Shows
Lichen Sclerosus PodcastReclaim Your Pleasure: Get Your Sexy Back with VLS!Living with vulvar lichen sclerosus (VLS) can really shake things up, especially when it comes to feeling confident and connected in your intimate life. You're not alone! A huge 94.3% of our community shared that VLS has impacted their sexual health, with pain, fear, low desire, and feeling "broken" or "frustrated" as common struggles.But here's the amazing news: You don't have to stay there. We heard your calls for more support and resources, and that's why we're so excited to bring back our special workshop, "Get Your Sexy Back," in 2025!This isn't just any workshop...2025-06-0923 minLichen Sclerosus PodcastYour Journey to Healing Starts Here: Wholistic Healing Summit PreviewAre you living with Lichen Sclerosus? This podcast episode dives into the Wholistic Healing Summit, a patient-focused virtual event hosted by the Lichen Sclerosus Support Network (LSSN). LSSN's Kathy shares details about the summit's comprehensive program, featuring leading medical experts, sessions on intimacy and self-esteem, and practical advice for daily living. Learn about the different ticket options and how this summit can provide education, support, and community for those affected by LS.Get your ticket today! - https://lssupportnetwork.org/whsGot questions? Email us at summit@lssupportnetwork.org2025-04-1128 minLichen Sclerosus PodcastNew Hope for Lichen Sclerosus: Insights from Silicone Treatment StudiesEpisode Description:Welcome to the Lichen Sclerosus Podcast brought to you by the Lichen Sclerosus Support Network. I'm your host, Kathy, and today we’re excited to bring you a conversation with an amazing researcher, Leia Mitchell. If you’ve listened before, you might recognize her from past episodes. This time, we’re diving into a new possible treatment for Lichen Sclerosus.What You’ll Learn in This Episode:Insights into two groundbreaking studies on silicone-based treatments for Lichen Sclerosus.The science behind silicone’s effects on collagen production and skin rejuvenation.What makes this new t...2025-02-0740 minLichen Sclerosus PodcastUnstoppable You: A Workshop for Young Adults with LSJoin Kathy and Sienna as they introduce the "Unstoppable You" workshop, designed specifically for young adults with lichen sclerosus (LS). They'll discuss the inspiration behind the workshop, its unique features, and how it can empower young people to thrive with LS.Key Takeaways:The "Unstoppable You" workshop is a 5-week program created to help young adults navigate the challenges of LS with confidence.The workshop will cover topics such as communicating about LS, redefining intimacy, embracing pleasure, and building self-confidence.Participants will have access to expert guidance, interactive sessions, a private online community, and evidence-based education...2025-01-2421 minLichen Sclerosus PodcastThe Future of LS Care: A Conversation with Dr. Jill KrapfJoin us for an insightful conversation with Dr. Jill Krapf, a leading expert in vulvar lichen sclerosus (LS), as we discuss the challenges and opportunities in LS care and introduce the Provider Continuous Education Program (PCEP).Why Provider Education Matters:LS is often misdiagnosed or diagnosed late, leading to years of unnecessary suffering for patients. Many healthcare providers lack the knowledge and training to properly diagnose and manage LS. The PCEP will equip providers with the tools and resources they need to provide effective, patient-centered LS care. How the PCEP Will Make a Difference:T...2024-12-0954 minLichen Sclerosus PodcastBreak the Cycle of Suffering This 2024 GivingTuesdayJoin us for a special Giving Tuesday episode where we discuss the importance of supporting the Lichen Sclerosus Support Network (LSSN) and their mission to end the misdiagnosis and suffering caused by lichen sclerosus (LS).In this episode, you'll learn about:The challenges of living with LS and the impact of misdiagnosis. The importance of patient education and support in managing LS. The LSSN Provider Continuous Education Program (PCEP) and how it will improve healthcare provider knowledge and patient care.How your donations can help LSSN continue to provide vital resources and support to the LS co...2024-12-0348 min
Black Millennial MarriageBMM INDIE 172: Let's Talk About Lichen Sclerosus Ft. Kathy Ruiz-CarterHey y’all!Tune in as Randie sits down with Kathy, host of the Lichen Sclerosus Podcast.Kathy was diagnosed with LS 5 years ago at 40 and the life-changing diagnosis paved the way for her podcast and organization on a mission to educate women about the auto immune disease that commonly affects the genitals.In this episode, Kathy details the symptoms she experienced before diagnosis, the sub-par medical care she initially received, and how living with this diagnosis affects her body, marriage, and children. 2024-05-2241 minLichen Sclerosus PodcastCommunication, Vulnerability, and Sex Positivity Transform an LS RelationshipIf you're feeling the weight of unresolved issues in your intimate relationship, then you are not alone! Couples often struggle to communicate openly about sex and intimacy, leading to frustration and distance instead of connection. But what if there's a way to enhance your communication and connection, even in the midst of challenges? Let's dive into the journey of a couple navigating the complexities of long-term relationships and discover the transformative power of open dialogue and shared experiences.In this episode, you will be able to:Gain insights into managing pelvic floor dysfunction in individuals dealing...2024-04-291h 02
Lichen Sclerosus PodcastLive Lichen Sclerosus and Sexual Wellness Panel ReplayBonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whsJoin us for this informative panel discussion on lichen sclerosis and sexual health. Hosted by Kathy Ruiz-Carter, we have a talented group of experts: patient advocate Jaclyn Lanthier, gynecologist Dr. Suzanne Weber, and pelvic health physical therapist Dr. Mamawah Bourque.We cover key topics like LS treatment and management, tips for engaging in sexual activity, managing symptoms during menstruation, considerations around pregnancy, and more. The panel shares practical guidance...2024-04-221h 14
Lichen Sclerosus PodcastRebuilding Relationships and Reconnecting with Lichen SclerosusTopics:What is the LSSN Wholistic Healing Summit?Importance of addressing relationships affected by Lichen Sclerosus (LS)Summit focus: Partners, Caregivers, and DisclosureSessions for patients, partners, and caregiversWellbeing activities for stress managementOpportunities to connect with other attendeesKey PointsLSSN is a non-profit patient organization providing education and support for those with LS.LS impacts all aspects of life, including relationships.The summit helps patients, partners, and caregivers discuss LS, manage sexual health, and build intimacy.Free, Value, and All Access ticket options are available.Time Stamps00:00:00 - Introduction to Holistic...2024-04-1721 min
Purpose & Profit Club® – The Nonprofit Fundraising Podcast86. How Kathy Doubled Her Fundraising Using the Purpose & Profit Club™ MethodDid you always know that you were going to be working in the nonprofit world, or is it something that the universe directed you toward? This is exactly what happened for today’s guest, Kathy Ruiz-Carter. After being diagnosed with a rare skin disorder she started a podcast to find community, then started a membership, then finally landed on creating her own nonprofit, the Lichen Sclerosus Support Network. On today’s episode, she shares what she’s learned along the way and how she’s managed to be profitable from day one. It’s been so fun to see her grow a...2024-03-2641 min
Lichen Sclerosus PodcastUnraveling The Hormone And Microbiome Puzzle In Lichen SclerosusHey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus. I walked away feeling so hopeful about how this work might improve patient care down the road! 🙌 Dr. Mauskar broke down the key takeaways in an accessible way – no need for a medical degree to follow along! Whether you have lichen sclerosus yourself or treat patients, I think you'll find this chat insightful. A few highlights that caugh...2024-03-0136 min
Lichen Sclerosus PodcastUnlocking LS Wisdom: Exploring the Comprehensive Content of LSSNGet ready for a heart-pounding year-end review of the Lichen Sclerosis Support Network's incredible work. From informative videos to virtual meetups, they're empowering LS warriors like me. But just when everything seems perfect, a shocking revelation threatens to unravel all their progress. Will they overcome this unexpected obstacle? Find out on the Lichen Sclerosus Podcast! In this episode, you will be able to: Discover the latest updates and initiatives from the Lichen Sclerosis Support Network (LSSN) in their year-end review. Explore diet and lifestyle treatment resources that can help manage Lichen Sclerosis (LS...2023-11-2758 min
Lichen Sclerosus PodcastWhy You Need to be at the LSSN Mini SummitHave you heard about the LSSN Mini Summit: Vulvovaginal Conditions? It’s our 3-day, 100% virtual event presented by medical experts on rarely discussed conditions, such as lichen sclerosus. You may be saying, I already have LS. Why do I need to know about other conditions? Or I don’t want to know about anything else. But the thing is, this is VERY important to your LS journey! In this episode, I will explain why you do not want to miss this summit, especially if you already have a vulvovaginal condition. We’re going to talk about: 🪷 Misdiagnosis 🪷 Secondary conditions 🪷 Proper treatmen...2023-09-1529 min
Lichen Sclerosus PodcastFind Your Power Through Pelvic Health with Wellness.By.Penny In this episode, you will be able to: Explore the impact of holistic methods on pelvic health and wellness. Harness the strength of your pelvic area to alleviate pain. Foster a nurturing environment for individuals coping with pelvic pain. Unlock a fulfilling life through empowerment for those with chronic conditions. My special guest is Penny Petersson Penny reaches her audience through her Instagram account, @wellbeingbypenny, where she spreads positivity and humor, despite her own pelvic health challenges. Her unique way of turning the difficult into digestible...2023-06-2324 min
Lichen Sclerosus PodcastThe Challenges of Research with Sophie ReesIn this podcast, Sophie Reese, an English researcher, discusses her work on the project Living with Vulva LS, a Mixed Method Study. She mentions the development of a checklist of diagnostic criteria to help health professionals diagnose LS accurately and quickly. Sophie highlights the challenges in recruiting participants for research studies, particularly ethical issues, and the responsibility of researchers to publish their findings to create real-world changes. The interviewee emphasizes the need for inclusivity in medical research, communicating with different groups, and improving research involvement among patients. She invites patients to reach out to providers or patient groups to...2023-06-161h 03
Lichen Sclerosus PodcastListen to This If You're Looking For Evidence-based Information and CommunityWhen I started the podcast, I never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, we strive to make a brighter tomorrow for those facing the same struggle I once did. But what does the future hold for this amazing network? Learn more and get your pass today at https://whhs.lssupportnetwork.org/ In this episode, you will be able to: Experience the transformational effects of holistic healing on lichen sclerosus patients at the inspiring summit.2023-04-3011 min
Lichen Sclerosus PodcastHow steroids affect lichen sclerosus patients with Dr. Jill KrapfJoin me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosus, one must consider all variables involved for optimal application. In this review article, the authors explore the science of the skin and the effects of inflammation, as well as the absorption of the medication. However, with limited research guiding us, the answer remains scattered and uncertain, leaving us with...2023-04-2545 min
Lichen Sclerosus PodcastDo you want to Get Your Sexy Back? You need this program.Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been destroyed? Is your libido nonexistent? Like you have no desire for sex and intimacy? Here’s the thing. You are not alone! What if we had a way to turn it around? If you're ready to get your sexy back, you need to watch this video and go to https://lssupportnetwork.org/sexyback We spent mo...2023-03-3128 min
Lichen Sclerosus PodcastDemystifying steroid treatment for lichen sclerosusJoin me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do we need it? And she answers some frequently heard steroid concerns. If you’re on the fence about or want to learn more about steroids, this is the episode for you. In this video, you will learn: 1. What is the current understanding of the cause of Lichen Sclerosus, and what role do external stressors, diet, hormones, and trauma play? 2. How can topical steroids be...2023-03-1751 min
Lichen Sclerosus PodcastPain Relief Without Pills: Ashlie Crewe's Guide to Treating Persistent Pelvic PainAshlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system. "The beautiful thing, good and bad, is that physical therapists, we're not allowed to prescribe medicine in the United States. So I think one of the cool things about my job then is we're really taught to work with the human body, and we're not allowed to order imaging, we're not allowed to prescribe...2023-03-0253 min
Lichen Sclerosus PodcastDr. Rachel Rubin: Unlocking Clitoral Fusing Through Non-surgical LysisIn this podcast episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Adhesions and how her innovative stretching procedure has resulted in a 76% decrease in pain and a 64% increase in orgasm rate for these women. "We have so much work to do because no one taught your doctor how to examine a clitoris. No one. They never learned. They feel like it's not their space and it's not their place, and they feel weird of, what am I looking for? No one ever taught me how to do this." Dr. Rachel...2023-02-1648 min
Lichen Sclerosus PodcastStruggling with Stress and LS? You need to hear this!Hey! Welcome! I'm on a bit of a hiatus with Podcast as I build out Lichen Sclerosus Support Network, but, when my girl Jaclyn from The Lost Labia Chronicles told me about her latest project, I was like, "girl, we need to make a podcast episode and let our community know". So here we are! If you experience a lot of stress from living with lichen sclerosus, you definitely want to listen to this amazing opportunity that I just know you will want in on. Vagus Nerve and Lichen Scleorsus Workshop June 21 and 23 6-8 PM EDT - Get all...2022-06-1427 min
Lichen Sclerosus PodcastIs Somatic Sex Education for YOU?Today we talk to Shauna Farabaugh, a somatic sex educator about how it can help us have a sexual rebirth. Shauna is one of our Holistic Healing Summit speakers. We hope you can join us. With over 30 sessions dedicated to approaching LS from a whole-body approach, there's something for every LS Warrior. Find out more at holistichealingsummit.live We're excited to announce the Get Your Sexy Back program! If LS has taken your mojo and you're ready to take it back this is the class for you! Find out more at...2022-05-0325 min
Lichen Sclerosus PodcastUnravelling 9 Years of Managing LS Naturally Through AIPAngie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an ambitious goal that leads to a journey of self-discovery and healing. Here's what Angie Alt and I cover: 1. How Angie Alt transformed the Paleo Diet into the Autoimmune Protocol to manage her Lichen Sclerosis for 9 years. 2. What is the Autoimmune Protocol and how can it help those living with autoimmune diseases? 3. How to navigate the Autoimmune Protocol in a sustainable way with the help of Angie Alt’s program. Angie Alt is an autoimmune protocol coach an...2022-02-0553 min
Lichen Sclerosus PodcastHow to apply your LS steroid treatment correctly with Dr. Jill KrapfWere you given a steroid treatment for your LS but not told when or how to use it? Or were the directions unclear, but you're not sure where to turn to for information?Don't worry because we get answers to those questions in this episode and more with Dr. Jill Krapf, leading LS researcher and specialist.To contact and work with Dr. Krapf, go to www.cvvd.org and fill out their contact form or call them. You can also follow Dr. Krapf on Instagram and Facebook @jillkrapfmd.2022-01-2143 min
Lichen Sclerosus PodcastWhy are health goals important?It's a new year and a perfect time to set goals. I'm not just talking about life goals, either. I'm talking about health goals! We set at least one life and one LS goal we want to work on inside our private membership. Every week we set mini-goals to get us to our big goals. And let me tell you, this process WORKS. We've had so many amazing transformations working through this process. In this episode, I walk you through why it's important to set health goals and how to start doing it.2022-01-0823 min
Lichen Sclerosus PodcastTop 5 Episodes of 2021Welcome. If you’ve been listening to the podcast for a while, I want to give you a shout-out and thank you for sticking with me this year. This was the year of transition, and because of that, there weren’t very many episodes published, but you kept coming back. I appreciate you so much! If you’ve just found me, I want to thank you for listening, and I hope you get value out of it. At the very least, know that you are not alone. Since this is the last episode of 2021, I though...2021-12-1830 min
Lichen Sclerosus PodcastPediatric Lichen Sclerosus with Dr. Sandy FlannToday I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Yes, you heard that right, Pediatric Lichen Sclerosus! As we know, Lichen Sclerosus can affect anyone, of any age - children included. Unfortunately, there is a lack of research and resources for parents of children with Lichen Sclerosus. So, today we're going to find out about treatment, what to look for, the progression of symptoms, and how we can help our children become comfortable in their skin. This is an important episode if you have a...2021-12-1053 min
Lichen Sclerosus PodcastDon't Let Lichen Sclerosus Take Control Of Your LifeHey, welcome. In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to speak on. I want to talk about not letting Lichen Sclerosus control your life; not letting it rob you of the vibrant and wondrous person you are. I want to thank our sponsor, Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their website lssupport.net...2021-12-0316 min
Lichen Sclerosus PodcastWhat's the best lubricant for Lichen Sclerosus? Hey! Welcome! Have you ever wondered what lube is best for Lichen Sclerosus? Perhaps you felt overwhelmed by the massive selection of lube options online and had no clue what to buy? Have you ever wondered what you should look for and avoid in a lube? If yes, this is the episode for you! Today I am here with my amazing friend and follow LS warrior, Jaclyn, from The Lost Labia Chronicles, and we are going to be talking about lubrication, artificial lubrication, that is. But before we jump...2021-11-1937 min
Lichen Sclerosus PodcastLS Grooming Best Practices with Dr. Cynthia WesleyToday, I am here with Dr. Cynthia Wesley (aka Dr. Cyn), a board-certified OBGYN with over 16 years of experience and a vulvar skin expert. Dr. Cyn is passionate about vulvar care, hygiene, and grooming. She will share her tips on how to take care of your vulva when you have Lichen Sclerosus. We discussed everything from using the bathroom, bathing, moisturizing, hair removal, and more. So many great tips in here. Resources mentioned in the episode: Dr. Cyn’s website: drcynobgyn.com Dr. Cyn’s exclusive vulvar prod...2021-11-111h 01
Lichen Sclerosus PodcastHow Pelvic Floor Physical Therapy Helps Lichen Sclerosus with Ashley StumpHey welcome! This week I'm so excited to finally publish this episode with Ashley Stump. She's a pelvic floor physical therapist who knows all about Lichen Sclerosus. I learned so much during this episode, we talked about what pelvic floor physical therapy is, why women with Lichen Sclerosus need it, what to expect on your first visit, and we talked about lubes. We talked about so much, so much gold and she even gave us tips on what to look for when you're looking for a new pelvic floor physical therapist, and some...2021-11-0550 min
Lichen Sclerosus PodcastCovid UpdateIf you're seeing two of these or getting this episode really late, apologies. I realized half of my listeners didn't get the episode because I released it in video format versus audio. 🤦🏽♀️ Either way everyone should have at least one version of the episode. Thanks for understanding. Heeeyyy! Longtime no see. lol Life has been busy and a bit hectic and I'm ready to let you in on everything that's been going on. And the most exciting news. You'll be getting new episodes starting Nov 5! First off we have incorporated Lichen Sclerosus Su...2021-11-0416 min
Lichen Sclerosus PodcastCovid UpdateHeeeyyy! Longtime no see. lol Life has been busy and a bit hectic and I'm ready to let you in on everything that's been going on. And the most exciting news. You'll be getting new episodes starting Nov 5! First off we have incorporated Lichen Sclerosus Support Network and we are an official not-for-profit! Find out what we've been doing and what our future plans are. Want to volunteer? lssupport.net/volunteer Want to donate? lssupport.net/donate Secondly, my family caught covid and my husband...2021-10-3016 min
Lichen Sclerosus PodcastLichen Sclerosus Holistic Healing SummitHope you’ve had a chance to hear about our new venture into the nonprofit realm. If not read all about it on our website. lssupport.net/nonprofit or listen to the previous episode. It’s exciting, right! Just when you thought it couldn’t get any better we’re back with more. Today we’re announcing our first fundraising event, Lichen Sclerosus Holistic Healing Summit sponsored by Lichen Sclerosus Support Network. In celebration of National Women’s Health Week, we’re bringing you 5 days of information...2021-05-0612 min
Lichen Sclerosus PodcastLichen Sclerosus Provider Directory and an LS Nonprofit?Hey!!! Welcome! I'm so happy you're here. I've got some AMAZING news. We have released the searchable provider directory! It's ready for you to explore. It's brand new so we have to work out all the kinks as we grow it but it's better than nothing. https://lichensclerosuspodcast.com/searchable-lichen-sclerosus-provider-database/ We have some equally exciting news. We are turning Lichen Sclerosus Support Network into an official nonprofit! Our mission will be to prevent the negative emotional and mental health effects that can come with an LS diagnosis.2021-04-3029 min
Lichen Sclerosus PodcastAcceptance and Resilience: A Round Table DiscussionHey! Welcome! I’m so glad you are here with us today! We are going to shake this up a bit and have a live round table discussion about the concepts of acceptance and resilience with some members of the LS Warriors membership. The concepts of acceptance and resilience are critical to living with a disease such as Lichen Sclerosus. In this round table discussion, I will ask our participants a series of questions relating to these concepts and Lichen Sclerosus. I would love to hear your thoughts on acceptance and resilience. Email me at Kathy@lichensclerosuspodcast.co...2021-04-1656 min
Lichen Sclerosus PodcastHow to Find Peace After Stress Triggers Your LS, Jennifer's StoryI’m so glad you are here with us today. In today’s episode, we are joined by Jen, one of the LS Warriors! She is here to share the amazing story of her journey with Lichen Sclerosus. Jen’s journey involves a traumatic birth and a lot of stress to her vulva and vagina. She discusses what this process was like, how her symptoms manifested after the birth of her daughter, her diagnosis, and how she now deals with stress and Lichen Sclerosus. If you want to reach out to Jen, you can message her on Twitte...2021-04-0944 min
Lichen Sclerosus PodcastLichen Sclerosus and Diet? Does the research look good?Uncover the potential connection between your diet and long-term health with this groundbreaking research on Diet and LS. Erica Eberl is a 23-year-old dietitian and LS warrior who was diagnosed less than a year ago. She has used her skills and resources to research LS and diet and shares her findings to help others. After Erica Eberl was diagnosed with LS, she did extensive research on diet and LS and found three studies that she was able to share. One study from Italy found that avocado and soybean extract cream and a...2021-04-0251 min
Lichen Sclerosus PodcastHow could nutrition therapy help heal your Lichen Sclerosus?Unearth the root cause of your Lichen Sclerosus and transform your life with Heather Cooan's real talk about nutrition and lifestyle changes. "But she didn't let that hold her down, and she advocated for herself and was able to heal her cancer and her Lichen Sclerosus support Network through the use of naturopathic therapy." Heather Cooan is a certified nutrition therapy practitioner and functional diagnostic nutrition practitioner. She found her passion for nutrition after her own battle with Lichen Sclerosus and vulvar cancer, and now works to help others heal their LS through naturopathic therapy. Heather Cooan was diagnosed with...2021-03-2659 min
Lichen Sclerosus PodcastHow Self-Advocating Actually Helped Beat Vulvar CancerToday we are joined (again) by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Last episode we heard her diagnosis story. Unfortunately, Heather went undiagnosed for over 25 years, allowing her Lichen Sclerosus to develop into vulvar cancer. This was a gross failure of the medical system. In today’s episode, we learn how Heather advocated for herself and fought for her values. Today her Lichen Sclerosus is in remission and she is now cancer-free! Her story reminds us of the importance of self-advocacy in the medical realm. Be sure to subscribe so you do...2021-03-1940 min
Lichen Sclerosus PodcastHow The System Failed Heather CooanToday we are joined by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Heather’s journey from how the medical system let her down to self-advocacy and taking control of her health and body is nothing short of incredible. Her story will be told in two parts. Today, we begin with when Heather’s symptoms first began to manifest, how they impacted her life, and how she was repeatedly let down by the system. Email me at kathy@lichensclerosuspodcast.com or DM me on IG @lichensclerosuspodcast and let me know what you thought of He...2021-03-1233 min
Lichen Sclerosus PodcastJaclyn's Lost Labia Journey: Finding CommunityHey! Welcome. I'm excited to bring you the second part of my conversation with my LS sister, Jaclyn. In this episode, she shares what it took to go from suffering so bad she had to stop having sex with her new husband to having multi-orgasm sex multiple times a week. I hope this story inspires you because you can do this too! I truly believe you can. It won't be easy but you absolutely can. Please let me know if you're ready to start down the path back to health. We're here to...2021-03-0537 min
Lichen Sclerosus PodcastJaclyn's Lost Labia Journey: Surviving AloneHey! Welcome to the Lichen Sclerosus Podcast. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling alone and hopeless to empowered and thriving is captivating! Jaclyn is truly a beacon of light in our Lichen Sclerosus community and her story is sure to captivate you. This is the story of how Jaclyn began her Lichen Sclerosus journey with little information. While she had started to compile a team (i.e., her doctor, her sex therapist, her pelvic floor...2021-02-2654 min
Lichen Sclerosus PodcastHow to Snap Out of Appointment AnxietyThis week we talk about an awful drive I recently had to the doctor's office. I was overtaken by negative thoughts and emotions of what the future might bring. Eventually, I pulled myself out of those negative thoughts and emotions so I could do what I needed to do. I want to share with you my technique for staying in the present and changing my focus. This podcast is brought to you by Lichen Sclerosus Support Network, providing information, education, and support for people with Lichen Sclerosus. Find the full show...2021-02-1927 min
Lichen Sclerosus PodcastCarrie Bock’s LS Journey: From Pain To LoveDoes Lichen Sclerosus make penetrative sex painful for you? Has LS been a factor in a relationship breakup? Are you single and wonder if you'll ever be in a healthy relationship again? These are all questions this week's guest had to confront. After the demise of her 10-year marriage, she was determined to find out what was happening to her body. It took many more years for her to get a diagnosis, find acceptance, and ultimately love. Not just romantic love but love for herself. I invite you to listen to this brave woman's journey...2021-02-121h 00
Lichen Sclerosus PodcastHow are reproductive age women and steroids similar with Dr. Jill KrapfWelcome to season 2 of Lichen Sclerosus Podcast. For our first episode, the esteemed Dr. Jill Krapf and I discuss new research into women of reproductive age with LS. This under-studied group is often misdiagnosed or turned away being told ridiculous things. If you're between 18 and 50 and want to be part of the research head over to lichensclerosuspodcast.com/survey and fill out the questionnaire. Make your voice heard. We also discuss how the proper application of steroids can make a difference to our disease. She lays out exactly how to use, when to...2021-02-0553 min
Lichen Sclerosus PodcastHow GRATITUDE can top FEAR and ANXIETY when you have LICHEN SCLEROSUSI woke up this Thanksgiving with a message of gratitude on my heart. Please don't let the fear and anxiety of Lichen Sclerosus pull you from the joy and happiness in your life. Find and focus on the pockets of gratitude and positivity. Make sure you sign up for next months virtual meetup at https://www.subscribepage.com/lsconnect And don't forget to follow me: IG - https://www.instagram.com/lichensclerosuspodcast/ FB - https://www.facebook.com/lichensclerosussupportnetwork2020-11-2825 min
Lichen Sclerosus PodcastIs Lichen Sclerosus lowering your sex drive?Fresh off the first Lichen Sclerosus Podcast Virtual Meetup I'm excited to bring fresh insights.As I'm sure you know because you live it Lichen Sclerosus does terrible things to our sex life. Sometimes stopping it completely.This week we look at how our libido is impacted by LS and how we can get it back.There's tons of information to look at. All links will be on the website show notes page at https://lssupportnetwork.org/is-lichen-sclerosus-lowering-your-sex-drive/.Make sure you sign...2020-11-2133 min
Lichen Sclerosus PodcastMy Diagnosis Story: KathyI'm so excited to bring back one of my favorite guests. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". She is so much fun and I could not wait to speak with her again. We go in-depth on my story and discuss some of the decisions I made. My hope is that you learn something from my experiences or at the very least know that you are not alone. Please reach out: IG - https://www.instagram.com/lichensclerosuspodcast/2020-11-131h 05
Lichen Sclerosus PodcastLichen Sclerosus Diagnosis Stories: You Are Not AloneThis week four Lichen Sclerosus Warriors share their diagnosis stories with us. Although each of their stories is individualized they all have similarities to our own. LS can be such a lonely disease but by sharing our stories we realize there are thousands of women feeling and going through what we are going through. I hope you feel a little less alone today after listening to this episode. Don't forget to signup for the Lichen Sclerosus Podcast Virtual Meetup - https://lichensclerosuspodcast.com/connect/ Other episodes mentioned: The Mental...2020-11-0628 min
My Sentiments Exactly069: How Looking Down Under Just Might Save Your Life ft. Kathy Ruiz-CarterTune in to hear Kay and Kathy discuss Kathy’s journey with a condition that speaks to why routine self-exams shouldn’t stop at breasts. According to her, this topic is so stigmatized that many podcast hosts won’t allow it, but knowledge of it can be life-changing. Kathy is an activist for Lichen Sclerosus, a rare incurable skin condition that mostly affects women. After being diagnosed she started the Lichen Sclerosus Podcast to raise awareness. Her recent project, the Lichen Sclerosus Support Network, is to help LS survivors get through the fear, anxiety, and other emotional issues that stem from d...2020-11-0600 min
Lichen Sclerosus PodcastHow to still have a great relationship despite Lichen SclerosusHave you ever thought about how LS will or has affected your relationship? How it has or will affect your partner? This week I was inspired by a DM I received on Instagram from a young man looking to support his companion. The love and care he expressed sent me looking for actionable tips for how we can maintain healthy happy relationships despite LS. Listen to find out how we can support each other in our relationship, how our partners can support us, and how we support our partners. So grab your partner...2020-10-3030 min
Lichen Sclerosus Podcast7 Ways to Stop Vulvar Itch from Lichen SclerosusDo you have the itch? You know the one I'm talking about. The one that makes your vulva feel like ants are crawling all over it. That unforgiving desire to scratch. Yeah, that one. This week we discuss why we itch when we do and I give you seven ways ladies combat the itch. As always don't forget to subscribe and share. Follow me on Instagram @lichensclerosuspodcast and on FB @lichensclerosussupportnetwork. Full show notes at lichensclerosuspodcast.com/vulvaritch2020-10-2318 min
Lichen Sclerosus PodcastThe mental side of Lichen SclerosusThis week I make my contribution to World Mental Health Day. I am super passionate about the aspect of mental health in Lichen Sclerosus. In this episode, we discuss what research has been done on Lichen Sclerosus and mental health as well as hear from some Lichen Sclerosus sisters and their thoughts on LS and mental health. If you need help with mental health please reach out. I'm always available even if it's just to talk. I shared lots of resources in this episode so please don't suffer in silence. Website...2020-10-1630 min
Lichen Sclerosus PodcastWhy I hesitated to check my vulva but you shouldn’t delay. Did you know you were supposed to check your vulva each month? Yep! But what exactly does that mean? What are we looking for? What do we do if something doesn't look right? In this episode, I share my first experience checking my vulva and provide you with step-by-step directions on how to check yours. First time I checked my vulva So here's the thing. I started this podcast. Being completely ignorant of the practical knowledge needed to be known with Lichen Sclerosus. I didn't know I was supposed...2020-10-0919 min
Lichen Sclerosus PodcastHow to advocate for yourself and make your doctor an effective partnerIs your train of thought, "I'm going to the doctor so they can tell me what's wrong and they can fix me."? Yeah, mine used to be too. Until I started advocating for myself and made my doctor my partner in healthcare. This week I give you my three-stage plan on how to create that partnership. If you have any tips or tricks you use to advocate for yourself at the doctor's office please share them and I will add them to the show notes on the website. Don't forget to s...2020-10-0220 min
Lichen Sclerosus PodcastLichen Sclerosus BasicsHave you recently been diagnosed with Lichen Sclerosus or just started looking into it? If so this is the episode for you. Today we talk about causes, symptoms, treatments, and best practices. This is not a know-all be all, it is the basics to get you started down a path of wellness and acceptance. Don't forget to subscribe. IG - https://www.instagram.com/lichensclerosuspodcast/ Facebook - https://www.facebook.com/lichensclerosussupportnetwork 2020-09-2516 minLichen Sclerosus PodcastUpdate: Where the hell have I been?Just wanted to let you know I was alive and what's going on.2020-09-1912 min
Lichen Sclerosus PodcastGiving Yourself GraceThis week I give you a health update and explain how I've been practicing giving myself grace. Chronic illness can create changes in our lives that we do not like but have to accept. This is where I find myself at the moment. I don't like it but I have to treat myself with care or I will make it worse. So this episode is the four tips I give in week 4 of my 5-week program "Get OK with LS". I hope they are as helpful to you as they are to me and the...2020-08-1520 min
Lichen Sclerosus PodcastPull Back Your Power with Dr. Anne WhitehouseHas LS taken over most of your waking thoughts? Does it have you questioning your womanhood or sex appeal? Has it made you feel less than? Then you need to listen to this episode. This week I speak with Dr. Anne Whitehouse who has developed a process to refocus our subconscious from our illness back onto the things that are truly important to us. Through daily practice, she has been able to work through anxiety, stress, and fear brought on by the deeply engrained pressures put on us by society. If you would...2020-08-0836 min
Lichen Sclerosus PodcastListen to your bodyThis week I went off script and had a frank talk about what's been going on with me. It's so important to listen when your body is telling you to slow down or something is wrong. Hopefully, I will be back to full strength next week and we will be back to your regularly scheduled program. Don't' forget to follow me on social media so you can get notified of my live events. Facebook - https://www.facebook.com/lichensclerosussupportnetwork/ Instagram - https://www.instagram.com/lichensclerosuspodcast/ Youtube...2020-08-0114 min
Lichen Sclerosus PodcastLou's Diagnosis StoryOur sister in Lichen Sclerosus, Lou from Australia, shares her diagnosis story with us. Her trials with everything from doctors to mental health. Be prepared to smile and laugh because we had fun. And although our stories are individual to ourselves we share a lot of similarities. So share in the sisterhood of LS. Also, stay tuned to the end for an exciting announcement. Don't forget to subscribe to be notified of the next episode. Instagram @lichensclerosuspodcast Facebook @lichensclerosussupportnetwrok Resources: Video Lou shared with her...2020-07-2533 min
Lichen Sclerosus PodcastDo you need a support group?This week we dive into support groups. Why you may need one? Why they are important and what to look for in the right support group for you? I'll also introduce you to two Facebook support group admins and let them tell you a bit about their groups. Links for groups as follows: Lichen Sclerosus Sclerosis UK Support Group For Women Facebook - https://www.facebook.com/groups/221930761513570/ Website - https://lsvcukawareness.weebly.com/ Twitter - https://twitter.com/LSclerosus & https://twitter.com/Vulvalcanceruk Instagram...2020-07-1823 min
Lichen Sclerosus PodcastLS Clinical Trials with Leia MitchellLeia Mitchell and I are back with the second part of our conversation. This week we discuss clinical trial research around Lichen Sclerosus. Leia tells us where the research is on LS mental health as well as where she sees future research heading. We look at what makes a good trial and the risk we need to think about when looking to participate in a trial. So if you're interested in where the science is going definitely check this episode out. Also, check out our new Facebook page for the Lichen Sclerosus Support N...2020-07-1029 minLichen Sclerosus PodcastNot in a good placeHey. It's been a tough time lately and I can't be of service to you the way I want to so I will be taking some time off. I hope to be back reinvigorated. If you would like to keep in touch you can follow me on Instagram @lichensclerosuspodcast, email me at lichensclerosuspodcast@gmail.com, or join the Lichen Sclerosus Support Network where I will be the most active at https://members.lssupport.net. I'm also going to dip my toe in Tik Tok so you can follow me at @lichen_sclerosus_podcast. Stay safe.2020-06-1307 minLichen Sclerosus PodcastDoes Using Your Voice Really Work?This is the hardest episode I have ever recorded. It's raw and barely edited. It is needed. Please please please listen to this message. It is so important. After you listen tell me does using your voice really work? kathy@lichensclerosuspodcast.com lichensclerosuspodcast.com/blm2020-06-0442 min
Lichen Sclerosus PodcastThe State of Lichen Sclerosus Today with Leia MitchellEver wonder what's going on with Lichen Sclerosus today? With all the different perspectives and voices what does the science say? I speak with Leia Mitchell a clinical research coordinator, medical scribe, and clinical assistant working with some of the top names in the Lichen Sclerosus medical field. She lays out the findings of a recent clinical review, Vulvar Lichen Sclerosus: Current Perspectives. We discuss what the science says about what causes LS, how it presents, and the different ways to treat it. We dive deep into the different treatments. From...2020-05-3035 min
Lichen Sclerosus PodcastDoes Trauma Inform Our Lichen Sclerosus?This week I talked to Dr. Sanaz Yaghmai about how physical trauma affects our Lichen Sclerosus. We also discussed the difference between a psychologist and a trauma-informed coach, her new practice Alchemy of Trauma, and how Lichen Sclerosus affects her work with other Lichen Sclerosus patients. We had an amazing talk. She shared tips on how to relax and be mindful when preparing to be intimate if you experience pain during sex. If you feel you need someone to talk to check out her website at alchemyoftrauma.com or follow Dr. Sanaz on Instagram @dr...2020-05-0221 min
Lichen Sclerosus PodcastMy Diagnosis Story: Dr. Sanaz YaghmaiPlease join me and this brave lady, Dr. Sanaz Yaghmai, as she shares her Lichen Sclerosus diagnosis story. She has battled LS for the last ten years, looking for answers. At the same time transitioning from psychologist to Trauma-Informed coach, yoga teacher, and birth doula. Now she helps people through her new venture Alchemy Of Trauma, a Trauma-Informed practice centered around coaching for resilience-building and women’s reproductive health. We shared laughs, tears, and insights on sex, relationships, and doctors. Our conversation was so broad and deep that I had to break into tw...2020-04-2535 min
Lichen Sclerosus PodcastWhat Can We Learn From Breast Cancer Awareness?I recorded this on World Voice Day. I decided to use my voice to tell you my mission and hope you join me. Please listen all the way through because this is a very important message. I hope you join the fight and help me change the future of Lichen Sclerosus. You are not alone! The sooner we join together, the sooner we make a change. Thank you. Don't forget to follow Clare. https://www.instagram.com/vulvalcancerukawareness/ And to find out more about my upcoming project, sign up here: https://lichensclerosuspodcast.com/advocate Sources: https://www.ncbi.nlm...2020-04-1722 min
Lichen Sclerosus PodcastWhat if my medicine stops working?What would you do if your topical corticosteroid stopped working? I mean think about. Remember how it felt when you first noticed something was off with your vulva. The uncertainty that crossed your mind. Was this all in your head? How it felt every time you went to the doctor and they gave you a new diagnosis but the medications they gave didn’t work. The frustration and fear that you would never truly know. What about the day you were finally told you had Lichen Sclerosus? The feeling of devastation that you would never be...2020-04-1117 minLichen Sclerosus PodcastHow to have BETTER sex even though you have Lichen Sclerosus.Just a quick warning, I will be talking about sexual things. If you are sensitive to that I completely understand but this may not be the blog for you. For complete show notes and links to resources visit the website. https://lssupportnetwork.org/how-to-have-better-sex-even-though-you-have-lichen-sclerosus/ Join our free international virtual meetups at https://lssupportnetwork.org/connect2020-04-0433 minLichen Sclerosus PodcastShould We Be Worried?Covid-19 aka coronavirus has turned our world upside down. So I went searching to see what people in the online communities were saying about it. Some had questions and concerns about our risk as Lichen Sclerosus patients. They asked questions like, does LS or our treatment make us susceptible to Covid-19? What makes you high risk? What’s the difference between autoimmune and immunosuppressive? So, I went researching, reached out to some doctors, and this is what I found. What About Lichen Sclerosus Could Put Us At Risk? In previous episodes, we...2020-03-2410 minLichen Sclerosus Podcast5 Quick Tips To Destress and Reduce Lichen Sclerosus FlareupsDoes stress cause Lichen Sclerosus flareups? The effects of stress on LS have not been researched. However, my personal experience is that they are connected. Other women in public forums have also associated their Lichen Sclerosus flareups with their level of stress. In today’s hectic and scary environment it is important that we manage our stress and minimize our flareups. The changes implemented to contain the coronavirus are affecting a lot of us. Children are out of school. There is a shortage of toilet paper, soap, and medicine in the stores. Sporting events and large gatherings ar...2020-03-1628 minLichen Sclerosus PodcastThe Worst Symptoms of Lichen SclerosusLichen Sclerosus affects everyone differently. Each person can have a different variety of symptoms or no symptoms at all. This week I tell you about the common, severe and secondary symptoms I learned about in my research. I also discuss how some of them have affected me. Common Symptoms: Itching (mostly at night) Burning and soreness Fissures, nonhealing legions, and blood blisters Excessive sweating between your legs Chronic urinary tract or yeast infections Severe Symptoms: The fusing of the labia The fusing of the clitoral hood Valvular scarring Secondary Symptoms: Depression Isolation...2020-03-0818 minLichen Sclerosus PodcastMy Lichen Sclerosus DiagnosisLichen Sclerosus is often misdiagnosed many times before it is finally correctly diagnosed and treated. This can lead to frustration, disappointment, and worsening symptoms. Unfortunately, this is what happened to Clare Baumhauer. After forty years of suffering, she was told she had developed vulval cancer due to Lichen Sclerosus. My story had many of Clare's twists and turns but fortunately, was caught early. Share your story and help grow our community so we can help each other survive this awful disease. I look forward to hearing from you. Resources used in this episode: https://www.vice.com/en_us...2020-02-2828 minLichen Sclerosus PodcastThe Lichen Sclerosus ManifestoFebruary is Vulval Health Awareness Month, Vulvuary! In celebration, I give you some stats and introduce you to the Association for Lichen Sclerosus and Vulval Health (ALSVH). We take a look at the Lichen Sclerosus Manifesto as I interject many times (I'm sorry. I can't help it!) http://lichensclerosus.org/wp-content/uploads/2011/02/LICHEN-SCLEROSUS-MANIFESTO-PDF.pdf2020-02-2218 minLichen Sclerosus PodcastHello. I have Lichen Sclerosus.Hi! My name is Kathy. I have been diagnosed with Lichen Sclerosus for two years but suffering much longer. I have minimal knowledge of the disease and I was okay with that. That was until about two weeks ago when I had the worst outbreak since I started my medication. I had no one to talk to or ask questions. I decided to find my community and learn as much as I could about this illness. So this is a journal of my learning about and living with Lichen Sclerosus. Please join the community and let's give each other...2020-02-1011 min
Just Martin - my life in soulful house music.Soulfuric - Show 90 - 21st September 2019Incognito Feat. Jocelyn Brown - Always There (M.A.W. Main Mix)
Hardage, Jocelyn Brown, Luyo - Read The Sign (Luyo Remix)
Rosie Gaines, Danny Clark - Closer Than Close (Danny Clark 2019 Vocal Mix)
Daniele Baldi, Veronica Lanelly - Make Me Move (Feat. Veronica Lanelly) (Original Mix)
Louie Vega - Last Night A DJ Saved My Life (feat. Anané & Tony Touch)
Mark Di Meo, Jocelyn Mathieu, Richard Earnshaw - 10k High (Richard Earnshaw Classic Vocal Mix)
Ben Smethurst, Barbara Tucker - Don't Wanna Lose Your Love (Original Mix)
Paris Cesvette - Love Drug (Vocal Mix)
Cornell C.C. Carter, Gary H...2019-09-212h 00