Shows
The Autoimmune RESETRegaining Personal Power After Hair Loss with Guest Deeann GrahamSend us a textDeeann Graham is an award-winning author of Head-On, Stories of Alopecia, an alopecia educator & advocate, and the podcast host of Alopecia Life. I speak to communities about autoimmune hair loss, regaining personal power when given a confusing diagnosis, and work to educate medical communities about the emotional and physical aspects of alopecia areata during appointments in order to avoid unhealthy outcomes. In this episode, Deeann shares her journey with alopecia, how parents can help their children with alopecia areata and how to regain their identity and personal power after hair loss. ...
2023-06-2726 min
Alopecia Connection15. Deeann Graham, Alopecia Life PodcastEpisode 15- Deeann Graham, Alopecia Life Podcast"...you're going to meet the most amazing people, and more than anything, you're going to find our things about yourself that would have never been possible without alopecia..."This month we are pleased to introduce you to Deeann Graham (IG: @alopecialifecoach), alopecia advocate and host of the Alopecia Life podcast! Deeann's journey with alopecia began at the age of 7, and went through several periods of hair loss and regrowth. In addition to her podcast, Deeann also produced a book, "Head-On, Stories of Alopecia," which profiles inspiring pe...
2023-06-0158 min
Alopecia LifeS3E19 3+ Healthy Habits to Have in Our Lifestyle Toolbelt for Success, with Integrative Nutrition & Gut Health Coach, Lisa Taylor Welcome to another episode of Alopecia Life with Integrative Nutrition & Gut Health Coach, Lisa Taylor. Last October, Lisa shared about gut makeovers and autoimmunity. Since then, Lisa and I have been wanting to connect again to share some lifestyle tools to add into our healing journey. The importance of self-care is often overlooked as we are going about our busy lives, and Lisa is here again to help us implement healthy habits into our daily routine. Thanks so much for spending your time with us today on Alopecia Life. Lisa took the time to prepare all of th...
2022-04-2833 min
Alopecia LifeS3E18 Alopecia Representation with Congresswoman, Ayanna PressleyWelcome to this episode of Alopecia Life.The past few weeks have been ones full of awareness around alopecia areata. It's brought to light more than we ever could have anticipated, especially around the complicated relationship amongst the black community and hair loss. This interview was scheduled months ago to be released today. Our guest deeply connects with the topic with understanding, representation, and also one of passion. Congresswoman Ayanna Pressley is an activist, a legislator, a survivor, and the first woman of color to be elected to Congress from the Commonwealth of Massachusetts. Throughout her career, she has...
2022-04-1434 min
Alopecia LifeS3E17 How Connecting to Mind, Body & Soul Allows Us to Build Confidence, with Sheridan RuthWelcome to this episode of Alopecia Life. Today's guest is Sheridan Ruth. She is both an alopecia coach and yoga therapist, and supports women with alopecia in their journey to feel more self-acceptance, step into their true power, and radiate confidence. Since losing her hair at 7 years old, Sheridan battled self-doubt, anxiety, insecurity, trauma, body image and mental health challenges. For years she felt disconnected from her body and inner wisdom and felt like she was searching for answers. She began to make her way through the challenges and into empowerment using yoga, meditation, and other mind-body p...
2022-03-3125 min
Shameless LeadershipDeeann Graham: Head On: Stories of AlopeciaDeeann Graham is the award-winning author of Head-On, Stories of Alopecia, and an alopecia coach/consultant, educator, and advocate. She was first diagnosed with alopecia areata (an autoimmune hair loss condition) when she was 7-years-old. She published Head-On, Stories of Alopecia to share stories and photos of people around the world who are living with alopecia, in order to provide a broad perspective on the journey of hair loss. Educating communities in order to empower others who have been diagnosed, especially in the beauty and medical industries, is an important part of Deeann's outreach. She is also the course...
2022-03-2353 min
Alopecia LifeS3E16 Hair or No Hair, with Filmmaker Janessa St. PierreThanks for listening to Alopecia Life today. For the past 2 years, the month of March seems to bring an opportunity to share about very cool projects. This year, we have something that is time sensitive, and I wanted to make sure we all had an opportunity to share the project, especially before the end of March.Our guest today is Janessa St. Pierre. Janessa studied Film Studies at Concordia University in 2015 and then transferred to Capilano University for certification in Motion Picture Arts in 2017. She has been working in the film industry since then, and her goal i...
2022-03-1722 min
Alopecia LifeS3E15 How to Make the Most of Your Doctor Appointments & Ask For What You Want!Thank you for sharing your time with me and guest, Teresa Younkin today on Alopecia Life. I met Teresa at a conference last year. We were talking about healthcare reform and what she does, and I was super impressed. What started out as personal advocacy for her family has led to something more expansive around healthcare. Teresa is super excited about the health information exchange, and she shares more about that with us today, along with how to ask for what we want to make the most of our doctor's appointments. Her life mission is to leave the healthcare...
2022-03-1039 min
The Dawn Jarvis ShowCreating Empowerment Whilst Living With Alopecia With Deeann GrahamWelcome to the latest episode of The Dawn Jarvis Show, the podcast where I talk to leaders, professionals and entrepreneurs who are part of My Diverse Nurse Network about how they manage business and their health and wellbeing. Brought to you by https://dawnjarvis.com Today my guest is Deeann Graham. Deeann is an award-winning author and alopecia coach/consultant, educator and advocate. She was diagnosed with alopecia areata at 7-years-old. She published Head-On, Stories of Alopecia to share stories and photos of people around the world living with alopecia in order to provide a broad perspective on the...
2022-03-0237 min
Alopecia LifeS3E14 Building Community One Ponytail At a Time with Chloe's ChallengeWelcome to this episode of Alopecia Life, and for sharing your time with me and our guest, Susan McLemore, today. A couple months ago, I was searching for something on Facebook, and I discovered Susan and a really cool thing she organized. I wanted to find out more, and we were both excited to talk about the community that supported her family after they were diagnosed with alopecia. I hear so often, after children are diagnosed, that parents want to do something, anything really...to support their child. They feel helpless and confused, and they want their child to...
2022-02-2422 min
Alopecia LifeS3E13 How the Australia Alopecia Areata Foundation Raises Awareness & Supports Their CommunityToday, our guest is Chel Campbell, who in 2010 after 12 years of being a parent of a son living with alopecia, led her to create the Australia Alopecia Areata Foundation and build on her passion for unconditional acceptance and appearance diversity. In today's episode, we discuss the how and why behind AAAF, what they are looking to accomplish this year, how they've adjusted their outreach during the pandemic, and how she hopes that one day in the future there won't be a need for the foundation. You'll hear a lot of laughter during the interview, and we also spend some...
2022-02-1039 min
Alopecia LifeS3E12 Newsworthy Alopecia - How Jada Pinkett Smith Illuminated AlopeciaWelcome to this episode of Alopecia Life. A few weeks ago, I wrote an article about Jada Pinkett Smith and submitted it to a couple different news outlets. Although it didn't get picked up, I thought I'd share it with all of you. After writing this article and recording for this episode, I can see that there have now been over 2 million interactions and views on her Instagram post that made the headlines. That is 3 times more than almost any other Instagram post she has had in over a year. Alopecia is certainly newsworthy!Here a...
2022-01-2709 min
Alopecia LifeS3E11 Picture Day - Helpful Tools to Make the Most out of School & Sport Photos, with Frank Lombardo & Inter State StudioWelcome to this episode of Alopecia Life. We have 3 guests here with us today, Frank Lombardo, the National Photography Manager and two of his team, Erin & Steve from Inter-State Studio & Publishing Company.Frank and I connected a few years ago when I was reminded of my own school photo experience after hearing numerous discussions come up about the unpleasantness of school photos. It may be strange to hear how traumatic a school photo can be, especially if your own experience was only one of fun anticipation and excitement. While I...
2022-01-1325 min
Alopecia LifeS3E10 December Giveaways - Week 3Welcome to Week 3 of December giveaways. If you haven't yet entered, and still want a chance to win any of the items I've talked about over the last 3 weeks, please sign up and choose your top 3 at the link found on the Alopecia Life Facebook group or in the BIO on Instagram. Enter to win until December 20th. https://alopecialife.ck.page/23a8dee253The month of December has some very interesting days of celebration. In light of National Cupcake Day on the 15th and National Cover Anything with Chocolate Day on the 16th, t...
2021-12-1601 min
Alopecia LifeS3E9 December Giveaways - Week 2It's week two of December giveaways. .We have some more awesome stuff this week, but you can enter and choose your top 3 items (no matter when they're announced). I have multiples of most items, and I want you to get the item of your choice if you are a winner. There's no need to be worried about seeing massive emails from me in your inbox either. Although I love having you on my list of people to contact when I have a cool giveaway or something amazing to announce and offer, you can always choose to unsubscr...
2021-12-0901 min
Alopecia LifeS3E8 December Giveaways - Week 1Welcome to this episode of Alopecia Life. It's the month of December 2021. Traditionally, across much of the globe, December has been a season of family and friend gatherings and gift-giving. For the first 3 weeks of this month, I'll be doing some of my own gift-giving to Alopecia Life listeners, courtesy of some awesome donors. Over the past 3 seasons, I've collected super cool items from guests who wanted to share with all of you. Everything from cookbooks from Jessica Rose, to headbands from Chris Healy and the LongHairs, headwash from Melissa of C3, and eyebrow tattoos from Jason of My...
2021-12-0201 min
Alopecia LifeS3E7 Alopecia & Eye Health with Dr. HaleToday's guest is Dr. Britney Hale Koehler (known as Dr. Hale). She is a residency trained optometrist and fellow of the American Academy of Optometry. As the spouse of an Army optometrist, she has practiced in Florida, Texas, Washington state and Hawaii over the past 8 years. Her connection to the alopecia community began 6 years ago when she was diagnosed with alopecia areata, resulting in an ongoing and challenging journey of hair loss and regrowth. We are talking about eye health and alopecia today. The loss of our brows and lashes play an important role in eye health, and Dr. Ha...
2021-11-1819 min
Alopecia LifeS3E6 My Two Brows with Jason BerndtToday's guest is Jason Berndt, the founder and creator of My Two Brows. If you've lived with alopecia areata that has progressed to totalis or universalis, you have probably experienced the loss of your eyebrows. In past research I've done, it was discovered that the loss of eyebrows and lashes were almost more devastating than the loss of head hair. In today's episode, Jason and I talk about his company, My Two Brows, his own alopecia story, and how a deep dissatisfaction around what was being offered to people without eyebrows, especially people with alopecia, led him to start...
2021-11-0435 min
Alopecia LifeS3E5 Let's Talk Gut Makeovers & Autoimmunity! How Easy is it to Heal Your Gut?Welcome to this episode of Alopecia Life. Today's guest is Lisa Taylor. She is an Integrative Nutrition & Gut Health Coach, and the founder of Your Best Life with Lisa. Gut health has been gaining traction over the last few years as a possible trigger for autoimmunity. With a standard North American diet that lacks essential nutrients, and the introduction of toxins in our personal care products, pollution in the air and so much more - our gut is taking a beating. Lisa is here today to share about her personal transformation after leading a high-paced, high stress life that...
2021-10-2128 min
Alopecia LifeS3E4 Science, Story & the Need for an Equally Important Community Within Our OwnI'm excited to have today's guest with us for this episode. Anthony Gilding has an important role as the first director of science and research communication at the Canadian Alopecia Areata Foundation His experience in research along with his own alopecia diagnosis has put him in a unique position to help on both a personal and professional level. Today's episode covers a bit about research, his story of hair loss, and a population within our own alopecia community that hasn't yet connected.Thank you for sharing your time with Anthony and I today. I appreciate Anthony's honesty...
2021-10-0724 min
Alopecia LifeS3E3 Unlocking the Origin of "Puebes", with Nicolas Roman SrutThank you for sharing your time with today's guest Nicolas Roman Srut and me. I can't think of a better way to round out Alopecia Awareness Month than having Nicolas as our guest. Throughout the episode, we talk about how he became an internet personality with over 5 million followers, how building confidence in others has the effect of building our own, and more about his alopecia story. You may be wondering how the popularity of "Puebes" came to be, and you'll definitely hear more about this during the interview. More about Nicolas - "After years of being i...
2021-09-3021 min
Alopecia LifeS3E2 Raising Awareness with Barrels, a Horse, and a Whole Lot of Fun, with Hailey PortonovaWelcome to Season 3, Episode 2. September is Alopecia Awareness Month. That means lots of events to raise awareness for alopecia, and one of them is brought to you by Hailey Portonova, a competitive barrel racer and rodeo announcer & organizer. Every year, she has a race that focuses on alopecia & raises funds for the Children's Alopecia Project, bringing over 320 racers and their fans. This year is no different, and I'm super excited to have her here to talk about alopecia, growing up racing, and the event. More about Hailey: Hailey is a native Arizonan who has called the desert h...
2021-09-1620 min
1st Mentor PodcastEp. 43 - Alopecia Awareness Month | Deeann GrahamHave you ever noticed certain people around you looking different and wondering what it was, and maybe even how to approach them about it?For Alopecia Areata Awareness month in September, I invited Deeann Graham, an alopecia life coach, to discuss her experience growing up with this autoimmune condition, which results in sudden hair loss. You will gain a better understanding and learn how you can support those in your life who might be suffering from alopecia areata, alopecia totalis or alopecia universalis. Support the showSupport us v...
2021-09-1340 min
Alopecia LifeS3E1 It's Season 3 & Alopecia Areata Awareness MonthWelcome to Season 3 of Alopecia Life and the beginning of Alopecia Areata Awareness Month. This is Deeann Graham, your host of Alopecia Life. I've lived with alopecia for the past 43 years, but I didn't come to terms with it until I met other people who could relate and share their mutual experiences with me. After meeting others who understood and realizing there was still so little information out there, I published Head-On, Stories of Alopecia, a coffee table book full of stories & black & white photos from others around the world to help those who still felt alone with their...
2021-09-0201 min
Alopecia LifeS2E24 What's Silly Hair Day With No Hair, with Author Norene PaulsonThank you for sharing your time with us today on Alopecia Life. The 2020 school year started off highly unusual for most of the world. Our kids were home for extended periods of time. Now that we're ramping up for the 2021 school year, school spirit, ways to express who we are with or without hair within the walls of the building and out on the playground or sports field can come rushing back. Author, Norene Paulson, writes a story to share Bea and how she finds solutions in her new book, What's Silly Hair Day With No Hair. It is...
2021-08-1926 min
Alopecia LifeS2E23 Back to School with Alopecia UK & Young Animators ClubToday's guests, Lydia Hibbert and Kery Montgomery collaborated to come up with something pretty phenomenal. Lydia is an artist and animator who specializes in learning and teaching in the creative arts, and the founder of Young Animators Club. Kerry is the Psychological Wellbeing Lead at Alopecia UK. Together, they created an award-winning animation and the Alopecia UK Schools Pack alongside parents and young people to raise awareness of the psychological impact of alopecia. I hope you're just as excited as I am to welcome both Lydia and Kerry to the podcast. To check out the animation, please s...
2021-08-0534 min
Alopecia LifeS2E22 CANAAF with Vice President, Melissa RileyToday's guest is Melissa Riley. For the last 4 years, Melissa has been the Vice President of the Canadian Alopecia Areata Foundation. She shares about her experience with CANAAF, how they've adapted their support groups to be effective during the pandemic, and how they've also added something new and exciting that will be a great service to those living with alopecia in Canada. Thank you for sharing your time with us today on Alopecia Life. For more information about CANAAF or how to find out more about their wig library, please reach out to them. All that contact i...
2021-07-2221 min
Alopecia LifeS2E21 Shadow Siblings: Discovering Your Unknown Superpower with Nicole Leinbach & Claire ReyhleToday's guests on Alopecia Life are Nicole Leinbach and Claire Reyhle, the mother/daughter duo who were inspired to write Shadow Siblings: Discovering Your Unknown Superpower. After her brother, Jackson, was diagnosed with alopecia, Claire discovered that superpower, and wanted to help acknowledge the roles that shadow siblings can fill in a family, how to express it, embrace it, and make it your own. Thank you for listening today. Books like Shadow Siblings, give us an opportunity to open difficult or confusing conversations and to bring light to topics we don't know how to do that with. S...
2021-07-0820 min
Voices, a Podcast from the Seneca Valley School DistrictEpisode 42 - Joining the SV Team with Ms. DeeAnn Graham SHOW TOPICJoining the SV Team with Ms. DeeAnn GrahamSPECIAL GUESTMs. DeeAnn Graham, Connoquenessing Valley Elementary School Principal DeeAnn Graham has just completed her 17th year as a building administrator, with 15 as a principal. She started her career as a fifth and sixth grade teacher in a private school before stepping out of education temporarily to work in domestic steel sales. However, being an educator was foremost in her heart. An opportunity presented itself to teach in Seneca Valley. That was 25 years ago, and she still thinks Seneca Valley is the be...
2021-06-2310 min
Alopecia LifeS2E20 Milano Wigs - How the Quest to Find Something Natural, Secure & Comfortable Led to Innovations in the Wig IndustryThank you for sharing your time with us today. Our guest in this episode is Judy Geisinsky. She is the founder of Milano Wigs. A few months ago, I had some requests from listeners asking to know more about wigs. At the same time, I was contacted by someone who wanted to share about Milano with our listeners. Normally, I don't talk much about wigs. My expertise is next-to-nothing. When I was young, Shriner's hospital paid for my first and last custom-made wig from a salon. I know a lot of work went into replicating what my hair looked l...
2021-06-1728 min
Hair TherapyDO ALOPECIA YOUR WAY~ You are not alone W/ Deeann GrahamSend us a textDO ALOPECIA YOUR WAY148 million people in the world, around 2% of the population experience hair loss. Deeann Graham, the host of the Alopecia Life Podcast, is one of them. She talks about her life with alopecia, losing friends and gaining new ones, and how you can find the right support and help for you- you don't have to go through it alone.We also discuss how to best support someone with alopecia, especially children, and how cultivation connections with others in a similar situation...
2021-06-1453 min
Alopecia LifeS2E19 Breathe with JP - How Developing Alopecia Led to Recovery, Connection, and Discovering his Life Purpose, with Jon Paul CrimiToday's guest is Jon Paul Crimi. Our conversation could have been centered all around his life as a former Celebrity Trainer and world-renowned Sober Coach because admittedly, that's some pretty cool stuff. Instead, we talk about alopecia and the impact it had on his life when it hit him in the middle of building an acting career, in the midst of drug addiction and excessive drinking, and led him down the road to recovery and to a self-discovery of his life's work to help those suffering from addiction, abuse, PTSD and other trauma.*This episode is...
2021-06-0359 min
Alopecia LifeS2E18 It's Not a Wig...It's a Cranial Prosthesis - Ways to Get Your Insurance to Cover your Helper Hair, with Shirleysia Jones & The Alopecia Hair SocietyToday's guest is Shirleysia Jones, owner of the Alopecia Hair Society. Shirleysia has transformed her business over the last two years, dedicating her time to those living with hair loss, offering support, and shining a light on the wig industry and medical insurance. She and I talk about the proper terminology when working with your insurance company, and she shares with us how working with the Alopecia Hair Society can help streamline the process. Thank you for listening today. For ways to connect with the Alopecia Hair Society and Shirleysia, please check out the show notes for h...
2021-05-2016 min
Alopecia LifeS2E17 Pageants, Plants & Positive Change, with Miss Stamford USA, Renee ReyesToday's guest is Miss Stamford USA, Renee Reyes. Renee has a passion for plants and community service. She is going to continue to break barriers in the pageant world while competing, bald for Miss USA and Miss Universe. Listen in to hear more about her outreach efforts, the alopecia non-profit program that is coming together, and much more.*Mature content when talking about social media trolls at minute 9Thank you for listening to this episode of Alopecia Life. Check out the show notes for ways to connect with Renee, ask a plant question, find out...
2021-05-0621 min
Alopecia LifeS2E16 Alopecia Fashionista - How Wearing Hair Affected Her College Experience, Her Career Goals & Led to Her Brand, with Natalie LahrToday, our guest is Natalie Lahr. Natalie has had androgenic alopecia for over 11 years. Throughout the episode we talk about how she came to be known as Alopecia Fashionista, how beginning college while dealing with hair loss felt, and she has great advice for those who are ready to start wearing toppers or wigs. Thank you for listening to this episode with Natalie Lahr. She provides a lot of value with her content. To find out more, read her blog, or check out her YouTube tutorials, her linktree information is listed below in the show notes. ...
2021-04-2216 min
Alopecia LifeS2E15 Let's Celebrate Children with Alopecia Day, with Maddie WoytovichToday's guest is Maddie Woytovich. Many of you may remember her from last year's podcast and are familiar with the beginnings of the Children's Alopecia Project. Today, we are catching up with Madde. We're also talking about Children with Alopecia Day, a day to celebrate the children who are living with alopecia, but also a day to share photos and connect with our community. We are never alone in our alopecia journey. Thanks for listening today. In the past, we've seen people make a special cake for their child, read a book in school, or dress a...
2021-04-0809 min
Alopecia LifeS2E14 Athletes Unlimited, the New Game of Volleyball, and the Bald Girls Do Lunch Player's Cause, with Professional Volleyball Player Deja McClendonWelcome to this episode of Alopecia Life. Today's guest is Deja McClendon, professional volleyball player with Athletes Unlimited, former Penn State player, and from my limited time with her - I can tell she's an all around lovely human. Deja and I discuss volleyball, her alopecia story, and her athlete cause during the month of March supporting the non-profit, Bald Girls Do Lunch. You may hear throughout the interview my excitement as I talk with her about this new way of playing - where players change teams each week, gain points as individuals and as a team, and so...
2021-03-2527 min
Alopecia LifeS2E13 Color Street & Fun Ways to Make a Difference for Alopecia During Autoimmune Awareness Month, with Caroline AlanisToday's guest is Caroline Alanis. March is Autoimmune Awareness Month, and Caroline and I talk about the Color Street Autoimmune Awareness Inner Strength nail art that is available only during the month of March. She also shares her alopecia story and how important it is to remember positive feedback with self-affirmation. Caroline discovered the impact of how sharing her own story could help others after becoming a member of the International Alopecia Community in 2015. Caroline is married, has three grown daughters, and is now a grandma. She also works as an office manager of a State Farm A...
2021-03-2325 min
Alopecia LifeS2E12 More of Season 2 Coming SoonThank you so much for listening to Alopecia Life. Without you, this show wouldn't be as much fun. This has already started out to be an exciting podcast season. Guests have included Skyler Weaver as he makes his way through central and south America to raise alopecia awareness, and authors Betsy and Suhani sharing about their debut publications. We've also talked about experiences with Low Dose Naltrexone (LDN) by patients who have had success, along with a follow-up interview with a compounding Pharmacist who explained the ins and outs of LDN. Suzanne with Hair-We-Share educated us about the proper...
2021-02-0401 min
Alopecia LifeS2E11 Let's Talk - Conversations for Women with Alopecia, with Dr. Angela Rodgers & Dr. Renee ThomasonThank you for sharing your time with me and today's guests, Dr. Angela Rodgers and Dr. Renee Thomason. Both are board certified family medicine physicians who have lived with alopecia areata for over 20 plus years and are also working the frontlines during this COVID-19 pandemic. Dr. Thomason strongly focuses on mindfulness and strength based practices as a physician and in her personal life. Her discovery of keeping a wholesome mind and resilient spirit has been a guide to navigate different obstacles in life, especially while helping others who are living with alopecia. Dr. Rodgers has been a N...
2021-01-2138 min
Alopecia LifeS2E10 How Sharing Their Story with Humans of New York Touched the Lives of Over 253,000 People to Raise AwarenessThank you for listening to this first Alopecia Life episode of 2021. There's a lot of collective hope in the world right now, and today's guests are perfect for keeping that hope going. Last month, many of us who follow newsfeeds about alopecia were super excited to see the Humans of New York Facebook page featuring Danielle, Connolly, and Damon. Most of the world's population is still in the dark about what alopecia areata is, and by sharing their story with Humans of New York, awareness exponentially rose by the thousands, and by the time this episode releases, those numbers...
2021-01-0725 min
Alopecia Life2 Minute Tuesdays - Itching, Tingling, Burning & Bruising - What's "Normal" When My Hair is Falling Out?Welcome to another episode of 2 Minute Tuesdays. One of the questions I hear often in my practice, especially when someone has first been diagnosed with alopecia areata is, "Is it normal for my scalp to feel this way when my hair is falling out?" The short answer is "yes." The long answer is this. Inflammation and hair loss show up in different ways. Some people may feel burning. Others may feel numbness & tingling, and some may feel itching or bruising. It's not unusual to feel a combination of these, or maybe none at all. If your child c...
2020-12-2901 min
Alopecia LifeS2E9 Alopecia Annie and How a Desire to Help Others Inspired her to Start an Online Support GroupThank you so much for sharing your time with me and our guests today, Annie Foss and Finny the dog who has a starring role right around the 16 minute mark. Some of you may know her as Alopecia Annie. She started the Alopecia Totalis and Universalis support group on Facebook after being diagnosed with alopecia in 2017. Although Annie considers herself just a "regular old gal," she is so much more, including "being an expert in her own experiences in life as an introverted empath." When I met Annie a few years ago, I could feel how important helping others w...
2020-12-1721 min
Alopecia LifeS2E8 How Culture & Alopecia Intersect, and Creating a Story Free from Stereotypes with Suhani ParikhWelcome to Season 2 Episode 8 of Alopecia Life. Today's guest is Suhani Parikh, and we are talking about her debut book, Shreya's Very Own Style. We discuss south Asian culture, food, alopecia, and how to instill confidence in our children while keeping those traditions that shape us and resonate with us, alive. Growing up, Suhani always felt divided. Raised in a home where Indian traditions were taught just as much as American customs were followed, she was part of two distinct worlds. What took her time to figure out, was how to integrate these two worlds she belonged t...
2020-12-0315 min
Alopecia LifeS2E07 The Nitty Gritty of Low Dose Naltrexone, with Michelle Moser, RPh, FACA, FACVPThis is the second episode of our LDN series, and our guest today is Michelle Moser, RPh, FACA, FACVP. Michelle has been a pharmacist for over 30 years, and is the owner of Makers Compounding Pharmacy in Mt. Vernon, Washington, and is sharing all about LDN with us today. I had off-hand heard about Low Dose Naltrexone, LDN, within the alopecia community, but I didn't know anything about it. In my research, I discovered a resource literally right down the road from where I live, and I was so excited to learn more and share it with all of you.
2020-11-2423 min
Alopecia LifeS2E06 Health Coaching, Low Dose Naltrexone & Advocating for Your Family, with Laura Krippner, A-This is the first episode in a 2 part series about Low Dose Naltrexone or LDN. Several months ago, I discovered a FB page called LDN and Natural Healing for Alopecia Areata. After becoming a member and researching the page to find out what LDN was (which was still pretty vague), I asked who had seen results from using it. A handful of people volunteered their experience, and only one said they had seen growth from using it. Today's guests are Laura Krippner, A-CFHC and her son, Harrison. Laura retrained as a health coach after spending years seeking so...
2020-11-1931 min
Alopecia LifeS2E05 Hair We Share, with Suzanne ChimeraToday's guest is Suzanne Chimera. She is a Cosmetologist and has worked with Manny Roberts Hair Replacement since 1994. Suzanne started Hair We Share in 2014 after 20 years of working with clients with all types of hair loss. Her goal was to take away the financial burden associated with quality wigs. The mission of Hair We Share is to help maintain dignity, confidence and self-esteem to those affected by medical hair loss. Hair We Share is the only not-for-profit that services people of all ages with any type of medical hair loss. Suzanne works tirelessly to include anyone who needs her...
2020-11-0524 min
Alopecia LifeS2E04 Adventures for Alopecia - Traveling 16,000 miles to Raise Alopecia Awareness, with Skylar WeaverOur guest today is Skylar Weaver. He was diagnosed with alopecia as a teenager, and it took a toll on both his emotional well-being and self-confidence throughout high school. After years of wanting to go on a motorcycle trip of grand proportions, he decided to start the non-profit, Adventures for Alopecia to combine his dream of traveling 16,000 to Patagonia and raise awareness for alopecia at the same time. If you know of anyone in Central or South America living with alopecia, contact Skylar so they can make a connection. Finding someone who can help you feel less a...
2020-10-2222 min
Alopecia LifeS2E03 Taking a Leap of Faith, with Betsy WoytovichToday's guest is Betsy Woytovich. She is the Director of Alumni relations at Berks Catholic HS, co-founded the Children's Alopecia Project with her husband, Jeff, and she just recently fulfilled her lifelong dream of becoming a published author with her book, Francie Puts on Her Courage. https://amzn.to/2DSTxFjhttps://www.childrensalopeciaproject.org/Please check out the links in the show notes to find Francie Puts on Her Courage. If you purchase a copy through Amazon, it would be awesome to take the extra few seconds to leave a review for Betsy. Th...
2020-10-0826 min
Alopecia Life2 Minute Tuesdays - LDN: What's This Molecule and How Does it Work?This is an episode of 2 Minute Tuesdays. When I interviewed Pharmacist, Michelle Moser, back in August, we talked about upcoming events that would allow listeners to find out more about LDN or Low Dose Naltrexone. The full interview won't be released until late November, but if this soundbite is making you wonder what we're talking about, please check out the link in the show notes to be part of their summit on October 17th. https://www.ldnpnw.com/ Through the end of September, enter the code MAKERSRX to save $100 on registration for the LDN PNW Summi...
2020-09-2802 min
Alopecia LifeS2E02 The Helper Hair Box - How Heather Scott Followed Her Heart to Help OthersToday's guest is Heather Scott. She has had alopecia since the age of 3. Over the last year, Heather was compelled to help others who are living with hair loss, but she wasn't quite sure what that would look like. The puzzle pieces aligned, and she is here today to share about how the Helper Hair Box came to be.Kickstarter campaign: https://www.kickstarter.com/projects/helperhairbox/helper-hair-box?ref=project_build#Instagram account: https://www.instagram.com/helperhairbox/Facebook: https://www.facebook.com/helperhairbox/Website: http://www.helperhairbox.com/
2020-09-2424 min
Alopecia LifeS2E01 Alopecia Life Season 2 TrailerIt's Season 2. Last season, we shared about alopecia and romance, the connection between our gut and autoimmunity. We opened up conversations about faith, family, grieving, marathon-running, and discovering our hidden talents to build confidence. We acquired some new methods to deal with stress, and shared ways to help our children advocate for themselves when sharing about their diagnosis. We also spoke with authors, filmmakers, social workers, body-positivity role models, parents who are working to figure it all out, and so many more change-makers in the alopecia community. In Season 2, we have so much more to e...
2020-09-1001 min
Alopecia LifeE035 Words of Wisdom from a 9-year-old - Back to School with Ohna and SkyeThis is a super special episode. It's the last one for Season 1 and it's also the first one for Alopecia Awareness Month. Today's topic comes up often, and is one of the biggest concerns that surfaces every year - transitions to school. Starting school for the first time, moving up from one school to another while living with alopecia, and how parents would like those transitions to go. We are also in the midst of a global pandemic. No matter where you are in the world, this is a huge deal. One prevailing thing remains to be true, our...
2020-09-0330 min
Alopecia Life2 Minute Tuesdays CAP2U Coast2Coast Tour - How to Be a Stop Along the WayThis is an episode of 2 Minute Tuesdays. This excerpt is from an interview I did recently with Betsy Woytovich. This year, with Covid, Jeff Woytovich of the Children's Alopecia Project, Betsy's husband, isn't able to do school visits as he has in the past. But, he will be traveling to visit CAP kids on his CAP tour from Reading, PA to Redding, CA September 14th-the 24th. If you want to be one of his stops along the way, listen in to hear how to do that. It's quick and easy. I've attached the link in the show notes.
2020-08-2502 min
Alopecia LifeE034 Functional Medicine - What is it & How Does it Work? with Dr. CandyWelcome to Episode 34 of Alopecia Life. Today, our guest is Dr. Candy Lewis Williams. She is the founder of the Lotus Concept, a Board-Certified Naturopathic Doctor, Functional Medicine Practitioner, Master Herbalist, and a thirty-five year veteran Trichologist. Her expertise as a well-known educator and guest lecturer has taken her across the US with appearances on the Dr. Oz Show as a leading expert in hair loss solutions, alternative and complementary medicine. After being diagnosed with alopecia areata 26 years ago, Dr. Candy now provides first-hand experience on autoimmune conditions and hair loss. So often, I hear a lot o...
2020-08-2027 min
Alopecia LifeE033 Accepting Life on Life's Terms with Dancer & Yoga Instructor, Ann HedlyToday's guest is Ann Hedly. She is a homeschooling mother of 3 boys, and she has a bachelor of fine arts in Dance & Choreography. Practicing the art of relaxation guides how she responds to having alopecia, and with her work as a home educator and yoga instructor. She also made the documentary, Mop Cap, An Alopecia Story which premiered at the Maine International Film Festival in 2017 and is now available on demand worldwide. I know 2020 has added stress to my life, and if you're experiencing something similar, thiis episode is a great way to start a simple meditative p...
2020-08-0649 min
Alopecia LifeE032 The ABCs of CBD with Carrie Corboy, RPh, PharmD, CCPToday's guest is Carrie Corboy, a clinical pharmacist practitioner. Carrie and I started talking a few months ago because of her experience as a pharmacist working in a cannabis dispensary. Carrie is also an employee of Johnson & Johnson Consumer Family of Companies, along with an employee at Restore Integrative Wellness Center. Over the last year or so, I have had parents ask me about the safety of CBD oil, whether it is effective for treatment of alopecia, whether it is best to use as a tincture, a capsule, or a salve. When I'm not qualified to answer...
2020-07-3047 min
Alopecia LifeBonus International Alopecia Day Episode with Mary MarshallWelcome to this special bonus episode with Mary Marshall. Many of our listeners will know Mary from her awareness work by starting International Alopecia Day aka IAD back in 2010. What started out with 8 countries contributing photos from their day of celebration, has grown to include over 41 countries in 2019. We know this year will be very different from past years of celebration with our support groups, but this one is a great opportunity to celebrate in big ways with our loved ones who are our biggest supporters while practicing social distancing. It would be awesome to surpass the 41 c...
2020-07-2316 min
Alopecia LifeE031 When You're Ready with Molly TuttleThe first time I saw her perform, I actually looked around to see if everyone else was witnessing what I was. It's the sound and movement of someone who has found the place they were meant to be, and I was so lucky to be part of it. Molly Tuttle's debut album, When You're Ready, released just over a year ago. She wrote or co-wrote all 11 songs, and if you haven't had an opportunity to hear it yet, I encourage you to take a listen. Today, Molly and I talk about music, of course, but also about l...
2020-07-1627 min
Alopecia LifeE030 C3 - How a Brand Works to Transform Stigma to Stunning to Connect with the Alopecia Community with Melissa SternToday's guest is Melissa Stern. She and her partner, Adam are the founders of C3 Comprehensive Cranium Care. I met Melissa in person last year at the NAAF conference. She wanted to introduce their head wash to the alopecia community in a more formal way, and she was looking for advice on how to do that. I'll admit, when I saw the email, I was a bit skeptical. Over the years, I've been asked to promote product a lot, and if I don't have supportive testimonials from the alopecia community and a personal experience, I just don't do it...
2020-07-0225 min
Alopecia LifeE029 How Dramatic Writing Led to Finding Her Dream Job in Comedy with Kelci ParkerToday's guest is Kelci Parker. She is the Director of Talent & Development at Comedy Central. She was born and raised in Southwest Michigan to a college football coach and elementary art teacher, to whom she credits her creativity and drive. After graduating with a degree in screenwriting from the University of Michigan, she moved to Los Angeles with aspirations to write, and everything went as planned until she was given an opportunity to shift from being a writer to helping others find success through development at Comedy Central. In this episode, Kelci and I talk about timing, with alopecia...
2020-06-2521 min
Alopecia LifeE028 How to Connect with Your Story by using the Art of Personal Mythmaking with Janelle HardyToday's guest is Janelle Hardy. She is the creator and teacher of an online transformational memoir-writing course called the Art of Personal Mythmaking. This process uses body-based trauma-informed writing prompts, fairytales and themed modules to support creative folks who are interested in healing from their lifestories as they write their memoirs. So many times we talk about healing - healing from trauma, healing from schoolyard bullying, and from the pain inflicted on us by comments from our peers, and during episodes of Alopecia Life, we talk about effective ways to heal, to move through the feelings, and g...
2020-06-1132 min
Alopecia LifeBonus Episode #4 with Marlina RogersWelcome to the #4 bonus episode reading of Head-On, Stories of Alopecia with Marlina Rogers. I love stories that shift and change over time, and I also fully appreciate the pieces of our stories that remain the same. Marlina talks about both here in this episode. Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid A...
2020-05-2607 min
Alopecia LifeE027 How to Be a Hero in Life & a Villain on Screen with Anthony CarriganThank you for joining us for Episode 27 of Alopecia Life with Anthony Carrigan. My first interaction with Anthony was on New Year's Eve back in 2014. At the time, I didn't know who he was. Jannica Olin, a story contributor for Head-On, Stories of Alopecia, thought he would be a great addition to the book, and after a conversation with him, it was easy to understand why. After all, he was calling me on a holiday while he was helping his mom move. If that wasn't an indication of what a great guy he was, it's become even more evident...
2020-05-2139 min
Alopecia LifeBonus Episode #3 with Mimi RivardThank you for listening to this third bonus episode reading of Head-On, Stories of Alopecia with Mimi Rivard. She shares her experience as a mother & health practitioner when her son, Andre, was diagnosed with alopecia. What has she learned, what would she do different, and what advice does she have for parents when their child is living with a visible difference. Mimi is a mom of 4 kids and a Nurse Practitioner. She has spent the better part of her 30 year career caring for people with HIV. Andre was diagnosed with alopecia soon after a febrile illness.
2020-05-1216 min
Alopecia LifeE026 Alopecia, Great Journalism, Matt Damon & Dawson's Creek with Traci LeeOur guest today is Traci Lee. Where do I start when I introduce Traci? She is an award-winning producer, a journalist, and previously oversaw NBC Asian America at NBC News. She helped launch MSNBC.com's first website, I'm going to stop here because you'll learn so much more about her as you listen. I met Traci last year, and I was super impressed not only by our casual conversation about alopecia, but the investment she has put into sharing Asian-American history is something that drew me in even more. So today, you get a fantastic history lesson, talk about...
2020-05-0731 min
Alopecia LifeE025 Fashion, CAP & Finding Her Own Identity, with Maddie WoytovichWelcome to Episode 25 of Alopecia Life. Today's guest is Maddie Woytovich. Many of you will know her as the face and motivation behind the Children's Alopecia Project that began 15 years ago when she was first diagnosed. Listen in to hear how Maddie discovered who she was after heading to college and what happened after posting a body positivity photo online that led to a collaboration with a major fashion brand.Check out our show notes to find Maddie on IG. https://www.instagram.com/mwoyt/https://www.childrensalopeciaproject.org/
2020-04-3017 min
Alopecia LifeBonus Episode #2 with Andre RobertsThank you for joining us for this second bonus episode reading by Andre of his story in Head-On, Stories of Alopecia. Andre was 10-years-old when he wrote his story, and when he and I spoke on the phone about the book, I was struck by his maturity. Today, at 15, he continued to inspire me as we recorded a brief interview about where he is now, and he shares some great insight and information on ways we can all move forward. Support the showAlopecia Life provides free resources for s...
2020-04-2107 min
Alopecia LifeE024 Reversing Alopecia. Is It An Inside Job?, with Integrative Health & Hormone Coach, Jill GrunewaldOur guest today is Integrative Nutrition and Hormone Coach, Jill Grunewald. She is the author of The Essential Thyroid Cookbook and her areas of specialty include alopecia, Hashimoto’s, Graves, adrenal dysfunction, and digestive health just to name a few. Jill's Reversing Alopecia course is one of many she offers for those living with autoimmune disease. Today, we talk a lot of science. It's common to hear about low iron or ferritin levels, and Vitamin D deficiencies when researching autoimmunity, but Jill has introduced some additional information that I found fascinating. This is an episode that may fin...
2020-04-1636 min
Alopecia LifeBonus Episode #1 with Jannica OlinI'm super excited to release some Alopecia Life bonus episodes over the next few weeks. For years, I had hoped to hear the voices of people who wrote stories for Head-On, Stories of Alopecia and to share those readings, and this is the perfect opportunity. These story-tellers may be in a completely different place than when they originally wrote, and many of them were very young children when they contributed their story. Today, Jannica Olin shares the story she wrote, and also a continuation of who she is today. She and I also did a follow-up interview t...
2020-04-0707 min
Alopecia LifeE023 This is Me, with Kylie BambergerOur guest today is Kylie Bamberger. Some of you may know her personally, and others will know her from one of the most iconic alopecia photos that has been shared thousands of times over. Today, she and I cover a lot of ground, including how to break stigmas and how to know when you are ready for the next thing (whatever that may be for you). Sydney, Kylie's daughter is definitely doing some voice over work during our interview, and you can occasionally hear her sweet voice in the background.https://www.instagram.com/kyliebamberger/ h...
2020-04-0233 min
Alopecia LifeE022 How to Travel Like a Pro While Living with AlopeciaToday's guest is Alicia Gleeson-Chernesky. Alicia has been traveling the world working as an accountant by day, and trying to help change perceptions about hair loss by night. We all know that losing our hair is not easy, and Alicia knows that first hand after initially letting hair loss impact her self-esteem and confidence. Now, she has set out on a global mission to find solutions to help others with hair loss or hair imperfections along the way. March is National Reading Month, and all our guests this months have authored a book, and Alicia's is "Mum, w...
2020-03-2622 min
Alopecia LifeE021 The Autoimmune Protocol with a Squirrel in the Kitchen, Sophie Van TiggelenWelcome to Episode 21 of Alopecia Life with Sophie Van Tiggelen. Sophie is a passionate foodie, recipe developer, author, and photographer. Diagnosed with Hashimoto's thyroiditis in 2009, she used the Autoimmune Protocol (AIP) to reverse her condition and today, Sophie lives a full and vibrant life free from the anxiety and flare-ups.Over and over I've been asked about the autoimmune protocol diet and its effectiveness, and I had very little personal experience with it. But I have friends with alopecia and other autoimmune diseases that have had great success with it. I knew I wanted someone who could...
2020-03-1928 min
Alopecia Life2 Minute Tuesdays COVID-19 & Alopecia Areata - Are We More At Risk?Welcome to another episode of 2 Minute Tuesdays. Does having alopecia areata make us more susceptible to the coronavirus or COVID-19?Everyone is individual. Our lifestyles will determine whether we are more at risk, but simply having alopecia areata does not make us more susceptible to getting it. If you have other underlying conditions, are on immunosupressants like Methotrexate or Xeljanz, to treat your alopecia, your system is suppressed and potentially more compromised. Consult the CDC for more information, and always consult with your physician for more specifics. This and the information here is not to b...
2020-03-1001 min
Alopecia LifeE020 I Am More Than My Hair with Author, Filmmaker, and Photographer, Alyscia CunninghamToday's guest is Alysicia Cunningham. Alysicia is an author, filmmaker, and photographer who has worked hard to bring her message of, "I am more than my hair" to the author world and film circuit. She and I connected several years ago about our individual projects, and the backstory to what motivated her to share about alopecia struck me as unique. You'll find out why after listening to today's episode. http://www.alyscia.com/www.instagram.com/AlysciaCunninghamwww.instagram.com/iammorethanmyhair www.facebook.com/AlysciaCunninghamimageswww.facebook.com/IAmMoreThanMyHair
2020-03-0515 min
Alopecia LifeE019 The Children's Alopecia Project with Jeff WoytovichToday's guest is Jeff Woytovich of the Children's Alopecia Project. I had an opportunity to interview him in person, which gave us a new and unique sound quality. It was beautiful and cold during the first week of November here in the PNW where we had our very first CAP camp. You can hear the kids running around, chairs being moved, and fun conversations in the background.Jeff and Betsy Woytovich are founders of the CAP. The impact that CAP has on the alopecia community, our families and the kids, and even mentors is amazing to witness...
2020-02-2733 min
Alopecia LifeE018 Alopecia! A Love Story with Angelina Quezada & Brendon ReynoldsToday's episode is with Angelina Quezada and Brendon Reynolds. One of the first things I hear in support groups, forums, and with my own clients after they are first diagnosed is the concern of "Will anyone love me?" or "Will anyone fall in love with my child if they are bald?" and most often, "Will my partner continue to be attracted to me?." Oftentimes their confidence is pretty low, and today's story really emphasizes that finding love has very little to do with alopecia, and is more about compatibility and attraction.Sharing an alopecia diagnosis does go...
2020-02-1325 min
Alopecia LifeE017 Lights, Camera, Action! Alopecia, Life in Front of a Camera & How a Change of Career Allowed For More AuthenticityFor over 20 years, our guest, Allison Waggoner, was a host on home shopping networks like HSN and Evine. She is the best-selling author of over 9 In the Kitchen cookbooks and now works with the number one lifestyle brand, Beekman 1802. Allison shares with us what it's like to have alopecia and be on live television, what changed her outlook about living in the limelight with hair loss, and what it took to realize her worth.https://www.facebook.com/allison.liveontv/https://www.instagram.com/allisonwaggoner/https://beekman1802.com/...
2020-02-0633 min
Alopecia LifeE016 Family Connection - How sharing an alopecia diagnosis can strengthen family ties with the McCain family.The McCain family shares their connection of having alopecia, and how it can strengthen and build a unique confidence in each of us. Kevin the 2nd talks about starting Arch Angel Hats to represent a guardian angel to protect us from all our insecurities. https://archangelhatcollec.wixsite.com/mysiteSupport the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of...
2020-01-3018 min
Alopecia LifeE015 Alopecia, Soul Mates & Deeper Meaning with Rachel BronstonEpisode 15 features Health Coach & Stylist, Rachel Bronston. Listen to find out what it took to find deeper meaning as a woman living with hair loss and working as a hair stylist, how Rachel found her niche and of all things, her soul mate. http://innerflamecoaching.com/Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of...
2020-01-1628 min
Alopecia LifeE014 The Life Changing Power of Community with Shira & Zachary UdinMeeting others who understand, seeing mentors who are living great lives, and not having to keep wondering if you are alone - all of that just by going to a 3-day camp. Shira Udin and her son talk about the transformations of community, and the ability to come home and make a difference for others who are living with alopecia areata. Zachary took on a project that went in a direction they never could have predicted. Find out more by listening to this episode. https://www.childrensalopeciaproject.org/capkidgroups/shiraudin@gmail.comhttps://w...
2020-01-0242 min
Alopecia LifeE013 How to Quiet the Inner Critic & Reclaim Your Power with Jacqui LetranJoin mindset mentor, Jacqui Letran, as she shares methods of how to identify disempowering beliefs and find ways to quiet our inner critic and move forward. Jacqui's former career as a nurse practitioner led her to become an award-winning author, speaker, and mindset mentor. She now dedicates her life to helping clients create powerful and resilient mindsets. The modalities she uses are based on the subconscious and conscious minds, along with the 4 faulty beliefs.https://jacquiletran.com/Support the showAlopecia Life provides free resources for school and home education, including a growing l...
2019-12-1939 min
Alopecia LifeE012 American Ninja Warrior Wednesday with Kevin BullIn this special edition episode, our guest, Kevin Bull shares how growing up able to play outside and experience nature and also competing in track and field led him to find his way to the walk-on line on American Ninja Warrior. He gives us a peek inside what it takes to audition and how much dedication it takes to continue to compete. You may wonder how he handles being one of the faces of alopecia that is so prevalent in the media, and he answers those questions too. If you want to know a little about his dating life, h...
2019-12-1136 min
Alopecia LifeE011 Love Sweet Mess with Jessica Rose WardJessica Rose Ward developed alopecia at the age of 12 and soon discovered baking was a great outlet for her frustration while never feeling like she fit in after being misdiagnosed for many years. In this episode, she shares what helped her accept alopecia and what guides her in moving forward. The question, "What will Jessica bring?" is always on the forefront of her mind (and everybody else too) when she is attending any gathering. If you're interested in some creatively-named recipes and amazing ideas, the link to her cookbook that is available on Amazon is posted below. Reach her o...
2019-12-0521 min
Alopecia LifeE010 Dance, Drive & A Strong Foundation with Alexia KerwickAlexia Kerwick, a teenager who is a Polynesian dancer, voice over actress, and so much more. She shares how dance, family, and finding your own way after being diagnosed is an important piece of moving forward. As a host, I tend to hear and feel how the entire family is affected when a child is diagnosed, and Alexia gives a little different perspective on this.Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the...
2019-11-2818 min
Alopecia LifeE009 The Great Cut, Chris Healy & the LonghairsToday's guest presented a hair product for men on Shark Tank, competed to win "the most hair donated to a charity in 24 hours" Guinness book of world record, and donate all of that hair to Children with Hair Loss. The Longhairs founders use their platform and their hair as a resource to help others who are living with hair loss by donating $1.00 of every sale to CWHL. To find the Longhairs, check them out at IG and Twitter: @thelonghairs https://www.instagram.com/thelonghairs/Website: https://thelonghairs.us/FB: https://www...
2019-11-2127 min
Alopecia Life2 Minute Tuesdays - How the Heck Do I Pronounce This?So many times, we hear people annihilate alopecia areata, and even when we are first diagnosed it's a tough one to wrap your brain around. On this episode of 2 Minute Tuesdays, we tackle the pronunciation, spelling, and whether or not it's capitalized, and why. This is episode 3 of TMT. Thank you for tuning in. Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to H...
2019-11-1202 min
Alopecia LifeE008 What Informs Our Journey & Process with Alopecia, with Caitlin Riley-Klepac, LMSWCaitlin Riley-Klepac, LMSW shines a light on alopecia and mental health. She expresses the need for all versions of alopecia to be represented and acknowledged. Caitlin also reveals the gap in the medical community for the patient needs vs. what clinicians are providing. Show mention: The Absent Body by Drew Leder https://headonlifecoaching.com/alopecia-products-resources/Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also...
2019-11-0725 min
Alopecia LifeE007 Raising Awarenesss & Alopecia UK with Amy JohnsonWhen Amy Johnson developed alopecia areata in her early twenties, she felt very alone. She soon discovered Alopecia UK, a small charity that was ready for expanding its reach. Amy started as a volunteer, and her passion and dedication for raising awareness led to a position on staff as communications and fundraising manager. Along with the AUK team, they organize the Big Weekend, a trip to Alton Towers, and numerous other awareness events. During the interview, Amy shares about the alopecia flash mob in Liverpool. If you haven't seen it yet, check out the link below. It's hard to...
2019-10-3126 min
Alopecia Life2 Minute Tuesdays - How Many People Have Alopecia Areata?Did you know that over 2% of the world's population will experience alopecia at one point in their lives? That equates to over 147 million people worldwide, and affects genders equally. The feeling of being alone with our alopecia experience can be overwhelming. Depending on where you live, 2% may look like 16 people, or it may look like 126,000. Listen to hear more about the city you live in, and come engage in conversation over at the Alopecia Life FB group to figure out how many people may be living nearby. You're never alone!Support the showAlopecia Life...
2019-10-2202 min
Alopecia LifeE006 How Running Allowed Me to Embrace Who I Am with Lindsay WalterToday's guest is Lindsay Walter. Lindsay has run over 37 marathons and is now training to run her first 100 mile Ultra Marathon. After feeling like she had been hiding under wigs for over 20 years, running allowed her to embrace who she was and live wig-free. Find out what makes her so competitive along with what drives her to the finish line. You'll be surprised by the answer! Find Lindsay on social media at https://www.instagram.com/lindsayhannah3/Support the showAlopecia Life provides free resources for school and home education, including a growing...
2019-10-1718 min
Alopecia LifeE005 Coming Up Rosies with Paula and Rosie QuinnIf you haven't yet had the pleasure to meet Rosie and Paula Quinn, this is a great opportunity to learn more about them and their charity, Coming Up Rosies. Their non-profit is dedicated to put smiles on the faces of children (and adults) who are living with hair loss, whether it be from cancer or alopecia. When presented with an opportunity to shift the focus from Rosie's loss to her love of art, Paula designed a scarf from Rosie's artwork for her to wear on the days she didn't feel like inviting comments. When Rosie asked about the other...
2019-10-0340 min
Alopecia LifeE004 Support Doesn't Have to Be Scary with Megan SimónIn the beginning, it's a challenge to find the support we need. Most of the time, no one in our family understands and friends just don't get it. Support groups provide a great place to meet people just like us. Our guest, Megan Simón - the NAAF support group leader for Portland, Oregon gives us some tips for what to look for in a support group. As a support group leader, Megan provides the perfect balance of flexibility and sticking to an agenda each time they meet, which makes for a great combination. If you're looking to start y...
2019-09-2631 min
Alopecia Life2 Minute TuesdaysOur first 2 Minute Tuesday session is a little Alopecia 101. Some listeners are tuning in for the first time and don't know anything about the autoimmune hair loss condition, alopecia areata. This episode gives listeners some simple answers to their questions.Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents...
2019-09-1702 min
Alopecia LifeE002 Back to School with Educator, Jennifer GeorgeStarting school tends to bring a set of emotions with it. Sometimes it's excitement, and sometimes it's a feeling of uncertainty about how our hair loss is going to be perceived. "Will people notice I have a bald spot, or will they make fun of me?" Our guest, Jennifer George, has been an educator for over 20 years and currently works as an assistant principal in a large middle school in Calgary, Alberta Canada. We discuss 504 plans and IEPs, and Jennifer shares how we can help our kids advocate for themselves while they are living with alopecia. To fi...
2019-09-1235 min
Alopecia LifeE003 Faith, Basketball & Alopecia with Melvin Dolberry, Jr.This week I talk with Melvin Dolberry, Jr. about basketball and his time with the Harlem Ambassadors, his faith, and the bold move his 2nd grade teacher took to make an impact on him. What's next for Melvin? Check him out on social media to find out more. https://www.instagram.com/mdolberryjr/https://twitter.com/MDolberryJrhttps://www.facebook.com/niiwgSupport the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within...
2019-09-1220 min
Alopecia LifeE001 Introducing Alopecia LifeWhat is Alopecia Life all about? Here's a sneak peek of what you can expect. Cool conversations with people living with alopecia, interviews with coaches, clinicians, and specialists in their field, along with parents and their children as they are living with the autoimmune hair loss condition, alopecia areata.Support the showAlopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the...
2019-09-0503 min
Deep into SleepAlopecia and Insomnia-- with Deeann GrahamIn this episode, Dr. Xu interviewed Deeann Graham and explored her journey with Alopecia. Deeann shared advice to the parents about how to have a conversation about Alopecia with their teen, and how to deal with related worries that get in the way of sleep.Show Note: www.deepintosleep.co/episode/004Thank You for Listening!I really appreciate you taking your valuable time listening to our show.If you want to share your thoughts, I would love to hear from you!Leave a commentAsk a voice question...
2019-09-0332 minDeep into SleepAlopecia and Insomnia-- with Deeann GrahamIn this episode, Dr. Xu interviewed Deeann Graham and explored her journey with Alopecia. Deeann shared advice to the parents about how to have a conversation about Alopecia with their teen, and how to deal with related worries that get in the way of sleep.Show Note: www.deepintosleep.co/episode/004Thank You for Listening!I really appreciate you taking your valuable time listening to our show.If you want to share your thoughts, I would love to hear from you!Leave a commentAsk a voice question...
2019-09-0332 min
Authors of the Pacific NorthwestEpisode 25: Deeann Graham; Short Stories about AlopeciaEpisode 25: Deeann Graham; Short Stories about Alopecia
In This Episode, You’ll Hear:
(Podcast run time 40 minutes)
:37 - Introduction to Dee (Deeann) Graham
2:40 - Dee talks about being a life coach
3:40 - Dee introduces the listeners to alopecia
5:10- Dee tells her own story of alopecia
6:20 - Vikki & Dee talk about Vikki’s experiences with alopecia
7:40 - Dee shares something about herself & her writing
8:40 - Vikki & Dee talk about self-publishing her work, Heads-On; Stories of Alopecia
9:20 - Dee talks about the photograph in the work
10:20 - Dee shares about marketing the book
11:40 - Dee & Vikki...
2018-09-1040 min