Shows
4D: Deep Dive into Degenerative Diseases - ANPTDD SIG Navigating the Path Episode 4: Huntington's Disease Society of AmericaIn this episode, host Ken Vinacco talks with guest Gia Mannone to discuss the resources that the Huntington’s Disease Society of America (HDSA www.hdsa.org ) offers for people with HD. Gia discusses events, ways to find specialized medical care, and education for people with HD in all stages of the disease. If you treat people with HD, you’ll likely find something new to share after a listen!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig...2025-06-2828 min
Academy of Neurologic Physical Therapy PodcastDD SIG Navigating the Path Episode 4: Huntington's Disease Society of AmericaIn this episode, host Ken Vinacco talks with guest Gia Mannone to discuss the resources that the Huntington’s Disease Society of America (HDSA www.hdsa.org ) offers for people with HD. Gia discusses events, ways to find specialized medical care, and education for people with HD in all stages of the disease. If you treat people with HD, you’ll likely find something new to share after a listen!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig...2025-06-2828 minANPT – Academy for Neurologic Physical Therapy PodcastDD SIG Navigating the Path Episode 4: Huntington's Disease Society of AmericaIn this episode, host Ken Vinacco talks with guest Gia Mannone to discuss the resources that the Huntington’s Disease Society of America (HDSA www.hdsa.org ) offers for people with HD. Gia discusses events, ways to find specialized medical care, and education for people with HD in all stages of the disease. If you treat people with HD, you’ll likely find something new to share after a listen!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig...2025-06-2828 min
Dr. Bob Martin ShowJune 22 Marijuana is Bad for Your Heart, Whether You Smoke, Vape Consume Edibles HR1A lot of people consider marijuana to be totally safe for the cardiovascular system – yourheart," according to Dr. Robert Kloner, director of cardiovascular research at HuntingtonMedical Research Institutes in Pasadena, California, who was not involved in the newstudy. However, a recently published study in the journal JAMA Cardiology, claims newfindings may counter commonly held beliefs about the health impacts of marijuana. Wewill smoke out the truth on this topic, please stay tuned.Special Guest: Dr. Jim LaValle – Clinical Pharmacist, Board Certified ClinicalNutritionist and author of 26+ books2025-06-2341 min
SuperTalk Mississippi NewsTeam Hope Mississippi set to host annual Walk, Run, and Ride to raise funds for Huntington's Disease patientsTeam Hope Mississippi will host their annual Walk, Run, and Ride May 17 in Flowood, an event that raises funds for the Huntington's Disease Society of America.2025-05-0601 min
The Chad Benson ShowChad Attends a Tesla ProtestChad attends a Tesla protest. U.S. Postal Service workers protest outside Huntington Station post office against potential privatization. George Foreman dies at 76. MAGA Influencers Targeted by 'Swatting' Calls.2025-03-241h 49
Mostly SuperheroesTonight! See Captain America 4 and Spin the Prize Wheel at Alamo Drafthouse St. Lous at 5pmTonight!
Buy Your Tickets Now! www.mostlysuperheroes.com/events
You just found your new movie club. Mostly Superheroes the podcast proudly presents the Screen & Social The Extended Movie Experience. See 'Captain America: Brave New World' in theaters with Mostly Superheroes Friday February 21st at Alamo Drafthouse St. Louis in the City Foundry and get more for your movie ticket.
Meetup starts at 5pm - movie at 6pm. Buy your tickets for the 6pm show, and show us your ticket stub to spin the prize wheel for a chance to win prizes from City Win...2025-02-2101 min
Mostly SuperheroesTonight! See Captain America 4 and Spin the Prize Wheel at Alamo Drafthouse St. Lous at 5pmTonight's the night! Buy Your Tickets Now! www.mostlysuperheroes.com/events You just found your new movie club. Mostly Superheroes the podcast proudly presents the Screen & Social The Extended Movie Experience. See 'Captain America: Brave New World' in theaters with Mostly Superheroes Friday February 21st at Alamo Drafthouse St. Louis in the City Foundry and get more for your movie ticket. Meetup starts at 5pm - movie at 6pm. Buy your tickets for the 6pm show, and show us your ticket stub to spin the prize wheel for a chance to win prizes from...2025-02-2101 min
Mostly SuperheroesFebruary 21st See Captain America: Brave New World with Mostly Superheroes the Podcast in St. LouisOne week from today! Buy Your Tickets Now! www.mostlysuperheroes.com/events You just found your new movie club. Mostly Superheroes the podcast proudly presents the Screen & Social The Extended Movie Experience. See 'Captain America: Brave New World' in theaters with Mostly Superheroes Friday February 21st at Alamo Drafthouse St. Louis in the City Foundry and get more for your movie ticket. Meetup starts at 5pm - movie at 6pm. Buy your tickets for the 6pm show and you are automatically entered for a chance to win prizes from City Winery STL, Alamo Drafthouse Cinema, Plan...2025-02-1900 min
Mostly SuperheroesFebruary 21st See Captain America: Brave New World with Mostly Superheroes the Podcast in St. LouisOne week from today! Buy Your Tickets Now! www.mostlysuperheroes.com/events
You just found your new movie club. Mostly Superheroes the podcast proudly presents the Screen & Social The Extended Movie Experience. See 'Captain America: Brave New World' in theaters with Mostly Superheroes Friday February 21st at Alamo Drafthouse St. Louis in the City Foundry and get more for your movie ticket.
Meetup starts at 5pm - movie at 6pm. Buy your tickets for the 6pm show and you are automatically entered for a chance to win prizes from City Winery STL, Alamo Drafthouse Cinema, Plan...2025-02-1900 minMostly SuperheroesFriday February 21st See 'Captain America: Brave New World' with Mostly Superheroes the Podcast in St. LouisOne week from today! Buy Your Tickets Now!
You just found your new movie club. Mostly Superheroes the podcast proudly presents the Screen & Social The Extended Movie Experience. See 'Captain America: Brave New World' in theaters with Mostly Superheroes Friday February 21st at Alamo Drafthouse St. Louis in the City Foundry and get more for your movie ticket.
Meetup starts at 5pm - movie at 6pm. Buy your tickets for the 6pm show and you are automatically entered for a chance to win prizes from City Winery STL, Alamo Drafthouse Cinema, Planet Score Records, The Vol...2025-02-1400 minMostly SuperheroesFriday February 21st See Captain America: Brave New World with Mostly Superheroes the Podcast in St. LouisOne week from today! Buy Your Tickets Now!You just found your new movie club. Mostly Superheroes the podcast proudly presents the Screen & Social The Extended Movie Experience. See 'Captain America: Brave New World' in theaters with Mostly Superheroes Friday February 21st at Alamo Drafthouse St. Louis in the City Foundry and get more for your movie ticket. Meetup starts at 5pm - movie at 6pm. Buy your tickets for the 6pm show and you are automatically entered for a chance to win prizes from City Winery STL, Alamo Drafthouse Cinema, Planet Score Records, The Vol...2025-02-1400 min
The HDSA PodcastS3:E1- Let's Talk About Volunteering with HDSASend us a textIn this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share personal experiences, tips for making an impact, and why volunteers are the heart of the organization. Whether you're looking for ways to give back or just curious about HDSA’s mission, this conversation is packed with inspiration and practical advice.Don't forget to follow us on s...2025-02-1222 min
California in FocusCalifornia City Adopts ‘Non-sanctuary’ Status, Defying Sanctuary State Laws(The Center Square) - The California beachside city of Huntington Beach continued its confrontation with the state with its city council adopting a resolution declaring the city “a non-sanctuary city for illegal immigration for the prevention of crime.” Huntington Beach has an ongoing lawsuit against the state’s sanctuary state law that limits cooperation with federal immigration authorities, citing a high reoffending rate by illegal aliens with active detainers from federal Immigration and Customs Enforcement officials that are supposed to result in transfers and deportation. Support this podcast: https://secure.anedot.com/franklin-news-foundation/ce052532-b1e4-41c4-945c...2025-01-2404 minCalifornia in FocusHuntington Beach Sues to Overturn California’s Sanctuary State Laws for Illegal Immigrants(The Center Square) - The City of Huntington Beach is suing to overturn the state’s sanctuary state laws protecting illegal immigrants, arguing they violate federal immigration laws and the state and national constitution. Huntington Beach and the state government have long been at odds, with the state government recently winning a court battle requiring the city to follow state housing laws, and Huntington Beach emerging victorious — or at least for now — in a state challenge to its voter ID requirement for city elections. Huntington Beach claims the state’s sanctuary state laws, which limit cooperation between state and local la...2025-01-1105 minThe HDSA PodcastS2:E5 Let's Talk about the HD ELPFDD MeetingSend us a textIn this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collaborative efforts shaping the next steps.Join us as they outline action plans, share community feedback, and discuss strategies for addressing the pressing challenges and opportunities identified during the meeting. Whether you attended the ELPFDD or are catching up on what you missed, this episode is packed with valuable insights to keep you informed...2024-12-0224 min
Brain & LifeAuthor Tanita Allen on Existing with Huntington’s DiseaseIn this episode of the Brain & Life podcast, author Tanita Allen joins Dr. Katy Peters to discuss her experience with Huntington’s Disease and how it inspired her to write her book We Exist. Tanita shares about the rocky diagnosis process, how she manages day-to-day symptoms, and why she was called to share her story in a book. Dr. Peters is then joined by Dr. Katie Moore, Assistant Professor of Neurology and Associate Director of the Neurology Residency Program at Duke University Medical Center. Dr. Moore explains what Huntington’s Disease is, dispels some diagnostic myths, and what patients and c...2024-11-0751 minThe HDSA PodcastS2:E4 - Let's Talk About POWERHDSend us a textIn today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and MaryAnn Emerick, LMSW, Manager of Youth & Community Services at HDSA. Tune in for an insightful conversation!Don't forget to follow us on social media!2024-10-1822 min
UConn Health PulseUConn Health's Excellence in Huntington's Disease CareIt takes expertise across many specialties to earn a designation as a Center of Excellence from the Huntington’s Disease Society of America. UConn Health has earned that designation. From UConn Health's Huntington’s Disease Program, Dr. Shakaib Khan, medical director, and nurse practitioner Robin Zingales-Browne describe what goes into providing care and support for those with Huntington’s Disease and their families. Plus, learn about Huntington’s Disease Education Day, taking place at UConn Health Oct. 26.
(Robin Zingales-Browne, Dr. Shakaib Khan, Carolyn Pennington, Chris DeFrancesco, October 2024).
2024 Huntington’s Disease Education Day, Oct. 26, 2024
https://connecticu...2024-10-1115 min
Hubbard Helps: ChicagoHuntington's Disease Society of AmericaFor Huntington’s Disease Society of America, family is everything! Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. With us this morning to talk more about the HDSA and the work they are doing for people living with Huntington’s Disease is Wayne Galasek, Board Member of the Illinois Chapter of the organization. Learn more about your ad choices. Visit podcastchoices.com/adchoicesSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.2024-09-2914 min
So Much More, A Mall of America® PodcastEp. 54: Chase & Ovation, A Salute to the Music of PrinceThis episode features special guest, Chase, lead vocalist and guitar for Chase & Ovation, a Prince tribute that has been performing live for the past 17 years. Chase shares that stories of his musical background, the journey to becoming a legendary Prince tribute band. It is the only official tribute band sanctioned by the late superstar, and Chase shares how the band once got two thumbs up from Prince himself at their inaugural gig.
Chase talks about his involvement in the film, Graffiti Bridge, the many celebrities he had a chance to meet over the years (including at Mall...2024-07-2430 min
Japanese AmericaS1E6 Dear Attorney GeneralSend us a textHosts Michelle and Koji explore parenthood, cultural heritage, and resilience through personal narratives and historical references. In part three, Koji’s grandparents' attempt to stay in the United States after renouncing their citizenship with the help of civil rights lawyer Wayne Collins and their friends/family.ABOUT OUR READERDerek Mio is an actor and comedian from Huntington Beach, CA. He portrays real-life recipient Hiroshi "Hershey" Miyamura in the Netflix anthology series Medal of Honor--executive produced by Robert Zemeckis--and is the lead actor in the second season of...2024-07-1525 min
EPAGA UniversityEp. 131 | Everything You Need to Know About Huntington'sHuntington's Disease (HD) Fast Facts (via Honestly HD):
More than 30,000 Americans are living with HD.
Everyone has two huntingtin (HTT) genes, one from each parent. Huntington’s disease develops whenone of those genes carries the mutation.
In some families, appearance of symptoms happens earlier and earlier with each generation.
The symptoms of HD usually appear between the ages of 30-50.
Join us this week as we discuss the cause, stages, symptoms, and symptom management options of the disease, as well as how Huntington's and Parkinson's can often display overlap in these areas.
...2024-07-0833 min
Japanese AmericaS2E5 Grandpa the RenunciantSend us a textThis episode delves into the complex intergenerational impacts of identity and citizenship within a Japanese American family, particularly focusing on the decisions made by Koji’s grandfather, Takaiichi Sakai, during his incarceration in a WWII concentration camp. Featuring actor Derek Mio, the episode combines personal stories with historical analysis, exploring themes of loyalty, cultural belonging, and the heavy consequences of choosing between nationalities. Through candid conversations and reenactments, the hosts examine the lasting effects of their ancestors' choices on their own identities and the broader community.ABOUT OUR READER...2024-06-1723 minThe HDSA PodcastS2E3: Phyllis Foxworth & Dr. Victor SungSend us a text In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research. Phyllis is the Senior Manager, Advocacy at HDSADr. Sung is the Director of the HDSA Center of Excellence at The University of Birmingham, Alabama, and the former chair of the HDSA Board of Directors. To learn more about Huntington's disease, please visit HDSA.org. Don't forget to follow us on social media! Don't forget to follow us on...2024-06-1137 min
Japanese AmericaS1E4 Grandpa the Spy?Send us a textHosts Koji and Michelle delve into the complexities of Japanese American identity through Koji’s unique family story. They examine why he was sent from Hawaii to America’s concentration camps and how they answered the contentious loyalty questionnaire. The episode provides a multifaceted look at the Japanese American experience, from the pride in samurai ancestry to the moral dilemmas posed by questions of allegiance during a dark chapter in American history.ABOUT OUR READERDerek Mio is an actor and comedian from Huntington Beach, CA. He port...2024-05-1625 minThe HDSA PodcastS2E2: Leora Fox, PhD & Kelly Andrew Part 2Send us a textIn this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in research opportunities.Leora is the Assistant Director of Research and Patient Engagement at HDSA.Kelly is the Coordinator of Research and Mission Programs at HDSA. To learn more about Huntington's disease, please visit HDSA.org. Don't forget to follow us on social media!2024-05-0839 min
This is America – It's Going DownThis Is America #196: Houston Food not Bombs Fights City Hall, Montreal Autonomous Tenants’ Union, National Guard on New York Subway
Welcome, to This Is America, April 18th, 2024.
In this episode, first we present an interview with a member of Houston Food Not Bombs, who speaks about how the group has been pushing back on attempts by the city to shut down their mutual aid program through ongoing ticketing and police harassment.
We then turn towards New York City, and discuss how Democrats have greased the wheels through fear campaigns over crime and migrants, to bring in the National Guard onto the city’s subway system.
Via @slam.matu
We then speak to...2024-04-192h 30The HDSA PodcastS2E1: Leora Fox, PhD & Kelly AndrewSend us a textIn this episode HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew.Leora is the Assistant Director of Research and Patient Engagement at HDSA.Kelly is the Coordinator of Research and Mission Programs at HDSA. To learn more about Huntington's disease, please visit HDSA.org. Don't forget to follow us on social media!2024-04-1842 min
Anatomy Of IllnessEpisode 4: Huntington’s Disease - It wasn’t the WitchcraftHave you ever wondered what Huntington’s disease has to do with witchcraft? Or how the Eugenics movements around World War II affected people with hereditary illnesses? Or why do we call it Huntington’s disease? This episode highlights the different approaches to medicine over the history of the condition and how our understanding of Huntington’s disease has grown. Tune in to find out more.
Check out our website: https://anatomyofillness.com/
If you're interested in the Hidden No More Foundation: https://www.hiddennomore.com/
If you're interested in the bo...2024-03-1420 min
Baseball America90th Percentile: Coach Benji Medure Of Huntington Beach High School BaseballThis week on the 90th Percentile, Geoff Pontes and Matt Pajak are joined by legendary California high school coach Benji Medure of Huntington Beach High School. Over his 20-plus year career, Medure has won over 400 games in one of the most competitive high school baseball leagues in the country. Benji shares his secrets for health, longevity and the stories behind building a national powerhouse at a public high school.
Our Sponsors:
* Check out Indeed and use my code BASEBALLAMERICA for a great deal: https://www.indeed.com/
Support this podcast at — https://re...2024-02-291h 03
Baseball America90th Percentile - Coach Benji Medure of Huntington Beach High School BaseballThis week on the 90th Percentile Geoff Pontes and Matt Pajak are joined by legendary California high school coach Benji Medure of Huntington Beach High School. Over his 20+ year career Medure has won over 400 games in one of the most competitive high school baseball leagues in the country. Benji shares his secrets for health, longevity and the stories behind building a national powerhouse at a public high school.Our Sponsors:* Check out Indeed and use my code BASEBALLAMERICA for a great deal: https://www.indeed.com/ Support this podcast at — https://redcircle.co...2024-02-291h 03
Passport MommyTips for Visiting the Doctor with Dr. David Friedman; Brett Larkin Talks Yoga Life; One Million TruthsDr. David Friedman is the director of heart failure at West Carver Medical in Huntington, NY. He joins Michelle to talk tips for how you can maximize your office visit which often goes by too fast. He also talks AI and sports clearances and how wearables can play an instrumental part in monitoring your health.Brett Larkin, yoga expert, mom, entrepreneur, founder of Uplifted Yoga, and host of the Uplifted Yoga Podcast. Her new book YOGA LIFE: Habits, Poses, and Breathwork to Channel Joy Amidst the Chaos, is out now and...2024-02-0538 minPassport MommyTips for Visiting the Doctor with Dr. David Friedman; Brett Larkin Talks Yoga Life; One Million TruthsDr. David Friedman is the director of heart failure at West Carver Medical in Huntington, NY. He joins Michelle to talk tips for how you can maximize your office visit which often goes by too fast. He also talks AI and sports clearances and how wearables can play an instrumental part in monitoring your health.Brett Larkin, yoga expert, mom, entrepreneur, founder of Uplifted Yoga, and host of the Uplifted Yoga Podcast. Her new book YOGA LIFE: Habits, Poses, and Breathwork to Channel Joy Amidst the Chaos, is out now and...2024-02-0538 min
In FocusThe Planned Demolition of America | Ep. 493In Focus tonight.... The Biden Administration's flashing neon welcome sign at the open border continues to work, flooding our nation with MILLIONS of illegal aliens. Also Pro-Hamas mobs try to cancel Christmas and two teens were stabbed for being white. Plus Huntington Beach, California fights 'identity politics' by rejecting month long celebrations of segregation. And how the social engineers of society has tricked the masses into killing themselves slowly and discreetly.2023-12-281h 00
Insightful Moments: My VIBEThe Effects of Huntington’s Disease - Part 2Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. This is part 2 of host Paula Orandash at the 38th annual convention of the Huntington's Disease Society of America in New Orleans where she continues to speak with people who have been affected by Huntington's Disease, or HD. HD is an incurable neurodegenerative disease that affects many different areas of the brain. Symptoms can vary but usually involve a progressive breakdown of the patient’s behavior, mobility, speech, and motor symptoms, over the course of years or decades. Symptoms can really begin to appear at an...2023-09-0557 minInsightful Moments: My VIBEThe Effects of Huntington’s Disease - Part 1Welcome back to the first episode of the second season of Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, host Paula Orandash attended the 38th annual convention of the Huntington's Disease Society of America in New Orleans where she spoke with people who have been affected by Huntington's Disease, or HD. HD is an incurable neurodegenerative disease that affects many different areas of the brain. Symptoms can vary but usually involve a progressive breakdown of the patient’s behavior, mobility, speech, and motor symptoms, over the course of years or decades. Symptoms can begin to appear at...2023-09-051h 04The Chad Benson ShowAt least 99 people were killed in Maui’s wildfiresAt least 99 people killed in Maui’s wildfires with only 25% of the burn area searched so far. Inflation numbers. Woke Wednesday. North Korea says US soldier fled because of racism in army. Masculinity categories. Man is attacked by furry after he's caught filming fetish group in Huntington Beach. New study on opioid addiction. Fads versus Movements.2023-08-161h 49
ClassConfronting the Threat of the Far RightSend us a textTrump lost the 2020 presidential election, but the forces he represented and the ideas he furthered – the contemporary US right – have not gone away. These forces are continuing their efforts to push the US – both at in the electoral and the extra-parliamentary terrains – further towards their anti-democratic vision for the U.S.We hear from and ask questions of Bill Fletcher, John Huntington, and Nancy McLean. These three presenters have engaged with the US far right as analysts, organizers, or both. The presentations and discussion help DSA members in our day-to-day organizing and prov...2023-04-201h 27The HDSA PodcastEpisode #3: Maryann Emerick, Dr. Jim Gusella and Dr. Marcy MacDonaldSend us a textIn this episode HDSA's President & CEO Louise Vetter is joined by MaryAnn Emerick; Dr. Jim Gusella and Dr. Marcy MacDonald.Maryann is HDSA's Manager, Youth & Community Services and an HD family member.Dr. Gusella is a Professor of Neurogenetics at the Department of Genetics at Harvard Medical School.Dr. MacDonald is a Professor of Neurology at Mass General Hospital.To learn more about Huntington's disease, please visit HDSA.org. Don't forget to follow us on social media!2023-03-3149 min
HippraConnects10. Interview with Louise Vetter of the Huntington's Disease Society of AmericaAn informative discussion with Louise Vetter, President and CEO of the Huntington's Disease Society of American. Learn more about this rare disease and how this non-profit organization offers support through community service, advocacy, research and education. https://hdsa.org/Support this podcast at — https://redcircle.com/supporting-physicians/donations2023-03-2930 min
Voices for the BrainEpisode 4 ~ Huntington's Disease Society of AmericaListen in as Katie Sale, American Brain Coalition's Executive Director catches up with the President & CEO of Huntington's Disease Society of America, Louise Vetter. 2023-03-0119 minThe HDSA PodcastEpisode #2: Chris Cosentino & Robi BlumensteinSend us a textIn Episode #2, Louise Vetter is joined by Chris Cosentino & Robi Blumenstein. Chris Cosentino is HDSA's Director of Marketing & Communications and has been with the Society since 2014. Robi Blumenstein is President of CHDI and in 2002 organized CHDI Management to provide management services to non-profit organizations engaged in Huntington’s disease research.Don't forget to follow us on social media!2023-02-2853 minThe HDSA PodcastEpisode #1: Arik Johnson & Teresa SrajerSend us a textIn this episode HDSA's President & CEO Louise Vetter is joined by Arik Johnson, PsyD and Teresa Srajer. They discuss the launch of the new HDSA Podcast, the 38th Annual HDSA Convention and a behind-the-scenes look at the Huntington's Disease Society of America. Dr. Johnson is HDSA's Chief Mission Officer and former Chair of HDSA's Board of Trustees. Teresa is an HD family member, long-time volunteer and HDSA's newly appointed Chair of HDSA's Board of Trustees. To learn more about Huntington's disease, please visit HDSA.org. ...2023-01-2638 min
The Buff ShowFired over Pronouns 12-21-22Sarah Simon Moms for Liberty. She is the Chapter Chair for Stark county, Ohio. College word changes and a teacher being fired for not using preferred pronouns!
Chef Andrew Gruel, is an American chef and television personality, who appeared as a judge on Food Network's Food Truck Face Off. He is based in Huntington Beach CA, currently CEO and founder of American Gravy Restaurant Group which comprises Calico Fishhouse, Big Parm Pizza, Two Birds Chicken, Butterleaf, Lolo’s Tacos and 101 Burger.
Jeremy Tate is the co-founder and CEO of the Classic Learning Test (CLT). He is...2022-12-221h 10
Neuroepic: Nature, Nurture, Food, Family, Brains32. Demystifying the Search for a Cure: the Epigenetics of Huntington's DiseaseIf you grew up in the United States, you are most likely familiar with the song “This Land is Your Land”, one of the most famous American folk songs. Though it has been rerecorded and performed by many famous artists, you may not know the original writer and performer, Woody Guthrie. Woody Guthrie was born in 1912 and was, and still is, one of the most influential figures American folk music. He traveled across the U.S. for much of his life, lived through the Great Depression, the Dust Bowl, and World War II, and settled down in New York in t...2022-08-0414 min
This Is NashvilleLiving at risk of Huntington’s DiseaseHuntington’s disease is a rare genetic neurological disorder that can impact everything from a person’s ability to move to their memory and can cause psychiatric disorders, like depression.
For many, it’s fatal, and there’s a 50% chance that the biological child of a parent with Huntington’s will inherit the disease. Yet, there is still hope. Vanderbilt University Medical Center is home to one of the nation’s leading clinics for Huntington’s disease.
It this hour, we’ll hear from Tennesseans with Huntington’s, their families and doctors to understand what it means to live with...2022-08-0250 min
Acts of ImpactHow 'Huntington's Disease Society of America' Funds Treatment, Research, Community, and Advocation For Those With HDToday we interview Louise Vetter, President and CEO of Huntington's Disease Society of America, about the work they do for those impacted by Huntington’s Disease. We’ll discuss the complex symptoms and unique challenges surrounding this disease, the ways in which HDSA helps patients, their families, and caregivers, and the research grants and legislation HDSA is supporting to bring progress and relief. To support HDSA and discover more ways to help, visit: https://hdsa.org/To learn more about the show, view transcripts, and more visit:https://www.actsofimpact.comSpecia...2022-07-2730 minANPT – Academy for Neurologic Physical Therapy PodcastDD SIG: CSM 2022 Platform Award: Consultative Coaching Model for Long-Term Exercise Engagement in People with Huntington’s Disease- with Lori QuinnDescription: In this episode, we highlight the winners of our platform award at CSM 2022. Lori Quinn talks to Chris Burke about her team’s research on long-term PT follow up to promote exercise in people with HD. They discuss findings related to feasibility, participant engagement, and outcomes related to function, disease progress and physical activity during the year-long study. They also discuss innovative models to provide care for and do research with people with HD, and unique challenges in the HD population. Whether you missed it at CSM or are looking for bonus clinical insights beyond the platform, this is d...2022-05-2738 minAcademy of Neurologic Physical Therapy PodcastDD SIG: CSM 2022 Platform Award: Consultative Coaching Model for Long-Term Exercise Engagement in People with Huntington’s Disease- with Lori QuinnDescription: In this episode, we highlight the winners of our platform award at CSM 2022. Lori Quinn talks to Chris Burke about her team’s research on long-term PT follow up to promote exercise in people with HD. They discuss findings related to feasibility, participant engagement, and outcomes related to function, disease progress and physical activity during the year-long study. They also discuss innovative models to provide care for and do research with people with HD, and unique challenges in the HD population. Whether you missed it at CSM or are looking for bonus clinical insights beyond the platform, this is defi...2022-05-2738 min4D: Deep Dive into Degenerative Diseases - ANPTDD SIG: CSM 2022 Platform Award: Consultative Coaching Model for Long-Term Exercise Engagement in People with Huntington’s Disease- with Lori QuinnDescription: In this episode, we highlight the winners of our platform award at CSM 2022. Lori Quinn talks to Chris Burke about her team’s research on long-term PT follow up to promote exercise in people with HD. They discuss findings related to feasibility, participant engagement, and outcomes related to function, disease progress and physical activity during the year-long study. They also discuss innovative models to provide care for and do research with people with HD, and unique challenges in the HD population. Whether you missed it at CSM or are looking for bonus clinical insights beyond the platform, this is d...2022-05-2738 min
Hope for the CaregiverThey Raised Two Children With Huntington's DiseaseMay Is HD Awareness month, and our guests for this episode were Drs. Elton and Laquita Higgs. The couple adopted a little girl many years ago - who developed Huntington's Disease (HD). One of the most horrific diseases on the planet, HD eventually cost their daughter her life - but not before she had a daughter who also developed the genetic (and terminal) illness. Listen to their inspiring and insightful story - from their book, SHATTERED DREAMS - BUT HOPE: Encouragement for Caregivers of Huntington’s Disease and Other Progressive Illnesses For more information on HD...2022-05-1839 min
Train Your Brain, Claim Your Power"Letter to My Dad" by Chucky Quartarola Raises Awareness of Huntington's DiseaseChucky Quartarola's wife suffers from Huntington's Disease. A debilitating disease similar to ALS, there is no cure and few people know much about it. His hope is that this book will raise awareness and increase donations to the Huntington's Disease Society of America for research. He is available to speak at organizations and community groups as part of his personal campaign to make a difference. 2022-02-0223 min
The Buff ShowThe Buff Show Christmas SpecialThe Buff Show Christmas Special 2021. It’s the most wonderful time of the year! Special guests, music, prayer and cooking! Rocker Michale Graves performs a Christmas Song for the first time ever! Rev Rick Cole joins the show, Senior Pastor at the Capital Christian Center in Sacramento, and author of the book, Incarnate: Jesus Among the Broken. Ashley Varner from the Freedom Foundation is here to spread good news for union workers and Chef Andrew Gruel joins the show. He is an American chef and television personality, who appeared as a judge on Food Network's Food Truck Face Off an...2021-12-2458 min
Vital ScienceA Synergistic Approach to Treating Huntington’s DiseaseHuntington’s disease may only affect one in every 10,000 people in the United States, but its symptoms can drastically debilitate a person’s quality of life.For Ignacio Muñoz-Sanjuan, he witnessed first-hand the devastating effects this disease can have. He’s visited parts of the world that have the highest prevalence of Huntington’s disease on the planet, including Taiwan and South America. Today, he’s involved with two different nonprofit organizations seeking to accelerate the development of treatments to help those afflicted by, or at risk for, this fatal condition.Join us as we explore...2021-09-2132 min
OpheadsEp 11. U.S Media & Protest Movements Part 1: (Hong Kong, BLM)Ep 11. U.S Media & Protest Movements - Part 1: (Hong Kong, BLM)in 2019, in the context of a sudden surge widespread Mass protests in South America, the Middle East and all over the world, the U.S Press focussed its attention on one, the fight in Hong Kong to rid itself of a controversial extradition bill. U.S Politicians demanded aid, intervention and even on Fox News calling for solidarity with “The kids that little more than 240 years ago were our founding fathers” (Brigadier Gen. Robert Spalding).One year later, a global mass...2021-05-071h 48
Your Family's HealthHuntington's DiseaseDr. Jeanine Cook-Garard and Gina Peter learn all about Huntington’s Disease, a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. Their guest is Gia Mannone, the Huntington’s Disease Society of America’s National Youth Alliance Youth Services & Recruitment Chair, to help us better understand this disease and how her organization is working to help patients and their families who suffer from it.2021-04-0628 min
R is for Rare9. Huntington's Disease ft. Ashley PesiThis week's episode features Ashley Pesi, a social worker at the HDSA National Youth Alliance, a PhD student, a mom, and a rare disease patient! Both she and her mom have Huntington's Disease, which is a genetic, neurodegenerative disease that is said to be a combination of ALS, Alzheimer's, and Parkinson's. Ashley discusses the reality of never really accepting a diagnosis, the welcoming embrace of the HD community, her and her mom's diagnosis stories, family planning, and much more!
Be sure to subscribe to R is for Rare on Apple Podcasts, Spotify, or wherever you get your podcasts! Leave a...2021-04-031h 15
R is for Rare6. Disability Law + Huntington's Disease ft. Allison BartlettThis week's interview is with Allison Bartlett, who works as the manager of disability programs at Huntington's Disease Society of America (or HDSA) and is a disability attorney. She goes through the same step-by-step process of applying for Social Security disability that she goes through with her clients, as well as elaborating on the legal challenges that loved ones face with HD. We also discuss the importance of advocacy, both for yourself and in regards to pushing for legislatures!
Huntington's Disease Society of America — hdsa.org
Huntington's Disease Parity Act — hdsa.org/takeaction
Gene...2021-02-231h 32
The HOPES podcast from StanfordEpisode 6: Diagnosed With Huntington's Disease As a TeenAs rare as Huntington’s Disease is, even rarer is Juvenile Huntington’s Disease (JHD). What is JHD? How is it different from HD? What is it like to have JHD? Learn about JHD and hear from a caretaker of a JHD patient on this month’s HOPES Podcast!
The music heard in today’s episode was found on freemusicarchive.
Podcast produced by Sammy Potter and Cat Fergesen.
Graphic by Kenneth Ronquillo
For more information on the Huntington’s Disease Society of America, visit www.hdsa.org.
To learn more about HOPES or Huntington’s Disease, visit hopes.stanford.edu/.
Per Jody’s r...2020-07-0100 min
The HOPES Podcast from StanfordEpisode 6: Diagnosed With Huntington's Disease As a TeenAs rare as Huntington’s Disease is, even rarer is Juvenile Huntington’s Disease (JHD). What is JHD? How is it different from HD? What is it like to have JHD? Learn about JHD and hear from a caretaker of a JHD patient on this month’s HOPES Podcast!
The music heard in today’s episode was found on freemusicarchive.
Podcast produced by Sammy Potter and Cat Fergesen.
Graphic by Kenneth Ronquillo
For more information on the Huntington’s Disease Society of America, visit www.hdsa.org.
To learn more about HOPES or Huntington’s Disease, visit hopes.stanford.edu/.
Per Jody’s r...2020-07-0115 min
HD Insights PodcastEpisode 18 - Ignacio Muñoz-Sanjuán (Venzuela today and FACTOR-H)We wrap up our 3-part series on the gene hunting project in Venezuela with insights on the current situation in Venezuela – what has or has not changed in the 25 years since for those HD families and communities – plus impact on neighboring South American countries. Dr. Ignacio Muñoz-Sanjuán, President and Founder of FACTOR-H, joins Dr. Claassen on the podcast. FACTOR-H is a not-for-profit humanitarian foundation founded in 2012 to facilitate humanitarian and medical aid to diminish the suffering of local communities affected by Huntington’s disease in Latin America. If you are interested in learning more about the work that FACTO...2020-06-1740 min
Huntington Arts Council PodcastConversations in the Arts, Women in the ArtsThis episode of Conversation in the Arts, Women in the Arts, was broadcast via the Huntington Arts Council's FacebookLive feed on June 11, 2020, at 7:00 pm.
This talk will focus on the power of women and the arts in honor of Women’s History Month, creating a dialogue on what it means to be champions of women through the arts. It will explore our understanding of women’s contributions to the arts in America and locally, showing how women have advanced and how society values equality and the contributions of all our citizens.
Panelists
Erika Duncan, Exec...2020-06-121h 23
Subscribe to The Huntington Lectures PodcastOutstanding American GardensJames Brayton Hall, president of the Garden Conservancy, examines what America's gardens say about our culture and how new approaches pioneered by the Conservancy are helping to protect and document these landscapes for the future. Several examples of West Coast gardens are highlighted, including remarkable successes—such as the gardens surrounding the former prison on Alcatraz Island—and one near failure.2019-11-1800 minSubscribe to The Huntington Lectures PodcastLocked in his Private Room: A Teenager's View of the Last Days of George Armstrong CusterResearcher T.J. Stiles describes the last year of Custer's life through the eyes of teenager Bertie Swett. Swett came to know Custer and his wife Libbie at Fort Abraham Lincoln and in Manhattan while America approached a historic turning point. Swett bared witness to the notorious soldier's life as he pushed his career and fortune to the brink of disaster.2019-10-1000 min
Silicon Valley & TechnologyCalifornia Police Employs Robocop to Patrol ParksThe city of Huntington Park in the state of California has hired a new police office to patrol local parks. It’s always on duty and monitors the park 24 hours a day to make sure things are in order. Khrystyna Shevchenko met with this supercop and watched him work. Anna Rice narrates her story.
2019-09-1902 min
Talk Golden to Me Hosted by Evan GoldenWhat is Huntington’s Disease?The Huntington’s Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families. In the battle against Huntington’s disease no one fights alone.https://hdsa.org/HD affects the whole brain, but certain areas are more vulnerable than others. Pictured above are the basal ganglia – a group of ner...2019-09-1015 minPassport MommyWhy Board Game Cafes Are Awesome For Your Kids; How to Avoid Show Biz ScamsNeil Goldberg recently switched careers from long time sports producer for NY1 News to owner of the Main Street Board Game Cafe in Huntington Village, Long Island. He talks all about how powerful, educational and fun playing board games can be for adults and children. He also shares how he made such an amazing switch in careers in a short amount of time.Aaron Marcus is an accomplished actor and commercial model with over 30 years experience. He talks about how to get your child involved in the business and also how to avoid scams.2019-08-1639 minPassport MommyWhy Board Game Cafes Are Awesome For Your Kids; How to Avoid Show Biz ScamsNeil Goldberg recently switched careers from long time sports producer for NY1 News to owner of the Main Street Board Game Cafe in Huntington Village, Long Island. He talks all about how powerful, educational and fun playing board games can be for adults and children. He also shares how he made such an amazing switch in careers in a short amount of time.Aaron Marcus is an accomplished actor and commercial model with over 30 years experience. He talks about how to get your child involved in the business and also how to avoid scams.2019-08-1639 minSubscribe to The Huntington Lectures PodcastAmerica's First Botanical GardenHistorian Victoria Johnson discusses the life of David Hosack, the attending physician at the Hamilton-Burr duel and founder of the nation's first public botanical garden, today the site of Rockefeller Center.2019-05-2400 min
Patient Stories with Grey GeneticsLiving and Learning with Huntington'sAfter years of misdiagnoses, Seth Rotberg’s mother was finally diagnosed with Huntington’s Disease (HD) when he was 15 years old. At the age of 20, Seth had genetic testing and also tested positive for HD. Initially, Seth stayed in the “genetic disease closet,” telling only close friends about his positive test results and waiting 3 years to tell his father and sister. The loss of two close friends at a young age shifted Seth’s perspective, inspiring him to open up about his positive genetic testing results, to strive to live fully in the present while hoping and working toward a brighter f...2019-04-3044 min
Patient Stories with Grey GeneticsLiving and Learning with Huntington'sAfter years of misdiagnoses, Seth Rotberg’s mother was finally diagnosed with Huntington’s Disease (HD) when he was 15 years old. At the age of 20, Seth had genetic testing and also tested positive for HD. Initially, Seth stayed in the “genetic disease closet,” telling only close friends about his positive test results and waiting 3 years to tell his father and sister. The loss of two close friends at a young age shifted Seth’s perspective, inspiring him to open up about his positive genetic testing results, to strive to live fully in the present while hoping and working toward a brighter f...2019-04-3044 min
Outbreak News InterviewsKentucky chickenpox, Peter Hotez on Joe Rogan and Huntington's diseaseOn Sunday's program I take a quick look at the chickenpox outbreak in Northern Kentucky, the lawsuit, Gov. Matt Bevin and "chickenpox parties". A guest on the show a number of times, Dr Peter Hotez appeared on one of the largest podcasts out there--The Joe Rogan Experience, where they discussed infectious diseases, vaccines and autism for nearly 2 hours. In the second half, I play an interview with Senior Director for Mission and Scientific Affairs with the Huntington’s Disease Society of America, George Yohrling, PhD about Huntington's disease.2019-03-2350 minOutbreak News InterviewsHuntington’s disease with George Yohrling, PhDHuntington’s disease (HD) is a progressive brain disorder that deteriorates a person’s physical and mental abilities. It primarily affects adults; however, there is a form that affects children, albeit less common. Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer’s – simultaneously! Joining me today to look at Huntington’s disease is the Senior Director for Mission and Scientific Affairs with the Huntington's Disease Society of America (HDSA), George Yohrling, PhD.2019-03-2024 minSubscribe to The Huntington Lectures PodcastGolden: How California Made AmericaLouis Warren, professor of U.S. Western History at the University of California, Davis, explores how Californians remade American ideas of property and power between 1848 and the present.2019-03-1400 min
TMI Episcopal PanthercastEpisode 47: NHS and upcoming Huntington's Disease Awareness WalkIn this episode, Bridget Lynch '19 and Sebastian Martinez-Sotomayor '20 talk all about the TMI chapter of the National Honor Society and share their experiences as members of the organization.
Bridget and Sebastian talk about membership, what NHS has taught them, community service, and the various projects the chapter has led this year. They also announce their upcoming Huntington's Disease Awareness Walk scheduled for later this month on March 22.
TMI NHS Huntington's Disease Awareness Walk
March 22, 2019
$5 dress down day (wear blue) for students (includes entry to the walk)
9:40 Guest Speaker from Huntington's D...2019-03-0726 minSubscribe to The Huntington Lectures PodcastA Rare Book Rogue in TexasMichael Vinson, author and proprietor of Michael Vinson Americana, shares the tale of John Holmes Jenkins III (1940–1989), a Texas antiquarian bookseller, publisher, historian, and gambler who, in 1971, helped the FBI recover a valuable set of original colored engravings of Audubon's The Birds of America.2018-11-0900 minSubscribe to The Huntington Lectures PodcastAmerica's Costliest Natural Disaster: RustJonathan Waldman, author of "Rust: The Longest War," provides an illuminating look at the unsung heroes—engineers—who are working to keep our modern world from wasting away due to rust, which has been called "the great destroyer." Rust consumes cars, fells bridges, sinks ships, sparks house fires, and nearly brought down the Statue of Liberty. This program is a Trent R. Dames Lecture.2018-11-0700 min
SHAPE America's Podcast - Professional Development for Health & Physical Education TeachersEpisode 98: February HPE ReflectionsSHAPE America podcast hosts Collin, Matt and Stephanie put a spin on their monthly HPE reflections by asking several California health and physical educators for their input! Listen in to hear their honest views on reflection and favorite reflection tools, including:
Student inquiry,
Pear Deck,
FlipGrid,
Journaling,
Video recording,
Opening communication with colleagues,
And more!
Guests:
David Tran, Assistant Principal, Alliance Margaret M. Bloomfield High School, Huntington Park;
Ken Dyar, Director for Physical Education K-8, Delano Union Scho...2018-03-1913 minSHAPE America's Podcast - Professional Development for Health & Physical Education TeachersAction Pack with Kimberly O’HaraWhat are your goals for your school year? What new things are you implementing / adding to your curriculum or program? How do you reflect as an educator? What's in your Action Pack? An Action Pack includes, goals for your school year, new things that you are adding to your curriculum or program, self care, and how you reflect as an educator. Join new SHAPE America Podcast Host, Stephanie Sandino, as she interviews Health Educator, Kimberly Ohara, and finds out what's in Kim's Action Plan.Guest: Kimberly Ohara is a 9th grade health educator at Ocean View HS...2017-10-2433 min
The Rise of the Newspaper in Europe and America, 1600–1900Reporting the News in the Partisan Press: The Age of Competitive AdvocacyJeffrey Pasley from University of Missouri delivers a talk titled “Reporting the News in the Partisan Press: The Age of Competitive Advocacy.” This talk was included in the session titled “Global Networks and Competitive Advocacy.”
Part of “The Rise of the Newspaper in Europe and America, 1600–1900,” a conference held at The Huntington Oct. 13–14, 2017.2017-10-1553 minThe Rise of the Newspaper in Europe and America, 1600–1900Eliza Haywood’s ‘Friend in the Country’ in the Parrot’s Compendium of the TimesManushag Powell from Purdue University delivers a talk titled “Eliza Haywood’s ‘Friend in the Country’ in the Parrot’s Compendium of the Times.” This talk was included in the session titled “News Genres."
Part of “The Rise of the Newspaper in Europe and America, 1600–1900,” a conference held at The Huntington Oct. 13–14, 2017.2017-10-1542 minThe Rise of the Newspaper in Europe and America, 1600–1900Information/Knowledge: The Physics of the NewspaperClifford Siskin from New York University delivers a talk titled “Information/Knowledge: The Physics of the Newspaper.” This talk was included in the session titled “Mediating the News.”
Part of “The Rise of the Newspaper in Europe and America, 1600–1900,” a conference held at The Huntington Oct. 13–14, 2017.2017-10-1545 minThe Rise of the Newspaper in Europe and America, 1600–1900The Multimedia News Marketplace in the Late Seventeenth and Early Eighteenth CenturiesRachael Scarborough King from University of California, Santa Barbara, delivers a talk titled “The Multimedia News Marketplace in the Late Seventeenth and Early Eighteenth Centuries.” This talk was included in the session titled “Mediating the News.”
Part of “The Rise of the Newspaper in Europe and America, 1600–1900,” a conference held at The Huntington Oct. 13–14, 2017.2017-10-1534 minThe Rise of the Newspaper in Europe and America, 1600–1900The Synthetic Genres of Victorian Daily NewsDallas Liddle from Augsburg College delivers a talk titled “The Synthetic Genres of Victorian Daily News.” This talk was included in the session titled “News Genres.”
Part of “The Rise of the Newspaper in Europe and America, 1600–1900,” a conference held at The Huntington Oct. 13–14, 2017.2017-10-1536 minThe Rise of the Newspaper in Europe and America, 1600–1900‘A great instance of our frugality of words’: Reporting the Local and Global Eighteenth Century in 140 CharactersYuri Cowan from NTNU delivers a talk titled “‘A great instance of our frugality of words’: Reporting the Local and Global Eighteenth Century in 140 Characters.” This talk was included in the session titled “Enlightenment News Roundtable: Travelling News.”
Part of “The Rise of the Newspaper in Europe and America, 1600–1900,” a conference held at The Huntington Oct. 13–14, 2017.2017-10-1516 minThe Rise of the Newspaper in Europe and America, 1600–1900Nomadic Novels: Eighteenth-Century Advertisements in North American NewspapersSiv Gøril Brandtzæg from NTNU delivers a talk titled “Nomadic Novels: Eighteenth-Century Advertisements in North American Newspapers.” This talk was included in the session titled “Enlightenment News Roundtable: Travelling News.”
Part of “The Rise of the Newspaper in Europe and America, 1600–1900,” a conference held at The Huntington Oct. 13–14, 2017.2017-10-1518 minThe Rise of the Newspaper in Europe and America, 1600–1900Travelling Reporters: Foreign News Gathering Towards the Close of the Eighteenth CenturyJohanne Kristiansen from NTNU delivers a talk titled “Travelling Reporters: Foreign News Gathering Towards the Close of the Eighteenth Century.” This talk was included in the session titled “Enlightenment News Roundtable: Travelling News.”
Part of “The Rise of the Newspaper in Europe and America, 1600–1900,” a conference held at The Huntington Oct. 13–14, 2017.2017-10-1515 min