Shows
Rarely Typical PodcastS3:E7, Living Strong with PAH: Walking, Mental Health, and Redefining Strength, with Eric BorsteinIn this amazing episode, I sit down with my friend Eric Borstein, the founder of Where Is EB?, to talk about life with Pulmonary Arterial Hypertension from a perspective the community does not often get to hear. PAH overwhelmingly affects women, so Eric walks us through what it has been like to navigate a rare disease in a demographic that rarely sees itself represented.Eric shares the story behind his diagnosis, the uncertainty that came with it, and the moment he realized he needed a path forward that felt empowering, not limiting. Walking became that path. We...
2025-12-0535 min
Rarely Typical PodcastS3:E6, Traveling with PAH: How Experience Builds Confidence and Freedom, with JennaIn this episode of Rarely Typical, I sit down with my friend Jenna to talk all things traveling with Pulmonary Arterial Hypertension (PAH). When you live with a rare disease, the idea of traveling can feel overwhelming — from packing medications and managing oxygen, to handling airports and unexpected flares. But over the years, both Jenna and I have learned how to make travel not only doable but genuinely enjoyable again.We share how our confidence has grown through experience, the lessons we’ve learned the hard way, and how we’ve each adapted our routines so we can co...
2025-11-0729 min
Rarely Typical PodcastS3:E5, From Primary Care to Specialist: What to expect in Your Referral Journey, with Dr. Hountras and Stacy Hountras, NPWhen you’re first diagnosed—or even when something just feels “off”—your journey often starts in your primary care doctor’s office. But what happens when your primary care provider suspects something more complex and refers you to a specialist? In this episode of Rarely Typical, I sit down with Dr. Peter Hountras and Stacy Hountras, NP, to break down what that process really looks like.We talk about how and why patients are referred to specialists (in my case a pulmonary arterial hypertension (PAH)) why tests often get repeated when you transition to specialty care, and what you...
2025-10-3127 min
Rarely Typical PodcastS3:E4, Working with PAH: Balancing Career and Chronic Illness, with Chelsea + LisaIn this episode of Rarely Typical, I sit down with friends in the PAH community, Chelsea + Lisa, to talk about what it really looks like to balance work and Pulmonary Arterial Hypertension. We share candid conversations about the challenges of managing symptoms, juggling frequent doctor’s appointments, and even recovering from surgeries—all while trying to maintain a career.We dive into the importance of workplace accommodations, the role of flexibility, and how to have honest conversations with employers about your needs. We also share practical advice for others navigating their own careers while managing PAH—reminders that y...
2025-10-2431 min
Rarely Typical PodcastS3:E3, 7 Years In: My Diagnosi-versary and the Lessons Along the WaySeven years ago, what I thought would be a quick trip to the ER turned into a life-changing moment—a diagnosis that would forever alter my life. In this special episode, I’m reflecting on my 7 year diagnosi-versary and the journey that’s unfolded since.I share how I first stepped into advocacy, what pushed me to use my voice, and the lessons I’ve learned along the way—both about myself and about living with a chronic, life-threatening illness. I also talk openly about facing mortality at a young age, and how answering the question, “What’s your goal?”...
2025-10-1725 min
Rarely Typical PodcastS3:E2, Finding Joy and Worship in the Mess with Brinnae Keathley from Red Rocks WorshipWhat does it look like to choose worship in the middle of your storm? In this episode, I sit down with Brinnae Keathley from Red Rocks Worship to talk about finding joy in the middle of hardship, and how God meets us right in our mess. Brinnae shares her own journey of faith, music, and holding onto hope when circumstances don’t look like what you imagined.Together, we explore how worship isn’t about pretending everything is perfect, but about bringing our whole selves—pain, questions, and all—before God. This conversation is an encouragement for anyone w...
2025-10-1025 min
Rarely Typical PodcastS3:E1 – Pregnancy, PAH, and Survival: Lisa’s StoryIn this powerful and deeply personal episode, I sit down with my friend Lisa to share a story that very few people — and even fewer medical professionals — truly understand. Lisa lives with pulmonary arterial hypertension (PAH) and a congenital heart defect, and she faced one of the most high-risk situations imaginable: pregnancy with PAH.Lisa walks us through her journey, from navigating her congenital heart defect to the moment she learned she was pregnant, and the critical role her PAH pregnancy specialist team played in saving her life and her baby’s. She opens up about the physic...
2025-10-0334 min
The CMDA Student Pulse PodcastPrescribing Prayer: Conversations from the ClinicHost Bill Reichart sits down with Gerry Langan, a patient living with pulmonary arterial hypertension, and her doctor, Peter Hountras, to unpack the appointment that altered her life. Their frank conversation peels back the curtain on a rare, life‑threatening diagnosis and the bold faith that guided their doctor‑patient bond. Hear the story from both sides of the exam room—it’s an unforgettable blend of medical insight, spiritual conviction, and human connection.
2025-09-2446 min
CMDA PodcastsPrescribing Prayer: Conversations from the ClinicHost Bill Reichart sits down with Gerry Langan, a patient living with pulmonary arterial hypertension, and her doctor, Peter Hountras, to unpack the appointment that altered her life. Their frank conversation peels back the curtain on a rare, life‑threatening diagnosis and the bold faith that guided their doctor‑patient bond. Hear the story from both sides of the exam room—it’s an unforgettable blend of medical insight, spiritual conviction, and human connection.
2025-09-2446 min
Rarely Typical PodcastS2:E10, Clinical Trials and Courage with ShannaIn the season 2 finale of Rarely Typical, I sit down with my friend Shanna, the person who first encouraged me to pursue a clinical trial. With experience in three different trials, Shanna brings wisdom, honesty, and encouragement to the table.We talk about:* How her clinical trial experiences shaped her journey with chronic illness* What to look out for and take notes on when researching trial opportunities* Why it’s important to fully understand what you’re getting into before committing* The role of courage, hope, and advocacy when cons...
2025-09-0535 min
Rarely Typical PodcastS2:E9 – Inside the Sotatercept (Winrevair) Trial: My Life-Changing PAH Clinical Trial ExperienceIn this episode of Rarely Typical, I’m pulling back the curtain on my own journey as a participant in the sotatercept (Winrevair) clinical trial for Pulmonary Arterial Hypertension (PAH).I share what a clinical trial actually is, why it’s such an important step in advancing treatment options, and why the sotatercept trial had the PAH community buzzing with hope. From there, I walk you through my own experience—the excitement, the setbacks, and yes, the exhausting parts too.It hasn’t all been smooth sailing. There have been hiccups, moments of frustration, and times I...
2025-08-2931 min
Rarely Typical PodcastS2:E8, Hope in the Data: Why Clinical Trials Matter with Dr. John MossIn this episode of Rarely Typical, Gerry sits down with her own PH specialist, Dr. John Moss, to talk all things clinical trials. Together, they unpack the importance of participating in research, how clinical trials work, and the patient-doctor collaboration that makes it all possible.Dr. Moss shares his insight from years in research and care, and Gerry reflects on how clinical trials—especially Sotatercept (Winrevair)—have drastically changed the trajectory of her life with Pulmonary Arterial Hypertension (PAH).Whether you're a patient, caregiver, or healthcare provider, this conversation demystifies clinical research and explains why tria...
2025-08-2227 min
Rarely Typical PodcastS2:E7, Parenting Through Progression: Chronic Illness, Motherhood & Finding Strength with Chelsea PriceIn this honest and deeply relatable episode of Rarely Typical, Gerry is joined by her friend and fellow rare disease mom, Chelsea Price, for a raw conversation about parenting while living with a chronic illness.Together, they talk about:* What it looks like to show up as a parent on the hard days* How disease progression affects energy, routines, and mental load* The emotional weight of watching your health shift while trying to maintain normalcy for your kids* Giving yourself permission to parent differently, with grace and flexibility
2025-08-1533 min
Rarely Typical PodcastS2:E6; The Silent Strength of Caregiving: Raising a Child with a Chronic IllnessIn this powerful episode of Rarely Typical, I sit down with my dear friend Jordan to talk about a topic that is often overlooked—what it’s like to raise a child with a chronic illness when you don’t have one yourself. Jordan opens up about her daughter’s diagnosis with Marfan syndrome, a rare connective tissue disorder, and the emotional weight of navigating this new world as both a caregiver and a mother.We explore the unique tension that comes with being strong for your child while silently carrying your own fears. Jordan shares how parentin...
2025-08-0836 min
Rarely Typical PodcastS2:E5, More Than Words: How to Truly Support a Friend with Chronic Illness, with Livia KubicaIn this heartfelt and deeply needed episode, I’m joined by my best friend and licensed therapist, Livia Kubica, to talk about what true support looks like when your friend is living with a chronic illness.We break down the real meaning of holding space, why empathy matters more than fixing things, and how to be a reliable presence—not just in words, but in action. We talk about the emotional labor that comes with being vulnerable and how to be the kind of friend who creates safety, trust, and compassion.Whether you're a caregiver, a fr...
2025-08-0135 min
Rarely Typical PodcastS2:E4; Compassion in Healthcare: Meeting as Whole Humans with Dr. Shaila SirajIn this episode, Gerry sits down with internal medicine physician Dr. Shaila Siraj to talk about something we don’t talk about enough in healthcare: compassion. This episode explores how empathy and human connection must flow both ways—from doctor to patient, and from patient to doctor.They dive into what it really means to create emotional safety in a clinical space, how doctors can stay grounded in compassion without burning out, and how patients can hold space for the humanity of their providers while still advocating for themselves.Whether you're a provider, patient, or some...
2025-07-2533 min
Rarely Typical PodcastS2:E3, When Doctors Team Up: How Collaboration Changes Patient Outcomes with Dr. Hountras & Dr. MossIn this episode of Rarely Typical, I sit down with two of the doctors who have played pivotal roles in my journey—Dr. Peter Hountras, my diagnosing physician, and Dr. John Moss, my current PH specialist. We dive into the power of collaboration in medicine and how compassionate care and teamwork between providers can radically improve a patient’s experience and outcome.We talk about:* How collaboration between specialists improves continuity of care* What compassion looks like in real-time clinical settings* The importance of communication between doctor and patient* How...
2025-07-1828 min
Rarely Typical PodcastS2:E2, Mental Health & Chronic Illness – A Conversation with Therapist (and Best Friend) Livia KubicaIn this heartfelt episode of Rarely Typical, I’m joined by not only one of my best friends, but also licensed therapist Livia Kubica, for a deep and honest conversation about mental health in the context of chronic illness and rare disease.We talk about the emotional toll of receiving a diagnosis, the grief that follows, and how chronic illness can affect every part of your mental well-being. Livia offers practical coping tools and therapeutic strategies that anyone navigating illness can use—whether you're newly diagnosed or years into your journey.We also unpack the impo...
2025-07-1131 min
Rarely Typical PodcastS2:E1, Who Am I Beyond My Illness? Finding Yourself Again After DiagnosisWelcome back!When you live with a chronic illness, it’s easy to feel like your diagnosis defines you. In this heartfelt Season 2 premiere of Rarely Typical, Gerry explores the importance of remembering who you are outside of your disease. Because while chronic illness may shape our daily lives, it is not the sum total of who we are.Gerry reflects on her own journey of rediscovery after being diagnosed with pulmonary arterial hypertension and congestive heart failure, and shares how she learned to honor the version of herself that existed before—and still exists beyo...
2025-07-0321 min
Rarely Typical Podcast🎙 Mini Episode: A Pause with Purpose — Wrapping Up Season 1In this mini-episode, Gerry reflects on the end of Season 1 of Rarely Typical. She shares her deep gratitude for every listener, guest, and supporter who has helped bring this podcast to life—and teases the exciting things to come in Season 2.But more than anything, this episode is a reminder: it’s okay to pause.In a world that praises busyness, Gerry gets real about choosing stillness in a season that demands a lot. She's intentionally stepping back to honor her family, her health, and her joy—and wants to encourage you to do the same w...
2025-05-2307 min
Rarely Typical PodcastS1:E10, Invisible vs. Visible Disabilities— A Real Talk with Sarah EvansIn this powerful and heartfelt episode of Rarely Typical, I sit down with one of my best friends, Sarah Evans—an osteosarcoma survivor and amputee—to talk about what it’s like living with a visible disability versus an invisible one.We unpack the unique challenges and misconceptions that come with both experiences—from stares and assumptions to being overlooked entirely. Whether your illness is visible or not, there's a shared emotional weight and societal misunderstanding that connects us.We talk about advocacy, friendship, and how important it is to give others grace—because disability doesn't lo...
2025-05-1623 min
Rarely Typical PodcastS1:E9, Divine Timing & Doctor-Patient Trust: My Diagnosis Journey with Dr. HountrasIn this heartfelt episode of Rarely Typical, I sit down with my diagnosing doctor, Dr. Hountras, to share both sides of the journey that led to my pulmonary arterial hypertension (PAH) diagnosis. We dive into how divine timing played a role—how God had everything in motion long before either of us arrived in Colorado. From God’s intricate planning to the importance of collaborative care, this conversation offers insight into the emotional and spiritual layers of rare disease diagnosis and why building a trustworthy doctor-patient relationship matters more than ever. Whether you're newly diagnosed, a caregiver, or navigating chro...
2025-05-0921 min
Rarely Typical PodcastS1:E8, From Calling to Caregiving: How Colorado Changed Everything for Us with Jason LanganIn this heartfelt episode of Rarely Typical, my husband, Jason, and I sit down to reflect on the unexpected journey that led us to Colorado—a move that, in hindsight, was divinely orchestrated for me to receive my life-changing diagnosis. We discuss how this path has strengthened our faith, tested our vows, and deepened our understanding of what it truly means to be a caregiver and a partner. Jason shares his perspective on stepping into the role of a caregiver, the challenges and emotional weight it carries, and how he’s found purpose in supporting me through this journey.
2025-05-0223 min
Rarely Typical PodcastS1:E7, Breaking Down New PAH Treatments with Dr. HountrasIn this episode of Rarely Typical, I sit down with my diagnosing doctor, Dr. Hountras, to talk about the exciting advancements in pulmonary arterial hypertension (PAH) treatments. We dive into the world of clinical trials, the importance of research, and four new drugs making waves in the PAH community: Opsynvi, Yutrepia, Seralutinib, and Sotatercept (Winrevair).We discuss how these treatments work, who they might benefit, and why clinical trials are crucial—not just as a last resort but as a way to advance PAH care for future patients. Whether you're newly diagnosed or have been managing PAH fo...
2025-04-2536 min
Rarely Typical PodcastS1:E6 - Unlearning Medical Gaslighting: From Doctor's Office to Self-DoubtEpisode OverviewMedical gaslighting is a painful reality for many patients, especially those with chronic and rare diseases. In this episode, I share my personal experiences with medical negligence and the long-term trauma it caused me. From being dismissed and unheard to doubting my own symptoms, medical gaslighting left me with lasting medical PTSD and self-doubt.But there’s another side to this story—one of relief, healing, and hope. I talk about the power of finding doctors who listen, collaborate, and respect my lived experience. Having a medical team that values my input has been...
2025-04-1831 min
Rarely Typical PodcastS1:E5, Navigating PAH Treatments: The Meds, The Methods, and What’s Worked for MePulmonary Arterial Hypertension (PAH) treatment isn’t one-size-fits-all, and trust me, I’ve tried it all (almost). In this episode of Rarely Typical, I’m breaking down the different treatments I’ve been on—IV pump therapy, oral medications, subcutaneous pump therapy, and the clinical trial injection I’m currently on. I’ll share the pros, the cons, and everything in between, plus what I’ve learned about managing side effects.If you or a loved one are navigating PAH treatments, this episode is packed with insights, and real talk to remind you that you’re not alone in this....
2025-04-1127 min
Rarely Typical PodcastS1:E4, The Power of Advocacy: How Community Support Transforms the Chronic Illness JourneyLiving with a rare disease can feel isolating, but finding a strong community and embracing advocacy can be life-changing. In this episode of Rarely Typical, I dive into the power of connection—how surrounding yourself with the right people can impact not only your healthcare journey but also your emotional and mental well-being.We’ll talk about why advocacy matters, why I got started, how impactful it was for me to build a support system, and the unexpected ways community can lift you up when you need it most. If you’ve ever felt alone in your diagno...
2025-04-0417 min
Rarely Typical PodcastS1:E3, Living with a Rare Disease: Challenges and Navigating the UnknownLiving with a rare disease comes with unique challenges, from misdiagnosis to navigating complex healthcare systems. In this episode, we dive into the realities of rare disease life, the importance of advocacy, and finding hope amid the uncertainty.What You’ll Learn in This Episode:✅ The challenges of living with a rare disease like delayed diagnoses✅ Personal stories about how I struggled with diagnosis✅ Why self-advocacy is important for rare disease patients✅ Tips on how to take preventative measures and protect yourselfDisclaimer: Rarely Typical is based on my personal e...
2025-03-2827 min
Rarely Typical PodcastS1:E2, Diagnosis: How Pulmonary Hypertension Transformed My LifeIn this heartfelt episode of Rarely Typical, Gerry opens up about the profound lessons pulmonary arterial hypertension (PAH) and congestive heart failure have taught her. She shares her journey from a young, seemingly invincible 27-year-old to finding strength, purpose, and healing through life’s toughest challenges. Through humor, honesty, and faith, Gerry dives into the power of community, the beauty in the mess, and how chronic illness reshaped her perspective. Tune in for inspiration, real talk, and a reminder that even in the hardest seasons, hope and growth are possible.Disclaimer: Rarely Typical is based on...
2025-03-2108 min
Rarely Typical PodcastRarely Typical Podcast: S1:E1, The Heartbreak Of The American Healthcare SystemIn this episode of Rarely Typical, host Gerry dives into the heartbreaking realities of the American healthcare system for chronically ill patients. She shares her personal experiences with both poor and exceptional medical care, highlighting the shocking disparities that exist. Gerry discusses the financial burdens, startling statistics about healthcare costs, and the exhausting fight many patients face to receive proper treatment. She emphasizes the importance of advocacy, self-advocacy, and pushing for a healthcare system where compassionate, comprehensive care should be the standard—not a specialty. Tune in for an honest, eye-opening conversation about why the system needs to change an...
2025-03-1407 min
Rarely Typical PodcastWelcome to the Rarely Typical Podcast!Welcome to Rarely Typical, this podcast will dive into life with chronic illness, rare disease, and everything in between. Hosted by Gerry Langan, a pulmonary hypertension and heart failure advocate, this show offers honest conversations, practical tips, and a dose of hope to help you navigate the unpredictable. Whether you're a patient, a caregiver, or just curious, join us for real stories, expert insights, and a reminder that life can be beautiful—even when it’s Rarely Typical.Like, subscribe and comment.Thank you for your support,G Get...
2025-03-0701 min
LMFM Late Lunch Listen BackLate Lunch Tuesday June 4th 2024Dr Kelly Fincham has her say on dealing with online abuse, especially of women, on social media. Ray Langan offered last minute advice to students and parents, ahead of the start of the state examinations tomorrow. Gerry loves children's author Erika McGann's new book called "Chasing the Shy Town" which is published this week. And the first golfer on Gerry's FX Irish Legends Pro-Am team is David McArdle who's delighted with his selection! Hosted on Acast. See acast.com/privacy for more information.
2024-06-041h 05
KCLR's Big Game LiveHurling: Kilkenny v Galway, 2023 Leinster senior hurling championship final (11/6/23)Listen back to commentary of the 2023 Leinster senior hurling championship final, as broadcast live from Croke Park on 11 June 2023, as Kilkenny and Galway went head to head for the Bob O'Keeffe Cup.Your commentary and analysis team on the day were Oisin Langan, Michael Walsh and Aidan Fogarty.This game was broadcast with thanks to Laharts Kilkenny and Gerry Comerford Drilling Ltd.
2023-06-121h 46
I'm Aware That I'm Rare: the phaware® podcastGerry Langan - Pulmonary HypertensionIn this episode, Gerry Langan (@itsgerrylangan), pulmonary hypertension and heart failure patient advocate, discusses how sharing her story and leveraging social media is how she took back power in an uncontrollable situation after being diagnosed with a disease that is progressive and uncontrollable. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials
2022-06-2013 min
LMFM Late Lunch Listen BackLate Lunch Tuesday June 7th 2022William Sullivan told us he will have no choice but to close his Irish Military War Museum because of escalating rates and insurance costs. Annette Tiernan's little luck led to a big bingo win and she's so happy! The One and Only Chesney Hawkes joined Gerry for a lovely chat while Niall Hatch was at his insightful best on a range of birdy matters. Ray Langan offered some crucial last minute advice for students and parents ahead of the state examinations which begin tomorrow. Our 2 on Toosday and soundtrack from Mary Poppins completed the bill... Hosted on Acast...
2022-06-071h 11
R is for Rare19. Pulmonary Hypertension + Congestive Heart Failure ft. Gerry LanganThis week's interview is with a social media patient advocate, Gerry Langan! She has pulmonary hypertension, which is a blood pressure condition affecting the arteries in the lungs and heart, and has congestive heart failure. She is very transparent on her rare disease journey, her faith life, her journey as a mom, and everything in between. She and I talk about issues with finding healthcare specialists, how our Christian faith plays into our lives, and much more!
Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, or wherever you get your podcasts! And follow me on...
2021-06-171h 25
Because We Are StrongINTERVIEW: Gerry Langan. & PHNThis week on the BECAUSE WE ARE STRONG PODCAST we featured Gerry a mom and PHN warrior; meet GerryIn 2018, I was diagnosed with Idiopathic Pulmonary Arterial Hypertension. Since diagnosis, I have felt the draw to share my story so that you can find hope and inspiration from it. PH patients and chronic illness patients alike fight battles every day, some in complete silence. I am here to tell you that your story is a great story of battle and I hope I can encourage you every step of the way. Be it an ear to...
2021-05-0634 min