Shows
The ResearchWorks PodcastEpisode 202 (Dr Stacey Cleary)Experiences of participation in daily life of adolescents and young adults with cerebral palsy: A scoping reviewStacey L Cleary, Prue E Morgan, Margaret Wallen, Ingrid Honan, Nora Shields, Freya E Munzel, James R Plummer, Cassandra Assaad, Petra Karlsson, Evelyn Culnane, Jacqueline Y Ding, Carlee Holmes, Iain M Dutia, Dinah S Reddihough, Christine ImmsPMID: 39673293DOI: 10.1111/dmcn.16196AbstractAim: To synthesize the experiences of 15- to 34-year-olds with cerebral palsy (CP) as they participate in key life situations of...2025-03-0254 min
Essential EthicsDeciding with Children: Finding My VoiceTransition to adult services is an important step for patients who have been cared for in a children’s hospital or by a paediatrician. This is a process (transition) rather than an event (transfer) and takes both time and careful curation for the young person and their parents. The goal is to help develop the young person as an independent medical decision-maker at the same time as facilitating the parents’ role to switch from parent to patient advocate. There are many barriers to transition: willingness of the clinician to ‘let-go’; the patient's and parents' fears about a new environment and heal...2023-04-0337 min
From The Heart: The HeartKids PodcastWhat Happens When I Move To The Adult Hospital? Evelyn CulnaneEvelyn has helped thousands of young people transition from the paediatric to adult health care system. Out of the Royal Children's Hospital in Melbourne, Evelyn runs one of the most successful transition programs in the country. She answers all our health care transition questions in this episode. What makes a positive transition experience? Why is a positive health care transition important? What can teens do to promote a positive transition? What can parents do? What are some of the barriers to a positive transition and how can we remove them? This episode is for teens with heart conditions, as...2022-11-1923 min