Shows
Beyond the BleedsGrowing Community and Hope at the National Bleeding Disorder Foundation Conference with Stephanie PaapToday on Beyond the Bleeds, we sit down with Stephanie Paap to delve into the lived experience of attending the National Bleeding Disorder Foundation’s annual conference. Together, we journey through the unique considerations of traveling with a bleeding disorder, and the powerful impact of connection, education, and advocacy at a national gathering. We talk honestly about preparing for travel, managing care for a family with Von Willebrand’s disease, and how conferences like NBDF foster hope and community for patients and caregivers alike.
Stephanie Paap is a Green Bay native, long-time member of the Hemophilia Outr...
2025-11-2425 min
Beyond the BleedsThe Impact of Physical Therapy on Bleeding Disorder Patients with Dr. Brightyn HandrichToday on Beyond the Bleeds, we sit down with Dr. Brightyn Handrich, DPT, to unravel the essential role of physical therapy in the care of patients with bleeding disorders. We examine how physical therapy fits into the comprehensive model at the Hemophilia Outreach Center in Green Bay, explore strategies for injury prevention across different age groups, and discuss how education and tailored interventions can promote joint health and enhance quality of life in this unique community.
Dr. Brightyn Handrich is a physical therapist at the Hemophilia Outreach Center in Green Bay, Wisconsin. As a former gymnast with...
2025-11-1023 minBeyond the BleedsThe Impact of Physical Therapy on Bleeding Disorder Patients with Dr. Brightyn HandrichToday on Beyond the Bleeds, we sit down with Dr. Brightyn Handrich, DPT, to unravel the essential role of physical therapy in the care of patients with bleeding disorders. We examine how physical therapy fits into the comprehensive model at the Hemophilia Outreach Center in Green Bay, explore strategies for injury prevention across different age groups, and discuss how education and tailored interventions can promote joint health and enhance quality of life in this unique community.
Dr. Brightyn Handrich is a physical therapist at the Hemophilia Outreach Center in Green Bay, Wisconsin. As a former gymnast with...
2025-11-1023 min
Beyond the BleedsFrom Bleeds to Birdies with Golf Pro Perry ParkerToday on Beyond the Bleeds, Heather and John welcome Perry Parker, professional golfer and passionate advocate for the bleeding disorder community. We dive into Perry’s journey from childhood hemophilia diagnosis to his career as a touring golf professional, discussing how resilience, preparation, and a supportive family helped him overcome adversity. Perry shares lessons learned both on and off the course, insights into managing hemophilia while living an active life, and the evolution of community support for bleeding disorders.
Perry Parker lives in Laguna Niguel, California, and teaches golf at Arroyo Trabuco in Mission Viejo. He’s been...
2025-10-2732 min
Beyond the BleedsThe Power of Mentorship in the Bleeding Disorders Community with Xavier Krueger & Kevin LeurquinToday on Beyond the Bleeds, we welcome Xavier Krueger and Kevin Leurquin, two amazing members of the bleeding disorders community in Northeast Wisconsin, for an honest and uplifting conversation about the Hemophilia Outreach Center’s mentorship program. Together, we delve into what it means to connect older teens and adults with younger individuals who are navigating life with hemophilia and other bleeding disorders. We share stories about making lasting friendships, building confidence, and overcoming challenges, all while highlighting the profound impact of these supportive relationships.
Xavier Krueger is a vibrant 15-year-old living with severe factor VII deficiency. A...
2025-10-1326 minBeyond the BleedsThe Power of Mentorship in the Bleeding Disorders Community with Xavier Krueger & Kevin LeurquinToday on Beyond the Bleeds, we welcome Xavier Krueger and Kevin Leurquin, two amazing members of the bleeding disorders community in Northeast Wisconsin, for an honest and uplifting conversation about the Hemophilia Outreach Center’s mentorship program. Together, we delve into what it means to connect older teens and adults with younger individuals who are navigating life with hemophilia and other bleeding disorders. We share stories about making lasting friendships, building confidence, and overcoming challenges, all while highlighting the profound impact of these supportive relationships.
Xavier Krueger is a vibrant 15-year-old living with severe factor VII deficiency. A...
2025-10-1326 min
Beyond the BleedsNutritionist Advice for Getting the Most From Vitamins with Jill LarsonToday on Beyond the Bleeds, we’re joined by John and our returning guest Jill Larson, as we dig deep into the often-confusing world of vitamins. We explore what vitamins truly are, why they matter for our health, and how they interact in our bodies like instruments in a symphony. We break down the difference between fat-soluble and water-soluble vitamins, examine whether you really need supplements, and share practical tips for getting nutrients from your diet, especially for those of us in the bleeding disorder community.
Jill Larson is our in-house nutritionist at the Hemophilia Outreach Center. Sh...
2025-09-0134 minBeyond the BleedsNutritionist Advice for Getting the Most From Vitamins with Jill LarsonToday on Beyond the Bleeds, we’re joined by John and our returning guest Jill Larson, as we dig deep into the often-confusing world of vitamins. We explore what vitamins truly are, why they matter for our health, and how they interact in our bodies like instruments in a symphony. We break down the difference between fat-soluble and water-soluble vitamins, examine whether you really need supplements, and share practical tips for getting nutrients from your diet, especially for those of us in the bleeding disorder community.
Jill Larson is our in-house nutritionist at the Hemophilia Outreach Center. Sh...
2025-09-0134 min
Beyond the BleedsBridging Hematology, Oncology, and Hemophilia – Inside the Green Bay Oncology and HOC Partnership with Dr. Ryan & Dr. GroteluschenToday on Beyond the Bleeds, we dive into the evolving world of hematology and oncology collaboration and care with Dr. Matthew Ryan and Dr. David Groteluschen from Green Bay Oncology. We discuss the vital importance of specialized, comprehensive care for patients with bleeding disorders, the significance of early intervention, and how partnerships between treatment centers and oncology practices are expanding access and improving outcomes, even in some of the most rural regions. Our conversation goes beyond the clinical to highlight how support staff, research, care coordination, and community outreach shape a patient’s lifelong journey.
Dr. Matthew Ry...
2025-08-0430 minBeyond the BleedsBridging Hematology, Oncology, and Hemophilia – Inside the Green Bay Oncology and HOC Partnership with Dr. Ryan & Dr. GroteluschenToday on Beyond the Bleeds, we dive into the evolving world of hematology and oncology collaboration and care with Dr. Matthew Ryan and Dr. David Groteluschen from Green Bay Oncology. We discuss the vital importance of specialized, comprehensive care for patients with bleeding disorders, the significance of early intervention, and how partnerships between treatment centers and oncology practices are expanding access and improving outcomes, even in some of the most rural regions. Our conversation goes beyond the clinical to highlight how support staff, research, care coordination, and community outreach shape a patient’s lifelong journey.
Dr. Matthew Ry...
2025-08-0430 min
Beyond the BleedsNavigating Sleep Challenges from Childhood to AdulthoodToday on Beyond the Bleeds, we’re joined by Dr. Bridget Freeman to explore the importance of sleep health—why it’s foundational to our overall well-being, how our sleep patterns evolve throughout a lifetime, and what we can do to optimize sleep for physical, mental, and emotional health. From the science of circadian rhythms to practical fixes for common sleep problems, we break down actionable steps for creating a better night’s rest and why you might never fully “catch up” on missed sleep.
Dr. Bridget Freeman is a dedicated pediatric hematologist with extensive experience helping children and...
2025-07-0736 minBeyond the BleedsNavigating Sleep Challenges from Childhood to AdulthoodToday on Beyond the Bleeds, we’re joined by Dr. Bridget Freeman to explore the importance of sleep health—why it’s foundational to our overall well-being, how our sleep patterns evolve throughout a lifetime, and what we can do to optimize sleep for physical, mental, and emotional health. From the science of circadian rhythms to practical fixes for common sleep problems, we break down actionable steps for creating a better night’s rest and why you might never fully “catch up” on missed sleep.
Dr. Bridget Freeman is a dedicated pediatric hematologist with extensive experience helping children and...
2025-07-0736 min
Beyond the BleedsInside the World of Child Life Specialists with Chris BivinsToday on Beyond the Bleeds, I’m joined by Chris Bivins, Child Life Specialist, to talk about the essential role Child Life professionals play in pediatric healthcare settings. We explore how Child Life Specialists help children and families navigate the challenges of illness, injury, and hospitalizations—ensuring that kids develop emotionally and socially, even amid medical treatments. We also discuss the powerful tools they utilize, how they collaborate with care teams and families, and what resources are available when a Child Life Specialist isn’t on site.
Chris Bivins is a seasoned Child Life Specialist who discovered her pa...
2025-06-2344 minBeyond the BleedsInside the World of Child Life Specialists with Chris BivinsToday on Beyond the Bleeds, I’m joined by Chris Bivins, Child Life Specialist, to talk about the essential role Child Life professionals play in pediatric healthcare settings. We explore how Child Life Specialists help children and families navigate the challenges of illness, injury, and hospitalizations—ensuring that kids develop emotionally and socially, even amid medical treatments. We also discuss the powerful tools they utilize, how they collaborate with care teams and families, and what resources are available when a Child Life Specialist isn’t on site.
Chris Bivins is a seasoned Child Life Specialist who discovered her pa...
2025-06-2344 min
Beyond the BleedsThe Science and People Behind Genetic Counseling in Hemophilia with Sumedha GhateToday on Beyond the Bleeds, John and Heather welcome Sumedha Ghate, a genetic counselor at HOC in Green Bay, Wisconsin. Sumedha delves into the intricate world of genetic counseling, discussing the nuances of determining hereditary patterns in hemophilia and other bleeding disorders. The conversation helps demystify genetic testing and its role in diagnosing and managing bleeding disorders, aiming to empower individuals with knowledge about their health and family history.
Sumedha Ghate has been a genetic counselor at HOC since 2011. Her journey into genetics started with a fascination with the field’s perfect blend of science and personal in...
2025-04-2831 minBeyond the BleedsThe Science and People Behind Genetic Counseling in Hemophilia with Sumedha GhateToday on Beyond the Bleeds, John and Heather welcome Sumedha Ghate, a genetic counselor at HOC in Green Bay, Wisconsin. Sumedha delves into the intricate world of genetic counseling, discussing the nuances of determining hereditary patterns in hemophilia and other bleeding disorders. The conversation helps demystify genetic testing and its role in diagnosing and managing bleeding disorders, aiming to empower individuals with knowledge about their health and family history.
Sumedha Ghate has been a genetic counselor at HOC since 2011. Her journey into genetics started with a fascination with the field’s perfect blend of science and personal in...
2025-04-2831 min
Beyond the BleedsHemophilia Journey from Newborn Challenges to Care Coordination with Erin WegnerToday, on Beyond the Bleeds, we share the experiences of Erin Wegner, a mother who navigates life with two sons diagnosed with hemophilia. Alongside Angie Farrar, lead nurse coordinator at the Wausau Hemophilia Outreach Center, Erin discusses the challenges and learning curves of her unexpected journey into the world of bleeding disorders, emphasizing the importance of specialized care and community support.
Erin Wegner is a mother of two boys, Levi and Everett, both diagnosed with hemophilia. With no previous family history, Erin was thrust into the bleeding disorders community after a challenging situation arose shortly after Levi’s...
2025-03-3134 minBeyond the BleedsHemophilia Journey from Newborn Challenges to Care Coordination with Erin WegnerToday, on Beyond the Bleeds, we share the experiences of Erin Wegner, a mother who navigates life with two sons diagnosed with hemophilia. Alongside Angie Farrar, lead nurse coordinator at the Wausau Hemophilia Outreach Center, Erin discusses the challenges and learning curves of her unexpected journey into the world of bleeding disorders, emphasizing the importance of specialized care and community support.
Erin Wegner is a mother of two boys, Levi and Everett, both diagnosed with hemophilia. With no previous family history, Erin was thrust into the bleeding disorders community after a challenging situation arose shortly after Levi’s...
2025-03-3134 min
Beyond the BleedsReflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part IIToday on Beyond the Bleeds is part 2 of our “Reflections on Hemophilia’s Bad Blood Era” with Peggy Maier and Audrey Nuskiewicz, foundational Hemophilia Outreach Center (HOC) nurses. We delve into the challenges faced by the hemophilia community during this period, the impact of HIV/AIDS, and the resilience and hope that emerged in the face of adversity. Peggy and Audrey share their experiences as caregivers, advocates, and pillars of support for patients and families navigating uncharted territory.
Peggy Maier & Audrey Nuskiewicz are pioneering nurses who have dedicated their careers to serving the hemophilia community. With their unwave...
2025-03-1723 minBeyond the BleedsReflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part IIToday on Beyond the Bleeds is part 2 of our “Reflections on Hemophilia’s Bad Blood Era” with Peggy Maier and Audrey Nuskiewicz, foundational Hemophilia Outreach Center (HOC) nurses. We delve into the challenges faced by the hemophilia community during this period, the impact of HIV/AIDS, and the resilience and hope that emerged in the face of adversity. Peggy and Audrey share their experiences as caregivers, advocates, and pillars of support for patients and families navigating uncharted territory.
Peggy Maier & Audrey Nuskiewicz are pioneering nurses who have dedicated their careers to serving the hemophilia community. With their unwave...
2025-03-1723 min
Beyond the BleedsReflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part II
Today on Beyond the Bleeds is part 2 of our “Reflections on Hemophilia’s Bad Blood Era” with Peggy Maier and Audrey Nuskiewicz, foundational Hemophilia Outreach Center (HOC) nurses. We delve into the challenges faced by the hemophilia community during this period, the impact of HIV/AIDS, and the resilience and hope that emerged in the face of adversity. Peggy and Audrey share their experiences as caregivers, advocates, and pillars of support for patients and families navigating uncharted territory.
Peggy Maier & Audrey Nuskiewicz are pioneering nurses who have dedicated their careers to serving the hemophilia community. With their unwave...
2025-03-1723 minBeyond the BleedsReflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part IIToday on Beyond the Bleeds, we’re thrilled to have Peggy Maier and Audrey Nuskiewicz sharing their poignant memories and impactful experiences during the Bad Blood Era. This challenging period in the bleeding disorders community saw contaminated blood products spread diseases like HIV and Hepatitis C. Peggy and Audrey delved deeply into their firsthand experiences as nurses, supporting their patients and community with unwavering dedication and care during these tumultuous times.
Peggy Maier and Audrey Nuskiewicz are pioneering nurses who played crucial roles at the Hemophilia Outreach Center. With a deep commitment to their patients, they navigated th...
2025-03-1023 min
Beyond the BleedsReflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part IToday on Beyond the Bleeds, we’re thrilled to have Peggy Maier and Audrey Nuskiewicz sharing their poignant memories and impactful experiences during the Bad Blood Era. This challenging period in the bleeding disorders community saw contaminated blood products spread diseases like HIV and Hepatitis C. Peggy and Audrey delved deeply into their firsthand experiences as nurses, supporting their patients and community with unwavering dedication and care during these tumultuous times.
Peggy Maier and Audrey Nuskiewicz are pioneering nurses who played crucial roles at the Hemophilia Outreach Center. With a deep commitment to their patients, they navigated th...
2025-03-0332 minBeyond the BleedsReflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part IToday on Beyond the Bleeds, we’re thrilled to have Peggy Maier and Audrey Nuskiewicz sharing their poignant memories and impactful experiences during the Bad Blood Era. This challenging period in the bleeding disorders community saw contaminated blood products spread diseases like HIV and Hepatitis C. Peggy and Audrey delved deeply into their firsthand experiences as nurses, supporting their patients and community with unwavering dedication and care during these tumultuous times.
Peggy Maier and Audrey Nuskiewicz are pioneering nurses who played crucial roles at the Hemophilia Outreach Center. With a deep commitment to their patients, they navigated th...
2025-03-0332 min
Beyond the BleedsGrowth & Community Outreach at Wausau’s Hemophilia Center with Angie FarrarWelcome to Beyond the Bleeds. Today, we sit down with Angie Farrar, lead nurse coordinator at the Hemophilia Outreach Center’s Wausau location, to discuss the center’s vital role in improving bleeding disorder care in central Wisconsin. We delve into the challenges patients face in rural areas and the significant strides made in education and outreach to better serve individuals with bleeding disorders.
Angie Farrar brings over 15 years of nursing experience to her role at the Hemophilia Outreach Center. With a background in surgery and outpatient care, Angie joined HOC seeking more family time while continuing to s...
2025-02-1720 minBeyond the BleedsGrowth & Community Outreach at Wausau’s Hemophilia Center with Angie FarrarWelcome to Beyond the Bleeds. Today, we sit down with Angie Farrar, lead nurse coordinator at the Hemophilia Outreach Center’s Wausau location, to discuss the center’s vital role in improving bleeding disorder care in central Wisconsin. We delve into the challenges patients face in rural areas and the significant strides made in education and outreach to better serve individuals with bleeding disorders.
Angie Farrar brings over 15 years of nursing experience to her role at the Hemophilia Outreach Center. With a background in surgery and outpatient care, Angie joined HOC seeking more family time while continuing to s...
2025-02-1720 min
Beyond the BleedsHealthcare Independence and Transition Challenges with Heather & JohnOn Beyond the Bleeds, John and Heather take a different approach today by becoming both the host and the guest, diving deep into life transitions in healthcare. Previously, they’ve discussed the Hemophilia Outreach Center’s support systems, but today, they broaden the scope to explore how transitions affect all aspects of life. These multifaceted and universal transitions are covered from childhood to adulthood, navigating work environments, or even preparing for retirement.
Heather Hansen and John Mazzariello both have three children and bring a personal touch to the healthcare transition discussion. They pull from their experiences as pare...
2025-02-0326 minBeyond the BleedsHealthcare Independence and Transition Challenges with Heather & JohnOn Beyond the Bleeds, John and Heather take a different approach today by becoming both the host and the guest, diving deep into life transitions in healthcare. Previously, they’ve discussed the Hemophilia Outreach Center’s support systems, but today, they broaden the scope to explore how transitions affect all aspects of life. These multifaceted and universal transitions are covered from childhood to adulthood, navigating work environments, or even preparing for retirement.
Heather Hansen and John Mazzariello both have three children and bring a personal touch to the healthcare transition discussion. They pull from their experiences as pare...
2025-02-0326 min
Beyond the BleedsThe Impact of Gene Therapy with Dave Novak & Rochelle GinterToday on Beyond the Bleeds, we welcome Rochelle Ginter, RN, at the Hemophilia Outreach Center in Green Bay, Wisconsin, and David Novak, who shares his experience receiving gene therapy for hemophilia A. We delve into the mechanics of hemophilia A, the latest advancements in gene therapy, and David’s journey in transforming his treatment approach. The conversation highlights expectations, impacts, and the broader implications of gene therapy in managing hemophilia.
Rochelle Ginter is a registered nurse with specialized hemophilia care expertise at the Hemophilia Outreach Center. Her deep understanding of hemophilia treatments and patient support has made he...
2025-01-2031 minBeyond the BleedsThe Impact of Gene Therapy with Dave Novak & Rochelle GinterToday on Beyond the Bleeds, we welcome Rochelle Ginter, RN, at the Hemophilia Outreach Center in Green Bay, Wisconsin, and David Novak, who shares his experience receiving gene therapy for hemophilia A. We delve into the mechanics of hemophilia A, the latest advancements in gene therapy, and David’s journey in transforming his treatment approach. The conversation highlights expectations, impacts, and the broader implications of gene therapy in managing hemophilia.
Rochelle Ginter is a registered nurse with specialized hemophilia care expertise at the Hemophilia Outreach Center. Her deep understanding of hemophilia treatments and patient support has made he...
2025-01-2031 min
Beyond the BleedsHemophilia in the Classroom: Insights from Nurses, Parents & PatientsToday on Beyond the Bleeds, John and Heather sit down with Kelli Birk and Crosby Willett, alongside Tricia Delaney, a nurse at the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss the importance of school in services for children with bleeding disorders. The conversation covers what these in-services entail, how they benefit both students and school staff, and personal experiences from Kelly and Crosby on navigating the school system with a bleeding disorder.
Tricia Delaney is a nurse at the Hemophilia Outreach Center and has dedicated her career to educating and supporting patients with bleeding disorders...
2025-01-0624 minBeyond the BleedsHemophilia in the Classroom: Insights from Nurses, Parents & PatientsToday on Beyond the Bleeds, John and Heather sit down with Kelli Birk and Crosby Willett, alongside Tricia Delaney, a nurse at the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss the importance of school in services for children with bleeding disorders. The conversation covers what these in-services entail, how they benefit both students and school staff, and personal experiences from Kelly and Crosby on navigating the school system with a bleeding disorder.
Tricia Delaney is a nurse at the Hemophilia Outreach Center and has dedicated her career to educating and supporting patients with bleeding disorders...
2025-01-0600 min
Beyond the BleedsExploring Health Literacy and Resilience with Dr. Bridget FreemanToday on Beyond the Bleeds, we welcome Dr. Bridget Freeman to discuss the essential elements of comprehensive health outcomes. We dive into the multifaceted approaches required to ensure long-lasting health improvements, encompassing agriculture, child education, social determinants, and more. Our conversation touched on the profound implications of Adverse Childhood Experiences (ACEs) and the increasing role of health literacy in patient care.
Dr. Bridget Freeman hails from Leeds, Yorkshire, England, and boasts an impressive educational and professional background. She graduated with an MBBS in medicine and surgery from the University of Newcastle upon Tyne, completed her residency in...
2024-12-2335 minBeyond the BleedsExploring Health Literacy and Resilience with Dr. Bridget FreemanToday on Beyond the Bleeds, we welcome Dr. Bridget Freeman to discuss the essential elements of comprehensive health outcomes. We dive into the multifaceted approaches required to ensure long-lasting health improvements, encompassing agriculture, child education, social determinants, and more. Our conversation touched on the profound implications of Adverse Childhood Experiences (ACEs) and the increasing role of health literacy in patient care.
Dr. Bridget Freeman hails from Leeds, Yorkshire, England, and boasts an impressive educational and professional background. She graduated with an MBBS in medicine and surgery from the University of Newcastle upon Tyne, completed her residency in...
2024-12-2335 min
Beyond the BleedsProtecting Joints and Muscles: Physical Therapy for Bleeding Disorders with Shanie WilliamsToday on Beyond the Bleeds, we welcome Shanie Williams, a dedicated physical therapist from the Hemophilia Outreach Center in Green Bay, Wisconsin. Shanie joins us to discuss the unique importance of physical therapy within the bleeding disorders community. We delve into her journey to becoming a PT, the crucial role of regular exercise in managing bleeding disorders, and valuable advice for those noticing mobility issues. Shanie also shares insights on how the landscape of sports and physical activity recommendations has evolved for patients with bleeding disorders.
Shanie Williams has dedicated over 17 years to working at the Hemophilia...
2024-12-0917 minBeyond the BleedsProtecting Joints and Muscles: Physical Therapy for Bleeding Disorders with Shanie Williams
Today on Beyond the Bleeds, we welcome Shanie Williams, a dedicated physical therapist from the Hemophilia Outreach Center in Green Bay, Wisconsin. Shanie joins us to discuss the unique importance of physical therapy within the bleeding disorders community. We delve into her journey to becoming a PT, the crucial role of regular exercise in managing bleeding disorders, and valuable advice for those noticing mobility issues. Shanie also shares insights on how the landscape of sports and physical activity recommendations has evolved for patients with bleeding disorders.
Shanie Williams has dedicated over 17 years to working at the Hemophilia...
2024-12-0917 min
Beyond the BleedsSeamless Healthcare Transition for Bleeding Disorders with Andrea Buxton & Erica BrockToday on Beyond the Bleeds, John and Heather welcome Andrea Buxton and Erica Brock to explore the critical process of transitioning healthcare for patients with bleeding disorders. Our conversation dives into the stages of transition from pediatric to adult care, community support, and the programs available to ease this process. The discussion emphasizes the challenges patients and their caregivers face and the importance of education in managing chronic conditions.
“Transition is not just about moving from one doctor to another; it’s about learning to manage your own healthcare needs.” – Andrea Buxton
Today on Beyond t...
2024-11-2525 minBeyond the BleedsSeamless Healthcare Transition for Bleeding Disorders with Andrea Buxton & Erica BrockToday on Beyond the Bleeds, John and Heather welcome Andrea Buxton and Erica Brock to explore the critical process of transitioning healthcare for patients with bleeding disorders. Our conversation dives into the stages of transition from pediatric to adult care, community support, and the programs available to ease this process. The discussion emphasizes the challenges patients and their caregivers face and the importance of education in managing chronic conditions.
“Transition is not just about moving from one doctor to another; it’s about learning to manage your own healthcare needs.” – Andrea Buxton
Today on Beyond t...
2024-11-2525 min
Beyond the BleedsBeyond Heavy Periods: Exploring Menorrhagia and Bleeding Disorders with Andrea Buxton and Nora SchmittToday on Beyond the Bleeds, we sit down with Andrea Buxton, a nurse practitioner at the Hemophilia Outreach Center (HOC), and Nora Schmitt, a community member and patient advocate. We discuss the launch of HOC’s new menorrhagia clinic in Green Bay, Wisconsin, diving into the complexities of diagnosing and treating excessively heavy menstrual periods. From understanding the “7 to 1 rule” of menorrhagia to the significant role of self-advocacy and community awareness, this episode sheds light on an often-overlooked aspect of women’s health.
Andrea Buxton is a dedicated nurse practitioner at the Hemophilia Outreach Center in Green Bay. Her...
2024-11-1131 minBeyond the BleedsBeyond Heavy Periods: Exploring Menorrhagia and Bleeding Disorders with Andrea Buxton and Nora SchmittToday on Beyond the Bleeds, we sit down with Andrea Buxton, a nurse practitioner at the Hemophilia Outreach Center (HOC), and Nora Schmitt, a community member and patient advocate. We discuss the launch of HOC’s new menorrhagia clinic in Green Bay, Wisconsin, diving into the complexities of diagnosing and treating excessively heavy menstrual periods. From understanding the “7 to 1 rule” of menorrhagia to the significant role of self-advocacy and community awareness, this episode sheds light on an often-overlooked aspect of women’s health.
Andrea Buxton is a dedicated nurse practitioner at the Hemophilia Outreach Center in Green Bay. Her...
2024-11-1131 min
Beyond the BleedsBuilding the Foundation of Hemophilia Care in Green Bay with Co-Founder Peggy MeyerToday on Beyond the Bleeds, John and I welcome Peggy Meyer, an extraordinary nurse and co-founder of the Hemophilia Outreach Center (HOC) in Green Bay, Wisconsin. We delve into Peggy's inspirational journey, the founding of HOC, and her undying commitment to helping those with bleeding disorders. Peggy shares incredible anecdotes from her decades-long career and discusses the evolution of hemophilia care, from grassroots efforts to pioneering advancements like gene therapy. Peggy Meyer, R.N., is a trailblazer in hemophilia care. With an impressive career spanning multiple decades, Peggy co-founded the Hemophilia Outreach Center, transforming it f...
2024-10-2819 min
Beyond the BleedsFrom Parent to CEO: Jamison Buxton's Hemophilia Journey and LeadershipToday on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders. Jamison shares his personal experiences, the center's growth, and the importance of community and comprehensive care for individuals and families managing hemophilia. Jamison Buxton became deeply involved in the hemophilia community after his son was diagnosed with hemophilia B in 2003. His commitment led him to join the board of directors in 2012, a...
2024-10-2813 min
Beyond the BleedsBeans, Lentils, and Beyond: Essential Nutrition Insights for Hemophilia PatientsToday on Beyond the Bleeds, Heather and John welcome Jill Larson, a nutritionist with the comprehensive care team at the Hemophilia Outreach Center in Green Bay. In this episode, Jill shares her invaluable insights on why nutrition is critical for those in the bleeding disorders community. From the significance of weight-based medication to practical tips on maintaining a nutritious diet on a budget, Jill provides a wealth of knowledge to improve overall health and wellness.
Jill Larson is a seasoned nutrition expert passionate about science and teaching. With a background in biochemistry and a degree in nutrition...
2024-10-2828 minBeyond the BleedsBeans, Lentils, and Beyond: Essential Nutrition Insights for Hemophilia PatientsToday on Beyond the Bleeds, Heather and John welcome Jill Larson, a nutritionist with the comprehensive care team at the Hemophilia Outreach Center in Green Bay. In this episode, Jill shares her invaluable insights on why nutrition is critical for those in the bleeding disorders community. From the significance of weight-based medication to practical tips on maintaining a nutritious diet on a budget, Jill provides a wealth of knowledge to improve overall health and wellness.
Jill Larson is a seasoned nutrition expert passionate about science and teaching. With a background in biochemistry and a degree in nutrition...
2024-10-2828 min
Beyond the BleedsFacing Fears and Finding Friendship at Camp Klotty Pine with Alyssa, Eliot, and Elias MyrieToday on Beyond the Bleeds, we welcome the Myrie family—Alyssa, Elias, and Eliot—to discuss their experiences at Camp Klotty Pine. Set in Wisconsin, this unique summer camp caters to children with bleeding disorders. It offers them a safe space to enjoy traditional camp activities like swimming, archery, and fishing while providing essential education on managing their conditions. Alyssa, Elias, and Eliot share their heartwarming stories, from overcoming homesickness to forming lifelong friendships with others with similar bleeding disorders.
Alyssa Myrie is a devoted mother whose two sons, Elias and Eliot, attend Camp Klotty Pine. With year...
2024-10-2825 minBeyond the BleedsFacing Fears and Finding Friendship at Camp Klotty Pine with Alyssa, Eliot, and Elias MyrieToday on Beyond the Bleeds, we welcome the Myrie family—Alyssa, Elias, and Eliot—to discuss their experiences at Camp Klotty Pine. Set in Wisconsin, this unique summer camp caters to children with bleeding disorders. It offers them a safe space to enjoy traditional camp activities like swimming, archery, and fishing while providing essential education on managing their conditions. Alyssa, Elias, and Eliot share their heartwarming stories, from overcoming homesickness to forming lifelong friendships with others with similar bleeding disorders.
Alyssa Myrie is a devoted mother whose two sons, Elias and Eliot, attend Camp Klotty Pine. With year...
2024-10-2800 min
Beyond the BleedsDental Hygiene Challenges and Solutions for the Bleeding Disorders Community with Bonnie Des JardinsToday on Beyond the Bleeds, we welcomed Bonnie Des Jardins, a registered dental hygienist in Green Bay, Wisconsin. Bonnie shares her insights on the critical connection between oral and systemic health. She sheds light on the unique challenges and necessary precautions for dental care within the bleeding disorders community.
Bonnie Des Jardins has been a registered dental hygienist for 32 years and practices at the Hemophilia Outreach Center in Green Bay. Educated at Northeast Wisconsin Technical College, Bonnie transitioned from private practice to working with the bleeding disorders community ten years ago. Her dedication to expanding her expertise...
2024-10-2826 minBeyond the BleedsDental Hygiene Challenges and Solutions for the Bleeding Disorders Community with Bonnie Des JardinsToday on Beyond the Bleeds, we welcomed Bonnie Des Jardins, a registered dental hygienist in Green Bay, Wisconsin. Bonnie shares her insights on the critical connection between oral and systemic health. She sheds light on the unique challenges and necessary precautions for dental care within the bleeding disorders community.
Bonnie Des Jardins has been a registered dental hygienist for 32 years and practices at the Hemophilia Outreach Center in Green Bay. Educated at Northeast Wisconsin Technical College, Bonnie transitioned from private practice to working with the bleeding disorders community ten years ago. Her dedication to expanding her expertise...
2024-10-2800 minBeyond the BleedsBuilding the Foundation of Hemophilia Care in Green Bay with Co-Founder Peggy MaierToday on Beyond the Bleeds, John and I welcome Peggy Maier, an extraordinary nurse and co-founder of the Hemophilia Outreach Center (HOC) in Green Bay, Wisconsin. We delve into Peggy’s inspirational journey, the founding of HOC, and her undying commitment to helping those with bleeding disorders. Peggy shares incredible anecdotes from her decades-long career and discusses the evolution of hemophilia care, from grassroots efforts to pioneering advancements like gene therapy.
Peggy Maier, R.N., is a trailblazer in hemophilia care. With an impressive career spanning multiple decades, Peggy co-founded the Hemophilia Outreach Center, transforming it from a...
2024-10-2818 minBeyond the BleedsBuilding the Foundation of Hemophilia Care in Green Bay with Co-Founder Peggy MaierToday on Beyond the Bleeds, John and I welcome Peggy Maier, an extraordinary nurse and co-founder of the Hemophilia Outreach Center (HOC) in Green Bay, Wisconsin. We delve into Peggy’s inspirational journey, the founding of HOC, and her undying commitment to helping those with bleeding disorders. Peggy shares incredible anecdotes from her decades-long career and discusses the evolution of hemophilia care, from grassroots efforts to pioneering advancements like gene therapy.
Peggy Maier, R.N., is a trailblazer in hemophilia care. With an impressive career spanning multiple decades, Peggy co-founded the Hemophilia Outreach Center, transforming it from a...
2024-10-2819 minBeyond the BleedsFrom Parent to CEO: Jamison Buxton's Hemophilia Journey and LeadershipToday on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders. Jamison shares his personal experiences, the center’s growth, and the importance of community and comprehensive care for individuals and families managing hemophilia.
Jamison Buxton became deeply involved in the hemophilia community after his son was diagnosed with hemophilia B in 2003. His commitment led him to join the board of directors in 2012, and by...
2024-10-2812 minBeyond the BleedsFrom Parent to CEO: Jamison Buxton’s Hemophilia Journey and LeadershipToday on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders. Jamison shares his personal experiences, the center’s growth, and the importance of community and comprehensive care for individuals and families managing hemophilia.
Jamison Buxton became deeply involved in the hemophilia community after his son was diagnosed with hemophilia B in 2003. His commitment led him to join the board of directors in 2012, and by...
2024-10-2812 min
Beyond the BleedsWelcome to Beyond the BleedsWelcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you're managing hemophilia, von Willebrand disease, or any rare bleeding condition, this space is for you. We'll dive into personal stories, medical insights, and the latest in treatment advancements, fostering an environment where you feel heard and supported. Join us as we walk you through our mission to make life with bleeding disorders not just manageable, but powerful. "Inspired Stories of re...
2024-09-0502 min
Beyond the BleedsWelcome to Beyond the BleedsWelcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you’re managing hemophilia, von Willebrand disease, or any rare bleeding condition, this space is for you. We’ll dive into personal stories, medical insights, and the latest in treatment advancements, fostering an environment where you feel heard and supported. Join us as we walk you through our mission to make life with bleeding disorders not just manageable, but powerful.
“Inspired Stories...
2024-09-0502 min
MCC PodcastsSummer In The Scriptures Together - Ten Chapters We All Gotta Know: John 3 - You Must Be Born Again | Jeff Mazzariello11-Jul-2024 Jeff Mazzariello
2024-07-1444 minMCC PodcastsFollowing Jesus - The Gospel of John: What Now? - John 21 - Jeff Mazzariello24-Apr-2022 Jeff Mazzariello
2022-04-2435 minMCC PodcastsFollowing Jesus - The Gospel of John: Fertile Soil - John 16b - Jeff Mazzariello13-Mar-2022 Jeff Mazzariello
2022-03-1332 minMCC PodcastsFollowing Jesus - The Gospel of John: The Friendship of Jesus - John 15 - Jeff Mazzariello27-Feb-2022 Jeff Mazzariello
2022-02-2734 minMCC PodcastsFollowing Jesus - The Gospel of John: What Kind of Savior Is He? - John 12b - Jeff Mazzariello16-Jan-2022 Jeff Mazzariello
2022-01-1632 minMCC PodcastsFollowing Jesus - The Gospel of John: John 11 - Mary, Martha, Lazarus, and Waiting for Jesus - Jeff Mazzariello02-Jan-2022 Jeff Mazzariello
2022-01-0232 minMCC PodcastsStuff I Don't Want You to Miss From John 9 About Jesus, God's Will, the Human Condition, Waiting for God, and What in the World Do We Do With All This14-Nov-2021 Jeff Mazzariello
2021-11-1438 minMCC PodcastsFollowing Jesus - The Gospel of John: Worship in Spirit and Truth - Jeff Mazzariello10-Oct-2021 Jeff Mazzariello
2021-10-1038 minMCC PodcastsFollowing Jesus - The Gospel of John: Nicodemus and the Invitation to be Born Again - Jeff Mazzariello03-Oct-2021 Jeff Mazzariello
2021-10-0343 min
Mondo JazzEngland-Italy: A Jazz Re-match, Second HalfWelcome to the second half of the England-Italy jazz rematch. England and Italy have both championed jazz very early on, and they have been among the first European jazz scenes to develop a recognizable accent in how they speak the jazz language, light-heartedness and sense of humour being integral aspects of that accent. Even though Italian and English sound quite different as languages, their two jazz accents are surprisingly similar in how they both seem to be characterized by a certain attention to melody. Once more a playlist matching one British musician, band or project, with one from Italy
2021-07-231h 32