Shows
The Secret Life of Parkinson's#167: 14 Years In: What Parkinson’s Taught Me About LivingIn this episode, hosts Jessica Krauser and Brian Baker engage in a heartfelt conversation with Robert McMillan, who shares his 14-year journey with Parkinson's disease. The discussion covers the initial shock of diagnosis, the importance of support systems, treatment options, and the impact of exercise on quality of life. Robert emphasizes the need for self-advocacy, the significance of community, and the personal growth that can arise from living with Parkinson's. The episode concludes with advice for those newly diagnosed, highlighting the importance of perspective and resilience in the face of challenges.00:00...
2025-12-2526 minThe Secret Life of Parkinson's#166: Preparing for Your Parkinson’s Appointment: What Doctors Really Need to Know | Dr. MantriIn this episode, Jessica and Brian talk to Dr. Mantri, a Movement Disorder Neurologist and the new Chief Medical Officer for the Parkinson's Foundation. Dr. Mantri dives into the importance of personalized patient care in managing Parkinson's disease and they explore how patients can prepare for appointments, the significance of care partners, and the value of community support. The conversation also touches on the need for better education for healthcare providers and the future goals of the Parkinson's Foundation.Chapters00:00 Introduction to the First Chief Medical Officer03:00 The Role of...
2025-12-0931 minThe Secret Life of Parkinson's#165: The Parkinson's Medication RollercoasterViewers have asked about our personal experiences with medication changes throughout our journey so far - the changes in dosage, the side effects, the different medications, trial and error. So in this episode, Jess and Brian each dive into their medication journey (Jess over 6 years and Brian over 10 years). The conversation also touches on alternative treatments and lifestyle adjustments that can aid in coping with Parkinson's symptoms.Chapters00:00 Introduction and Survey Insights01:02 Jessica's Medication Journey 06:40 Brian's Medication Journey 10:40 Exploring Alternative Treatments and Lifestyle Adjustments18:33...
2025-12-0320 minThe Secret Life of Parkinson's#160: 'Sooner On SI' Publisher opens up about his Parkinson's diagnosisIn this episode, Melissa and Jessica meet with John Hoover, Publisher of Sooner On SI (a Sports Illustrated channel). He shares his personal journey with Parkinson's disease, discussing his diagnosis, the challenges he faced, and the importance of advocacy and community support. He emphasizes the significance of open communication about the disease, the impact of medication management, and how hobbies like drumming can serve as therapeutic outlets. John also offers valuable advice for newly diagnosed patients, encouraging them to engage with their local communities and seek out resources to navigate their journey with Parkinson's.00:00...
2025-10-2132 minThe Secret Life of Parkinson's#159: You can still enjoy life with Parkinson's - one boaters perspectiveIn this episode, Jessica and Melissa welcome Skipper Darrell from Colorado, who shares his journey of living with Parkinson's disease since his diagnosis in February 2023. Darrell discusses his passion for long-range cruising and how he continues to pursue his love for boating despite the challenges posed by Parkinson's. The conversation delves into the importance of support groups, the impact of the diagnosis on family communication, and the significance of setting goals to maintain a fulfilling life. Throughout the episode, Darrell emphasizes the need for adaptation and resilience, encouraging listeners to focus on what they can still enjoy and achieve...
2025-10-1327 minThe Secret Life of Parkinson's#158: Living with Parkinson’s? These 3 Things Can Change Everything.0:00 - 0:54 Intro (Brian is on a work trip)0:55 - 2:33 Changing Parkinson's2:34 - 3:28 Ask me about my secret life (Parkinson's stories)3:29 - 5:15 YOPD CON 2025 in Seattle, Washington5:16 - 9:05 Parkinson's stories 9:06 - 11:00 Jessica's DBS (deep brain stimulation) update11:01 - 12:12 Adaptive DBS (deep brain stimulation) and Jess's explanation on how it works12:13 - 13:43 Charge your DBS batteries13:44 - 16:56 Feeling great after DBS (deep brain stimulation) surgery16:57 - 18:49 Medtronic Adaptive DBS and what appointments are like with the programmer18:50 - 20:02 Improvement on vs...
2025-10-0722 minThe Secret Life of Parkinson's#151: PERSONALIZED Parkinson's information based on YOUR needs - TurnTo AIYou want the latest updates on freezing of gait? PSP? Lewey Body? Tremor or dystonia? Apathy or depression? Introducing Jessica Dove London (for a second time), launching a new AI - personalized tool - for you...Turny. We first met Jessica Dove London when she launched the app, TurnTo AI for Parkinson's...a community AI platform where you can ask questions and get answers from AI/websites or the community. But this conversation she introduced TurnTo, an AI health sidekick, that provides personalized information: clinical trials, research, podcasts, blogs - every week - all related to your personalized requests...
2025-08-0628 minThe Secret Life of Parkinson's#148: Parkinson's & DBS: Jessica's Fears and Hopes for the FutureIn this episode, Brian, Melissa, and I dive into a pretty big topic—my upcoming deep brain stimulation (DBS) surgery for Parkinson’s. We talk through what the lead-up has been like, both medically and emotionally, and what I’m hoping for as I head into this next step. We also get into how Parkinson’s continues to shape our lives, what it’s taught us, and how crucial support from family (and each other) really is. It’s an honest conversation, filled with hope, nerves, and a lot of heart as we look ahead to what’s next.
2025-07-2221 minThe Secret Life of Parkinson's#147: A Caregiver Tool: How Mejo is Making Life EasierJessica going to the doctor: "Here are a few notes I wrote on paper. Oh! I captured a video on my phone somewhere to see my gait. Wait, did I mention I now go through two pharmacies?". And this is nothing. Many of those living with Parkinson's are also living with things like: cancer, diabetes, heart disease, surgeries, etc. And the caregivers I talk to all say the same thing: "I can't keep it all straight and I feel like I'm educating the doctor on all his 'other' ailments". Well, you are not alone....
2025-06-1931 minThe Secret Life of Parkinson's#146: Behind the Podcast - A Mission to Change Parkinson'sYou know The Secret Life of Parkinson’s podcast — but what you may not know is that it sparked something even bigger. Through the stories we’ve shared and the people we’ve met, the podcast pushed us to reimagine what our nonprofit, the 5KforJK could be. What started as a single 5K in honor of Jessica’s diagnosis has grown into "Changing Parkinson’s"—a movement to help people live better with PD, today. Visit www.changingparkinsons.org to learn more.In this episode, we take you behind the scenes to share:-How the pod...
2025-06-1120 minThe Secret Life of Parkinson's#145: The Parkinson’s Foundation Helpline: Real Answers from a Real PersonParkinson's Foundation Helpline: 1-800-4PD-INFOIn this episode, Jessica and Brian met with Linda, a representative from the Parkinson's Foundation to talk about the helpline's purpose, the types of questions it addresses, and the importance of personalized support for individuals living with Parkinson's disease. The conversation highlights the helpline's role in providing context, resources, and emotional support to patients and caregivers alike, emphasizing the need for community and connection in navigating the challenges of Parkinson's.00:00 Introduction to the Podcast and Helpline03:12 Understanding the Parkinson's Foundation Helpline
2025-05-2023 minThe Secret Life of Parkinson's#142: Learn how people with Parkinson's can Regain and Retain your Speech and SwallowingIn this episode, Jessica and Brian talk with Samantha, the founder of the Parkinson Voice Project. They discuss the importance of speech therapy for individuals with Parkinson's, the unique challenges they face, and the significance of intentional speech. They talk about how awareness and access to resources for people with PD and caregivers are critical when it comes to commnication and therapy. 00:00 Introduction to Parkinson Voice Project01:01 The Journey of Speech Therapy for Parkinson's10:10 Understanding Speech Challenges in Parkinson's18:02 The Importance of Intent in Speech Therapy23:56...
2025-04-2130 minThe Secret Life of Parkinson's#111: Life with a Parkinson's parent - a teenagers perspectiveDon't forget, you can also check out our video podcast on YouTube: https://www.youtube.com/@thesecretlifeofparkinsonsMeet my daughter, Kate Krauser, as she brings honesty and humor to life with a Parkinson's mom...and advocate.My twins were just 9 years old when I was diagnosed. Long before I was diagnosed though, Kate, at the age of 7 and 8, was already "caring" for me and my symptoms. She would massage my leg and foot due to the rigidity and hold my \hand when it would shake. A few months after my diagnosis, I talked to my...
2024-07-2219 minThe Secret Life of Parkinson's#110: The Ultimate Online Resource for Parkinson's...coming soon!!Even though most people tell you "Don't google Parkinson's" after you're diagnosed, it's hard not to. So when we do, we are filtering through a sea of resources. Great resources, might I add! But sometimes I have a specific question that doesn't require a call to the doctor, or I'm finally ready to look into clinical trials, or I want to read about all the possible options that are available to me and how it has or has not helped others living with Parkinonson's. But there's nothing out there today that "houses" all of the great available resources. Until...
2024-07-1632 minThe Secret Life of Parkinson's#93: Coping with Parkinson's arm pain and masked faceIn this episode, we talk about Jessica's approach to her new Parkinson's symptom (shoulder and elbow pain/tension) and tips on how Brian can exercise his masked face. We cover a few other random topics...not sure why, but this episode just made us laugh. Always good when have fun with your PD friends ;)Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2024-02-1415 minThe Secret Life of Parkinson's#88: What topics to expect in 2024 from The Secret Life of Parkinson'sBrian and Jessica share future episodes that you can expect in 2024!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2024-01-0819 minThe Secret Life of Parkinson's#81: Roz's Deep Brain Stimulation (DBS) surgery 1 year laterIn this episode, Roz gives us an update on her DBS journey. We always hear the success stories, and while hers is still a success, she's encountered a few bumps along the way. Listen to her current struggles and how she's working to overcome them.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-10-1320 minThe Secret Life of Parkinson's#79 & #80: Uncovering the 5 Neurodegenerative ParkinsonismsIn this episode, Dr. Patel describes the difference between the 5 Neurodenerative Parkinsonisms: Parkinson's Disease, Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), and Lewey Body Dementia (which is discussed in Part 2). We take a quick break and come back on with Dr. Patel to talk about Lewey Body Dementia further and how it's different from Parkinson's Dementia and Alzheimer's. Great episode that everyone should hear!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-09-2841 minThe Secret Life of Parkinson's#78: The 'Cookie Queen' of Columbus, OH and her journey with Parkinson's DiseaseFor those living outside of Ohio, Cheryl Krueger is a well-known entrepreneur in Columbus and is referred to as the 'Cookie Queen'. (Order her cookies and you'll quickly find out why: https://ckruegers.com/)She was diagnosed with Parkinson's 10 years ago, has faced, and continues to face, many daily challenges with walking, balance, and hallucinations. She has an incredible outlook on life and a sense of humor about her hallucinations. You don't want to miss this episode!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://re...
2023-09-2517 minThe Secret Life of Parkinson's#77: DBS Journey in Canada vs. the USA - A Patient's PerspectiveJoin us for an exclusive interview with a Parkinson's Disease (PD) patient living in Canada who underwent Deep Brain Stimulation (DBS) surgery. Our guest shares her personal experiences and unique insights into the DBS process, shedding light on how it differs between Canada and the United States.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-09-2521 minThe Secret Life of Parkinson's#76: Blake Bookstaff - author of “You have Young-onset Parkinson’s DiseaseBlake Bookstaff, young-onset patient and author of: “You have young-onset Parkinson’s disease” joins us to talk about his journey with Parkinson’s and what he hopes his book will accomplish. P.S. his book is relevant for all ages of Parkinson’s patients.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-08-3020 minThe Secret Life of Parkinson's#75: A deep, personal view of The National Plan to End Parkinson's Act with Fred PiccoloAs you saw in Episode #74 with Chris Jones, we discussed the National Plan to End Parkinson's Act. In this episode, we interview Fred Piccolo, a young-onset Parkinson's Patient AND the Director of Special Projects for Congressman, Gus Bilirakas, also working on this National Plan. His personal story and hope that is inspiring. By passing this bill in Congress, he believes we could see a cure in our lifetime.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-08-2816 minThe Secret Life of Parkinson's#74: Unveiling the National Plan to End Parkinson's Act: An interview with Chris JonesIn this riveting episode, we sit down with Chris Jones, a dedicated staffer working alongside Gus Bilirakas, to dive deep into the National Plan to End Parkinson's Act. Chris shares his firsthand insights, shedding light on the act's significance and the path forward. If you're passionate about making a difference and eradicating Parkinson's disease, this conversation is a must-listen. Join us in advocating for change as we discuss the importance of reaching out to your state representative to ensure the passage of this crucial act. Tune in now and become a part of the movement that aims to change...
2023-08-2815 minThe Secret Life of Parkinson's#73: Parkinson's clinical research on exerciseDaniel Corcos, Ph.D. at Northwestern University, is running the first randomized control trial designed to investigate the effects of moderate- and high-intensity aerobic exercise on disease progression in untreated patients with Parkinson’s, called SPARX3. Listen as Dr. Corcos explains how aerobic exercise is a vital treatment for people living with Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-08-0724 minThe Secret Life of Parkinson's#72: Do's and Don'ts of Surgery with Parkinson'sIn this episode, Gene who is 75 and living with Parkinson's for 4 years, we learn that he is no stranger to surgeries. However, his most recent experience has his family speaking up about what they wish they knew or wish they would have done prior to this surgery. Listen in and learn about how to advocate for yourself or a loved one when you have a hospital stay.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-08-0423 minThe Secret Life of Parkinson's#71: Kirk Gibson Foundation talks plans for Parkinson's in MichiganMichelle Newman joins us from the Kirk Gibson Foundation to talk about plans their foundation has for Parkinson's patients living in Michigan. Kirk Gibson is a former professional baseball outfielder and manager and was named the National League MVP in 1988. During his career, he hit two dramatic home runs in the World Series! He is currently a color commentator for the Detroit Tigers on Bally Sports Detroit and a special assistant for the Tigers.In 2015, Kirk was diagnosed with Parkinson's and expanded the mission of the foundation to raise awareness and funding for Parkinson’s...
2023-07-2918 minThe Secret Life of Parkinson's#70: Tips and Tricks to Living with Parkinson'sIn this episode, Jessica and Brian share a few tips and tricks that they use in their everyday life to make things a little easier. Everything from driving to clasping your necklace. Share your everyday tips with us in the comment section!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-07-2317 minThe Secret Life of Parkinson's#69: Jessica's young-onset Parkinson's journey: Advocacy, Faith, and Personal GrowthIn this episode, our host, Jessica Krauser, takes you on an intimate exploration of the early days of her diagnosis to her remarkable transformation into an empowered advocate. Delve into the pages of her journal, where she meticulously documented the symptoms that led her to the life-altering diagnosis. Discover the depths of her prayer journal, where Jessica sought solace, answers, and guidance from God, grappling with the uncertainty and challenges that Parkinson's presented.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.co...
2023-07-1114 minThe Secret Life of Parkinson's#68: Unlocking the Power of Exercise: A Guide for Parkinson's PatientsIn this empowering video, we delve into the crucial role of exercise in the lives of people living with Parkinson's disease. Discover how exercise has been proven to slow the progression of Parkinson's and enhance overall well-being. Whether you prefer walking, biking, running, rowing, or lifting, we encourage you to do what you love while incorporating other activities like yoga for stretching, dance for coordination, balance exercises, and cognitive work.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-07-1122 minThe Secret Life of Parkinson's#67: How loved ones deal with your Parkinson'sWe conducted a survey within our YouTube community to gain insights into how our loved ones cope with our Parkinson's disease. Some ignore it or stress about it, while others talk about it, seek professional guidance, or have joined a dedicated support group.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-06-2310 minThe Secret Life of Parkinson's#66: Reel and Real: Exploring Carbidopa/Levodopa and Parkinson's in CinemaIn this podcast, we delve into the intersection of cinema portrayls of Parkinson's and how we feel about carbadopa/levedopa.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-06-1518 minThe Secret Life of Parkinson's#65: Living with Parkinson's? You need this kit!In this exciting episode, we are thrilled to unveil the finished product of our much-anticipated First Step Set. In this episode, you'll get an exclusive sneak peek at the personalized items we curated for this kit. We already distributed 100 kits - listen to find out how you can support us and hopefully receive a kit in the future!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-06-1517 minThe Secret Life of Parkinson's#64: Discover the Michael J Fox Foundation and Team FoxJoin us as we chat with Danielle, a representative from the Michael J Fox Foundation, about the groundbreaking BioMarker study. Gain a deeper understanding of its impact on Parkinson's research and learn how you can make a tangible difference by joining Team Fox.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-05-2619 minThe Secret Life of Parkinson's#63: Parkinson's revealed: Vital knowledge for every patient!Join us as we embark on a journey that began as a straightforward Q&A session with the esteemed Dr. Patel, only to delve into a startling revelation. In this episode, we explore the necessity for individuals with Parkinson's who find themselves admitted to a hospital, be it for surgery or any other reason, to disclose specific medications hospital staff should avoid due to their condition. The significance lies not in the interaction with other drugs but rather in their interaction with Parkinson's itself. Don't miss out on this essential episode! Tune in now!Support this...
2023-05-1834 minThe Secret Life of Parkinson's#62: Brian's first vacation since his Parkinson's diagnosisThis is a very short segment, but Brian shares how he felt on his first vacation in 7 years (since his diagnosis). #Don'tBeAfraidToTravel!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-05-1504 minThe Secret Life of Parkinson's#61: Takeaways from Team Fox MVP eventJoin us for a deep dive into the cutting-edge world of Parkinson's research and clinical trials! We've got the inside scoop from April's Team Fox MVP event, and we're excited to share all the latest breakthroughs with you. Plus, we're shining a spotlight on Michael J. Fox's powerful new documentary, Still. Don't miss this opportunity to stay informed and inspired!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-05-1514 minThe Secret Life of Parkinson's#60: Employment advice when living with Parkinson'sIf you've been diagnosed with Parkinson's and don't know how to talk to your employer or when to talk to your employer, listen to the advice we received when we interviewed a retired Law Employment Attorney! You don't want to miss it!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-05-1523 minThe Secret Life of Parkinson's#59: The good and bad: Reactions from family & friends to my Parkinson's diagnosisTelling family and friends about your diagnosis can be difficult. Did they deny it, accept it, or feel like they could fix it? Communicate, communicate, communicate!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-04-2421 minThe Secret Life of Parkinson's#58: A therapists journey with Parkinson'sLiz Miller is a psychotherapist and shares her Parkinson's diagnosis journey. Acting out dreams, depression, tremors, and finding a PD community.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-04-2422 minThe Secret Life of Parkinson'sEpisode 57: The Ripple Effect: How a Woman's Fundraiser Created a Parkinson's CommunityThe Secret Life of Parkinson's: In this episode, you'll hear from Bethany Richards, the Founder of Bike Box Project. A simple idea she had years ago (putting a box on her bike to raise awareness and donations for MJFF) has turned into a Parkinson's community of over 70 people living with PD in New Bern, North Carolina!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-04-0718 minThe Secret Life of Parkinson'sEpisode 56: Parkinson's patient making a difference globally and locallyI can't say enough about Dr. Soania Mathur. To put it simply, she is extraordinary. She has been living with Parkinson's since she was 28...and now, 25 years later, she's not talking to us about her aches and pains (although I'm sure she has plenty), rather, she's sharing with us her path to advocacy. She said, "when you know better, you have to do better". And that's exactly what she's doing. Her passion and determination are changing the lives of others, not just locally, but globally.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAd...
2023-03-3020 minThe Secret Life of Parkinson'sEpisode 55: Answering (and asking for) your Parkinson's questions!Brian and I take a few minutes to answer questions that some of you have asked in our comments! We are also asking what questions you may have that we can address when we have Dr. Patel on again. Check out The Secret Life of Parkinsonn's on YouTube if you want to leave a comment/questionSupport this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-03-3010 minThe Secret Life of Parkinson'sEpisode 54: MRI guided Focused Ultrasound (FUS) for Parkinson's DiseaseIf you haven't heard about MRI-guided Focused Ultrasound (FUS), listen to our guest, Mark, a 60-year-old living with Parkinson's for 14 years, talk about his experience with the procedure. DBS was an option, but he wasn't thrilled with the idea of having wires in his head, so he decided to go the Focused Ultrasound route. He explains his outcome as "a second chance"...that it has been life-changing for him.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-03-3021 minThe Secret Life of Parkinson'sEpisode 53: Parkinson's and Pickleball...and a different approach to DBSIn this episode, Marcus Woodhouse joins us to talk about his adventures with pickleball and Parkinson's. It's a sport he picked up 1 year before he was diagnosed, but it's also a sport that is helping him more than he realized. It's the perfect combination of exercise, socializing, and constantly moving! He also shared with us that he is scheduled to have CereTom(r) DBS. Marcus and Brian discuss the differences between their two DBS surgeries. We'll follow up with him again soon to hear more about that procedure.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/do...
2023-03-3017 minThe Secret Life of Parkinson'sEpisode 52: Everyday with Parkinson's is differentThe Secret Life of Parkinson's: BRIAN IS BACK! In this episode, we spend a little time just catching up on how we are feeling. While we might look positive and put together, we all experience our off or bad days, and that's ok.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-03-3015 minThe Secret Life of Parkinson'sEpisode 51: What is the Parkinson's Progression Marker Initiative (PPMI) and what are we learning?In this episode, I met with Jennifer, a Clinical Research Coordinator from the Cleveland Clinic in Ohio, who is working on an MJFF-sponsored research project called PPMI - Parkinson's Progression Marker Initiative. It's a landmark study collaborating with partners around the world to create a robust open-access data set and biosample library to speed scientific breakthroughs and new treatments. Jennifer explains how critical the PPMI study is to hopefully one day find what causes someone to have Parkinson's as well as other learnings they have found thus far.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/do...
2023-03-3019 minThe Secret Life of Parkinson'sEpisode 50: When Parkinson's is in the familyIn this episode, you'll meet one of my first young-onset friends, a young-onset woman that was diagnosed 3 years ago...just about the same age that HER mother was diagnosed when she was just a kid. You'll hear what it was like growing up with a young-onset mother as well as what it's like to have a young-onset now herself. Unlike most of us, she saw what Parkinson's is capable of. But, talking to her MDS on her first visit, she learned that there are so many new ways to slow the progression - things they didn't know back when...
2023-02-1731 minThe Secret Life of Parkinson'sEpisode 49: Experiencing new pain with Parkinson’sWe don’t always remember how our first symptom felt, but when new symptoms occur, we are reminded…again, and again, and again. We might look like we are put together, but each of us, optimistic or not, will have our bad days. In this episode, I share mine with Melissa.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-02-1017 minThe Secret Life of Parkinson'sEpisode 48: 5 things to bring to your next PD appointmentAre you bringing all the right things to your PD appointment to make the most out of the time you have? Jessica and her Neurologist, Dr. Andrea Malone, MDS at OhioHealth, discuss how patients and caregivers/family members can prepare for these important appointments.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-02-0228 minThe Secret Life of Parkinson'sEpisode 47: Parkinson's and your voiceI had no idea that over 75% of us (people with PD) will develop speech or voice problems at some point along our PD journey. We learned about voice exercises from our previous episode, #45 with Gina a Speech Pathologist, but in this episode, Dr. Loochtan from Ohio ENT will talk about procedures patients can undergo.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-01-2519 minThe Secret Life of Parkinson'sEpisode 46: There are no standards for Parkinson's DiseaseWe welcome Dr. Patel, MDS from OhioHealth, back to our podcast. In this episode, we discuss why there is a lack of standardization when it comes to medication and treatment for Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-01-2019 minThe Secret Life of Parkinson'sQuick Parkinson’s Highlights - 2022 Year EndThe Secret Life of PD: What a great year! While many people don’t think of Parkinson’s as a blessing, we do. 2022 brought us connections with people across the world that otherwise would not have happened. We want to thank you for your support, positive comments, and questions. Keep them coming. We have a lot more in store for 2023!!! Stay tuned!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2023-01-0217 minThe Secret Life of Parkinson'sEpisode 45: People with Parkinson's need to exercise their VOICES!Ever wonder what your vocal cords look like? Check out this episode as we talk to Steve, our podcast Producer and person with Parkinson's, along with his speech therapist, Gina. Learn the different exercises and therapies available for people that experience voice changes due to Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-12-2215 minThe Secret Life of Parkinson'sEpisode 44: Botulinum toxin (Botox) for Parkinson's symptoms? Really?Did you know people living with Parkinson's can receive botulinum toxin (aka Botox) injections to help relieve rigidity and in some cases tremors and even drooling? Learn more from Dr. Patel, MDS at OhioHealth.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-12-1517 min
The Secret Life of Parkinson'sEpisode 43: How to enjoy the Holidays when living with Parkinson'sThe Secret Life of PD: This holiday season, if you are living with PD, give yourself a pass. Be a little selfish. Stick to your routines. The holidays can be a stressful time for anyone. Stress + Parkinson's = increase in symptoms. So do yourself this holiday season, especially if you have a very big, loud extended family like mine (I mean that in the most loving way possible - and my family would agree), take a break. Allow yourself some time to do what's best for you. Happy Holidays!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/don...
2022-12-0810 minThe Secret Life of Parkinson'sEpisode 42: People with Parkinson's managing "Freezing of Gait"The Secret Life of Parkinson's: Freezing of Gait (FOG) is just another potential symptom that people living with Parkinson's may experience. In this episode, we talk to Ginger, a fellow PDNextSteps gym member, who was diagnosed in 2020 and has been dealing with Freezing of Gait for the past year. She shares what it feels like and a few tips that work for her.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-12-0117 minThe Secret Life of Parkinson'sEpisode 41: #MOVEmber4PD with Jimmy ChoiThe Secret Life of Parkinson's welcomes Jimmy Choi! If you have Parkinson's and don't know Jimmy yet, you have to check this out. He has been living with Parkinson's for over 20 years and is a huge advocate for people living with Parkinson's. During the pandemic, he and his wife started the #MOVEmber4PD - a month-long virtual event to mobilize people to MOVE and spread awareness on how moving helps people with Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.co...
2022-11-2322 minThe Secret Life of Parkinson'sEpisode 40: People with Parkinson's running marathonsThe Secret Life of Parkinson's: Over the top. I used to think running a marathon was over the top. Joe Drake has now given over the top a new meaning. In his new book "Run With It" we learn that it's not just the fact someone with Parkinson's is running a marathon that's over the top. Tune in to this episode to learn more.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-11-1624 minThe Secret Life of Parkinson'sEpisode 39: Things we wish we knew when we were diagnosed with Parkinson'sThe Secret Life of Parkinson's: What do you wish you knew when you were diagnosed with Parkinson's? Listen to what some people with Parkinson's wish they knew when they were diagnosed.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-11-0314 minThe Secret Life of Parkinson'sEpisode 38: How do people living with Parkinson's view the disease: a detour or a roadblock?The Secret Life of Parkinson's: People are scared when they hear they are diagnosed with Parkinson's. What scares us the most are stories we hear from others or our own memories of family or friends living with Parkinson's that did not have a good life because they gave in to the disease, they didn't exercise (or know to exercise), or it was so long ago that the medications and therapies we now have were not available. So how can we look at Parkinson's as a detour and not a roadblock in life?Support this podcast at — ht...
2022-10-2713 minThe Secret Life of Parkinson'sEpisode 37: The last steps of the DBS (deep brain stimulation) surgery - getting it turned on!The Secret Life of Parkinson's: Check out the last phase of Brian's DBS process - getting the program turned on! His journey with DBS continues, but how it's all about tweaking the program to provide him with the best outcomes for his Parkinson's. Thanks for bringing us along, Brian!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-10-2112 minThe Secret Life of Parkinson'sEpisode 36: Can a traumatic life experience accelerate a Parkinson's diagnosis?The Secret Life of Parkinson's: In 2020, Carrie Boorse was caring for her 14-year-old daughter who was diagnosed with cancer. During the 6 months of her daughter's chemo treatment, Carrie noticed something was off. Now that her daughter is cancer-free, Carrie started to focus on the pain and issues she noticed months earlier. Her doctor assured her that whatever she was feeling was probably due to the traumatic experience she just endured. But Carrie wasn't sold. That's when she met with a Neurologist...or three.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: ht...
2022-10-1319 minThe Secret Life of Parkinson'sEpisode 35: Why strength training is critical for Parkinson's patientsThe Secret Life of Parkinson's: Another great episode with Melissa Carlson, fitness instructor, and Owner of PDNextSteps. In this episode, Melissa explains that it's never too late to start strength training - so start today if you haven't already!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-09-2915 minThe Secret Life of Parkinson'sEpisode 34: How the Parkinson's Foundation can help people living with Parkinson's today!The Secret Life of Parkinson's: Did you ever wonder what the Parkinson's Foundation has to offer people living with Parkinson's and caregivers? Well, tune in and find out the resources that are right at our fingertips to live a better life today.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-09-2223 minThe Secret Life of Parkinson'sEpisode 33: Life with Parkinson's...and heart disease...and 2x breast cancer survivorThe Secret Life of Parkinson's: Ever feel like life is just too hard with Parkinson's? While she may have hard days like the rest of us, Karen Downing shares her experience with not just Parkinson's, but heart disease and breast cancer (2x survivor)! At the age of 72 after her PD diagnosis, Karen started exercising for the first time. She makes no excuses for bettering herself. Do you?Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-09-1819 minThe Secret Life of Parkinson'sEpisode 32: Light laser therapy for Parkinson'sThe Secret Life of PD: We would like to welcome Dr. Wayne Markman, CEO of Symbyx Biome in Australia. Wayne shares his knowledge of the history of light laser therapy. Is this a new tool to help slow the progression of Parkinson's?This is not a paid promotion. Brian and I were simply interested in the device and wanted to learn more in this area.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-09-0717 minThe Secret Life of Parkinson'sEpisode 31: Deep Brain Stimulation (DBS) surgery - before it's turned onThe Secret Life of Parkinson's: In this episode, we check in with Brian who has gone through deep brain stimulation surgery: the right side in June, the left side in July, and the battery implant in August. We get a chance to talk to him about the ups and downs, right before his DBS equipment get's "turned on".Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-09-0210 minThe Secret Life of Parkinson'sEpisode 30: A day in the life of Parkinson's - the play!The Secret Life of Parkinson's: in this episode, Matthew Moore (artist, educator, and young-onset PD patient) shares his journey with Parkinson's and how he wrote a play about it. Diagnosed in 2019, Matthew has continued his acting career but wanted to bridge the gap between the patient and their medical team. He wrote a play using his own experiences and interviewing other people with PD and their caregivers. His goal for the play is for others to understand our daily struggles and have empathy along our journey.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donations
2022-08-2524 minThe Secret Life of Parkinson'sEpisode 29: How the 5KforJK Parkinson's fundraiser connects the PD communityIn this episode, we welcome the co-founders of the 5KforJK walk for Parkinson's: Carrie Schaefer and Melissa Carlson (Michelle Adams was not available). The 5KforJK is now a 501(c)(3) nonprofit organization, but it started in 2021 as a 5K event to bring awareness to the Parkinson's community. Through that one event, we connected to the Michael J Fox Foundation, connected with more PD patients locally in Columbus, and also made connections across the globe. Check out this episode and learn how the 5KforJK was founded and where we are headed.Support this podcast at — https://redcircle.com/th...
2022-08-1819 minThe Secret Life of Parkinson'sEpisode 28: Criteria Parkinson's patients can use to find the best Neurologist for themThe Secret Life of Parkinson's: This episode was created because of a comment we received from one of our listeners. The question was: "I thought my doctor was great until I realized he was treating the disease and not me, the patient. What criteria do others look for in finding the right Neurologist / Movement Disorder Specialist?" So I reached out and asked my local PD community. This episode shares their criteria based on experience.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://re...
2022-08-1118 minThe Secret Life of Parkinson'sSPECIAL EPISODE: 5 Yoga movements Parkinson's patients can do in a chairThe Secret Life of PD Special Episode: If you listened to our previous episode with Naomi Hoyt, you won't want to miss this one! Naomi, a Yoga instructor, walks us through 5 yoga movements anyone can do right from their chair (and in jeans - if you're like Brian!). So take a seat and a deep breath and join us for 12 minutes of yoga!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-08-0513 minThe Secret Life of Parkinson'sEpisode 27: How Yoga can help Parkinson's symptomsThe Secret Life of Parkinson's: In this episode, we talk with Naomi Hoyt, a Yoga Instructor who specializes in adults over 50 years old. Naomi also works with Parkinson's patients and wanted to share how Yoga can benefit everyone - Parkinson's or not - and the top 5 myths that people commonly think about when it comes to Yoga. Spoiler alert!! Yoga isn't just for flexible, young women - anyone can do it at any age!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://re...
2022-07-2918 minThe Secret Life of Parkinson'sEpisode 26: PD patient's fears and excitement for DBS surgeryOn episode #26 of The Secret Life of Parkinson's, Brian Baker shares more details about his journey with Deep Brain Stimulation (DBS) surgery. He walks us through how he made the decision, what it was like waiting in the hospital, how it felt while they were doing the procedure, and how he felt the days following. Brian goes in for his next surgery tomorrow (Friday) for the other side - good luck, Brian!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/pr...
2022-07-2215 minThe Secret Life of Parkinson'sEpisode 25: Talking to your kids about Parkinson'sJoining us today is my son Ben! He's 12 years old and going into 7th grade. Ben and his twin sister, Kate were 9 years old when I was diagnosed, but they noticed my symptoms earlier than that (before we knew what it was). I told them both a few months after I was diagnosed, and we talk about the disease often (when I'm fundraising or having a bad day), but I never actually sat down and talked to them like I did today with Ben. But I'm glad I did - kids know more than we think!...
2022-06-3013 min
The Secret Life of Parkinson'sSPECIAL EDITION! DBS feedback from a patient - Brian!The Secret Life of PD: special edition!!!! Our very own Brian Baker talks to us 2-days post DBS! See his newly shaved head and hear how his first procedure went! So proud of you Brian! (Sorry, to our producer, Steve! Brian and I went rogue and didn’t run this by you 😉).Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-06-2702 minThe Secret Life of Parkinson'sEpisode 24: When DBS is turned on - update on RozThe Secret Life of Parkinson's: We got another update on Roz - now with her DBS connected and "turned on". She is doing great and has wonderful tips to share and as usual, an amazing outlook on life. We can't thank you enough, Roz, for sharing your Deep Brain Stimulation Journey with us! We'll check back in with her soon!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-06-2319 minThe Secret Life of Parkinson'sEpisode 23: Tips from a Parkinson's CaregiverThe Secret Life of PD: In this episode, we welcome Ruth Stenberg. Brian and I exercise with her husband Rick, who was diagnosed with Parkinson's a few years ago. We appreciate all the caregivers out there and want to give a special thanks to Ruth, for opening up and sharing personal insights that may help another PD patient or caregiver. My favorite takeaway was when she discussed the importance of COMMUNICATION. Having Parkinson's, people naturally want to help and do things for you. But sometimes we want to do it on our own. So talk to your PD patient...
2022-06-1724 minThe Secret Life of Parkinson'sEpisode 22: Parkinson's and your careerThe Secret Life of PD: It's not easy being at the peak of your career and then learning you have Parkinson's. Brian and I discuss our career path post-Parkinson's and how we try and manage and minimize the stress from our jobs that can increase our symptoms.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-06-1009 minThe Secret Life of Parkinson'sEpisode 21: How to take Parkinson's MedicationThe Secret Life of PD: Many people don't realize HOW to take their Parkinson's medication...or I should say, how to start. First, don't just start taking the prescribed amount on day 1: titrate up slowly. So if you are told to take 3 carbidopa-levodopa each day, start by taking half a pill each day for 3-4 days, then increase by another half pill. Do this until you are up to your prescribed dose. Consult with your doctor or pharmacy first. But by doing this, I was never nauseous or lightheaded in the beginning because I was getting my body used...
2022-06-0311 minThe Secret Life of Parkinson'sEpisode 20: Common signs of apathy and depression in Parkinson's patientsThe Secret Life of PD: While Brian and I may be cheerful today, there were and still are those "darker days" with Parkinson's. Over 50% of PD patients deal with non-motor symptoms, including apathy (feeling joyless / emotionally flat); and depression (a shorter change in mood vs. a constant state of sadness). Make note of changes in your feelings and behavior. These symptoms are commonly overlooked and untreated.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-05-3112 minThe Secret Life of Parkinson'sEpisode 19: Why Bigger is Better with Parkinson's exercisesThe Secret Life of PD: In this episode, we talk about how "size matters" with Parkinson's. Melissa Carlson, owner of PDNextSteps share with us that Parkinson's makes our movements smaller, our voices quieter, and even our writing gets smaller. But by practicing BIGGER movements and overexaggerating our moves and our voices, we can retrain our brain. So go big or go home!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-05-1909 minThe Secret Life of Parkinson'sEpisode 18: Things we fear with a Parkinson’s diagnosisThe Secret Life of PD: Today Brian and I discuss fears we had when we were initially diagnosed with young-onset Parkinson's. Things like: will my kids get PD, will we be in a wheelchair anytime soon, will I lose cognitive abilities, or will we have a masked face (showing no emotion)? We all struggle with different fears in the beginning, but as time progresses and you start and/or continue to exercise, take medication and join a PD community, we hope that fear lessens. Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inq...
2022-05-1311 min
The Secret Life of Parkinson'sSPECIAL EPISODE: DBS Patient Update - Roz ParishThe Secret Life of PD: In this SPECIAL episode, I get an update from Roz, (a Parkinson's friend) who shared her pre-DBS story in Episode #7. Now, after 3 surgeries, she talks about her experience and what is still to come. Thanks again, Roz, for opening up and sharing your story!(Special thanks to my son, Ben, who stepped in to do the editing of this video while Steve is out of town. Not bad for a 12-year-old! :)Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brands
2022-05-0511 minThe Secret Life of Parkinson'sEpisode 17: Steps Parkinson's patients can take when experiencing freezing of gaitThe Secret Life of PD: In this episode, Joel Sivillo, a Physical Therapist, walks us through various tips and tricks that Parkinson's patients can use if they experience freezing of gait. For those that experience freezing, this is definitely the episode you want to tune into. Check it out!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-04-2919 minThe Secret Life of Parkinson'sEpisode 16: Steve's DBS Party TrickIn this episode, we welcome Steve Brandenburg back to talk about, and show us, his entire DBS (Deep Brain Stimulation) journey. While we may joke and make light of his "party trick" (showing his tremor come on then off again), with the DBS remote, it is a very deep and emotional "trick" to share. We are so grateful for him being vulnerable and allowing everyone to see and hear what it's like to have DBS surgery. Please remember, we are just patients discussing OUR experiences. We are no medical professionals.Support this podcast at — https://redcircle.co...
2022-04-2124 minThe Secret Life of Parkinson'sEpisode 15: "Is There a Doctor in the house"In this episode, Brian and I have the opportunity to interview Dr. Patel, a Movement Disorder Specialist at OhioHealth here in Columbus, OH. What a great segment! If you are new to Parkinson's (or even if you've had it for years), Dr. Patel does a great job explaining Parkinson's, dopamine, carbidopa-levodopa, medication vs surgery, and Neurologist vs MDS. We touched on a lot! This is perfect for anyone curious to learn more about PD.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://re...
2022-04-1520 min
The Secret Life of Parkinson'sEpisode 14: "Live from New York!"In this episode, Melissa Carlson and I share what we learned at the Team Fox MVP Celebrations in New York City. Team Fox is the grassroots community fundraising program of The Michael J. Fox Foundation and each year they bring the top fundraisers together to share the latest on research, what they are funding, and to network with one another. In 2021, my Team Fox group raised over $86,000! And we're doing it again this year.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://re...
2022-04-1013 minThe Secret Life of Parkinson'sEpisode 13: Steve's Story, "Pass the Kool Aid"In this episode, I share Steve Brandenburg's PD story, "Pass the Kool-Aid". Steve is a PD patient who has undergone DBS surgery (which we will talk about in a future episode) and is our Podcast Producer. He shares his fears, and the dark place he went to; but then he shares how he found hope and a community that changed his outlook on life. We all want to "get to the other side" of this diagnosis (aka: feel normal again). So we need to learn how to accept it and find others we can relate to you. Find a...
2022-04-0115 minThe Secret Life of Parkinson'sEpisode 12: The Journey of Young OnsetIn this episode, our special guest, Samantha Anderson, shares her diagnosis journey. As a 36-year-old Young-onset Parkinson's patient, Samantha has fears of what Parkinson's will bring to her future, but instead of constantly focusing on "what might happen", she decided to start "living in the present".Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-03-2415 minThe Secret Life of Parkinson'sEpisode 11: Business Owners and Parkinson'sIn this episode, our special guest, Dave Kolbe, a local Construction business owner, talks about his journey with Parkinson's (and a cancer diagnosis). He talks about how he shared his diagnosis with family, co-workers, and eventually his clients. Learn how Dave handles stress, incorporates exercise, and how he's managing the future of his company. A true inspiration!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-03-1718 minThe Secret Life of Parkinson'sEpisode 10: Be Sad or be StoicIn this episode, our special guest, retired Major General Denny Laich, shares how the stoic philosophy helped in dealing with his recent Parkinson's diagnosis.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-03-1017 minThe Secret Life of Parkinson'sEpisode 9: Your Coming out PartyIn this episode, we share our personal stories of how we each talked to family, friends and co-workers. Each in our own way - as we say in our exercise class, "you do you". I talked to everyone and everyone but that's just me. You might want to keep things to yourself. But I hope it helps to hear how others have shared their diagnosis.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-02-2812 minThe Secret Life of Parkinson'sEpisode 8: Tricks of the TradeIn this episode, we have a show and tell! As our disease progresses, our ability to do everyday tasks becomes more difficult. Brian shares a few of his favorite products - ranging from an electric toothbrush to a specific mouse of his computer and many more!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-02-2513 minThe Secret Life of Parkinson'sEpisode 7: Prepping for DBSIn this episode, we are joined by Roz Parish, a Parkinson's friend, who is preparing to undergo DBS surgery (Deep Brain Stimulation) two weeks from now. We had her share her excitement, fears, and ultimately, what led her to this surgical decision. DBS might not be for everyone, but it's always helpful to know what options are out there for PD patients. As always - consult with your doctor!Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-02-2116 minThe Secret Life of Parkinson'sEpisode 6: "Jessie, why so many squats?"In this episode, our special guest, Melissa Carlson, owner of the gym, PDNexSteps, talks about the importance of adding exercise to our daily routine. We focus specifically on how squats benefit everyday living such as getting in and out of a car, standing up, and sitting down. Squats - they're game-changers :)Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-02-1911 minThe Secret Life of Parkinson'sEpisode 5: I want to cut off my toe!In this episode, we discuss how rigidity and dystonia in your feet affect our everyday lives. From how it feels to drive a car to not being able to wear high heels any longer due to the discomfort. As always, talk to your doctor about new or worsening symptoms. There may be things that can help outside of medication like exercises or botox. And don't be shy - go out and find some cute, stylish, but comfy orthopedic shoes! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brands
2022-02-1509 minThe Secret Life of Parkinson'sEpisode 4: For the Love of NapsIn this episode, we discuss the importance of sleep. Getting quality sleep is important for everyone - regardless of a diagnosis. For those with Parkinson's, give yourself a pass and know it's ok to slow down during the day and take a nap...schedule one if you need to! Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-02-1111 minThe Secret Life of Parkinson'sEpisode 3: Did you see that?In this episode, we discuss another side of Parkinson's that is not visible to others - hallucinations. PD patients who experience hallucinations may dismiss what's occurring or hesitate to discuss it with caregivers, fearing what others think. Speak up and talk to your physician.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-02-0811 minThe Secret Life of Parkinson'sEpisode 2: JoylessIn this episode, we share our stories about feeling "Emotionless, Empty, and Joyless", even though we know we are happy with family, friends, and life. It's a symptom most of us overlook. We don't necessarily tie our emotions and mood to Parkinson's; when in reality, it is a very real symptom that affects so many PD patients.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-02-0213 minThe Secret Life of Parkinson'sEpisode 1: We Have Parkinson'sThis is our first podcast in "The Secret Life of PD". In this episode, we discuss symptoms leading up to our diagnosis, how we felt, and what we knew or thought we knew about Parkinson's.Support this podcast at — https://redcircle.com/the-secret-life-of-parkinsons/donationsAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
2022-02-0113 min