Shows
Down Syndrome Center Podcast#200 - The Next Generation!In honor of the 200th episode of the podcast, three very special guests joined the podcast today to share their memories and the impact that their Uncle Das has had on their lives.2025-04-2912 min
Down Syndrome Center Podcast#199 - Update on Down Syndrome Regression Disorder (DSRD)Dr. Robyn Filipink, part of our Down Syndrome Center team, joined the podcast to talk about the latest information on Down Syndrome Regression Disorder. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and ho...2025-04-1036 min
Down Syndrome Center Podcast#198 - Happy World Down Syndrome Day!Happy World Down Syndrome Day! Hug that special someone with Down syndrome who you love today! If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.2025-03-2102 min
Down Syndrome Center Podcast#197 - National Down Syndrome Congress (NDSC)The Executive Director of the National Down Syndrome Congress, Jim Hudson, joined the podcast to talk about the upcoming NDSC Convention and let us know about the important work that the organization is doing. For more information: NDSC https://www.ndsccenter.org NDSC Convention Registration https://tools.eventpower.com/reg/index/85y7aP2xy5 NDSC Policy and Advocacy https://www.ndsccenter.org/political-advocacy/take-action-stay-informed/ If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@ch...2025-03-1321 min
Down Syndrome Center Podcast#196 - Advocacy 101Advocating for your loved one with Down syndrome can sometimes feel overwhelming. Where do you start? How do you do it effectively? Mitch Rothholz and Julie Gerhart-Rothholz joined the podcast today to share their experiences in advocacy, including experiencing their son Evan as he has become a powerful self-advocate himself. FIND YOUR LEGISLATORCongress: https://www.congress.gov/members/find-your-member HELPFUL NATIONAL ORGANIZATIONSNDSC: https://www.ndsccenter.org/political-advocacy/take-action-stay-informed/ NDSC NDAC: https://www.ndsccenter.org/political-advocacy/national-down-syndrome-advocacy-coalition/ndac-faq/ NDSS: 2025-02-2724 min
Down Syndrome Center Podcast#195 - 2025 Update - Down Syndrome Association of Pittsburgh!Cherese Sandrock (Executive Director) and Greg Coni (Board President) of the Down Syndrome Association of Pittsburgh joined the podcast today to let us know about what's coming up for our local Pittsburgh community in 2025! Down Syndrome Association of Pittsburgh (DSAP)https://dsapgh.org https://facebook.com/dsapgh E-mail: info@dsapgh.org Phone: 412-997-2297 If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Cent...2025-02-1315 min
Down Syndrome Center Podcast#194 - Mental Health Therapy in Down SyndromeDr. Susan Fawcett, PhD, RSLP is the Director or Therapy, Behaviour, and Family Support at the Down Syndrome Resource Foundation (https://www.dsrf.org/about-us/our-staff/susan-fawcett/). Dr. Fawcett joined the podcast to discuss mental health and therapy approaches in people with Down syndrome. For more information: Down Syndrome Resource Foundation https://www.dsrf.org Adult DS Center https://adscresources.advocatehealth.com/resources/?category=Mental%20Health Mental Wellness in Adults with Down Syndrome (book) https://adscresources.advocatehealth.com/mental-wellness-in-adults-with-down-syndrome-2nd-edition/ Down Syndrome Connection of the Bay Resources2025-01-2321 min
Down Syndrome Center Podcast#193 - Personalized Medicine in Down syndrome?Dr. Joaquin Espinosa of the Linda Crnic Institute joined the podcast again today to answer a listener question on a recent scientific study published in the prestigious journal of Nature. https://www.nature.com/articles/s41467-024-49781-1. Listen as he explains what could one day be the future of personalized medicine in Down syndrome. Will we one day be able to reliably predict which conditions a person with Down syndrome may be more likely to have? For more information on the Linda Crnic Institute for Down Syndrome: https://medschool.cuanschutz.edu/linda-crnic-institute For...2025-01-0916 min
Down Syndrome Center Podcast#192 - Year End Guest!To commemorate the year-end of 2024, Liz Sattler joined us on the podcast. Liz is a self-advocate who has worked in our Down Syndrome Center for many years. Liz's position, like all of our roles at the Down Syndrome Center, was made possible through generous philanthropic giving. We are only able to do what we do at our Center because of ongoing support through 1000s of donors over the years. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. If you would like to suggest a to...2024-12-2606 min
Down Syndrome Center Podcast#191 - Cardiac SurgeryDr. Victor Morell, Chief of the Department of Cardiothoracic Surgery at the Children's Hospital of Pittsburgh joined the podcast to talk about cardiac surgery in patients with Down syndrome. He also discussed the new Heart Center buliding that is being constructed and how that will improve the already amazing cardiac care that children receive.2024-11-2123 min
Down Syndrome Center Podcast#190 - Immunizations in Down SyndromeDr. Diane Langkamp is the Director of the Down Syndrome Program at Akron Children's Hospital. She joined the podcast to discuss immunizations in people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. 2024-11-0723 min
Down Syndrome Center Podcast#189 - Buddy Up For LifeBeth Gibson (Executive Director & Founder) and Allison Davis (Program Director) from Buddy Up For Life joined the podcast today to talk about their amazing programs. For more information: https://buddyupforlife.org If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.2024-10-2420 min
Down Syndrome Center Podcast#188 - How Does Provider Bias Affect Delivery of the Diagnosis of Ds?Dr. Stephanie Meredith from the University of Kentucky joined the podcast today to talk about her recently published studies showing how bias affects how medical providers deliver the diagnosis of Down syndrome. She also discusses how her findings on how trust impacts the care delivered to people of Black and Hispanic descent. For more information: Resources for new and expectant parents: https://www.lettercase.org Courses for medical providers: https://www.lettercase.org/education/medical-professionals/ PCORI Resources: https://www.lettercase.org/support-for-black-and-hispanic-new-and-expectant-parents/ Artal JM, Randall L, Rubeck S, Allyse M...2024-10-1022 min
Down Syndrome Center Podcast#187 - Why Have a Down Syndrome Center?On this podcast, Dr. Vellody addresses the same question that came in from 2 listeners about the role of a Down Syndrome Center? Why have one? Are there things that happen at a Down Syndrome Center that are not easily done in a regular primary care visit? If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. 2024-09-2620 min
Down Syndrome Center Podcast#186 - Supplements in Down Syndrome - What Do We Know?Shannon Frizzell, MS, RD, LDN leads our Nutrition team at the Down Syndrome Center of Western PA. She joins the podcast today to answer a listener question on nutritional supplements in Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. 2024-09-1218 min
Down Syndrome Center Podcast#185 - The Immune System in Down SyndromeDr. Dusan Bogunovic is the Director of the Center for Genetic Errors of Immunity at Columbia University Medical Center in New York. He joined the podcast today to share about the intriguing immune system in people with Down syndrome and their increased risk of inflammation and infection. For more information on Dr. Bogunovic research trial, go to https://www.downsyndromeclinicaltrial.com. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Synd...2024-08-2926 min
Down Syndrome Center Podcast#184 - Baby Led Weaning (with Jill Rabin)Jill Rabin joined the podcast today to discuss Baby Led Weaning and what that looks like for someone with Down syndrome. For more information: Rabin, Jill, and Gill Rapley. Your Baby Can Self-Feed, Too: Adapted Baby-Led Weaning for Children with Developmental Delays or Other Feeding Challenges. The Experiment, 2022. https://theexperimentpublishing.com/catalogs/fall-2022/your-baby-can-self-feed-too/ www.jillrabin.com https://www.instagram.com/jillrabinablw/?igsh=MWd5NTFzZmQ0enNwbw%3D%3D&utm_source=qr If you would like to suggest a topic for us to cover on the podcast, please sen...2024-08-1524 min
That's PediatricsThat's Pediatrics: Joining the Down Syndrome Community with Kishore Vellody, MDLots of people have a personal connection to their work and Kishore Vellody, MD, medical director of the Down Syndrome Center, credits his motivation to his older brother, who has Down syndrome. Dr. Vellody discusses his career, the thriving Down syndrome community in Pittsburgh, and starting his own podcast, the Down Syndrome Center of Western Pennsylvania podcast. The National Down Syndrome Convention will be held in Pittsburgh at the end of June.2024-07-2218 min
Down Syndrome Center Podcast#183 - Behavioral Support Services (with Dr. Santamaria)The Down Syndrome Center of Western Pennsylvania's very own psychologist, Dr. Tarin Santamaria, joined the podcast to help us understand the "alphabet soup" of behavioral support services that are available in the community.2024-07-1122 min
Down Syndrome Center Podcast#182 - Anesthesia in Down Syndrome, Part 2Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital. He joined the podcast to discuss specific issues related to anesthesia in Down syndrome. This is Part 2 of the podcast. 2024-06-2030 min
Down Syndrome Center Podcast#181 - Anesthesia in Down syndrome, Part 1Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital. He joined the podcast to discuss specific issues related to anesthesia in Down syndrome. This is Part 1 of the podcast. 2024-06-0627 min
Down Syndrome Center Podcast#180 - Sleep Questions!Dr. Lucy Lubinski is a Sleep Psychologist at Children's Hospital of Pittsburgh. She joined the podcast today to discuss common sleep related issues in pediatrics and approaches to management. Pediatric Sleep Councilhttps://www.babysleep.com If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.2024-05-2322 min
Down Syndrome Center Podcast#179 - Exceptional Families of the MilitaryRebecca Emerson and Austin Carrigg joined the podcast to talk about Exceptional Families of the Military, a 501 c(3) non-profit that helps families who are enrolled in the Department of Defense Exceptional Family Member Program. They discussed what to do when a diagnosis of Down syndrome is received while in the military and available supports and resources available to those families. Exceptional Families of the Military https://exceptionalmilitaryfam.com/military-support-groups Down Syndrome Diagnosis Netword Military Families Grouphttps://www.facebook.com/groups/2207125775996497 Military OneSource https://www.militaryonesource.mil/resources/network/efmp-and-me/?g...2024-05-0925 min
Down Syndrome Center Podcast#178 - John's Crazy Socks!John and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks. Listen to the podcast to find out why their mission is about something so much greater than "just socks." For more information about John's Crazy Socks (and to buy your own!), visit: https://johnscrazysocks.com If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this...2024-04-1828 min
Down Syndrome Center Podcast#177 - Weight Loss Medications and SurgeriesDr. Vibha Singhal, pediatric endocrinologist, and Dr. Kellen Hayes, bariatric surgeon, joined the podcast to give their thoughts on the latest buzz around weight loss medications and bariatric surgeries. They also give their thoughts specifically on these treatments/management strategies for people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. 2024-04-0428 min
Down Syndrome Center Podcast#176 - Happy World Down Syndrome Day 2024!NDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing. He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them.2024-03-2126 min
Down Syndrome Center Podcast#175 - Inflammation in Down Syndrome (with Dr. Joaquin Espinosa)Dr. Joaquin Espinosa is the Executive Director of the Linda Crnic Institute for Down Syndrome at the University of Colorado. He joins the podcast today to discuss his research on inflammation in Down syndrome and how modifications in the immune system can potentially be used in treatment of common disease conditions seen in people with Down syndrome. To learn more about the Human Trisome Project, visit: https://www.trisome.org To learn more about research trials in Down syndrome, visit: https://www.clinicaltrials.gov If you would like to su...2024-03-0729 min
Down Syndrome Center Podcast#174 - Dating in Down Syndrome (with Terri Couwenhoven)Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She rejoined the podcast this week to talk about dating and Down syndrome. For more information on Terri, her amazing resources, book her as a speaker for your group, go to: https://www.terricouwenhoven.com/ Resources discussed on the podcast: Dating in Down Syndrome Books by Terri https://www.terricouwenhoven.com/work Adult Down Syndrome Center (Advoca...2024-02-2225 min
Down Syndrome Center Podcast#173 - Sexuality and Down Syndrome (with Terri Couwenhoven)Terri Couwenhoven is known internationally for her work as a sex educator specializing in creating programs and resources for people who have intellectual disabilities, their famlies, and the professionals who support them. She has been on the podcast before but joins us again to today for updates on the topic of sexuality and Down syndrome. For more information on Terri, her amazing resources, book her as a speaker for your group, go to: https://www.terricouwenhoven.com/ Resources discussed on the podcast: https://www.nytimes.com/2022/01/20/well/sustainable-period-products.html Terri's books...2024-02-0830 min
Down Syndrome Center Podcast#172 - Hearing Health in Down Syndrome (with Dr. Heather Porter)Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 2 of the 2 part podcast. https://www.boystownhospital.org/services/ear-nose-throat/pediatric-hearing-clinic If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down...2024-01-2523 min
Down Syndrome Center Podcast#171 - Hearing Health in Down Syndrome (with Dr. Heather Porter)Dr. Heather Porter from Boys Town Research Hospital joined the podcast to discuss hearing health in Down syndrome. This is part 1 of a 2 part series. https://www.boystownhospital.org/services/ear-nose-throat/pediatric-hearing-clinic If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down...2024-01-1117 min
Down Syndrome Center Podcast#170 - Dementia in Down Syndrome, Part 2 (with Dr. Seth Keller)Dr. Seth Keller concludes our discussion on dementia in Down syndrome with part 2 of this podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 2023-12-2821 min
Down Syndrome Center Podcast#169 - Dementia in Down Syndrome, Part 1 (with Dr. Seth Keller)Dr. Seth Keller joined the podcast to share his insights into dementia and Down syndrome. This is part 1 of a 2 part podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 2023-12-1422 min
Down Syndrome Center Podcast#168 - Year End Update!Listen as Dr. Vellody reflects on the history of this podcast, the history of the Down Syndrome Center, and looks towards the future for both! To learn more about the Down Syndrome Center, you can visit https://www.chp.edu/our-services/down-syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fu...2023-11-2813 min
Down Syndrome Center Podcast#167 - Talk Tools (with Heather Vukelich)Speech language pathologist Heather Vukelich joined the podcast today to inform us about TalkTools and techniques to address feeding and speech clarity in people with Down syndrome. Websites/Resourceswww.talktools.com www.happykidstherapy.com www.happykidstherapy.com/feeding-class https://www.instagram.com/happykidstherapy/ If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/down...2023-11-1631 min
Down Syndrome Center Podcast#166 - Gigi's Playhouse (with Nanci Gianni)Nancy Gianni, Founder and Chief Belief Officer of Gigi's Playhouse, joined the podcast as part of our "Meet The Nationals" series. Gigi's Playhouse provides free educational, therapeutic-based, and career development programs for individuals with Down syndrome, their families, and the community, through a replicable playhouse model. Their mission and purpose is to change the way the world views Down syndrome and to send a global message of acceptance for all. For more information on Gigi's Playhouse: https://gigisplayhouse.org Nancy Gianni's book: https://shopgigisplayhouse.org/shop/generationg-a-true-story-of-miracles-hope-and-unconditional-acceptance/ If you would like to...2023-11-0228 min
Down Syndrome Center Podcast#165 - Friendship Circle (with Rabbi Mordy Rudolph)Rabbi Mordy Rudolph joined the podcast to discuss the Friendship Circle of Pittsburgh. This amazing organization was established in 2006 with the intention of creating a more inclusive community. It is a community-based program that brings together people of diverse abilities and interests. Information on the local chapter in Squirrel Hill PA can be found: https://www.fcpgh.org If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Do...2023-10-1923 min
Down Syndrome Center Podcast#164 - Black Down Syndrome AssociationKelli Caughman and Crystal Lotterberry, founders of the Black Down Syndrome Association joined the podcast today to share their stories and how they led to the creation of this fantastic organization. For more information, go to https://www.blackdownsyndrome.org/. Co Founders Kelli.Caughman@blackdownsyndrome.org Crystal.Lotterberry@blackdownsyndrome.org General : info@blackdownsyndrome.org Website: https://urldefense.com/v3/__http://www.blackdownsyndromeassociation.org__;!!NHLzug!Jens2WEhVCCYLfIdP8YfAZZL2e3J9VtxzHLRMGaBEeo4Y8XCzOmQuNNFPsznPPC2ctWNHlhttYiJRULC3ODChWtDt-606QDzbgGnUw$ Instagram: @blackdownsyndrome Public Facebook Page: https://urldefense.com/v3/__https://www.facebook.com/profile.php?id=100085879436043&mibextid=LQQJ4d__;!!NHLzug!Jens2WEhVCCYLfIdP8YfAZ...2023-10-0542 min
Down Syndrome Center Podcast#163 - Aging in Down Syndrome (Life Expectancy, Early Aging, Menopause)Dr. Brian Chicoine and Dr. Hannah Graham from the Adult Down Syndrome Center with Advocate Health Care in Park Ridge, Illinois joined the podcast today to discuss a listener question on menopause in Down syndrome. While I had these experts on the podcast, we also discussed other aging related topics in Down syndrome. For more information on the Adult Down Syndrome Center, go to: https://www.advocatehealth.com/health-services/adult-down-syndrome-center/. To access the Down Syndrome Resource Library, go to: https://adscresources.advocatehealth.com/ If you are a provider looking to discuss a patient w...2023-09-2124 min
Down Syndrome Center Podcast#162 - Is Homeschooling An Option for Children with Ds? (with LaTaasha Byrd)LaTaasha Byrd joined the podcast today to answer listener questions about homeschooling. Is homeschooling a legitimate option for children with Down syndrome. If so, what are some important considerations that may be unique in this population? Countdown to K https://countdowntok.com Countdown Academy https://countdown-academy.teachable.com Inclusion is for the Included Book https://countdowntokstore.company.site 2023-09-0737 min
Down Syndrome Center Podcast#161 - Special OlympicsGary Cimaglia, Special Olympics North America’s Vice President of Sports, joined the podcast today to give a broad overview of the Special Olympics and how you and your loved ones can be involved. For more information, go to https://www.specialolympics.org. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Mar...2023-08-1726 min
Down Syndrome Center Podcast#160 - Down Syndrome Regression Disorder (with Dr. Jon Santoro)Down Syndrome Regression Disorder (formerly called Unexplained Regression in Down Syndrome or Down Syndrome Disintegrative Disorder) is a diagnosis that has previously been missed or misdiagnosed in people with Down syndrome. It is a topic in high interest amongst researchers in the field, including today's podcast guest Dr. Jon Santoro from Children's Hospital of Los Angeles. Dr. Santoro gave us a review of the topic as well as current research into the diagnosis and treatment of this condition. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to...2023-08-0324 min
Down Syndrome Center Podcast#159 - Sensory Processing - Part 2 (Sound sensitivity, toothbrushing, haircuts, nail trims)Dr. Katie Frank from the Adult Down Syndrome Center in Park Ridge, IL joined the podcast to answer listener questions regarding sound sensitivity, toothbrushing, haircuts, and nail trims. So many people with Down syndrome have sensory difficulties with these tasks and Dr. Frank helped explain her approach to these situations. For fantastic caregiver resources on these types of topics, go to: https://adscresources.advocatehealth.com/ Some examples of equipment discussed on the podcast: 3 Headed Toothbrush Weighted Vest Automatic Nail Trimmer Hair Clipper If yo...2023-07-2017 min
Down Syndrome Center Podcast#158 - Update on COVID (with Dr. Andy Nowalk)The official pandemic status may be gone, but COVID still lingers. Listen as Dr. Andy Nowalk shares with us the latest updates on COVID, including the upcoming COVID vaccine boosters.2023-07-0621 min
Down Syndrome Center Podcast#157 - Understanding Grief and Grieving in People with Down SyndromeHow do we help people with Down syndrome during times of grief and grieving? Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss her perspective. For more information on Dr. Reif, go to https://rosereif.com/about/. For more information on this topic, check out Dr. Reif's book https://www.amazon.com/Helping-Child-syndrome-Understand-Death/dp/B0BXN5TFCC/. Dr. Reif's recommended this resource by Fred Rogers as well https://www.amazon.com/s?k=when+a+pet+dies+by+fred+rogers&crid=2E7G8G...2023-06-2219 min
Down Syndrome Center Podcast#156 - Behavioral Analysis (with Dr. Stacy Taylor)Dr. Stacy Taylor, with Advance Behavior and Analysis, is an expert in behavioral analysis and special interest in patients with Down syndrome, joined the podcast to discuss her approach to behavioral questions that we received from you! We discussed inappropriate word usage, dumping behaviors, and scripting among other topics. For more information on Dr. Taylor's practice, including potentially scheduling a visit with the practice, visit http://advancebehavior.com/. To find a behavioral analyst near you, visit https://www.bacb.com/services/o.php?page=101135. If you would like to suggest a topic for us t...2023-06-0833 min
Down Syndrome Center Podcast#155 - Down Syndrome Affiliates in ActionAs part of our Meet the Nationals series, Sarah Mulligan, Executive Director of Down Syndrome Affiliates in Action joined the podcast to talk about the great work that this organization does with local affiliates all over the country. For more information on DSAIA, see https://www.dsaia.org. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “...2023-05-2523 min
Down Syndrome Center Podcast#154 - Bitty and Beau's Coffee ShopBen Wright, co-creator of Bitty and Beau's Coffee along with his wife Amy Wright, joined the podcast today to discuss the motivation behind these amazing coffee shops! There will be a Bitty and Beau's Coffee Shop opening in Pittsburgh soon so we asked Ben to join us to give us some background on why he is so passionate about these shops (and it's not just the coffee!). If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to pa...2023-05-1131 min
Down Syndrome Center Podcast#153 - Improving Tolerance to Device Wearing (hearing aids, glasses, CPAP masks)Dr. Lina Patel from the Sie Center in Denver joined the podcast again today. Given that facial sensitivites are very common in people with Down syndrome, tolerance to wearing hearing aids, glasses, CPAP masks, etc. can be a challenge. Dr. Patel addressed a listener question on this topic on today's podcast. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Th...2023-04-2724 min
Down Syndrome Center Podcast#152 - Addressing Unhealthy Eating Habits (with Shannon Frizzell)Unhealthy eating patterns are unfortunately common in people with Down syndrome. On this podcast, dietician Shannon Frizzell joins to discuss a listener question on some engrained eating patterns in their loved one with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syn...2023-04-1317 min
Down Syndrome Center Podcast#151 - A Conversation with Friends - Happy World Down Syndrome Day!In honor of World Down Syndrome Day, enjoy this roundtable coversation recorded between my brother and his friends!2023-03-2113 min
Down Syndrome Center Podcast#150 - How to Address Throwing Behaviors (with Dr. Tarin Santamaria)Dr. Santamaria rejoins the podcast to address a listener question on throwing behavior. What's the best approach when your child with Down syndrome has a tendency to throw objects? And how do you keep everyone else safe? :) Join us for a conversation on this specific topic as well as general thoughts on behavior management. And keep those listener questions coming! If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this p...2023-03-0119 min
Down Syndrome Center Podcast#149 - Juvenile Idiopathic Arthritis (with Dr. Jordan Jones)Dr. Jordan Jones is an Associate Professor of Pediatrics and Pediatric Rheumatologist from Children's Mercy Hospital in Kansas CIty, MO. Dr. Jones has a special interest in working with children with Down syndrome and has published numerous articles on this topic. He joined the podcast today to discuss a listener-requested topic on juvenile idiopathic arthritis in Down syndrome. For more information on Dr. Jones, please visit https://www.childrensmercy.org/profiles/jordan-t-jones/. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If yo...2023-02-0223 min
Down Syndrome Center Podcast#148 - Jack's Basket (with Carissa Carroll)Carissa Carroll, Founder and Executive Director of Jack's Basket, joined the podcast today to talk about her story and how it influenced her to create Jack's Basket. This organization serves families all over the world, offering a welcome and congratulations to new families wherever they may be. You can find more information about Jack's Basket at https://www.jacksbasket.org/. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this...2023-01-0527 min
Down Syndrome Center Podcast#147 - Forget Me Not - A Powerful Documentary on Inclusive EducationAward winning Director, Olivier Bernier joined the podcast today to talk about his recently released documentary called Forget Me Not. Part American, part Quebecois, Olivier is also the Co-Founder and Creative Director of the production company, Rota6 Films, specializing in documentary and commercial films. As 3-year-old Emilio prepares to start school, his family finds itself embroiled in a challenge all too common for children with disabilities – to secure the right to an inclusive education. Olivier and his wife Hilda turn the camera on themselves and their child with Down syndrome, as they navigate a byzantine system originally designed to silo...2022-12-1519 min
Down Syndrome Center Podcast#146 - Hirschsprung DiseaseDr. Kelly Austin, Director of the Colorectal Center for Children at Children's Hospital of Pittsburgh, joined the podcast to discuss Hirschsprung disease. Seen more commonly in people with Down syndrome, listen to learn more about this important condition. Colorectal Center of Children https://www.chp.edu/our-services/surgery-pediatric/pediatric-surgery-services-we-offer/colorectal-center-for-children If there is a topic that you would like us to cover on the podcast, please e-mail me at DownSyndromeCenter@chp.edu. If you would like to partner with the work that we are doing at the Down Syndrome Center, including this po...2022-12-0139 min
Down Syndrome Center Podcast#145 - The Importance of Exercise in Down SyndromeScott Quaife, NSCA-CPT, Health and Wellness Coordinator with Down Syndrome Innovations in Kansas, joined the podcast to discuss the importance of exercise in Down syndrome and overcoming potential obstacles to reaching exercise goals. For more in-depth information on this topic, please visit: https://vimeo.com/753072214 Down syndrome innovations https://kcdsi.org If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit...2022-11-1729 min
Down Syndrome Center Podcast#144 - Global Down Syndrome FoundationMichelle Sie Whitten from the Global Down Syndrome Foundation joined the podcast today as part of our "Meet the Nationals" series. For more information on Global Down Syndrome Foundation https://www.globaldownsyndrome.org Prenatal & Newborn Pamphlet: https://www.globaldownsyndrome.org/prenatal-testing-pamphlet/ GLOBAL Adult Healthcare Guideline: https://www.globaldownsyndrome.org/medical-care-guidelines-for-adults/ If you have a podcast topic you would like us to address, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center and the work that we do, including th...2022-11-0322 min
Down Syndrome Center Podcast#143 - Depression, Anxiety, and OCD in Down syndromeDr. Anna Esbensen, psychologist with the Thomas Center for Down Syndrome at Cincinnati Children's Hospital, joined the podcast to answer a listener question about psychological issues that are seen in Down syndrome. Thomas Center for Down Syndrome https://www.cincinnatichildrens.org/service/t/down-syndrome/services Association of University Centers on Disabilities https://www.aucd.org/directory/directory.cfm?program=UCEDD The National Association for the Dually Diagnosed (NADD) http://thenadd.org Mental Wellness in Adults with Down Syndrome (currently out of print) https://www.amazon.com/Mental-Wellness-Adults-Down-Syndrome/d...2022-10-2030 min
Down Syndrome Center Podcast#142 - Exciting Upcoming Events with DSA Pittsburgh!To celebrate Down Syndrome Awareness Month, representatives from the Down Syndrome Association of Pittsburgh (DSAP) joined the podcast today to reflect on their experiences as parents as well as highlight the ongoing work of DSAP. The highlight event of the year is the Buddy Walk which is coming up on October 23, 2022 at Schenley Plaza on the University of Pittsburgh campus. Helpful websites related to the podcast discussion today: DSAP: https://www.dsapgh.org/ or call/text us 4125659936 Pittsburgh Buddy Walk: https://www.ds-stride.org/pghbuddywalk First Call Program: https://www.dsapgh.org/first-call or call/text us 4125524972 FB: https...2022-10-0725 min
Down Syndrome Center Podcast#141 - National Down Syndrome Society (NDSS)Kandi Pickard, President and CEO of the National Down Syndrome Society, joined the podcast as part of our series on the national organizations who serve people with Down syndrome. You can find more information about NDSS here (https://www.ndss.org). If you have a podcast topic you would like us to address, please email DownSyndromeCenter@chp.edu. If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its...2022-09-2914 min
Down Syndrome Center Podcast#140 - COVID Update - Omicron Boosters!Dr. Nowalk joined the podcast again to give us a general COVID update and discuss specifically the new Omicron boosters. CDC Statement on Omicron Boosters https://www.cdc.gov/media/releases/2022/s0901-covid-19-booster.html If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its suppor...2022-09-1626 min
Down Syndrome Center Podcast#139 - National Down Syndrome Congress (NDSC)Jordan Kough, Executive Director of the National Down Syndrome Congress, joined the podcast as part of our "Meet the Nationals" series. To learn more about the NDSC, go to http://ndsccenter.org. If you have a podcast topic you would like us to address, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center and the work that we do, including this podcast, please go to http://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Do...2022-09-0217 min
Down Syndrome Center Podcast#138 - Not Down, Up Mommy (with author Antoinette Scaffidi)Antoinette Scaffidi, author of the children's book Not Down, Up Mommy, joined the podcast to talk about the book and her thoughts on the importance of including children with disabilities in children's books. The book can be found at https://www.amazon.com/Not-Down-Mommy-Antoinette-Scaffidi/ If you have a podcast topic that you would like us to discuss, please reach out at DownSyndromeCenter@chp.edu. If you would like to partner in the work of the Down Syndrome Center, including this podcast, please go to https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids...2022-08-1113 min
Down Syndrome Center Podcast#137 - Swallowing Dysfunction and G-tubesSpeech language pathologist Sheri Rosen and Pediatric Surgeon Dr. Mike Morowitz joined the podcast to discuss swallow studies and gastrostomy tubes. If you have an idea for a future podcast, please e-mail us at DownSyndromeCenter@chp.edu. If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please go to https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 2022-07-2831 min
The Lucky Few170. Why I Became A Pediatrician for Individuals with Down syndrome (ft. Dr. Kishore Vellody)Dr. Kishore Vellody is a pediatrician who runs the Down Syndrome Center of Western Pennsylvania (AKA he has the best job ever), a sibling to his older brother with DS, and a strong advocate amongst medical professionals. We’re so glad he’s joined us today to discuss some important medical information: new guidelines for healthcare from the American Academy of Pediatrics, life expectancy for people with DS, and even delivering the diagnosis. Dr. Vellody also shares about growing up with his older brother, finding out what Down syndrome is (at age 9), and balancing his own life while looking out...2022-07-1949 min
Down Syndrome Center Podcast#136 - Healthy Lifestyle Choices Around Food and ExerciseShannon Frizzell, registered clinical dietician, joined the podcast today to talk about strategies for healthy weight management in people with Down syndrome. For more information and resources: My Plate https://www.myplate.gov American Academy of Nutrition and Dietetics https://www.eatright.org American Heart Association https://www.heart.org/en/healthy-living/healthy-eating American Diabetes Association https://diabetes.org/healthy-living/recipes-nutrition If there are any topics that you would like us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.2022-07-1430 min
Down Syndrome Center Podcast#135 - COVID Update (Vaccination for Younger Children, Boosters for Older Children)Dr. Nowalk rejoins the podcast for an update on the COVID pandemic as it relates to people with Down syndrome. Topics discussed include a general COVID update, COVID vaccine booster doses for children >5 years old, primary COVID vaccination for children 2022-07-0131 min
Down Syndrome Center Podcast#134 - The Lucky Few (with Heather Avis)Heather Avis, co-host of The Lucky Few podcast joined our podcast today to talk about her journey and vision to "change the narrative" when it comes to how society views Down syndrome. To find more information and subscrie to The Lucky Few Podcast, go to https://www.theluckyfewpodcast.com. To find more information on The Lucky Few Podcast Foundation, go to https://theluckyfewfoundation.org/. If you have podcast topics that you would like us to address, please e-mail me at DownSyndromeCenter@chp.edu. If you would like to partner with us at...2022-06-1619 min
Down Syndrome Center Podcast#133 - Catching Up with The Improvaneers (with Rob Snow)Rob Snow (creator and founder of The Improvaneers) returns on the podcast to give us an update with how its going on the comedy show, the impacts of COVID, and the vision for the program. You can get more information on The Improvaneer Method by listening to our prior podcast #61 found at https://downsyndromecenter.libsyn.com/size/5/?search=rob+snow. To find out if The Improvaneers are coming to your area and how to get involved, please visit https://www.theimprovaneermethod.com/. If you have a topic that you would like covered on the podcast, please reach out to me...2022-06-0222 min
Down Syndrome Center Podcast#132 - Down Syndrome Diagnosis Network (with Jen Jacob)Jen Jacob, Founder and Executive Director of the Down Syndrome Diagnosis Network (DSDN) joined the podcast to talk about their work in the area of information and resource sharing for families. You can get connected to DSDN by going to https://www.dsdiagnosisnetwork.org. If you have any topics that you would like us to cover on the podcast, please reach out to me via e-mail at downsyndromecenter@chp.edu. If you would like to partner with the work of the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. 2022-05-1920 min
Down Syndrome Center Podcast#131 - Domestic Adoption in DsStephanie Thompson from the National Down Syndrome Adoption Network (NDSAN) joined the podcast today to talk about their work in domestic adoptions for children with Ds in the U.S. National Down Syndrome Adoption Network http://www.ndsan.org Please e-mail us with any topics you would like us to address on the podcast at DownSyndromeCenter@chp.edu. To partner with our work, including this podcast, please visit: https://www.givetochildrens.org/downsyndromecenter. 2022-05-0516 min
Down Syndrome Center Podcast#130 - The NEW 2022 Health Supervision Guidelines for Children and Adolescents with Down Syndrome (with Dr. Marilyn Bull)Dr. Marilyn Bull, lead author of the 2022 American Academy of Pediatrics Health Supervision Guidelines for Children and Adolescents with Down Syndrome, joins the podcast today to discuss the latest guideline update released earlier this week! Dr. Bull is the Morris Green Professor of Pediatrics at Indiana University School of Medicine, Department of Pediatrics, in the Division of Developmental Pediatrics. She is the Director of the Down Syndrome Program at Riley Hospital for Children. The medical guidelines can be found here: https://publications.aap.org/pediatrics/article/doi/10.1542/peds.2022-057010/186778/Health-Supervision-for-Children-and-Adolescents. If there are topics that you...2022-04-1933 min
Down Syndrome Center Podcast#129 - Supplemental Security Income (SSI) and WaiversDr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss supplemental security income (SSI) and waivers. If there are any topics you would like us to discuss on the podcast, please e-mail us at DownSyndromeCenter@chp.edu. To partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter2022-04-1412 min
Down Syndrome Center Podcast#128 - Power of Attorney and GuardianshipDr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss the difference between power of attorney and guardianship. If there are any topics you would like us to discuss on the podcast, please e-mail us at DownSyndromeCenter@chp.edu. To partner with the Down Syndrome Center, including this podcast, please visit https://www.givetochildrens.org/downsyndromecenter2022-03-3118 min
Down Syndrome Center Podcast#127 - Happy World Down Syndrome Day!In honor of World Down Syndrome Day, I have chosen to re-release my favorite podcast episode with 3 very special guests! Enjoy! If there are any topics you would like us to discuss on the podcast, please e-mail us at DownSyndromeCenter@chp.edu. If you would like to partner with us, including this podcast, please visit https://www.givetochildrens.org/downsyndromecenter2022-03-2113 min
Down Syndrome Center Podcast#126 - Omicron Fading? Where Do We Go From Here?Friend of the podcast, Dr. Andy Nowalk rejoins the podcast to give us his thoughts on the COVID pandemic. Questions surrounding the current status of Omicron, need for masking, vaccine timing for younger children are all addressed on today's podcast. If there are any topics that you would like us to discuss on the podcast, please e-mail us at DownSyndromeCenter@chp.edu. If you would like to partner with us, including this podcast, please visit https://www.givetochildrens.org/downsyndromecenter.2022-03-1724 min
Down Syndrome Center Podcast#125 - National Down Syndrome ConventionThe National Down Syndrome Congress (NDSC) Convention is back in person this summer, June 23-26, 2022, in New Orleans, Louisiana! Dr. Vellody was joined by NDSC representatives Tamara Pursley (Programs and Partnerships Director) and Jordan Kough (Executive Director) to discuss what we can expect at this year's NDSC Convention. Registration is open now. Go to https://www.ndsccenter.org/annual-convention/register-now/ to reserve your spot today! If you have topics that you would like us to cover on the podcast, please send a message to us and DownSyndromeCenter@chp.edu. We read every message and many of our...2022-03-1427 min
Down Syndrome Center Podcast#124 - Aorta BorealisSinger and songwriter Jesse Norell joined Dr. Vellody on the podcast to share about his passion for music and how his new album tells about his journey with his daughter. And be sure to check out this news story on the album: https://minnesota.cbslocal.com/2022/01/20/aorta-borealis-jesse-norell-down-syndrome/ Jesse Norell – Aorta Borealis Links: Website: www.jessenorell.com The Lucky Few Music Video: https://youtu.be/ywpoLXqU5TI Together Lyric Video: https://youtu.be/fnVlO-lEdkA Pre-save Link (Spotify and iTunes): https://distrokid.com/hyperfollow/jessenorell/aorta-borealis CD...2022-03-0422 min
Down Syndrome Center Podcast#123 - Education in Down SyndromeDr. Vellody was joined by Sue Buckley on the podcast to discuss education in Down syndrome, specifically discussing speech, reading, and math skills. Sue Buckley is a leading expert in education and development for young people with Down syndrome. Sue began research examining early reading instruction for children with Down syndrome in 1980 and founded Down Syndrome Education International in 1986. Her research and contributions to the lives of young people with Down syndrome has been widely recognized through numerous awards. Down Syndrome Education International Down Syndrome Education International (dseinternational.org) DSEI/NDSS Guidelines for Inclusive E...2022-02-1727 min
Down Syndrome Center Podcast#122 - COVID, Omicron, Vaccines - Myths and TruthsDr. Vellody and Dr. Nowalk discuss the latest on the COVID-19 Omicron variant and then answer listener questions on the COVID vaccine. Please consider supporting the work of the Down Syndrome Center, including this podcast, by visiting https://www.givetochildrens.org/downsyndromecenter. 2022-01-2539 min
Down Syndrome Center Podcast#121 - COVID in Ds, Omicron EditionID specialist and friend of the podcast, Dr. Andy Nowalk, joins the podcast to discuss the latest on COVID, including the Omicron variant. Please consider supporting the work of the Down Syndrome Center of Western Pennsylvania at https://givetochildrens.org/downsyndromecenter. 2021-12-2323 min
Down Syndrome Center Podcast#120 - Alzheimer Disease in Down SyndromeDr. Peter Bulova joins the podcast today to discuss myths and facts about Alzheimer disease in Down syndrome. Adult Down Syndrome Center Adult Down Syndrome Center of Western Pennsylvania | UPMC Please consider partnering in the work of the Down Syndrome Center, including this podcast, by going to http://www.givetochildrens.org/downsyndromecenter. Thank you!2021-12-1620 min
Down Syndrome Center Podcast#119 - What About College for People with Down Syndrome?Tom Sannicandro joined the podcast today to share his expertise on college options available for people with Down syndrome. Think College Home | Think College Special Needs Trusts OnlineSpecial Needs Trust and Estate Plans to Guarantee Your Child's Future (specialneedstrustsonline.com) Partner with Us!http://www.givetochildrens.org/downsyndromecenter 2021-12-0225 min
Down Syndrome Center Podcast#118 - Early Intervention ServicesErica Balint, outreach coordinator for The Alliance for Infants and Toddlers, Inc., joined the podcast today to discuss Early Intervention Services for young children. What are early intervention services and how might they benefit children with Down syndrome? Listen to find out! For more information on Early Intervention Services in Pennsylvania, go to: Early Intervention (pa.gov) The Alliance for Infants and Toddlers HOME | The Alliance (afit.org) To partner in the efforts of the Down Syndrome Center: Down Syndrome Center is fundraising for Children's Hospital of Pittsburgh Foundation (justgiving.co...2021-11-1831 min
Down Syndrome Center Podcast#117 - COVID Vaccine for Younger Children and Boosters for AdultsDr. Andy Nowalk joins the podcast again today to discuss the latest news in COVID as it relates to people with Down syndrome. The podcast highlights the release of the COVID vaccine for 5-11 year olds and discusses booster doses for people with Ds over 18 years old. You can partner with us in our service to the community, including this podcast, by going to http://www.givetochildrens.org/downsyndromecenter 2021-11-0530 min
Down Syndrome Center Podcast#116 - Unexplained Regression in Down SyndromeDr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression in Down Syndrome (URDS), Down Syndrome Disintegrative Disorder (DSDD), or Down Syndrome Regression Disorder (DSRD). Dr. Santoro will discuss the signs of the condition and the treatment options currently being found to be helpful in the latest research. More Information https://www.nature.com/articles/s41436-019-0706-8 Does My Loved One with Down Syndrome Have This Condition? Check Out This Regression Checklisthttps://static-content.sp...2021-10-2814 min
Down Syndrome Center Podcast#115 - Approach to Selective ("Picky") EatersSelective (or "Picky") eaters are common in Pediatrics. Many parents receive advice on how to manage but what does the data show? Ann Meyers from Clinical Nutrition and Sarah Rossman from Occupational Therapy joined the podcast today to discuss this very important topic. Resources Tips for Feeding Picky Eaters - HealthyChildren.org Child of Mine: Feeding with Love and Good Sense, Revised and Updated Edition: Satter, Ellyn: 8601419522477: Amazon.com: Books Fearless Feeding: How to Raise Healthy Eaters From High Chair to High School: Jacobsen, Maryann, Castle, Jill: 9781732866201: Amazon.com: Books Jo...2021-10-1426 min
Down Syndrome Center Podcast#114 - Self Talk, The Groove, and Other Common Behaviors in Ds (with Dennis McGuire)World-reknowned expert and author on mental health and wellness in people with Down syndrome, Dennis McGuire, joined the podcast today to talk about common (and usually normal) behaviors in older children and adults with Down syndrome. RESOURCES Mental Wellness in Adults with Down Syndrome (Book) Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges - Woodbine House If People with Down Syndrome Ruled the World (Essay) National Association for Down Syndrome | If People with Down Syndrome Ruled the World (nads.org) If you have...2021-09-3021 min
Down Syndrome Center Podcast#113 - Behavioral Evaluation and Approach in Older Children (with Dr. Tarin Santamaria)Dr. Tarin Santamaria, PsyD, NCSP, is the clinical psychologist for our Down Syndrome Center of Western Pennsylvania. She joined the podcast today to discuss how to assess and approach behaviors in school-aged children with Down syndrome. Please consider partnering in the work of the Down Syndrome Center by visiting http://www.givetochildrens.org/downsyndrome 2021-09-1619 min
Down Syndrome Center Podcast#112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk)Dr. Nowalk joined to talk about the Delta variant outbreak and the potential impact for people with Down syndrome. Pittsburgh Vaccine Trials Unit https://covid19research.pitt.edu/pvtu CDC COVID Data https://www.cdc.gov/coronavirus/2019-ncov/index.html2021-09-0223 min
Down Syndrome Center Podcast#111 - School Based Physical Therapy in Children with Down syndrome (with Hellen Milligan, PT, MPT))Helen Milligan, physical therapist with the Trisomy 21 Program at Children's Hospital of Philadelphia, joined the podcast to answer a listener question regarding physical therapy in the school aged child.2021-08-1922 min
Down Syndrome Center Podcast#110 - COVID and Return to School 2021 (with Dr. Andrew Nowalk)Dr. Nowalk joined the podcast to discuss return to school for 2021 and ways that it looks different than even last year. 2021-08-0323 min
Down Syndrome Center Podcast#109 - Sensory Processing in Ds (with Dr. Katie Frank)Dr. Katie Frank, PhD, OTR/L, joined the podcast today to talk about sensory processing difficulties in people with Ds and therapeutic approaches. Resources: http://adscresources.advocatehealth.com Mental wellness in Ds book Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges: Dennis McGuire, Brian Chicoine: 9781606132852: Amazon.com: Books Out of Sync Child Series The Out-of-Sync Child Series (3 books) Kindle Edition (amazon.com) Sensational Kids Lucy Miller Amazon.com : sensational child STAR Institute Sensory Processing - STAR...2021-07-2933 min
Down Syndrome Center Podcast#108 - Pain Perception and Expression in Down Syndrome (with Dr. Meredith Wright Whittaker)Dr. Meredith Wright Whittaker, PhD, joined the podcast today to share her personal experiences and literature review on pain perception and expression in people with Down syndrome. For more information, please see the article discussed: Pain perception in people with Down syndrome: a synthesis of clinical and experimental research (nih.gov)2021-07-1525 min
Down Syndrome Center Podcast#107 - Atlanto-axial instability in Ds (with Dr. Marilyn Bull)Dr. Marilyn Bull, lead author of the Down Syndrome Healthcare Guidelines, joined the podcast today to discuss the guideline process, hint at the upcoming revised healthcare guideline, and specifically comment on atlanto-axial instability (AAI). For parents/caregivers: Children with Down Syndrome: Health Care Information for Families - HealthyChildren.org For healthcare professionals: Health Supervision for Children With Down Syndrome | American Academy of Pediatrics (aappublications.org)2021-07-0119 min
Down Syndrome Center Podcast#106 - COVID and Mental Health in Ds (with Dr. Ruth Browh)Dr. Ruth Brown, psychologist from Virginia Commonwealth University, joined the podcast to discuss preliminary data from her study on the psychological impact of the COVID pandemic in people with Ds. If you would like to add to this data set, please consider taking the survey at http://tiny.cc/DSFAM_VCU. 2021-06-1719 min
Down Syndrome Center Podcast#105 - Hearts of Joy InternationalDr. Vellody was joined by Lauren Costabile, founder of Hearts of Joy International. Listen and learn about the work that this amazing organization is doing to bring hope to children with Down syndrome with congenital heart defects.2021-06-0319 min
Down Syndrome Center Podcast#104 - Ally for AdvocacyDr. Vellody was joined today by Jawanda and Rachel Mast who came to speak about the importance of national level policy and advocacy. They also discussed the National Down Syndrome Congress' Ally for Advocacy campaign, and how we can get involved. https://www.ndsccenter.org/support-get-involved/campaign/2021-05-2520 min
That's PediatricsJoining the Down Syndrome Community with Kishore Vellody, MDLots of people have a personal connection to their work and Kishore Vellody, MD, medical director of the Down Syndrome Center, credits his motivation to his older brother, who has Down syndrome. Dr. Vellody discusses his career, the thriving Down syndrome community in Pittsburgh, and starting his own podcast, the Down Syndrome Center of Western Pennsylvania podcast. The National Down Syndrome Convention will be held in Pittsburgh at the end of June.2019-05-2118 min