Shows
TSC Talks!TSC Talks! Final podcast~Wrapping it Up & ThanksJill wraps up the podcast! I started in 2016 interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuas and/or parent/caregivers affected by a chronic illness like TSC. Pushing the boundaries of what was deemed "safe and effective" by our medical system, I continued to put info out there based on my...2022-06-2325 minTSC Talks!TSC Talks! Final podcast~Wrapping it Up & ThanksJill wraps up the podcast! I started in 2016 interviewing my kids and how they were affected by Tuberous Sclerosis Complex. It was absolutely divine inspiration from the start and branched out shortly after to interviewing community members and other professionals who worked with those affected. From there, I explored many different topics, providing information and resources in interview form, all with relevance to the individuas and/or parent/caregivers affected by a chronic illness like TSC. Pushing the boundaries of what was deemed "safe and effective" by our medical system, I continued to put info out there based on my...2022-06-2325 min
TSC Talks!TSC Talks! Points of Light~Linsey Hurley~Holistic Health Coach Working with Cutting Edge Energy Healing Technologies "Silver Linings"I met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom! So, I figured the people I met at this event were pretty special. I got a text from Linsey a few weeks ago and we got to chatting. She told me a bit about her business and this new patch she had been guided to that was quite interesting. At that point, I decided...2022-03-2828 minTSC Talks!TSC Talks! Points of Light~Linsey Hurley~Holistic Health Coach Working with Cutting Edge Energy Healing Technologies "Silver Linings"I met Linsey Hurley this past December when we both participate in a Freedom Flash Mob dance event at a local mall. It was a fun and powerful event, a group of locals suddenly bursting into dance and raising awareness of our right to medical freedom! So, I figured the people I met at this event were pretty special. I got a text from Linsey a few weeks ago and we got to chatting. She told me a bit about her business and this new patch she had been guided to that was quite interesting. At that point, I decided...2022-03-2828 min
TSC Talks!TSC Talks! Points of Light~Bryan M. Henry, Founder of Together We Ascend-"Connected to Love"In this episode titled "Connected to Love" I had the pleasure of interviewing Bryan M. Henry, Founder of Together We Ascend, an organization and community that is on the mission of assisting in collective ascension, and the co-creation of more harmonious and prosperous world for all. To this aim, Bryan and the Together We Ascend team is uniting and activating lightworkers through the Ascend Academy. Bryan also is Creator/Producer of "Awaken with Bryan Henry"~ a podcast. Bryan is indeed connected to love and what he communicates in this podcast is just that as well as how we...2022-03-021h 02TSC Talks!TSC Talks! Points of Light~Bryan M. Henry, Founder of Together We Ascend-"Connected to Love"In this episode titled "Connected to Love" I had the pleasure of interviewing Bryan M. Henry, Founder of Together We Ascend, an organization and community that is on the mission of assisting in collective ascension, and the co-creation of more harmonious and prosperous world for all. To this aim, Bryan and the Together We Ascend team is uniting and activating lightworkers through the Ascend Academy. Bryan also is Creator/Producer of "Awaken with Bryan Henry"~ a podcast. Bryan is indeed connected to love and what he communicates in this podcast is just that as well as how we...2022-03-021h 02
TSC Talks!TSC Talks! Points of Light, James Davis of Bay Staters for Natural Medicine-"Advocacy from the Heart"I had the pleasure of interviewing James Davis recently on TSC Talks. As you’ll hear in the podcast, we connected a little over a year ago when he was just getting started with Bay Staters for Natural Medicine and looking for volunteers. At that time, I’d been experimenting with microdosing psilocybin for mental health reasons, it was helping, and I thought I’d jump in. Life pulled me away from that volunteer work, but James made a profound impression on me, and I had the notion that he’d be successful in whatever he endeavored, particularly his advocacy around d...2022-01-2846 minTSC Talks!TSC Talks! Points of Light, James Davis of Bay Staters for Natural Medicine-"Advocacy from the Heart"I had the pleasure of interviewing James Davis recently on TSC Talks. As you’ll hear in the podcast, we connected a little over a year ago when he was just getting started with Bay Staters for Natural Medicine and looking for volunteers. At that time, I’d been experimenting with microdosing psilocybin for mental health reasons, it was helping, and I thought I’d jump in. Life pulled me away from that volunteer work, but James made a profound impression on me, and I had the notion that he’d be successful in whatever he endeavored, particularly his advocacy around d...2022-01-2846 min
TSC Talks!TSC Talks! Finding A Cure?Jill Woodworth, host of TSC Talks gives a commentary on the notion of "finding a cure", which is the tag line for about every chronic disease, and how this notion often clouds the less than loving motives behind the industry, corporations, non-profits, medical system and more that extract energy, like a battery, from those for whom they claim to serve. There is always information to which the masses, those affected, and their entire support collective are not privy, which would allow for more light, more ways of figuring out how to genuinely and wholistically find a cure and at least...2021-09-2716 minTSC Talks!TSC Talks! Finding A Cure?Jill Woodworth, host of TSC Talks gives a commentary on the notion of "finding a cure", which is the tag line for about every chronic disease, and how this notion often clouds the less than loving motives behind the industry, corporations, non-profits, medical system and more that extract energy, like a battery, from those for whom they claim to serve. There is always information to which the masses, those affected, and their entire support collective are not privy, which would allow for more light, more ways of figuring out how to genuinely and wholistically find a cure and at least...2021-09-2716 min
Mark to MarketMark to Market - Jill Woodworth on interactive technology and the future of fitnessJill Woodworth, Chief Financial Officer of Peloton, the global interactive fitness platform, speaks to Mark Fedorcik, Deutsche Bank’s Global Head of Investment Bank, about how Peloton fosters community, how interactive technology differentiates the company and the future of fitness in the digital age. Jill also gives some thoughts from her distinguished career in investment banking prior to joining Peloton and her insight for bankers looking for the best way to serve their clients.2021-07-1306 min
Scaling up: Lessons from the world's best CEOs and FoundersCFO Mini Series (part 1): Racing Through the Gears - Jill Woodworth, CFO Peloton [S4.E5]The first episode in this mini series is Jill Woodworth, the CFO of Peloton (NASDAQ:PTON). Since 2018, when Jill joined, Peleton has been on a hyper scale journey – she took the reins of the finance function when the business was a private, $200m revenue company. In under 4 years since then, it is now a $4b revenue business listed on the NASDAQ.
The next two episodes are moving the spotlight away from the CEO and Founder to their most important partner in the business, the CFO. You can liken the role of the CFO to that of a nav...2021-06-0934 min
TSC Talks!TSC Talks! Special Broadcast: The Tower of Babel Part 2 ~ Group Homes, Alternative Health and CopingThey also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC.Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals...2021-01-241h 01TSC Talks!TSC Talks! Special Broadcast: The Tower of Babel Part 2 ~ Group Homes, Alternative Health and CopingThey also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC.Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals...2021-01-241h 01
TSC Talks!TSC Talks! TSC and COVID~A Conversation on Impact. Hosted by Daniel PriceTSC Talks discusses TSC in the time of Covid. Guest host Daniel Price joined Jill Woodworth for a roundtable discussion with guests Rob Grandia, Emilie Peters, Heather Still, Meghan Bittner, Joshua Stroup and Cathy Evanochko. Check out the time stamps below to find the information you feel will be most helpful and check out the links at the end of this document.Link to A.I. Transcription of the entire episode: https://otter.ai/s/QagpwwA0SPSIP-kaJs9SngMeghan shares that her doctor believes she had Covid very early on before we knew it was in...2020-10-161h 15TSC Talks!TSC Talks! TSC and COVID~A Conversation on Impact. Hosted by Daniel PriceTSC Talks discusses TSC in the time of Covid. Guest host Daniel Price joined Jill Woodworth for a roundtable discussion with guests Rob Grandia, Emilie Peters, Heather Still, Meghan Bittner, Joshua Stroup and Cathy Evanochko. Check out the time stamps below to find the information you feel will be most helpful and check out the links at the end of this document.Link to A.I. Transcription of the entire episode: https://otter.ai/s/QagpwwA0SPSIP-kaJs9SngMeghan shares that her doctor believes she had Covid very early on before we knew it was in...2020-10-161h 15
TSC Talks!TSC Talks! What Really Matters~Katherine Caulfield, Quantum Freedom, Author, Healer, Astrologer & MysticIt was our pleasure to speak with Katherine Caulfield on TSC Talks. Katy is an author, energy healer, astrologer and mystic "focused on self-love, self-healing and holistic wellness through uniting the spiritual and physical realms". Jill crossed paths with her when given the gift of a channeled healing through past podcast guest, Dorina Leslie. Not familiar with this modality of healing, I had no idea what to expect, was concerned I was going to "screw it up" and was pleasantly surprised at the outcome. I received some poignant insight and feedback which helped significantly and thought it would be great...2020-10-0849 minTSC Talks!TSC Talks! What Really Matters~Katherine Caulfield, Quantum Freedom, Author, Healer, Astrologer & MysticIt was our pleasure to speak with Katherine Caulfield on TSC Talks. Katy is an author, energy healer, astrologer and mystic "focused on self-love, self-healing and holistic wellness through uniting the spiritual and physical realms". Jill crossed paths with her when given the gift of a channeled healing through past podcast guest, Dorina Leslie. Not familiar with this modality of healing, I had no idea what to expect, was concerned I was going to "screw it up" and was pleasantly surprised at the outcome. I received some poignant insight and feedback which helped significantly and thought it would be great...2020-10-0849 min
TSC Talks!TSC Talks! What Is A Green Nurse? Episode 3 "Supporting the Endocannabinoid System"~ Sherri Tutkus, RN, BSN & Mark Worster,, Nurse MarkTSC Talks guests Sherri Tuktus and Mark Worster fill us in on how Green Nurses turn the tables on some of the aspects of the top-heavy traditional healthcare model and seek to empower the patient with education, empowering them to ask questions and engage with the curriculum instead of being handed a prescription and sent out the door.Sherri is the Founder, CEO, and Executive Director at GreenNurse Group, Member of International Association of Psychedelic Nursing, Director of Nursing (DON) at Irie Bliss Wellness, Founding Member at Cannabis Nurses Network, and member at American Cannabis Nurses Association. Sherri...2020-08-2547 min
TSC Talks!TSC Talks! What Is A Green Nurse? Episode 2, Nurse Bonnie, Bonnie Drake~Cannabis EvangelistThanks for listening! It was a pleasure to interview "Nurse Bonnie". Bonnie Drake, BSN/CRT, Member of the American Cannabis Nurses Association, CBD/HEMP Advocate is a Green Nurse with an extensive history and medical past with a background in nursing herself. She was introduced to CBD when her service dog started suffering from arthritis and Cardiomyopathy. From the exceptional results, she wondered what else CBD could do and started to research for her own physical conditions. Which is when she ran into Mike Robinson and his compassion care program.CBD allowed Bonnie to become Opioid free within...2020-08-1446 min
TSC Talks!TSC Talks! What Is A Green Nurse? A Series. Episode 1-Retrospective ~ Going Green!Green Nurses ARE the bridge between alternative and traditional medicine and have helped transform and provide legitimacy and respect for cannabis as medicine and other alternative options as well! We are grateful for collaboration and support on this content arc from Sherri Tutkus of GreenNurse Group. For our first episode in this series, we've compiled a retrospective from past Green Nurse podcast guests giving a brief narrative on why they became a green nurse. This episode includes Marissa Fratoni of Holistic Nurse Mama, Janna Champagne of Integrated Holistic Care, Sherri Tutkus of Green Nurse Group, and Dedee Culley of 2 Leaf...2020-08-0639 min
TSC Talks!TSC Talks! The Ongoing Toll of War-Veterans, PTSD & Cannabis, with Chris Chambers, Purple Heart Vietnam Vet, Founder~Vet Meds MatterI got the chance to interview Chris Chambers recently. I saw him on a video Mike Robinson posted during the 100, 000, 000 million mg CBD giveaway and was impressed with his story. In our first conversation, (of which it took 3 to get this audio! :)), Chris mentioned being a Quaker. I immediately felt a connection as my own father was immersed in this philosophy/denomination towards the end of his life and the tenets of kindness and value in every human being despite any external circumstances were a huge part of his mantra. The same can be said for Chris, which you will...2020-07-2855 min
TSC Talks!TSC Talks! Open Up! Patrick Spencer, Podcaster~Open Podcast 2020TSC Talks guest Patrick Spencer is a 21-year-old from South London, and a new podcaster. After chatting a bit through Instagram, Jill thought it would be fun to bring in a younger generation and have an open conversation about his views and struggles. Patrick is Creator, Producer and Host of Open Podcast 2020. He is an elevator engineer, past football player, enjoys writing his own songs. He also happens to have recently ventured into podcasting with the launch of Open Podcast 2020,"I've always had a very closed mindset, a very narrow mind. And it's always sort of kept me...2020-07-2036 minTSC Talks!TSC Talks! Open Up! Patrick Spencer, Podcaster~Open Podcast 2020TSC Talks guest Patrick Spencer is a 21-year-old from South London, and a new podcaster. After chatting a bit through Instagram, Jill thought it would be fun to bring in a younger generation and have an open conversation about his views and struggles. Patrick is Creator, Producer and Host of Open Podcast 2020. He is an elevator engineer, past football player, enjoys writing his own songs. He also happens to have recently ventured into podcasting with the launch of Open Podcast 2020,"I've always had a very closed mindset, a very narrow mind. And it's always sort of kept me...2020-07-2036 min
TSC Talks!TSC Talks! Roberto Paleco~ Founder, Research Can; Trailblazing Cannabis Scientist & Researcher, AustraliaRoberto Paleco joined us in our “virtual land” to discuss his amazing journey and career as a Medical Researcher/Scientist, Entrepreneur, from Australia, Italian born. He started a company to do research and clinical trials "for hire" to bridge the gap in the Australian medical cannabis industry. Roberto has a passion for nature and chemistry. After years of studying and working in the field as a medical researcher, Roberto decided to work on medical cannabis research entirely, which led him to create ResearchCan. He has a passion for natural medicine, mind-body connection, and chemistry of the body, which made him stud...2020-07-1239 min
TSC Talks!TSC Talks! Danielle McQueen, Owner, Old Man Goodies LLC~ "Why I Do What I Do"Danielle, (Dani) McQueen, is a true champion in the cannabis world, business owner, who has been nominated with Best Cannabis Company of the Year, Maine Cannabis Activist, Business Leader of the Year, Champion in Corrupt Responsibility, Best Innovation: Hot Cocoa, and Young Entrepreneur of the Year. While that, she is also a mother of a special superhero little girl that suffers from the same autoimmune disease as she does. Danielle demonstrates her rough path but also her strength to follow her instincts, and as every human being, with doubts and uncertainty but reaches an amazing lifestyle for her family while...2020-06-2647 min
TSC Talks!TSC Talks! The Tower of Babel: Parenting & Healthcare in America with Brooke Alisha & Jill WoodworthThis is the full-length audio recording of our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with Tuberous Sclerosis Complex. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The...2020-06-2259 minTSC Talks!TSC Talks! The Tower of Babel: Parenting & Healthcare in America with Brooke Alisha & Jill WoodworthThis is the full-length audio recording of our TSC Talks hosted, Facebook Live conversation on this topic. Brooke Alisha is an adult and parent living with TSC and Jill Woodworth, the host of TSC Talks, is a parent to several offspring living with Tuberous Sclerosis Complex. They are talking about the extreme behavioral and mental health challenges of TSC and similar conditions that include a neuropsychiatric component. The weight on the family and ripple effect on relationships can be devastating. Managing care across a lifetime requires exceptional measures of coordination and communication for which parents/families are not prepared. The...2020-06-2259 min
TSC Talks!TSC Talks! Dedee Culley, R.N., Cannabis Nurse, Co-Owner, 2 Leaf Nurses~"From Pain to Passion"Thanks for listening to TSC Talks with Dedee Culley. With over 20 years of nursing experience, she is the co-owner of 2 Leaf Nurses, which provides alternative & holistic health services from Springfield, Missouri. Culley loves home health for its opportunity to connect with patients and their environment. Culley is incredibly blessed and she was able to gather up courage and strength to pursue her passion in nursing while stepping out of the ordinary medicinal ways of these modern days and encourage others to be safe and successful at taking care of their bodies from the inside out with natural approaches. She has...2020-06-1155 min
TSC Talks!TSC Talks! Three On TSC: "You Got This Now, Tomorrow's Gonna Be Better" with Brielle Izabelle & Co-Hosted by Brooke AlishaI had the pleasure of having Brielle Izabelle join myself and co-host, Brooke Alisha on the podcast to discuss her lived experience as a young adult living with Tuberous Sclerosis Complex. Brielle is from New Jersey, is a college student at Fairleigh Dickinson and just launched a YouTube channel. This is the description she includes on her YouTube channel, linked below: “hey everyone! My names brielle Isabelle and I would love if you could join the bbsquad! Here I hope to talk about my disease Tuberous Sclerosis and raise awareness! I also want to make my channel super personal with Q...2020-05-2639 min
TSC Talks!TSC Talks! ON CBD: "Advanced Topical Solutions to Enhance Your Lifestyle" with Herb Tech PharmaceuticalsIn this episode, Laura and John from Herb Tech Pharmaceuticals join the podcast to discuss their new line of CBD topicals with Penetrating Topical CBD Phase-change Technology designed to be absorbed rapidly, provide relief and enhance your lifestyle. I enjoyed hearing about how their business got started and the passion this company has for bringing to market products that are first class. They have six different topicals, each infused with 1000 mg of CBD, and dose controlled so a pump delivers 20 mg. A bit of information how Herb Tech Pharmaceuticals came about: "Our development took a different pathway and...2020-05-1926 min
TSC Talks!TSC Talks! Cannabis & Mental Health with Sherri Tutkus, RN, BSN, Founder & CEO, Green Nurse GroupSherri Tutkus is the founder and CEO of GreenNurse Group, Nursing Director at Irie Bliss Wellness and host of GreenNurse on the Go Radio Show. Sherri is a cannabis nurse, patient and advocate. She earned her Bachelors in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years’ practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as a medical center specialist, clinical nurse liaison and educator to bridge the gap between patients and the cannabis community. Sherri has been educating and implementing holistic integrative healing modalities wi...2020-05-1243 min
TSC Talks!TSC Talks! Special Episode on SPECIAL EDUCATION DURING COVID19-How to File an OCR Complaint with Mike RobinsonIn this powerful episode, Mike Robinson, Founder, Global Cannabinoid Research Center, Cancer Survivor, Cannabis Advocate AND former registered Civil Rights lobbyist and non attorney that represented countless disabled children, discusses what's happened with Special Education services under a provision of the coronavirus relief package and why it's important to take action. Under A provision of the coronavirus relief package that passed at the end of March, Betsy DeVos had until Monday to recmmmend any additional waivers of federal education law to Congress. Already, states have been able to apply for waivers to skip annual tests and change how...2020-05-0841 min
TSC Talks!TSC Talks! Addiction Is Not A Disease, with Marc D. Lewis, Ph.D., Neuroscientist, Professor Emeritus, Author“If we are to understand anything so complex and troubling as addiction, we need to gaze directly at the point where experience and biology meet. Because that’s the bottleneck, the linchpin, where human affairs are cast and crystallized. That’s where the brain shapes our lives and our lives shape the brain” Marc D. Lewis, Ph.D.I had the honor and pleasure of interviewing Marc. D. Lewis on TSC Talks to discuss his life and work with the focus of the conversation on how he developed his understanding of addiction, and how he debunked the more traditio...2020-05-0141 min
TSC Talks!TSC Talks! What is Truth? On Vaccine Injury with Leigh Carr, R.N., B.S.N. Special Needs Mom, Cannabis NurseLeigh Zarda Carr, R.N., BSN, is a mother of 2, business owner, Chairman of the Board of Directors at Bleeding Kansas Advocates, Contributing Writer at The Evolution Magazine and Cannabis Nurse Consultant at Kansas City Cannabis Company. The name of her business is Hari Om Hemp. “It began as an idea when they both Leigh and husband Dustin noticed the many benefits that Leigh saw from CBD herself. It was not till Dustin and Leigh’s son was diagnosed with special needs that they really found the need to start their own CBD company when they could not find one that...2020-04-2532 min
TSC Talks!TSC Talks! A 420 Compilation with Sherri Tutkus, Keith Stroup, Nikki Lawley and Mike Robinson 🌿🎙In this Special Edition 420 Compilation, we share some favorite audio clips from several of our past guests on the 20th of April, 2020! First up is Sherri Tutkus, RN, BSN~Founder and CEO of GreenNurse Group, Medical Director of Irie Bliss Wellness and host of GreenNurse on the Go Radio Show.1. Sherri is a cannabis nurse, patient and advocate. Sherri earned her Bachelors in Science and Nursing from Boston College. She is highly skilled Registered Nurse with 30 years practical experience in various departments within the hospital and home setting. She is utilizing her expert nursing skills as...2020-04-2023 min
TSC Talks!TSC Talks! The State of Relationships & Special Needs: A Conversation with J.D. Brigham, partner/bf to Jill Woodworth, HostA frank discussion with John D. Brigham partner/boyfriend of the host of TSC Talks, Jill Woodworth on his experience moving in with our family dealing with extreme circumstances TSC related, trauma-related. How we made it work and how we're coping now. We will cover TAND, behavior mgmt issues, relationship challenges, and strategies, cannabinoid medicine and coping. All are welcome, participation encouraged. JD Brigham is from way up north in VT, has a background in healthcare IT, has a son from a previous relationship, a long time cannabis enthusiast and one of the most incredible humans I know....2020-04-1724 minTSC Talks!TSC Talks! The State of Relationships & Special Needs: A Conversation with J.D. Brigham, partner/bf to Jill Woodworth, HostA frank discussion with John D. Brigham partner/boyfriend of the host of TSC Talks, Jill Woodworth on his experience moving in with our family dealing with extreme circumstances TSC related, trauma-related. How we made it work and how we're coping now. We will cover TAND, behavior mgmt issues, relationship challenges, and strategies, cannabinoid medicine and coping. All are welcome, participation encouraged. JD Brigham is from way up north in VT, has a background in healthcare IT, has a son from a previous relationship, a long time cannabis enthusiast and one of the most incredible humans I know....2020-04-1724 min
TSC Talks!TSC Talks! Part 2-A Rock and a Hard Place~Jadyn's Journey, with Liz Minda, R.N. & Mike Robinson, Founder, Global Cannabinoid Research CenterIn Part 2 of this episode of TSC Talks, I spoke to Liz Minda, RN and Mike Robinson, former TSC Talks guest, drops in for the second half of our conversation. Liz has three children, one of whom has significant special needs and issues related to epileptic seizures. Liz strongly believes her daughter’s issues are pharma injuries and we discuss that and the treatment protocol. Liz had her children later in life; her son was born when she was 48 and her twin daughters were born when she was 50. She had normal uneventful pregnancies and her children were all born healthy. Al...2020-04-1147 min
TSC Talks!TSC Talks! Part 1: A Rock and a Hard Place~Jadyn's Journey with Epilepsy & More with Liz Minda, R.N.In this episode of TSC Talks, I spoke to Liz Minda, RN and Mike Robinson, former TSC Talks guest, drops in for the second half of our conversation. Liz has three children, one of whom has significant special needs and issues related to epileptic seizures. Liz strongly believes her daughter’s issues are pharma injuries and we discuss that and the treatment protocol. Liz had her children later in life; her son was born when she was 48 and her twin daughters were born when she was 50. She had normal uneventful pregnancies and her children were all born healthy. All was we...2020-04-0932 min
TSC Talks!TSC Talks! The State of Birth-Before & During COVID-19 with Corrine Pellard, Jodi Chapin & Jessica PetroneI had the honor of speaking to three accomplished women about the current state of birth both locally and nationally. We discuss the increasing interest in home births, the advantages and disadvantages of home versus hospital births and how those expecting, or expecting to be expecting, can best prepare especially with the extra consideration of Covid19. Corrine Pellard is an Empath, Psychic Medium and Reiki Master. She is also a mom of two and tells us about her experience of both a hospital birth and an at-home birth. Corrine discusses the lack of control over the birthing experience...2020-04-0350 min
TSC Talks!TSC Talks! Love over Fear~A Mother's Story. Sherri Tutkus, RN, BSN, Founder & CEO of Green Nurse GroupIn this episode, my guest Sherri Tutkus, RN, BSN, Founder & CEO of Green Nurse Group, came on the podcast to share a powerful and inspiring mother son story that follows the timeline from receiving a diagnosis at birth of her son Nicholas with Branchio-Oculo-Facial Syndrome through current day. Sherri gives one of the most powerful illustrations over the course of the episode, of a mother's love, courage, compassion, resilience and tenacity that I've ever heard, and is a fantastic example of holding onto presumption of competence as a guiding light, against all odds.Sherri Tutkus is the founder...2020-03-2943 min
TSC Talks!TSC Talks! A Coronavirus/COVID19 Conversation with Dr. Uma Dhabalanan. MD. MPH. FAAFP. MRO. CMSHere is the audio version of the Facebook Live episode that aired on March 26, 2020. The YouTube link for the video is as follows: https://youtu.be/cIp6BinWD6c In this episode, Dr. Uma joined host Jill Woodworth on TSC Talks Facebook page to engage in a discussion on the impact of #Coronavirus/ #COVID19 We'll talk about the personal impact, local impact in MA on the cannabis community, and beyond MA, Info on symptoms, knowing when to stay home and when to contact a doctor, what we can do to decrease our risk and boost our immune system...2020-03-2934 minTSC Talks!TSC Talks! A Coronavirus/COVID19 Conversation with Dr. Uma Dhabalanan. MD. MPH. FAAFP. MRO. CMSHere is the audio version of the Facebook Live episode that aired on March 26, 2020. The YouTube link for the video is as follows: https://youtu.be/cIp6BinWD6c In this episode, Dr. Uma joined host Jill Woodworth on TSC Talks Facebook page to engage in a discussion on the impact of #Coronavirus/ #COVID19 We'll talk about the personal impact, local impact in MA on the cannabis community, and beyond MA, Info on symptoms, knowing when to stay home and when to contact a doctor, what we can do to decrease our risk and boost our immune system...2020-03-2934 min
TSC Talks!TSC Talks! Healer Vs. M.D. with Mike Robinson, Cancer Survivor/Cannabis Activist - Founder, Global Cannabinoid Research CenterMike Robinson, Cancer Survivor/Cannabis Activist - Founder, Global Cannabinoid Research Center, comes on to discuss some of the current challenges in the cannabis community as well as exciting opportunities and projects coming your way. He starts off answering the initial question regarding who is reliable and trustworthy in the industry, we delve into challenges with cannabis certifications, the misperceptions surrounding the term "healer" and the lack of respect and credibility, and why these perceptual challenges exist. We also discuss the sharing of information parent to parent on platforms such as Facebook, and how this can be valuable...2020-03-2049 min
TSC Talks!TSC Talks-SPECIAL EDITION: CORONAVIRUS with Mike Robinson~Cancer Survivor/Cannabis Activist - Founder, Global Cannabinoid Research CenterMike Robinson, Cancer Survivor/Cannabis Activist - Founder, Global Cannabinoid Research Center, comes on to discuss a recent experience he had with the Coronavirus situation, his concerns over the gravity of this situation and the impact it's having on everyone's mental health. He urges the cannabis industry as a whole to rise up during this time and consider the cannabinoids which in combination have huge potential to make an impact on our immune systems. It is time to come together in unity and focus on what's going on right here and now in our entire world. Cannabis formulators with constituents...2020-03-1627 min
TSC Talks!TSC Talks! Cannabis is Personalized Medicine with Ruth D. Fisher, Ph.D., Author, "The Medical Cannabis Primer"I thoroughly enjoyed having Ruth Fisher, Ph.D., Cannabis researcher, and analyst, Co-Founder of Cann Dynamics, as well as the author of The Medical Cannabis Primer, on TSC Talks! I heard about Ruth’s book from another recent guest, Nikki Lawley and promptly ordered it, and reached out to Ruth for an interview. It’s a phenomenal resource, one that I have on my desk and refer to frequently. Before I launch into the episode notes, here’s a great description of the book written by Dan Larkin, that I found helpful: “Getting clear, concise, and easy to understa...2020-03-081h 11
TSC Talks!TSC Talks! Calming the Chaos with Brooke Alisha~TSC/TAND Advocate, Adult/Parent Living with TSC, Hair Stylist, Thriver!I had the extreme honor of interviewing Brooke Alisha, TSC Advocate, Parent, Adult Living with TSC, Adult Regional Coordinator for Adult Support Region 5, LeVel Promotor. She has quite a story of challenges and hurdles, traumatic events, and heartache but also MUCH resilience, inner fortitude, a heart of love and hope.Diagnosed with Tuberous Sclerosis Complex (TSC is a condition that causes benign tumors to grow in different organs of the body) at the age of 18, Brooke gives us a picture, “I was very active. I was a cheerleader. I was in a precision ice skating team. I was ve...2020-03-0151 min
TSC Talks!TSC Talks! Tyrone Williams; Respect & Redemption-Growing Up Fast In The Cannabis IndustryTyrone Williams is a Proud Father👣 Direct From Source Supplier🌿Licensed THC and Hemp Product Acquisition and Quality Control Specialist🤔Problem Solver. This is his story of life in the fast lane in the early days of the cannabis industry in Southern California. Tyrone grew up with a father involved in some of the riskier smuggling operations in the industry, his uncle being killed by the cartel and his mother as a beacon of safety and strength.In this episode, Tyrone walks us through the timeline of his life, detailing one challenge after tragedy after another. He is passionat...2020-02-2141 min
TSC Talks!TSC Talks! Michael Pedersen, Cannabis in Canada, Cannabis Update Podcast & MoreIt was my pleasure to have Michael Pedersen is Host/Producer of Cannabis Update Podcast, Founder of Distinct Media as well as Station Manager of Multicultural Broadcasting Corporation, Inc. in Calgary Alberta. “Michael has worked in broadcasting and managed radio stations since 2005. Before radio, he worked in the Vancouver film industry as a post-production editor and location sound recordist. He has produced an estimated 7000 audio commercials for radio along with countless jingles, stingers, sonic brands and more. Distinct Media now produces radio commercials & audio for video for small to medium-sized businesses looking to get a "distinct" form of brand awareness in...2020-02-1539 min
TSC Talks!TSC Talks! Trailblazers! Nadia Bodkin, CEO & Vincent Crowley, SVP of Blaze Therapeutics, LLCNadia Bodkin, CEO and Vincent Crowley, SVP of Blaze Therapeutics, LLC are an incredible team bringing a rich and relevant background of lived and learned experience across multiple special interest groups, including the rare disease community, military & veteran community, as well as health care community and more. "Blaze Therapeutics exists to offer plant-based solutions to the rare disease, the US Veteran, and professional medical communities that target the improvement of overall health, wellness, and quality of life. We believe in amplifying the beauty of life through the pursuit of wellness. Blaze Therapeutics is comprised of a team of...2020-02-081h 00
TSC Talks!TSC Talks! Canna Combo Mini Pod~With Blaze Therapeutics, Michael Pedersen, Tyrone William & Mike Robinson 🎉A mini compilation of a few Canna conversations; Blaze Therapeutics, Michael Pedersen, Tyrone Williams & past guest Mike Robinson.1-"Blaze Therapeutics exists to offer plant-based solutions to the rare disease, the US Veteran, and professional medical communities that target the improvement of overall health, wellness, and quality of life. We believe in amplifying the beauty of life through the pursuit of wellness.Blaze Therapeutics, Nadia Bodkin-Rare Disease Advocacy Professional, Executive Officer, Philanthropist and Vincent Crowley-Senior Vice President-Blaze is comprised of a team of experts concentrated from the healthcare, patient advocacy, nutraceutical and cannabis industries. Blaze Therapeutics...2020-01-3112 min
TSC Talks!TSC Talks! "10 and Ace Despite It All" On TBI, with Nikki Lawley, Former Pediatric Nurse, TBI survivor, Cannabis PatientNikki Lawley is a former pediatric nurse, former blackjack dealer and much more, who went from a full active life to chronic daily pain and other debilitating symptoms after suffering a traumatic brain injury on the job in 2016. This is the story of how it happened, what happened and how she's been able to move from existing in survival mode to having a life filled with hope despite ongoing challenges. In her own words; "since my (TBI) injury, one of the things that I've learned more than anything is about living in the moment. my life changed a second and...2020-01-2458 min
TSC Talks!TSC Talks! No Holds Barred~Advocate Extraordinaire! Daniel Price~TSC, Rare Disease, Adoption & LGBTQ Advocate“You are here for a purpose. There is not a duplicate of you in the whole wide world; there never has been, there never will be. You were brought here now to fill a certain need. Take time to consider what it might be.” Lou Austin. This happens to be one of Daniel Price’s favorite quotes and as you will see and hear, has truly framed the way Daniel lives his life. Daniel Price, a rare disease and adoption advocate, and young adult from the Seattle Washington area who is living with TSC. He’s Auxiliary Adult Regional...2020-01-1736 min
TSC Talks!TSC Talks! Tiffani Goff Unplugged. Author of Loving Tiara: Memoir~"Mom, Wife, Interior Decorator, Chronic Volunteer"I was honored to interview Tiffani Goff, mother, blogger, author of Loving Tiara: A Memoir on the podcast. I followed Tiffani’s journey with her daughter Tiara who had TSC for several years on Facebook as she shared glimpses from her day to day life with an incredibly challenging presentation of TSC, one that would ultimately claim Tiara’s life. I observed her posts in the days leading up to her passing and waited and watched for her to reappear on the other side of this loss. So many of we parents of loved ones affected by chronic life-threatening conditions live...2020-01-101h 03
TSC Talks!TSC Talks! O Pioneer! on Assistive Technology, with RJ Cooper, CEO and Founder at RJ Cooper & Associates, Inc.R.J. Cooper, Founder & CEO of R.J. Cooper & Associates is an inventor, technologist, and student of human behavior. RJ has always carried with him the goal of wanting to help as many people as possible. His interest in the area of assistive technology began over 30 years ago when he was studying to become an electrical engineer at the University of Utah. In his own words: I love what I do because my products make a tangible impact on the lives of the users by unlocking their hidden capabilities. What gives me the greatest pleasure is working one-on-one...2020-01-0347 min
TSC Talks!TSC Talks! Persistance Pays Off with Ricardo E Rivera Acevedo, Ph.D, Cannabinologist, Professor, Podcaster & EntrepreneurIn this episode, my guest is Ricardo Rivera-Acevedo, Chief Science Officer and Director at Ecovita Health Corporation, Vancouver, British Columbia, Canada working to initiate and manage a medical cannabis extraction facility and guide research and development of new therapeutic products. Ricardo is host of the Cannabis Science Podcast, the first weekly Canadian radio show focused entirely on cannabis and he is also a Scientific Consultant at ACGT, where he works to provide the skill and knowledge necessary to comply with the regulations set forth by Health Canada's Cannabis Act. Born and raised in Puerto Rico, he attended City...2019-12-2651 min
TSC Talks!TSC Talks! In the Hot Seat with Professor Petrus de Vries & Alexis Minnaar; A Discussion on TSC Assoc. Neuropsychiatric Disorders, aka~TANDIn this episode, we are joined by Professor Petrus de Vries, Sue Struengmann Professor of Child & Adolescent Psychiatry, Academic Head: Child & Adolescent Psychiatry, University of Cape Town, South Africa and Alexis Minnaar, English and Geography tutor at DawnCroft Alexis was diagnosed with Tuberous Sclerosis Complex, at the age of two. Prof. de Vries and Alexis graciously joined me to engage in a discussion on TAND, a phrase coined by Professor de Vries himself, which is an acronym for Tuberous Sclerosis Associated Neuropsychiatric Disorders and its one of the most challenging aspects of managing a TSC diagnosis and is a clinical...2019-12-1959 min
TSC Talks!TSC Talks! Full Circle; Farming to Finance~Cancer & Cannabis w/Jon Workman, VP Industrial Hemp Business Dev. at American Cannabis Co.Jon Workman is Vice President - Industrial Hemp Business Development at American Cannabis Company and President - Arkansas Hemp Assoc. He has had a long career in the industry, starting out growing up on a farm in Arkansas, getting into the finance industry in California, having much success, then a random snowboarding accident revealed he had multiple myeloma. Given 3 years to live, he was hit with another disease called TTP ( Thrombotic Thrombocytopenic Purpura).He shares, "I was in the hospital for over 60 days at City of Hope in Los Angeles, I was down to about 139 pounds. I'm six-one...2019-12-1445 min
TSC Talks!TSC Talks! Tiffany Watkins, Cannabis Activist, Enthusiast, Founder of Lady CannaTiffany Watkins is a "Cannabis Enthusiast". She's been an activist for 20+ years and has done a lot of work to bring awareness to health care and proper distribution of Medical Cannabis as well as paving the way for Recreational Cannabis.She has marched the Capital (CA), to help bring a voice to those in need of the protection of the Compassionate Care Act. Additionally, she has attended and spoken at City Council meetings and delivered talks as a keynote when invited. She states, "Cannabis is my passion and I am driven to assist this industry in...2019-12-1034 min
TSC Talks!TSC Talks! Endocannabinoid Egalitarian & Expert! Dr. Uma V.A. Dhanabalan MD. MPH. FAAFP. MRO. CMSDr. Uma Dhanabalan is Founder/CEO, Global Health & Hygiene Solutions LLC, Uplifting Health & Wellness, Natick, MA. "She is a highly respected physician trained in Family Medicine, Occupational & Environmental Medicine, specialized in heavy metals, a Fellow of the American Academy of Family Physicians, a Cannabinoid Medicine Specialist and Medical Review Officer.She completed her Bachelor of Arts degree with high honors from Rutgers University and a Medical degree from the University of Medicine & Dentistry in Newark, New Jersey. She completed a Family Practice Residency at the Medical University of South Carolina, in Charleston, South Carolina and then her Master’s...2019-12-0655 min
TSC Talks!TSC Talks! "Out of Southern Illinois, Come a Down Home Country Boy," with Keith Stroup, Founder of NORMLKeith Stroup, Founder of NORML, may be a down-home country boy, from Southern Illinois, but he sure did make it in the big city (from Box #10 w/Jim Croce). Keith takes me on a walk, through the annals of his legendary history as a founding father of the marijuana legislation movement in the US. From his early years growing up in Southern Illinois, to Georgetown Law School where he became politically radicalized by the Vietnam anti-war movement, and he started using cannabis.After getting his law degree and working with Ralph Nader, he was inspired to start a consumer...2019-12-0354 min
TSC Talks!TSC Talks! Inclusion for Everybody!🎉Tina Guenette Pedersen, Founder of R.A.M.P.~Real Access Motivates ProgressTina Guenette Pedersen is the President & Founder of R.A.M.P.~Real Access Motivates Progress, and this is how her story starts; "Well, my name is Tina Pedersen. I'm 47 years old. I have two children and two grandchildren. And I was very active in my life. I was a cheer coach, dance mom, a Boy Scout leader, a football mom. Anything my kids did, I did with them tenfold."I'm a four-time cancer survivor-breast twice, bladder twice. And during one of my bladder cancer surgeries, it was a very minor surgery to my bladder machine, because I...2019-11-2943 min
TSC Talks!TSC Talks! Planting the Seeds, Sowing Hope with Marissa Fratoni, RN-BSN, Holistic RN, Cannabis Advocate , Green Nurse, Freelance WriterMarissa Fratoni, Holistic RN - Cannabis Therapeutics - Maternal Health - Writer - Public Speaker, is a wealth of information and insight on cannabinoid therapeutics holistic medicine and integrative health. I met Marissa through Jessie Gill, Marijuana Mommy, when discussing our medical cannabis project, wondering if she knew of any local to MA cannabis nurses so was thrilled when she agreed to have a chat.We started off talking about how she went from traditional nursing in a very demanding operating room at a local hospital to becoming a visiting nurse, then "on a whim" taking a job...2019-11-2342 min
TSC Talks!TSC Talks! TSC Talks Meets The Canna Mom Show~Inspiring Stories Told By Real Cannabis Moms with Joyce Gerber & Amie SearlesJoyce Gerber & Amie Searles are The Canna Moms who started the local-to-MA podcast called The Canna Mom Show!. Referred to as The Click and Clack of Cannabis, while also aspiring to be the Terry Gross of Cannabis Talk, these ladies were awesome. Funny, smart and actually visionaries who want to get the word out that Canna Moms are not lazy, good for nothing slackers who are a burden to society but exactly the opposite! Inspirational visionaries out to change the world, one canna story at a time!We talk initially about cannabis and parenting and our observations that...2019-11-1845 min
TSC Talks!TSC Talks! Unlocking the Potential of Our Planet with Russell Cole ~ Visionary, Cannabis Industry Leader & CEO of Organic Grow SolutionsRussell Cole describes himself as "FUTURIST - EDUCATOR - BUSINESS LEADER, An entrepreneur who is motivated by providing access to technologies and innovations that we should already be benefiting from. I am humbled by the deep network of passionate, caring, professional and incredibly intelligent people I am fortunate to be surrounded by and learn from, daily."In this episode, we start off discussing how Russell got his start in the cannabis industry and his current role as CEO of Organic Grow Solutions. He details the operations of OGS; "We work with cultivators on advanced imaging. So really taking...2019-11-1339 min
TSC Talks!TSC Talks! Revolutionizing Healthcare with Cannabinoid Medicine~Janna Champagne, RN, BSN, Cannabis Nurse, Medical Cannabis ExpertNurse Janna Champagne, RN, BSN, Cannabis Nurse and Medical Cannabis Expert joined me to discuss her lived experience and work in the cannabis industry, including the success she's had utilizing cannabinoid medicine for her daughter with Autism.Janna's introduction to the cannabis industry began as a cannabis patient when she suffered a health collapse in 2012. She credits cannabis for helping to reduce her reliance on harmful pharmaceuticals, and for supporting her ability to regain optimal health status. Janna is also known for her daughter's cannabis/Autism success story, which published on the cover story in a nationwide industry...2019-11-061h 00
TSC Talks!TSC Talks! Stacey Jackson~Special Education Advocate, Keeping the Big Picture in Mind & Setting the Bar HighStacey Jackson, special education advocate, parent, engineer & past school committee member stopped by the podcast to give us an update on her daughter's out of district placement as well as engage in a discussion on the transition process. Stacey discusses how the immersive experience living away from home in a setting such as Riverview School, a co-educational boarding school placement, can be beneficial for those with "complex learning challenges" and has served her daughter well. Keeping the big picture in mind while advocating for the most effective programming for our loved ones challenged by special needs and trying...2019-11-0434 min
TSC Talks!TSC Talks! Cannabis Education; Accessibility, Affordability & Acceptance with Dr. MaryMD & Kevin Greene of Cleveland School of CannabisKevin Greene, VP of Cleveland School of Cannabis is an Entrepreneur - Strategic Marketer - Business Development - Cannabis Entrepreneur. He shares his experience in the education arm of the cannabis industry and the novel programs and success of CSC in terms of job placement, online and brick/mortar options and more! Dr. Mary Clifton shares her inspiration for getting into the industry with 25 years experience in traditional medicine. "My goal here is to normalize cannabis and just make it something that everybody's using for common conditions and also for income". 20 years of experience in both the hospital and private...2019-10-3144 min
TSC Talks!TSC Talks! Questioning the Status Quo, Steven L. Kelley, President, CEO of Ellenville Regional Hospital & TSC Talks UpdateSteven L. Kelley, President, and CEO of Ellenville Regional Hospital joins Jill in a discussion on the changing landscape of the healthcare industry as well as his involvement with Nicky's Gardens of Hope as a Board Member. Jill also gives a longer than usual introduction, tying together past, present and future guests, and some back story on the broadening subject matter, inspiration, and vision for the podcast. Steve has been the President and CEO of Ellenville Regional Hospital since September 2003. "He has a diverse background in the computer, research, and healthcare industries. Under Mr. Kelley’s leadership, ERH ha...2019-10-2347 minTSC Talks!TSC Talks! Questioning the Status Quo, Steven L. Kelley, President, CEO of Ellenville Regional Hospital & TSC Talks UpdateSteven L. Kelley, President, and CEO of Ellenville Regional Hospital joins Jill in a discussion on the changing landscape of the healthcare industry as well as his involvement with Nicky's Gardens of Hope as a Board Member. Jill also gives a longer than usual introduction, tying together past, present and future guests, and some back story on the broadening subject matter, inspiration, and vision for the podcast. Steve has been the President and CEO of Ellenville Regional Hospital since September 2003. "He has a diverse background in the computer, research, and healthcare industries. Under Mr. Kelley’s leadership, ERH ha...2019-10-2347 min
TSC Talks!TSC Talks! Major Motivators! Spectrum Sports~Sports & Fitness Programs for Autism, IDD, & MoreThe Spectrum Sports team is comprised of Dan Minko, Lisa Faracchio and James Paoletti, all involved in special education in some capacity in their local NJ high school. They got together to form Spectrum Sports. All are passionate about fitness and exercise, and being keenly aware of the challenges their students had accessing more typical opportunities for sports engagement in their local school district, they launched their business. "Spectrum Sports is an exercise program for individuals with disabilities such as Autism, Asperger's, Down Syndrome, and other multiple disabilities. We provide exercise through various sports, games, and group fitness...2019-10-1538 min
TSC Talks!TSC Talks! MMJ Mystery Minimized with Marijuana Mommy! Jessie Gill~Cannabis Nurse, Educator & AdvocateJessie Gill, AKA "Marijuana Mommy" is a Mom, Cannabis Advocate and R.N with a background in holistic health and hospice. She shares the story of her path leading to cannabis advocacy after a spinal injury left her at a personal rock bottom. Jessie loved her career as a hospice nurse, inspired been inspired to enter the field of nursing by her mother, also a nurse. After having unsuccessful spinal fusion surgery, taking multiple heavy-duty pharmaceuticals, she reluctantly became a medical marijuana patient. To her surprise, cannabinoid medicine provided great relief and further motivated her to combine her...2019-10-1435 min
TSC Talks!TSC Talks! Cannabis/CBD Pharma Talk with Daniella Benea, Pharm.D a Medical Marijuana Dispensary Pharmacist in CT & MADaniella Benea, Pharm.D., licensed pharmacist working in the medical marijuana industry in CT & MA comes on to discuss her experience thus far working in the growing cannabis industry. A graduate of UConn School of Pharmacy, Daniella started out working as a Stop & Shop store pharmacist but took advantage of an opportunity to work at a CT dispensary, hoping for more hands-on patient engagement. She discusses the medical marijuana industry in both CT & MA and gives her thoughts on the future of cannabinoid medicine, including the impact of the current MA vaping ban. The bulk of our discussion...2019-10-0742 min
TSC Talks!TSC Talks! Strong and Steady ~ Shelly Meitzler! Mom of Three, 2 with TSC, Community Programs Manager, East ~ TS AllianceShelly Meitzler is an amazing, inspiring individual who's life took a challenging turn when she received a diagnosis of TSC in her oldest daughter in August 2001. Starting out in the ER with her seizing baby, Shelly and her husband had to weather the false accusations of shaken baby syndrome by hospital staff before receiving an official diagnosis. From here, she mentions that life as she knew it, was forever changed. Again in 2014, she received another TSC diagnosis in her young son. We discuss the intricate challenges of having 2 individuals affected by TSC, and the varying impact due to...2019-09-301h 12
TSC Talks!TSC Talks! Part 2-A Discussion on CBD & Cannabinoid Medicine with Mike Robinson, Founder, Global Cannabinoid Research Center"Be the change you want to see in this world" is one of Mike's favorite quotes and his lived experience clearly exemplifies this intention. In this episode, Mike starts off by advising listeners, "Please people, please tell your doctor because there are drug interactions when you're using CBD" and is one of the major takeaways from this episode. In order to educate physicians treating us or our loved ones, it's exceedingly important to form a partnership, be clear about your use of CBD and Cannabinoid medicine, ask the physician to list it in your medical records with any other medications...2019-09-1856 min
TSC Talks!TSC Talks! Part 1- The CBD & Cannabinoid Conundrum; On Epilepsy & Autism -A Cannabis Love Story with Mike RobinsonMike Robinson, Cannabis Activist, Founder of Global Cannabinoid Research Center, Severe Epilepsy & Cancer Survivor and fascinating human being has much to share. From his bio on https://mikesmedicines.com; "Mike is a multiple Cancer survivor that’s used cannabis oils and CBD extensively as well for severe epilepsy, chronic Lyme Disease, PTSD, and in pain management. Over the last 6 years Mike has shared his journey and analytics on cannabinoid medicine research globally while assisting patients and helping to teach clinicians globally. Mike is the former Director of Consumer Affairs and Communications at The American Academy of Cannabinoid Medicine. Hi...2019-09-1644 min
TSC Talks!TSC Talks! WHEN LAW ENFORCEMENT MEETS AUTISM with Ricardo A. GomezIn this episode, precipitated by a Facebook post which caught the attention of many, titled, "When Law Enforcement Meets Autism", Ricardo A. Gomez shared the events occurring in relation to his son Ryan, a young adult with autism, who was with a direct support worker at a local park recently. Said event escalated into PC245, assault with a deadly weapon. Ricardo starts off giving some background on becoming a Law Enforcement Officer in California as well some history of his son Ryan, who received a diagnosis of Autism at age 3. From here, he narrates the events that occurred on August 16...2019-09-0955 min
TSC Talks!TSC Talks! Part 2 with Alexis Minnaar; Living with TSC; Never A Dull Moment. A South African PerspectiveIn Part 2 with Alexis Minnaar, we go into further detail on the realities of growing up with TSC. She shares more about relationships, mentioning the fact that she has TSC with potential partners, and how this news was received. Meeting her husband, dealing with people's questions related to facial manifestations over the years, how others react when she shares information on having TSC, and how important finding common ground has been with other individuals and/or families dealing with epilepsy and/or TSC. We discuss her attendance at "TSC Indaba" in November 2018, an informal TSC gathering of families and individuals...2019-09-0559 min
TSC Talks!TSC Talks! Alexis Minnaar, Living with TSC; Never A Dull Moment-A South African PerspectiveIn Part 1 of this two-part episode, Alexis Minnaar, an English and Geography teacher from South Africa, and young adult living with Tuberous Sclerosis Complex shares the process of coming to terms with having TSC and learning how to manage the condition herself. When she left home and entered college, living away from home for the first time and studying and working, she describes feeling overwhelmed with this realization "like I got hit with a ton of bricks". Her system for tracking manageable variables in several different journals is really interesting and a positive outcome of struggling hard to accept the...2019-08-3046 min
TSC Talks!TSC Talks! "Occupant with Autism" Autism & the Role of Law Enforcement with Chief Joseph Snyder & Officer Phil Kraus, New Paltz, NY PDChief Joseph Snyder & Officer Phillip Kraus of the New Paltz, NY Police Department discuss their background and experiences with community members that sparked the idea behind their new "Occupant with Autism" sticker. This sticker is a combination of police support & Autism Awareness and can be placed on a car or near the door of a home as a heads up for police that an individual within may be functioning differently. We also discuss feedback they've received thus far on this sticker within their community, both positive and negative, & potentially expanding outreach to other police departments. Officer Kraus also discusses his...2019-08-1232 min
TSC Talks!TSC Talks! Mark Martin, THE TSC CONNECTOR! 6 State Regional Coordinator, Advocate, Musician & Adult & Parent Living w/TSCMark Martin is an Adult & Parent living with TSC. He also is the Adult Regional Coordinator of 6 States for the TS Alliance, & was a past Volunteer of the Year. He started a Facebook group for TSC Dads, has worked as an ER Tech, and is an accomplished musician. There is never a dull moment for Mark! He's a true influencer across the community as his perspective as Adult with TSC AND having a son w/TSC gives him a broad perspective and further fires his passion for connecting as many people as possible with resources, information & friendship in the TSC...2019-08-111h 03
TSC Talks!TSC Talks! An Invitation to Inspiration with Devoted Dad, Husband & TSC Advocate Rob GrandiaRob Grandia is an adult with TSC and father of 3 children affected by TSC. In this episode, he gives an inside look at not only receiving a diagnosis of TSC in his children but also finding out as an adult that he also is affected. We discuss the various manifestations experienced by his children throughout these last 18 years, and how the family was able to find adequate treatment locally. From partial complex seizures as the diagnosing symptom in his oldest daughter to reducing seizures from 80-90 per day to 1-2 per week on an modified Atkins diet for his son...2019-08-0150 min
TSC Talks!TSC Talks! IDD & Me; "I Wish He Could Talk", on Sibling Impact with Max Piltz, brother to Nicky, with TSC, IDDMax Piltz, brother of Nicky, the inspiration for Nicky's Gardens of Hope, gives his 2 cents on life with a nonverbal sibling who is significantly impacted by Tuberous Sclerosis Complex and Intellectual Disability. Max hits it home with his honest and matter of fact answers to questions posed by his mother, Adriana Piltz, Founder & CEO of Nicky's Gardens of Hope. You will be touched by this short episode highlighting sibling impact, resilience & teamwork. NGOH is a one of a kind, a revolutionary new program designed to meet the profoundly unmet need for a permanent home for IDD adults with wrap-around services...2019-07-2507 min
TSC Talks!TSC Talks! "There is No Other Choice" Nicky's Gardens of Hope or Bust, with TSC Mom, Founder & CEO Adriana PiltzAdriana Piltz, is Founder & CEO of Nicky's Gardens of Hope (NGOH). She came on the podcast back in October 2018 to give us an introduction and explanation of this one of a kind project. In this episode she gives us an update, discussing what's happened since we last talked, and why she is even more excited & passionate than ever about this unique opportunity. Speaking from personal experience, having left a wall street career to start this project, Adriana knows that the gaps in the long term systems designed to support our loved ones after we are gone are only widening as...2019-07-2444 min
TSC Talks!TSC Talks! Part 2; Are You Listening? "This is Who I Am & This Is What Our Family Is" with Cecilia PrattIn Part 2, Cecilia talks about coping, working out, overcoming a food addiction, feeling like everything is on her shoulders and dealing with burn out. She also discusses getting unsolicited advice, dealing with SSI uncertainties, pharmacy issues and her deep concern for her African American son with challenging TAND behavior issues. "We all come in different shapes & colors" Yet she shares how multiracial issues can be even more challenging when managing a TSC diagnosis. Despite it all, her faith has been a refuge and her unwavering determination to help her son and family are evident throughout; "I try to look at...2019-07-2339 min
TSC Talks!TSC Talks! Part 1; Are You Listening? Getting Real with Cecilia Pratt, TSC Case Manager & MomCecilia Pratt, reached out via Facebook to share her lived experience of a TSC diagnosis in her son and former husband. She clearly depicts how it felt to receive this heavy diagnosis download in a dermatologists office, based on skin symptoms and delivered with minimal compassion and little information, back in 2005. From here they found a TS Clinic in CA , but again Cecilia was not given the answers she needed about managing TSC and was extremely discouraged. Moving from CA to Baltimore MD, she was finally able to find a clinic and team that was able to offer hope at...2019-07-2238 min
TSC Talks!TSC Talks! Hope on the Horizon, Part 2-with Jaye Isham, Master Communicator & VP of Communication Strategy, TS AllianceJaye Isham, VP of Communication Strategy @ TS Alliance, and beloved TSC community member shares from his work and lived experience in Part 2 of this 2 part episode. A quote that says it all: "Yeah, you know, and I'm very lucky that I allow myself to feel the pain and the heartache and all of those things from the families. I mean, I am never going to truly understand, you know what it's like to have a child with TSC or to have it myself but I have so much empathy, and it's made me such a much better person." That's Jaye...2019-07-1142 min
TSC Talks!TSC Talks! Hope on the Horizon, with Jaye Isham, Master Communicator & VP of Communication Strategy, TS AllianceJaye Isham, VP of Communication Strategy @ TS Alliance, and beloved TSC community member shares from the annals of his lived experience in Part 1 of this 2 part episode you don't want to miss. In his words, "While I want to give your listeners a little insight into what I do, it's more important for them to realize so much hope is truly on the horizon." We cover Jaye's experience of the changing landscape of social media over the years. In a nutshell, Jaye is responsible "for the outward look, the brands, how we communicate, how we present information, in all kinds...2019-07-0947 min
TSC Talks!TSC Talks! The Power of TSC Moms; From Gratitude to Grief & Back; 6 Sound Bites.In this episode, I tried something different! I used pieces of pertinent audio from 6 past guests, some has been released in previous episodes and some content is from the cutting room floor. I kick it off with gratitude and HUGE thanks to the TSC Community, and the Power of TSC Moms that so inspired this podcast. We are bringing to light our variable issues & challenges managing manifestations of TSC, IDD & Autism. It is almost always complicated, lonely and can be overwhelming at times, yet risking vulnerability to share from our daily lives, has played a role in affecting change. Consider...2019-06-2831 min
TSC Talks!TSC Talks! Trauma 101-A Preview; For Parents of Medically Complex Kids-with Caroline Clyborne, LPCCaroline Clyborne, LPC gives us the low down on her upcoming webinar, "Trauma 101-For Parents of Medically Complex Kids" on June 25, 2019. Previously on TSC Talks, Episode 27, Caroline gave us an excellent explanation of the different types of trauma, shock trauma & developmental trauma, and how this is relevant to TSC. In this episode, Caroline gives listeners a review of what trauma is, the various and unpredictable ways we can find ourselves dealing with trauma in TSC, and why it's important for parent/caregivers & anyone dealing with the sort of unrelenting nature of TSC related events to tune in. She gives some...2019-06-2051 min
TSC Talks!TSC Talks! Part 3-It's a Wrap. TAND, TANDem, ETC; with Dena Hook, VP of Support Services, TS AllianceIn Part 3 of this three-part series with Dena Hook, VP of Support Services at the TS Alliance, what I want to highlight in this description is our discussion of Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders (TAND). "TAND describes the interrelated functional and clinical manifestations of brain dysfunction in TSC, including aggressive behaviors, autism spectrum disorder (ASD), intellectual disabilities, psychiatric disorders, neuropsychological deficits, as well as school and occupational difficulties". We discuss the early challenges involved getting doctors to recognize TAND as a manifestation of TSC . For many of us, TAND has been THEE most challenging aspect of TSC care & management with...2019-06-1956 min
TSC Talks!TSC Talks! Dedicated, Dynamic Dena! Part 2; Creation, Implementation & Development of Volunteer Programs at the TS AllianceIn Part 2, Dena discusses crossing paths with Kari Rosbeck (TS Alliance President) and how she got her first position with the TS Alliance, moved to DC and never looked back. She outlines the development of the volunteer programs she initiated, and established, her process in recruiting and retaining a large volunteer network and the importance throughout of building relationships. Dena is and has been a lifeline for so many in the TSC community and her ability to continue to recruit high caliber individuals at the volunteer level is remarkable and should serve as an example for any other non profit...2019-06-1227 min
TSC Talks!TSC Talks! Dedicated, Dynamic Dena! Part 1; Her Early Career; Dena Hook, VP of Support Services, with the TS AllianceThe TSC world famous & beloved Dena Hook, Vice President of Support Services at the TS Alliance comes on the podcast to discuss, well, a lot. This is Part 1 of our conversation and Dena walks us through her history right up until she started working at the TS Alliance in 2007. Dena shares her experience advocating for her son with severe dyslexia in the early years of special needs legislation and how that inspired & launched her career in advocacy. She describes that it was a time when being "in the building" for a kid with special needs, was about as much support...2019-06-0728 min
TSC Talks!TSC Talks; Everything is Broken. Trauma, TSC & Me. Family Impact, Survival and Hope with 22 yr. Grizzled TSC Vet & Mom, JillIn this episode, TSC Talks Audio Editor Interviews grizzled TSC veteran, Jill Woodworth on what happened, what she learned, who she met and what's next. How understanding the impact of trauma has been the key that unlocked the doors to the integration of past experience, with present reality and how finding a way to have some quality of life in the midst of much uncertainty has been the motivating factor for developing the podcast. From diagnosis of TSC 3 times to the present day, there is something in this episode for everyone; from TSC affected, special needs parents, anyone who's struggled...2019-03-0137 minTSC Talks!TSC Talks; Everything is Broken. Trauma, TSC & Me. Family Impact, Survival and Hope with 22 yr. Grizzled TSC Vet & Mom, JillIn this episode, TSC Talks Audio Editor Interviews grizzled TSC veteran, Jill Woodworth on what happened, what she learned, who she met and what's next. How understanding the impact of trauma has been the key that unlocked the doors to the integration of past experience, with present reality and how finding a way to have some quality of life in the midst of much uncertainty has been the motivating factor for developing the podcast. From diagnosis of TSC 3 times to the present day, there is something in this episode for everyone; from TSC affected, special needs parents, anyone who's struggled...2019-03-0137 min
TSC Talks!TSC TALKS: Episode 15, Jill Talks: Team TSC and the big RACE! with guest host, Dorina LesliePrevious podcast guest, Dorina Leslie, Interviews host Jill Woodworth on her experience with TSC in her children, impact personally and how this led to her involvement with Marine Corp Marathon TS Alliance, Team TSC as well as origins of TSC Talks podcast, development and motivations.Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.2018-10-2329 minTSC Talks!TSC TALKS: Episode 15, Jill Talks: Team TSC and the big RACE! with guest host, Dorina LesliePrevious podcast guest, Dorina Leslie, Interviews host Jill Woodworth on her experience with TSC in her children, impact personally and how this led to her involvement with Marine Corp Marathon TS Alliance, Team TSC as well as origins of TSC Talks podcast, development and motivations.Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.2018-10-2329 min
TSC Talks!TSC TALKS, Episode 5, Interview with Jack LacyJill Woodworth chats with her son Jack, age 14, about what it's like to have TSC.Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.2016-03-2106 minTSC Talks!TSC TALKS, Episode 5, Interview with Jack LacyJill Woodworth chats with her son Jack, age 14, about what it's like to have TSC.Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.2016-03-2106 min