable guest, BJ Stasio, an advocate renowned for his work in the field of intellectual and developmental disabilities (IDD). BJ's journey is not just inspiring but also a beacon of hope and empowerment for many in the IDD community. Throughout the episode, BJ shares his personal experiences and challenges, shedding light on the unique healthcare needs and barriers faced by individuals with IDD. His stories are a powerful testament to the importance of self-advocacy and the need for inclusive healthcare practices. ...2024-01-0129 min

IDD Health MattersEp 24: Empowering Change in IDD Services: Experts Alexandra Bonardi & Lindsay DuBoisIn this enlightening episode of IDD Health Matters, Dr. Craig Escude engages in a thought-provoking conversation with two distinguished guests, Alexandra Bonardi and Lindsay DuBois. The episode delves into the intricacies of health, wellness, and health equity for individuals with intellectual and developmental disabilities. Key Discussions: Lindsay DuBois' Mission: Lindsay emphasizes the importance of conducting meaningful research that directly benefits people with disabilities. She advocates for research that leads to actionable insights, aiming to transform systems for better accessibility and understanding. Alexandra Bonardi's Focus: Alexandra discusses her commitment to improving service systems for p...2023-12-2530 min

IDD Health MattersEp 23: Innovating Health Solutions for the IDD Community with Maulik TrivediThe podcast "IDD Health Matters," hosted by Dr. Craig Escude, features guest Maulik Trivedi. In this episode, the discussion revolves around important health-related topics concerning individuals with intellectual and developmental disabilities (IDD). Dr. Escude, an expert in the field, leads an insightful conversation with Maulik Trivedi, who brings his unique perspectives and experiences to the table. Throughout the episode, they delve into various aspects of healthcare for people with IDD, addressing challenges, innovations, and best practices. The conversation touches on the importance of personalized care, the role of technology in enhancing healthcare delivery, and strategies for improving the overall...2023-12-1825 min

IDD Health MattersEp 22: Shaping a More Inclusive Future: Insights from Ron WakefieldIn this enlightening episode of IDD Health Matters, Dr. Craig Escude welcomes Ron Wakefield, the State Director for Developmental Disability Services in Georgia. Broadcasting from the NASDDDS (National Association of State Directors of Developmental Disability Services) conference, this conversation delves into the complexities and triumphs of providing services for individuals with intellectual and developmental disabilities. Key Highlights: Role and Responsibilities: Ron Wakefield discusses his role as the State Director, emphasizing the importance of stakeholder engagement, policy development, and ensuring access to necessary services for about 14,000 individuals under two waivers in Georgia. Focus on Health and...2023-12-1124 min

IDD Health MattersEP 21: Overcoming Barriers & Celebrating Abilities with Justin SteinbergIn this inspiring episode of IDD Health Matters, Dr. Craig Escude engages in a profound conversation with Justin Steinberg, a research assistant at Stanford University, a board member of the American Academy of Developmental Medicine and Dentistry (AADMD), and a Special Olympics athlete and leader. At 33, Justin's journey is a testament to resilience and multifaceted talent. Key Highlights: Justin's Background: Justin shares his journey, highlighting his roles as a research assistant, a self-advocate representative, a percussionist in a symphonic band, and his involvement in Special Olympics. Despite being on the autism spectrum and visually impaired, Justin has...2023-12-0414 min

IDD Health MattersEp 20: Melissa DiSipioDr. Craig Escude introduces the podcast "IDD Health Matters," focusing on health, wellness, and health equity for people with intellectual and developmental disabilities (IDD). Melissa DiSipio, the guest for the episode, is welcomed. Melissa DiSipio is the director of Philadelphia Coordinated Healthcare (PCHC), a unique program in Pennsylvania. PCHC, part of eight Healthcare Quality Units in the state, was established over 30 years ago to bridge the gap between providers, families, and individuals needing access to community healthcare professionals. HICUs provide indirect services, including education, training (both in-person and online), consultation, record reviews, and assistance in transitions for individuals with...2023-11-2717 min

IDD Health MattersEp 19: Exploring Health Equity in IDD with Dr. Deven UnadkatWelcome to another enlightening episode of IDD Health Matters, hosted by Dr. Craig Escudé, MD, FAAFP, FAADM. In this episode, we are honored to have Dr. Deven Unadkat, an Emergency Physician with 19 years of experience, specializing in healthcare for individuals with intellectual and developmental disabilities (IDD). Join us as Dr. Unadkat shares his journey into the world of IDD healthcare. He recounts his experiences in an emergency department near an IRA in New Jersey, where he noticed a pattern of patients with IDD frequently visiting for minor issues. This observation led him to explore telehealth solutions, aiming t...2023-11-2019 min

IDD Health MattersEp 18: Empowering Voices: Amanda Harnnauth on Life, Poetry, and Special OlympicsJoin Dr. Craig Escude in this inspiring episode of the IDD Health Matters podcast, recorded at the American Academy of Developmental Medicine and Dentistry conference in Denver, Colorado. Our special guest, Amanda Harnnauth, a poet, Special Olympics athlete, and an advocate for people with disabilities, shares her journey and insights. Amanda talks about her experiences in Special Olympics, her advocacy work, and how she uses poetry as a tool for self-expression and empowerment. She also discusses the importance of kindness, respect, and inclusion in healthcare and society, especially for individuals with intellectual and developmental disabilities. Tune in to hear...2023-11-1321 min

IDD Health MattersEp 17: Unlocking Health Equity with Craig Sever BS, R.Ph.Join Dr. Craig Escude as he dives deep into the world of health, wellness, and health equity for individuals with intellectual and developmental disabilities. In this episode, we're thrilled to have Craig Sever, a consultant pharmacist who specializes in the IDD population. From chart reviews to medication interactions, Craig sheds light on the unique challenges and rewards of working in this specialized field. 🔍 Key Highlights: The importance of understanding non-verbal communication in the ID population. Real-life examples of how medication can impact individuals differently. The challenge of "diagnostic overshadowing" and the need for individualized care. The evolving lan...2023-11-0623 min

IDD Health MattersEp 15: Advocacy, Care, and Passion in Intellectual & Developmental Disabilities with Maria SaladinoWelcome to IDD Health Matters with Dr. Craig Escude! In this episode, we dive deep into the world of healthcare for individuals with intellectual and developmental disabilities. Our special guest, Maria Saladino, a registered nurse with over 20 years of experience, shares her transformative journey from maternal nursing to becoming a passionate advocate for those with developmental disabilities. Discover: Maria's "aha" moment that reshaped her perspective on patient care. The challenges and rewards of working in this specialized field. The importance of advocacy, education, and resources in delivering quality care. Real-life stories that highlight the genuine connections made...2023-10-2322 min

IDD Health MattersEp 14: Justin Amoyal CEO of Impruvon HealthJoin Dr. Craig Escude on IDD Health Matters as he delves into the world of health, wellness, and health equity for individuals with intellectual and developmental disabilities. In this episode, we welcome Justin Amoyal, CEO of Impruvon Health, who shares his personal journey into the IDD sector and how his company is revolutionizing medication management. Discover how Impruvon Health's innovative solutions, driven by cutting-edge technology and user-centric design, are addressing challenges faced by care providers and enhancing the lives of those they serve. Dive into the conversation about the importance of person-centered approaches, the future of health tech in...2023-10-1623 min

IDD Health MattersEp 13: Grace Gould of IntellectAbilityIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. 🎙️ Podcast Guest: Grace Gould, Account Manager at IntellectAbility and IntellectAbilityGalen School of Nursing-Tampa Bay Liaison 🌟 Join us on this episode as we sit down with Grace Gould, a seasoned Account Manager at IntellectAbility, and a dedicated liaison for the IntellectAbilityGalen School of Nursing program in Tampa Bay, Florida. With a passion for technology and education, Grace brings a unique perspective to the int...2023-10-0918 min

IDD Health MattersEp 12: Kim Hing Special Olympics Athlete Leader of Northern CAIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Kim Hing is the Special Olympics Athlete Leader of Special Olympics of Northern California and is on their board of directors. Special Olympics Northern California provides free year-round programs for children and adults with intellectual disabilities. We offer training and competitions in 11 sports, inclusive schools programs, health & wellness activities, leadership training and more! Learn More Here: https://sonc.org ...2023-10-0224 min

IDD Health MattersEp 11: Ian Cowart of Brandi's Hope Community ServicesIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Brandi’s Hope Community Services began operations in June 2010 after being a long time dream of owner and CEO, Danny Cowart. Danny and his wife Brenda are the proud parents of our company’s name sake, Brandi Erin Cowart. For almost ten years he and his wife Brenda received services/supports for their daughter who was born with Trisomy 18, a rare and fatal...2023-09-2527 min

IDD Health MattersEp 10: Jamie Valis, PhD and Kristin Compton, DMD, MHA, FAADDIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Jamie Valis, PhD is the Vice President of Training, Development, & Engagement and Kristin Compton, DMD, MHA, FAADD is the Vice President of Clinic Operations for Kramer Davis Health. As a national, transdisciplinary clinic-based system, Kramer Davis are the leading destination for accessible and seamless healthcare focused on people with intellectual and developmental disabilities, (IDD) and their families. Learn More Here: ht...2023-09-1823 min

IDD Health MattersEp 9: Julian Trollor Chair of Intellectual Disability Mental Health, and Head, Department of Developmental Disability Neuropsychiatry ProfessorIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Julian Trollor leads an internationally recognised translational research program that aims to reduce the health inequalities experienced by people with intellectual or developmental disability. He also is the inaugural Chair of Intellectual Disability Mental Health at UNSW Sydney, Head of the Department of Developmental Disability Neuropsychiatry (3DN) within the Discipline of Psychiatry and Mental Health and NHMRC Leadership Fellow. He took on h...2023-09-1121 min

IDD Health MattersEp 8: Maggie Nygren EdD, FAAIDD Executive Director and CEO of AAIDDIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Margaret A. Nygren, EdD, Executive Director & CEO of AAIDD since 2010, is responsible for the executive direction, leadership, and management of operations of the organization. Dr. Nygren oversees the organization’s core functions of education, publications, public policy, and member services. In addition, she serves on a number of national advisory and scientific committees and frequently speaks at regional, national, and international conferences and...2023-09-0424 min

IDD Health MattersEp 7: Pam Merkle, Executive Director AADDIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. The Association on Aging with Developmental Disabilities (AADD) was initially formed in 1989 as a special interest group and became incorporated in 1994. AADD has a primary objective of bringing the aging and developmental disability fields together to create and provide best practices for people aging with developmental disabilities (autism spectrum disorder, cerebral palsy, down syndrome, learning disabilities, epilepsy, and intellectual disability—formerly known as...2023-08-2934 min

IDD Health MattersEp 6: Diane Moore Executive Director of DDNAIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Diane has been a Registered Nurse for 37 years and has worked in the field of developmental disabilities nursing for over 30 of those years. She is a Certified Developmental Disabilities Nurse, being certified in the specialty of developmental disabilities nursing for over 25 years. She has provided nursing support and clinical oversight to individuals with intellectual and developmental disabilities (IDD) across the lifespan and a...2023-08-2134 min

IDD Health MattersEp 5: Allen Wong, DDSIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Dr. Allen Wong has taught postdoctoral general dentistry for 30 years in ( Advanced Education in General Dentistry (AEGD) programs and is the director of Pacific's Hospital Dentistry Program and Director of Highland Hospital Restorative Implant program. He has lectured nationally and internationally in the areas of special care dentistry, rotary endodontics, implant restorations, and minimally invasive dentistry. He is active with Special Olympics Spe...2023-08-1418 min

IDD Health MattersEp 4: Mary Sowers Executive Director of NASDDDSIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Since joining NASDDDS in 2014, Mary has worked to provide technical assistance to many state members on their systems of support for individuals with I/DD. She also continues long-standing partnerships with Federal agencies, providing input on and suggestions for national policy strategies to further opportunities for individuals with I/DD to live and thrive in their homes and communities. Ms. Sowers also h...2023-08-0717 min

IDD Health MattersEp 3: Michael SeereiterIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. Michael Seereiter serves as the President and CEO of the New York Alliance for Inclusion and Innovation (New York Alliance), an organization created through the 2018 merger of the New York State Association of Community and Residential Agencies (NYSACRA), and the New York State Rehabilitation Association (NYSRA). Michael’s appointment as President and CEO of the New York Alliance began on October 1, 2019, immediately pri...2023-07-3128 min

IDD Health MattersEp 2: Gabrielle Sedor Chief Operations Officer & Foundation Director of ANCORIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. On this episode he sits down with Rick Rader, MD, FAAIDD, DHL. Gabrielle Sedor joined ANCOR as its Chief Operations Officer in February 2015 to assist the CEO in day-to-day operations and supervise ANCOR’s Communications, Marketing, Membership and Education teams. She was named the ANCOR Foundation Director in October 2018. Learn More Here: https://bit.ly/3m0Pec7 2023-07-2423 min

IDD Health MattersEp 1: Rick Rader, MD, FAAIDD, DHLIDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities. On this episode he sits down with Rick Rader, MD, FAAIDD, DHL. More Friends for Life Here: https://bit.ly/3m0Pec7 2023-07-2029 min

The Why I Help PodcastDr. Craig Escude - Advocate and Educator for those with Intellectual and Developmental DisabilitiesDr. Escudé is a board-certified Fellow of the American Academy of Family Physicians and a Fellow of the American Academy of Developmental Medicine with over 20 years of clinical experience providing medical care for people with IDD and complex medical conditions. He served as medical director of Hudspeth Regional Center in Mississippi for those with severe and profound intellectual and developmental disabilities until his retirement in June of 2018. He is the founder of DETECT, the Developmental Evaluation, Training and Educational Consultative Team of Mississippi, whose purpose is to educate, train, and support community-based medical and dental providers who provide care f...2021-04-1625 min

Creative Innovators with Gigi JohnsonCombining All Your Loves Together . . . with Laura EscudéIn this episode, Laura Escudé takes us on her journey from violinist to adventures in Los Angeles as a seat filler for TV shows from Craig’s list to market research to other one-off jobs. . . until she becomes a tech support staffer at M-Audio because of problems she had with her own keyboard. For listeners who are inspired by linear journeys, this is not one. Instead, Laura was launched from being laid off as the first Ableton Certified Trainer. An email got her working for Cirque du Soleil in playback. A phone call from all of her Ableton visibility brought...2021-01-1338 min