Shows
S.C.I. ChroniclesThe Rogue SCI Alphabet - “K” is for KidsIn this episode, I’m joined by my friend and teammate Steven Slack—though everyone calls him Slack—as we talk about his journey into parenthood after a spinal cord injury. Slack shares what becoming a parent looked like post-injury, from navigating physical and emotional changes to redefining expectations and finding confidence in a role many people wrongly assume isn’t possible for disabled parents. This conversation is honest, encouraging, and rooted in real life, offering insight for anyone curious about parenting with a disability or seeking representation that reflects the full spectrum of family life
2025-12-141h 15S.C.I. ChroniclesThe Rogue SCI Alphabet - “P” is for Peristeen Plus.In this episode, I share my experience trialing the Peristeen Plus transanal irrigation system—what it is, why I’m trying it, what the setup and training process look like and how things are going so far. I break down the basics of how Peristeen Plus works for neurogenic bowel management, what starting the trial actually involves, the learning curve, and the early wins and challenges I’ve run into. If you’re navigating life with an SCI, exploring bowel-management options, or just curious about what this process looks like in real life, this episode offers an honest look at adapt...
2025-11-2728 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “U” is for Universal DesignWhat if our homes, workplaces, and public spaces were designed from the start to work for everyone—no retrofits needed, no barriers to inclusion? In this episode, I sit down with Rosemarie Rossetti, Ph.D., a nationally recognized advocate, speaker, and consultant in universal design, and co-creator of the Universal Design Living Laboratory, a groundbreaking home built to demonstrate how beautiful, functional spaces can be accessible to all. We explore how universal design goes beyond compliance to create environments that empower dignity, independence, and connection, showing how thoughtful design can make everyday life easier and more welcoming for everyone....
2025-10-1249 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “Y” is for YouthIn this episode, I sit down with Amie Day to talk about what it’s like to grow up with a spinal cord injury. Amie shares her perspective as someone who’s lived with her injury since childhood, and how she found connection and community through adaptive sports. Together, we explore resilience, play and the unexpected similarities that shape life after injury.
2025-09-2851 minS.C.I. ChroniclesA Break From the Alphabet - Bonus Life UpdateThis episode, I’m taking a break from the Rogue S.C.I. Alphabet theme to share a more personal update. I’m halfway into year two of my spinal cord injury, and I want to reflect on what these first six months have looked like. From new challenges to different activities and lessons learned along the way, this episode is all about where I am right now in my journey.Whether you’ve been following since the beginning or are just tuning in, I hope this update gives you a glimpse into the realities of living l...
2025-09-0722 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “D” is for DatingIn this episode, I’m joined by Keith and Liz to talk dating with a disability. Keith is a paraplegic living with a spinal cord injury, while Liz is able-bodied, and together they share their journey as a couple. From their first dates to navigating accessibility, communication and building a partnership, Keith and Liz open up about the realities, challenges and joys of their relationship.Whether you’re curious about dating with a disability, living with a spinal cord injury or simply love hearing real stories of connection, this episode offers honesty and perspective.
2025-08-2557 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “S” is for Service DogsIn this episode, I talk with Aspen from Accessibility with Aspen Sage all about her incredible service dog, Jojo. Aspen shares how she decided a service dog was right for her, the detailed process of being matched with Jojo and what life has been like since they became a team. From the challenges of society to the moments of unconditional support, this conversation offers an honest and heartfelt look at the bond between handler and service dog.AspenSageBaxter | Instagram, Facebook, TikTok | Linktree
2025-08-1047 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “N” is for NonprofitIn this episode, I’m joined by Tom Haig—a world traveler, writer, and disability advocate—whose journey after a spinal cord injury has taken him across continents and into the heart of global rehab reform. Tom and his brother founded the International Rehabilitation Forum (IRF), a nonprofit focused on expanding access to quality rehabilitation medicine in low-resource countries.We talk about what inspired him to start IRF, how his own life experiences shape the organization’s mission and what it really takes to improve rehabilitation care on a global scale. Whether you’re passionate a...
2025-07-271h 08S.C.I. ChroniclesThe Rogue SCI Alphabet - “X” is for eXoskeletonIn this episode, I’m joined by Adam Quire, PT, DPT, from Lifeward to talk all about the ReWalk exoskeleton—a wearable robotic system designed to help individuals with spinal cord injuries stand up and walk again. We dive into how the technology works, who it’s for, what the training process looks like and how it’s making a real impact in people’s lives. Adam also shares insights on accessibility, insurance hurdles and the future of mobility. Whether you’re curious about cutting-edge rehab tools or exploring what’s possible after paralysis, this episode is for you.Lifeward...
2025-07-1351 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “E” is for ExpoIn this solo episode, I’m sharing my experience attending the Abilities Expo in Chicago for the second year in a row! From exploring the latest in accessible tech and adaptive gear to connecting with people who just get it, this event was an exciting one. I’ll talk about what stood out this year, what’s changed since my last visit and what it means to be surrounded by such an empowering community. Whether you’ve been to an Abilities Expo before or you’re just curious, come roll with me through the highlights.Happy Disability Pride Month
2025-07-0224 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “Q” is for QuadriplegiaIn this episode, I’m joined by two friends, Sam and Mackenzie, to talk about their experiences living with quadriplegia. Unlike my own spinal cord injury, which affects my lower body (paraplegia), quadriplegia means that all four limbs are impacted in some way.Together, we explore how that difference plays out in daily life, independence, relationships, and access to care. Sam and Mackenzie share what they wish more people understood, how they navigate challenges and the ways they continue to show up fully in their lives. This is a powerful and honest conversation that sheds...
2025-06-151h 05S.C.I. ChroniclesThe Rogue SCI Alphabet - “L” is for Legislation on SCI ResearchIn this episode, I’m joined by Jason Stoffer, a research advocate with Unite 2 Fight Paralysis (U2FP), for a dive into Wisconsin’s legislation supporting spinal cord injury (SCI) research - Assembly Bill (AB) 92 and Senate Bill (SB 99). These bills prioritize research into all aspects of SCIs not just mobility. He brings real data to the table, showing exactly why this work matters.We also discuss the growing threat to SCI research at the federal level and what’s at stake when funding is cut. Coordinated advocacy is essential to protect and grow this...
2025-06-0158 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “M” is for Men with Spinal Cord InjuriesIn this episode, I’m joined by Paralympian Jeromie “Romie” Meyer for an honest and empowering conversation about living with a spinal cord injury as a man. Romie shares his personal journey—from the early days of injury to finding purpose through sport and advocacy. We talk about identity, masculinity, and mental health, and how each of these can shift and evolve after a life-changing injury. Whether you’re navigating your own recovery or simply want to better understand the SCI experience, Romie brings real talk, insight, and inspiration to the mic.Follow me on Instagr...
2025-05-1858 minS.C.I. ChroniclesThe Rogue SCI Alphabet - “C” is for Catheters/CathingIn this episode, we’re getting real about catheters and cathing. I’m joined by two of my friends from the spinal cord injury community, Connie and Sharon, and we share honest conversations about our personal experiences with cathing—what’s worked, what hasn’t, and how different our journeys have been. From distributor and product choices to the emotional and logistical realities, this episode sheds light on just how varied life using a catheter can be. Whether you’re newly injured, a long-time user, or just curious about what cathing really looks like day-to-day, this episode is for you.
2025-05-0557 minS.C.I. ChroniclesThe Rogue SCI Alphabet - "A" is for Adaptive ClothingIn this episode, we're diving into the world of adaptive clothing - because what we wear matters, especially when our bodies and abilities change. I kick things off discussing some personal wins that I found with Victoria's Secret's adaptive bra and underwear line I've been using. Then, I'm joined by Jenny Kraft, creator of Project Awaken and her patented Easy Access Pants. Jenny opens up about her journey from idea to innovation, challenges of getting adaptive clothing into the market and why inclusivity in fashion is vital for the spinal cord injury community. Whether...
2025-04-2144 minS.C.I. ChroniclesThe Rogue SCI Alphabet - "I" is for Interabled RelationshipWelcome back to SCI Chronicles! We're kicking off Season 2 with a very special guest: my husband. In this episode, we talk about life in an interabled relationship, what changed after my spinal cord injury and how we navigate everything from daily routines to public perceptions. This season, I'm trying something new: The Rogue SCI Alphabet- where each episode explores a different letter tied to life with a spinal cord injury. And today, we're starting strong with "I is for Interabled Relationship."Whether you're here to learn, relate or just...
2025-04-0757 minS.C.I. ChroniclesSeason 1 Finale - Reflecting Back & Moving ForwardSeason 1 has been a journey of sharing my experiences, challenges, and wins in life with an SCI. As we wrap up, I'm reflecting on what I've shared and teasing what's next--broader topics that impact the SCI community and, hopefully, guest interviews. Thanks for being a part of this journey - see you in Season 2!
2025-03-1505 minS.C.I. ChroniclesOne Year Later: My First Life DayIt's my first "Life Day" - the one-year anniversary of my spinal cord injury. In this episode, I reflect on what this day means to me and processing the emotions that comes with it. From grief and gratitude, I dive into the complexities of marking this milestone and what I've learned over the past year. Whether you're navigating your own injury, supporting a loved one, or just curious about the realities of life after SCI, join me for an honest look at the highs, lows and everything in between.
2025-03-1227 minS.C.I. ChroniclesWhen Life and Disability CollideIn this episode, I dive into what it's really like to balance my spinal cord injury with trying to have a "normal" day - whether that's working, spending time with friends and family, or just handling everyday tasks. From moments where my disability fades into the background to times when it throws a wrench in my plans, I'm sharing a candid look at the unpredictability of it all. Some days, things flow smoothly; other days, my injury becomes the main event. Join me for an honest discussion about the challenges, adjustments, and unexpected lessons that come with making life...
2025-03-0824 minS.C.I. ChroniclesRolling Into Wheelchair RugbyIn this episode, I take you throught my first experience playing an adaptive sport - wheelchair rugby! I joined a practice with WASA (Wisconsin Adaptive Sports Association) and got a firsthand experience with this sport. I share what it was like using a rugby chair for the first time, how it compares to my everyday chair, and the differences between chairs designed for players with varying levels of hand function and core stability. If you've ever been curious about adaptive sports, this episode's for you! Learn more about WASA here: www.wasa.org
2025-02-2822 minS.C.I. ChroniclesThe Power of Words: Platitudes and PerspectiveIn this episode, I turn the focus back to the mental and emotional side of living with a spinal cord injury by breaking down some common platitudes-how they have taken on new meaning, why they don't resonate, and which ones should really be avoided due to their unintended, negative connotations. Words have power, and the way we talk about disability, resilience, recovery and life after injury matters. Let's talk about what actually helps and what we can leave behind.
2025-02-2128 minS.C.I. ChroniclesLove, Marriage, and Life After InjuryHappy Valentine's Day! In this episode, I dive into what it's like being in an inter-abled marriage with my husband and how, while not drastically, my spinal cord injury has changed our relationship. From the ways we've adapted in daily life to the deeper connections we've built, I share and honest look at love after injury. And since no Valentine's Day episode would be complete without it, I also talk about intimacy post-SCI--because it's an important part of relationships that deserves more conversation. Whether you're celebrating today with a partner, friends, or some well-deserved self-love, this episode is all...
2025-02-1522 minS.C.I. ChroniclesWhat's in a Day: the Eleven-Month MarkIn this episode, I'm diving into how my daily life has evolved over the past six months. From changes in my daily care routine to the major shift of converting from a complete to an incomplete injury, I break down what these transitions have meant for me. I'll roll you through what a typical day looks like now--what's easier, what's still a challenge, and how I'm adapting along the way. Whether you're on a similar journey or just curious about life with a spinal cord injury, join me for an honest look at how recovery keeps changing.
2025-02-0822 minS.C.I. ChroniclesOn the Road Again: My First Trip Post-InjuryIn this episode, I'm sharing all about our first road trip and hotel stay since my injury. From planning the drive to making sure our hotel room was actually accessible; this trip was full of learning experiences. I'll talk about how I managed being in the car for an extended time, the extra equipment we brought to make things easier, and what worked (and what didn't) in our accessible hotel room. Whether you're planning your own trip or just curious about the logistics of accessible travel, this episode has tips and takeaways.
2025-02-0224 minS.C.I. ChroniclesSniffles and Spinal Cord Injuries: Managing My First ColdFacing a cold is tough for anyone, but as a paraplegic, it comes with unique challenges. In this episode, I share my experience dealing with my first cold post-injury. From managing symptoms with limited mobility to staying on top of potential complications, I discuss the strategies that helped me get through it and critical watch-outs. Whether you're looking for practical tips or curious about how to navigate a cold with a spinal cord injury, this episode has you covered.
2025-01-2521 minS.C.I. Chronicles20 Questions, Part 2In this episode, I dive into Part 2 of my "20 Questions" series, where I answer the final 10 questions about life post-injury, recovery, and everything in between. These questions cover topics like adapting to daily challenges, personal growth, and collaborating with my medical team. Tune in for candid insights and a lot of reflection as i continue sharing my journey.
2025-01-1829 minS.C.I. Chronicles20 Questions (Part 1)In this milestone episode, I'm answering 20 questions about life post-injury and my recovery journey - 10 questions at a time! Theses questions come from family, friends, and ones I've been asked in the past. In this episode, I dive into the moments that have shaped my experience so far. Join me for an honest and insightful conversation as I share what recovery really looks like. Don't forget to stay tuned for Part 2!
2025-01-1027 minS.C.I. ChroniclesBalancing Autonomy and Uncertainty in Early RecoveryIn this episode, I explore the paradox of being both new to life with a spinal cord injury and handed significant control over my medical decisions. I dive into the mental energy it takes to navigate unfamiliar scenarios, like choosing whether to get an IUD implant or deciding if antibiotics are necessary for a potential UTI. These decisions aren't just medical - they're deeply personal and often overwhelming. Join me as I share the challenges, insights, and lessons I'm learning about balancing autonomy with uncertainty in my recovery journey.
2025-01-0324 minS.C.I. ChroniclesBladder Battles: Navigating Urology and SCI LifeIn this episode, I dive into everything I've learned about bladders and bladder management since my spinal cord injury. From navigating urology tests to better understand bladder and kidney function, to the different options for management, I share insights, lessons, and the realities of figuring out a system that works. Whether you're on a similar journey or curious about this aspect of SCI life, tune in for a candid and informative discussion.
2024-12-2725 minS.C.I. ChroniclesThe Hard Times Matter Too: Why I've Been MIAAfter Nearly two months away, I'm back to share what's been going on behind the scenes. Recovery isn't all progress and milestones--it's also about facing the challenges that come along the way. For me, That's meant dealing with persistent bladder issues that have taken over more of my life than I ever anticipated. In this episode, I open up about these tougher moments, why they're just as crucial as the highs, and how I'm learning to move forward, even when the path feels heavy. If you've ever felt alone in your struggles, this one's for you.
2024-12-2026 minS.C.I. ChroniclesFinding Purpose in Research and Patience in RecoveryIn this episode, I'm sharing my experience participating in a research study at the University of Wisconsin Milwaukee, where I took part in a manual wheelchair push test designed to gather valuable data on manual wheelchair users. This study was an opportunity to give back to the wheelchair user community in a meaningful way, knowing that the insights gained could make a difference in the lives of others navigating similar journeys.
I'll also be talking about the importance of meeting yourself where you're at especially when life throws you curveballs. A recent UTI has reminded me to...
2024-10-2719 minS.C.I. ChroniclesFinding My Voice: A Key Part of IndependenceFollowing lasts episode's update, in this episode, I dive into the importance of self-advocacy--what it means to me and how it plays a vital role in my journey with an spinal cord injury. From navigating conversations with my medical team to making decisions in daily activities, self-advocacy gives me an opportunity to be part of my health and gain independence. Join me as I share personal experiences and strategies that have helped me speak up for myself and shape my recovery.
2024-10-0526 minS.C.I. ChroniclesAn Update from JenIn this episode, I'm back after taking a month-long break, and I want to share the reasons behind it. Recovering from a spinal cord injury is anything but straightforward, and sometimes, life throws unexpected challenges. Over the past month, I've been navigating new shifts in my recovery, from physical changes to mental health struggles, and just needing some time to reset and refocus. Join me as I dive into what's been happening, how I've been handling it all, and what's next.
2024-09-2226 minS.C.I. ChroniclesWhat's in a Day: the Five-Month MarkIn this episode, I take you through a day in my life five months after my spinal cord injury. It's been a journey of adaptation and change since I last recorded an episode like this three months ago. I'll share how my routines have evolved, the new challenges I face and the small victories gaining more independence. Whether you're on a similar path or just curious about life after a spinal cord injury, this episode offers an honest look at what recovery looks like for me right now.
2024-08-1629 minS.C.I. ChroniclesMy First Independence DayIn this episode, I share the emotional and physical journey of returning to work in person for the first time since my spinal cord injury. As a newly paraplegic individual, this experience was filled with challenges, accomplishments and a few surprises. I discuss the preparation, the day of and the aftermath of completing an 8-hour-day on site. Join me as i reflect on what this milestone means for my perception of independence and the importance of small victories.
2024-08-0927 minS.C.I. ChroniclesRebuilding Life by Climbing Maslow's LadderIn this episode, I'm diving back into the mental side of a spinal cord injury. I'll talk specifically on how Maslow's Hierarchy of Needs connects to my own journey and learning how to navigate the world around me.
I'll share what it's been like to go from the initial shock and vulnerability of my injury and how it's impacted my sense of stability and safety (level 2 of the hierarchy). You'll hear about the ups and downs, the little victories, and the ongoing quest to feel safe in my body and mind again. Join me as I reflect...
2024-08-0223 minS.C.I. ChroniclesFinding New Ways to Stay ActiveIn this episode, I'll explore the various ways I can still exercise after a spinal cord injury. As a paraplegic, I've discovered unique methods to maintain and improve my physical health. We'll dive into upper body exercises that build strength and endurance, as well as innovative techniques for engaging the lower body. Join me as I share personal experiences on adapting fitness routines to suit new physical realities.
2024-07-1925 minS.C.I. ChroniclesMany Paths, One GoalIn this episode, we'll dive into the current stage of my spinal cord injury recovery, where everything seems to shift at unknown times. Join me as I explore the unpredictable nature of this journey, marked by trial and error in managing health, experiencing returning sensory and motor functions and adapting to daily activities. Through candid reflections and personal anecdotes, I share the ups and downs of navigating this ever-changing landscape.
2024-07-1223 minS.C.I. ChroniclesAll About the Abilities ExpoIn this episode, we'll journey through the Abilities Expo in Chicago. I'll share my experiences from the workshop I attended and the diverse range of vendors we encountered, each showcasing innovative products and services designed to enhance the lives of people with disabilities. Get a feel for the overall vibe of the expo, filled with a strong sense of community. Tune in for an informative exploration of this remarkable event.
https://www.abilities.com/
2024-06-2824 minS.C.I. ChroniclesIt's All a ProcessIn this episode, we dive into the continuous process of living with a spinal cord injury. From home renovations tailored to accessibility needs to navigating the recovery process and facing the daily challenges of going out, every aspect requires adjustments and troubleshooting.
Additionally, I discuss the upcoming Abilities Expo, a fantastic event dedicated to enhancing the lives of people with disabilities. I plan to attend and can't wait to explore the latest innovations and connect with others in the community. Learn more at https://www.abilities.com and make plans to attend.
2024-06-2020 minS.C.I. ChroniclesThe Flip Side of ProgressIn this episode, we delve into the complex emptions that come with life after a spinal cord injury. We explore how even the most positive news in recovery can be both exciting and intimidating, introducing a new set of challenges and a steep learning curve. Join me for a glimpse at navigating the highs and lows of recovery, and the vital role of emotional support in the healing process.
2024-06-1422 minS.C.I. ChroniclesTherapy from Hospital to OutpatientIn this episode, I'll dive into the various types of therapy available for spinal cord injury patients, exploring the different levels provided in hospitals, rehabilitation centers, and outpatient settings. I'll share my personal experiences with each therapy type and how therapy evolves as i move through recovery. Whether you're a patient, caregiver or listening for general knowledge, this episode offers a glimpse into recovery after a spinal cord injury.
2024-06-0726 minS.C.I. ChroniclesWhat's in a Day?In this episode, I'll take you through a typical day in my life living with a spinal cord injury. From morning routines to nighttime preparations, I share the unique challenges and adaptations I navigate daily. Whether you're curious about life with a spinal cord injury or seeking inspiration about a personal situation, this episode offers a candid glimpse into my world and the realities that come with it.
2024-05-3131 minS.C.I. ChroniclesGetting to know your "new" body"So, what else happened?" For me, that was multiple additional broken bones, infections and paying attention to my body in new ways. In this episode, I'll share more information abouth the health issues my body has been helaing from in addition to the S.C.I. and what future health issues I need to pay additional attention to.
2024-05-2421 minS.C.I. ChroniclesWhat Goes Into an S.C.I. DiagnosisIn this episode of "S.C.I. Chronicles", I delve into the complex world of spinal cord injury (S.C.I.) diagnosis. Join me as I unpack what it means to receive an S.C.I. diagnosis, exploring the various clinical terms that can often feel overwhelming. We'll also walk through the typical timelines and stages of recovery using my experience as the example. Whether you're diagnosed, a caregiver, or just curious, this episode offers information on the foundational aspects of S.C.I.
https://asia-spinalinjury.org/international-standards-neurological-classification-sci-isncsci-worksheet/
2024-05-1816 minS.C.I. ChroniclesThe Starting Point: Welcome to the S.C.I. ChroniclesIn this first episode fo S.C.I. Chronicles, I introduce mhyself and share the abridged story behind my spinal cord injury. You'll get a glimpse into my current state and the motovation behind starting this podcast. Join me as we kick off this series dedicated to sharing my story of life and the recovery process.
2024-05-1604 min