Shows
Lewy Body Roller CoasterLewy is in Charge Right NowHello Everyone! Thank you for your patience. Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a special appearance from his wife Linda as she helped him describe his current symptoms.Should you wish to bless us with your support you can use links below.Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We...
2025-08-2240 minLewy Body Roller CoasterThe Last Goodbye: Planning Your Funeral Before Lewy Takes OverThis week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why he wanted to share with our listeners and members of our Facebook pages."I would hate to have left Linda to decide all that in a day or two," Curry confesses, his voice carrying the weight of nine years living with LBD. During a recent period when his symptoms have intensified—increased confusion, slurred speech, an...
2025-06-0246 minLewy Body Roller CoasterZoom Meeting: Part 3This week is part three of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.Listen in as Curry, Tom and...
2025-05-0722 minLewy Body Roller CoasterZoom Meeting: Part 2This week is part two of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.Listen in as Curry, Tom and...
2025-04-3027 minLewy Body Roller CoasterZoom Support Meetings: Part 1This week is part one of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.Listen in as Curry, Tom and...
2025-04-2330 min
No Agenda Show1750 - "SPLESH!"No Agenda Episode 1750 - "SPLESH!"
"SPLESH!"
Executive Producers:
Commodore Arch-Duke of Central Florida
clifford riemersma
MRS CHITCHAT
Chap Williams
Stormy
Associate Executive Producers:
Eli the coffee guy
Sir Jew Claw
Linda Lu Duchess of jobs and writer of resumes
Lady Linda of Los Angeles
1750 Club Members:
Commodore Arch-Duke of Central Florida
Become a member of the 1751 Club, support the show here
Boost us with with Podcasting 2.0 Certified a...
2025-03-273h 27Lewy Body Roller CoasterWelcome Back After Our Summer BreakWelcome back!Curry shares how his summer went with his LBD causing a few hospital stays. He also shares some important information about Hospice and Narcan Nasal Spray.Four years ago we uploaded and published our first episode. It is just crazy that this will be our 138the episode and we are over 60K downloads so thank you all for your continued support and patience. Lewy sure has been a bugger to Curry this summer.Thank you all for your continued support and patience with us as we try really hard to get a new...
2024-09-1336 minLewy Body Roller CoasterNavigating Sleep Disturbances in Lewy Body Dementia: Practical Tips and Community SupportThis week, Curry and I share about REM Sleep Disorder and the importance of having your loved on video tape your sleep patterns. This episode also digs into the frustrating journey of finding effective sleep aids, featuring personal experiences with melatonin, Seroquel, Clonazepam, and CPAP machines. We discuss the challenges of distinguishing between dream states and reality, and the impact of sleep disturbances on daily life and relationships. Caregivers will find invaluable tips on tracking symptoms with checklists and journals, and the importance of providing clear evidence to doctors through videotaping behaviors. Lastly, we underscore the power of...
2024-05-2932 minLewy Body Roller CoasterCurry's Fall and Hospice StoryWelcome back! This week, Curry shares with us about his recent medical it and how he is moving forward with his medicine and health care. Curry shares that the doctor signed him up for hospice and describes all that they are going to do to help him and his wife Linda now.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all...
2024-03-2738 minLewy Body Roller CoasterLEWY BUDDY AND CAREGIVER MEET UP and Curry updates his healthWelcome back everyone!This week, we wanted to share about the Lewy Buddy and Cargiver Meet-Up happening September 14, 2024 in Caney Kansas. Gather 'round the warmth of our virtual fireside, as Linda and I, in a rare moment of quiet reflection, express our heartfelt thanks to you, our dedicated listeners. We're thrilled to extend an invitation to our first annual Lewy Buddies and Caregivers Meetup in Caney, Kansas, a beacon of connection and support in the tempest of Lewy Body Dementia. As we navigate the ebb and flow of this condition together, we welcome your stories and...
2024-03-1842 minLewy Body Roller CoasterNavigating Love and Resilience: Bill and Linda's Journey with Lewy Body DementiaBill from Central Texas never foresaw becoming an expert in resilience and caregiving, but life's unpredictable turns have made him just that. As he opens up about his and Linda's encounters with Lewy Body Dementia, you'll find yourself moved by their tale of love, challenge, and unwavering commitment. Their story is a beacon of inspiration, guiding us through the murky waters of diagnosis and daily care.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you...
2024-03-0140 minLewy Body Roller CoasterResilience in the Face of Lewy Body Dementia Shared by Sam and Tracy-Part 2Welcome back to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life.A big shout out to all of our supporters!!Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all...
2024-02-1426 minLewy Body Roller CoasterResilience in the Face of Lewy Body Dementia Shared by Sam and Tracy-Part 1Welcome to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life. A big shout out to all of our supporters!!Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand...
2024-02-0746 minLewy Body Roller CoasterQuestions and Comments from the Groups-Another Fireside ChatWelcome back! This week, it's just the two of us as we share some helpful comments on a few questions raised in the groups.... One of our fireside chats as Curry likes to call them. We discuss show timing versus fluctuations, how to deal with hallucinations and a few other topics.We know everyone can't always see all the facebook comments and questions and some people don't even use Facebook so we wanted to share a few topics that have been talked about a lot recently.Thank you all for your continued support and patience...
2024-01-2441 minLewy Body Roller CoasterSleepless Nights and Internal TremorsWelcome to 2024!This week, it's just Podcast Linda and Curry with a fireside chat. Curry's Lewy symptoms have been pretty bad the last three weeks or so and he wanted to share. We discuss how he has gone over 34 hours without sleep , internal tremors and scary hallucinations. As always, Curry tries to be as strong as he can be and wants to "ride it out" as he shares he has done many times before. It is just amazing how this disease truly has so many ups and downs and that no two people with LBD have same symptoms
2024-01-0344 minLewy Body Roller Coaster"I Miss Me": A Poem From Someone with LBD-Rick PhelpsThis week its just Podcast Linda reading a poem written by one of our members, Rick Phelps. Rick wrote this poem in 2016 and gave us permission to share ith our listeners. It really gives insight from someone with LBD and how he and many feel.Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and...
2023-12-0607 minLewy Body Roller CoasterA Quick Update: Curry's Hallucinations Are Back and Podcast Linda's Alien InvasionThis week we wanted to take a few minutes to update y'all on how we are doing. Curry's hallucinations have come back but he explains this has happened before and he was overstimulated with many visitors over the last 2-3 weeks so that is one factor that triggered his hallucinations. One thing he unfortunately got to see that was NOT a hallucination was the alien trying to come out of Podcast Linda's stomach. Quite a tale we have to share on that crazy yet scary experience. We so appreciate all the well wishes you continue to send us an...
2023-12-0531 minLewy Body Roller CoasterStages and Brain FoundationWelcome Back Podcaast Family!This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then discuss what it was like for Podcast Linda with the Brain Foundation and Lewy research.We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your support for the podcast, you can use links below.Copy and paste link, i...
2023-09-1349 minLewy Body Roller CoasterBathroom Issues with Some Helpful SuggestionsThis week we talk about bathroom related issues- specifically peeing and how to help your loved one hit the bowl. We share a lot of great suggestions from listeners and members of our support group pages that we hope will help you or your loved one deal with some Lewy issues around the bathroom.We thank you all for your continued patience during the last months as Podcast Linda navigates life after the passing of her husband and Curry makes a few bigs moves. xoA shout out to all our supporters Carl Ladd, Eileen M...
2023-06-1529 minLewy Body Roller CoasterUpdate on Big Moves for Curry and Podcast LindaWelcome back Podcast Family. Curry and Linda have had very busy months and share news about big moves! Curry also shares with us how he has found a new freedom using his Jazzy chair and how it has changed his life for the better. Podcast Linda shares news about a big move coming but, also share some important advice for spouses and caregivers about what to do now and not put off.We thank you all for your continued patience during the last months as Podcast Linda navigates life after the passing of her husband and Curry...
2023-06-0737 min
Dating After Divorce171. Client Success: Finding Love at 63 with Linda"I think the biggest thing is yes, I got a boyfriend for Christmas and it was so exciting.""In the past I've stayed in relationships before that weren't for me and that was something I wanted to not repeat." "Having that support, I think it was essential because I don't think I could have done this on my own. I needed the guidance...we don't know it all, we need help in life."In this episode, I had the pleasure of speaking with my client Linda, who shared her post-divorce dating journey...
2023-04-1246 minLewy Body Roller CoasterCurry's Big MoveThis week Curry shares with us about his big move from Texas to Kansas and how all that made him feel. He also shares about his new fun mobile that has him scooting all around his new town...but we share ideas on how to make him and anyone with LBD safer to be out on their own.A shout out to all our supporters Beverly Weber, Lori Reiner, Antonio and Barb Garcia.We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish...
2023-04-1239 minLewy Body Roller CoasterThe Struggles Getting Diagnosed as a Woman-MeganWelcome Megan Ferguson-Koci as she shares her struggle getting diagnosed as a women in her 40’s and being told it’s just woman problems….sadly we have heard this from so many other women.She shares her journey and how she is staying positive. We are so very thankful she has become an integral part of our Lewy family as she helps us with the zoom meetings while Podcast Linda needs time grieving the loss of her husband.We couldn’t do all we do without the help from those with LBD and their caregivers. So, thank you to ever...
2023-01-2647 minLewy Body Roller CoasterCurry Shares As We Start the New Year 2023Welcome to 2023!This week, Curry shares with us how he has been feeling and a few new symptoms and what he is doing about them.But....I, Podcast Linda, want to talk you all for your patience as I deal with my husband's passing which was so unexpected . It is hard for me to record again, but we want to keep sharing so I will do my best to start recording every week for ya'll.A shout out to all out supporters including Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don...
2023-01-1823 minLewy Body Roller CoasterPodcast Linda Shares her Heartache While Offering Advice to Those Still On the LBD Journey-Pt 2Welcome back for part 2 I ,(Podcast Linda), share my story on the final weeks of my husband's journey with LBD. It was a very hard episode to record and very emotional as we are sure you all understand. We hope listening to my story helps those still on the journey realize life is too short and we need to do what we want and need to do now and not put anything off. Please accept my apology for being so emotional during the recording but I really needed to share and hope my advice during this two -part episode i...
2022-12-2120 minLewy Body Roller CoasterPodcast Linda Shares her Heartache While Offering Advice to Those Still On the LBD Journey-Pt 1This week and next, I (Podcast Linda) share my story on the final weeks of my husband's journey with LBD. It was a very hard episode to record and very emotional as we are sure you all understand. We hope listening to my story helps those still on the journey realize life is too short and we need to do what we want and need to do now and not put anything off. Please accept my apology for being so emotional during the recording but I really needed to share and hope my advice during this two -part episode...
2022-12-1442 minLewy Body Roller CoasterCurry Shares about New and Old Symptoms and We Talk About Depression A Bit TooWelcome Back Podcast Family!This week I asked Curry to share with us how he has been feeling over the last several week and how he has coped with each symptom.We also shared some personal stuff about depression and leaning on others especially those you meet in our support zoom meetings or on one of the support pages on FB because everyone living through this journey needs others to lean on.A shout out to all our supporters including Tom Lawson, Dee C, Sue, Jane Wakeman,Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, K...
2022-08-1052 minLewy Body Roller CoasterTake 2: Lewy Terms Defined Pt 2Podcast Linda is taking 2 weeks off for her birthday…so enjoy the replay of Lewy Terms Defined part 2 with Dr. Sara .Just a reminder- we are not giving medical advice, merely sharing our experiences.This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sen...
2022-08-0647 minLewy Body Roller CoasterTake 2:Lewy Terms Defined Pt 1Podcast Linda taking 2 weeks off for her birthday so enjoy the replay of Lewy Terms Defined part 1 with Dr. Sara .Just a reminder- we are not giving medical advice, merely sharing our experiences.This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent m...
2022-07-2739 minLewy Body Roller CoasterLife with Lewy….Curry Shares About Recent Doctor Appt.Welcome back podcast family…. This week, I let Curry share how he is feeling and how his 90 day doctor appointment went as he shares the hurdles of life with Lewy.A shout out to all out supporters including Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, The Geraci's and everyone else who has been with us from day one. We are doing this for all of us and we thank you from the bottom of our hearts.Should you wish to bless us with your...
2022-06-2344 minLewy Body Roller CoasterHelpful and Effective Tips for Some Lewy ProblemsWelcome back Podcast Family! This week we share some helpful tips others have shared on things around LBD such as how to remove the adhesive for the patches, tooth brushes, nose sprays to be aware of and medicines no one with LBD should use. Curry shares a little on how he is feeling and once again...we laugh as we try to get through an episode as we are clearly not tech savvy individuals but we love that you all are so patient with us each week as we "try" our best to get an episode off for every W...
2022-06-1530 minLewy Body Roller CoasterWhen the Lewy Roller Coaster Gets Rough- How Curry is Coping with the Ups and DownsThis week, our dear Curry shares with us how Lewy has been causing him some pretty strange symptoms other than messing with his sleep. He is so humble abut sharing his journey with LBD and we hope when he and others share that it helps people feel they are not alone on this journey. We discuss the ups and downs of LBD as we share comments from others having similar problems.A shout out to all out supporters including Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, The Geraci's...
2022-06-1031 minLewy Body Roller CoasterHard Getting Words Out? Helpful Tips for Caregivers and Advice from those with LBDWelcome back. This week, Curry and I share thoughts on times when it is hard for those with Lewy Body Dementia to get words out and what advice we and others have when that happens. Curry also shares with us about his fall he had this past weekend and more advice on dealing with a fall. We talk more about the power of attending a support group on zoom and joining support group pages specifically about LBD. Being able to talk with and about this disease to others living it is more powerful sometimes than talking with a doctor...
2022-04-1440 minLewy Body Roller CoasterWelcome AnnMarie and James pt 2Welcome AnnMarie and James Hooge from Texas. They share with us their thoughts on attending support groups with other caregivers and others with Lewy Body Dementia. James and Curry also share a little more about their symptoms and how they cope.A shout out to Dee Riechert, The Geraci family, Melissa Morman, Jeanette Clark, Marie Peterson, Krysty Herr, Tyler Wright. We cannot thank you all enough for helping us help others.Should you wish to bless us with your support you can use links below.Copy and paste link, if needed
2022-03-1626 minLewy Body Roller CoasterSharing Even the Most Uncomfortable ThingsThis week, Curry really opens up with us about a few things that he goes through and still stays positive. I also asked him to read one of his first posts from December 2016 which he wrote right after he was diagnosed. Hearing him read it choked me up so get your tissues ready.A shout out to those who send supporter funds in memory of our dear Bill Cramer who brought so much light into this world and was taken too soon. A shout out also to Marie Peterson, Kristy Herr, Tyler Wright, Catherine Mazzie, Jane Wakerman...
2022-02-1733 minLewy Body Roller CoasterWhen You Just Need to Share Your Thoughts on ThingsCurry and I share our thoughts on two topics that have been controversial…whether to call It Lewy body dementia or Lewy body disease and posting videos of those with dementia.Podcast Linda has been fighting Covid for the past three weeks but we were able to get an episode done for y'all this week.A shout out to all of our supporters! We couldn't do this without all of ya'll. xoTyler Wright, Cathy Bazzer, Paula Rice Beiver, Jane Wakeman and Toby Gorelick- thanks everyone!Should you wish to bless us...
2022-02-1130 minLewy Body Roller CoasterKissing Cousins -LBD and PDPodcast Linda was traveling this week so a quick apology for this going live a day late….This week we discussed how LBD and Parkinson Disease are kissing cousins… and then we shared with our listeners what caregivers could use and will probably never ask for.A shout out to all of our supporters! We couldn't do this without all of ya'll. xoTyler Wright, Cathy Bazzer, Paula Rice Beiver, Jane Wakeman and Toby Gorelick- thanks everyone!Should you wish to bless us with your support you can use links below.
2022-01-1443 minLewy Body Roller CoasterJanuary 2022...another year..let's see how Curry is doingWelcome back and Happy New Year. Thank you for your patience during December as we spent time with family.It's another year and.....I wanted to ask Curry how his 2021 year went and for him to share how he feels now so we did a little catching up together.A shout out to all of our supporters! We couldn't do this without all of ya'll. xoTyler Wright, Cathy Bazzer, Paula Rice Beiver, Jane Wakeman and Toby Gorelick- thanks everyone!Should you wish to bless us with your support you can use li...
2022-01-0546 minLewy Body Roller CoasterWhat it is really like to have LBD from Curry's experiencesWelcome to another one of our fireside chats- just me and Curry. This week we share a post Curry wrote on his page back in February 2017. He is so open and shares how he feels and it helps so many of us understand more about this disease. He then shares with us what he felt about that post 4 years ago as he compares to how he is feeling today. A shout out to all of our supporters! We couldn't do this without all of ya'll. xoShould you wish to bless us with your...
2021-11-2536 minLewy Body Roller CoasterAnxiety, walking issues and advice for caregivers from two people with LewyWelcome back Derek S and our Curry as we ask them questions on things that can help caregivers and medical professionals better understand the disease from anxiety, walking issues, fears and ways to help or not help those with with LBD.A shout out to all of our supporters! We couldn't do this without all of ya'll. xoWelcome some of our newest supporters:Judy Pressley, Jane Wakerman, Toby Gorelick, James May, Julie Salamone and Paul and Debbie LannonShould you wish to bless us with your support you can u...
2021-11-1047 min
Bedknobs and BroomflicksThe Worst Witch(1986): Tim Curry as The Grand KnobWe've been at the laughing potion again.
For her birthday, Linda gets another movie she's wished to cover since we started the podcast: The Worst Witch! It's the original film, made in 1986, based on Jill Murphy's 'Worst Witch' book series. It stars Fairuza Balk (witch goddess) as Mildred, the 'worst witch'; Diana Rigg (Olenna Tyrell in GoT, Emma Peel in 'The Avengers', Ms. Collins in Last Night in Soho, a total smokeshow) as Miss Hardbroom; Charlotte Rae (Ms. Edna Garrett in 'Fact of Life') as Miss Cackle and Agatha; and Tim Curry (you know...Tim Curry) as...
2021-11-091h 37Lewy Body Roller CoasterDerek returns almost a year later to share thoughts on moving , hallucinations and tips for the caregiver of someone with LBDWelcome back Derek one of Curry's good Lewy Buddies who was on one of our first episodes a year ago. We wanted to bring a few first quests back to share how they are a year later as a way to let people with LBD know as Curry always says..."there's still a lot of good life left after a LBD diagnosis". Curry and Derek share about their hallucinations, thoughts to help anyone with LBD move as well as other great tips for caregivers. A shout out to all of our supporters! We couldn't do this without a...
2021-11-0349 minLewy Body Roller CoasterNaomi from Ireland shares storyWelcome Naomi from Dublin, Ireland. She shares with us her journey to get diagnosed and some great advice on coping with a diagnosis of LBD and beyond- lots of holidays! She has such a positive outlook and warmth about her and we are sure you will love her as much as we we do once you hear her story.A shout out to our new and some past Patreon and Go Fund Me SupportersWe couldn't do this podcast without all of you from those who were first supporters like Miriam and Ma...
2021-10-1354 minLewy Body Roller CoasterSpeech Therapy and Sleep: Our friend from Minnesota shares her storyWelcome Donna from Minnesota. We just love when Donna and her husband Paul joins the support groups. Donna shares with us Paul's journey to diagnosis and several helpful programs he has done or is doing that could help others including speech therapy, palliative care, and attending support meetings.A shout out to our new and some past Patreon and Go Fund Me SupportersToby Gorelick and Deb and Paul Lannom and Laura Michel, Pia Benard, Marcia TreffmanWe couldn't do this podcast without all of you who support us!Should...
2021-10-0644 minLewy Body Roller CoasterThe Power of Online Support GroupsThis week we welcome six individuals who attend at least one of our support group zoom meetings. We wanted them to share with you all the power of attending a support group. Our hope is you hear from these amazing people and feel more comfortable joining in one of the meetings we hold each weeNaomi from Ireland mentions Lewy Love. That's what you will get when you attend one of our support meetings- people who get what you are going through and understand and never, ever judge. Enjoy meeting these individuals who are members of our Lewy F...
2021-09-291h 02Lewy Body Roller CoasterThings to help Lewy life and tips on Moving with LBDThis week we share ideas that could help when moving someone with dementia and some great ideas on things to get that will help not only those with dementia but their caregivers.A shout out to our new and past Patreon and Go Fund Me SupportersWe couldn't do this podcast without all of you who support us!Should you wish to bless us with your support you can :Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page at...
2021-09-2232 minLewy Body Roller CoasterWe’re back!! Join our fireside chatWe’re baaaaaaack!What a long month of August we had but are glad to be recording again.This week it’s just me and Curry talking about some topics many discussed and asked about LBD.We are so thankful to all of our supporters for your patience as we dealt with Covid, a hurricane and a tornado.A shout out to our new and past Patreon and Go Fund Me SupportersWe couldn't do this podcast without all of you who support us!Should you wish to bless us wi...
2021-09-1551 minLewy Body Roller CoasterLewy Buddies Talk pt 2- replaySharing one of our two part talks with Lewy Buddies from the first month we started recording to allow us time to work on a big Lewy Body Dementia Project.As this disease can be such a roller coaster ride with many ups and downs, it’s sometimes good to listen to earlier episodes because you or your loved one may be at a different point in the disease now then when you listened the first time.Thank you for your continued support and we hope to have new episode next week.Support the...
2021-08-2447 minLewy Body Roller CoasterLewy Buddies Talk part 1-replayAs we take this week and next to work on a big Lewy Body Dementia project, we thought we would replay the two episodes from season one that got the most views.We have found many of you say you listen to earlier episodes again since things change so quickly sometimes with Lewy.Support the show
2021-08-2343 minLewy Body Roller CoasterThe SYNTap Biomarker Test is now available- hear more on what it is and how to get itWelcome back Dr, Lebovitz from Amprion. We had the doctor on several months ago when we heard about the new test being developed to detect if someone may have Lewy Body Dementia. The reason we asked him back is to explain in more details what the test is, what it detects and how to get it.You can read more about it on http://amprionme.com as well so you can do your own research about the test.https://amprionme.com/ https://amprionme.com/syntap-test/"SYNTap is a registered trademark of Amprion In...
2021-07-2854 minLewy Body Roller CoasterSharing some tips and advice for living a good life with Lewy Body DementiaThis week it's just me and Curry sharing with you some questions and responses from our pages as well as us giving our two cents. We share some good tips and advice on how to live a good life after diagnosis. Curry looks back to the time when he was first diagnosed and shares with us one of his first posts describing how he felt when diagnosed. But, he also then shares with us how he feels today and how getting the right medicines sooner than later make life so much better. As he always says..."You can still live a...
2021-07-2147 minLewy Body Roller CoasterA year later… looking backThis week we have a guest who wanted to come on again and share with us her thoughts as she looks back on the first year anniversary of her spouse's passing from LBD. Phyllis Banks share with us all her thoughts on what she would do differently, if anything as well as some good advice on handling doctors and grief before and after Bob's passing. We always appreciate your honestly and thoughts Phyllis. Shout out to Naomi Gleeson from Ireland for being our latest Patreon supporter!We couldn't do this podcast without all of you who sup...
2021-07-1439 minLewy Body Roller CoasterFind the Right Doctor, Get the Right Meds and Meds to Avoid at all Costs!Welcome back Pat Snyder. Her husband John passed from LBD and since then she has been making short YouTube clips sharing helpful tips for us all. This week she shares with us how important it is to find the right doctor and then get the right medications while avoiding certain medicines at all cost.Google Pat Snyder LBD YouTube and you will find her videos. Should you wish to bless us with your support you can :Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe p...
2021-07-071h 03Lewy Body Roller CoasterHow to be Proactive - Welcome Pat SnyderWelcome Pat Snyder this week. Her husband John passed from LBD and since then she has been making short YouTube clips sharing helpful tips for us all. This week she shares with us many ways to be proactive with this disease.We will have her on again as soon as we can and she has so much to share but in the meantime, Google Pat Snyder LBD YouTube and you will find her videos. This will be the last episode until our Curry recovers from Covid. Please send your prayers and healing thoughts for Curry and his wife Li...
2021-06-3048 minLewy Body Roller CoasterIt’s All About Having a Positive Attitude Even With LBDWelcome Bill and Sharon Cramer this week. Listen as Bill shares with you his story and struggles living with Lewy Body Dementia but, by the end of this episode, you will know that your attitude is what dictates how one copes and lives with LBD. Bill is a true inspiration for us all. Yes- some have Lewy Body Dementia and need to live their lives differently but....there is still life to live and it is up to us all to find the joy in each day as Bill and Sharon share with us.Should you w...
2021-06-2354 minLewy Body Roller CoasterOne Caregiver’s Story as an AdvocateWelcome Melinda as she shares her story about her husband Skip who has LBD. She explains what a loved one’s advocate needs to do to get the proper care but she also shares with us that love is what we all need to get through this journey.Skip has had some rough times and it’s been hard to get certain medicines approved but you will all feel her strength as she shares about her beloved Skip.Should you wish to bless us with your support you can :Copy and paste link, if need...
2021-06-1640 minLewy Body Roller CoasterAlzheimer’s to Lewy Body Dementia: a mother daughter storyWelcome Patti this week who cares for her mother who has LBD. She shares with us how her mom was first diagnosed with Alzheimer’s but then changed to LBD. She also shares some great ways she works with her mom that she feels has helped her along the way.Should you wish to bless us with your support you can :Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6We have listed all present and pa...
2021-06-0945 minLewy Body Roller CoasterTeepa Snow RevisitedSince we received so many people commenting on last week's episode with Teepa Snow on denial, we wanted to replay our first talk with her.This week our guest is Teepa Snow. She is a leading educator in the field of dementia education and we are sure all of you have heard of her and even watched her videos. She shares with us responses to questions some of ya'll sent to us to ask her including...how to help your loved one understand he/she has Lewy Body when he/she is in denial, how to respond...
2021-06-0350 minLewy Body Roller CoasterTeepa Snow discusses denialWelcome back Teepa Snow. This week is all about denial. We delve into and discuss ways to handle denial from the person diagnosed, a spouses denial, and an adult child’s denial.Teepa shares with us helpful ways to discuss the diagnosis of LBD and ways to help those who may be in denial.Should you wish to bless us with your support you can :Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page athttps://gofund.me/c416ecb6Patron Sho...
2021-05-261h 00Lewy Body Roller CoasterWelcome LBDA's Todd GrahamJust a reminder- we are not giving medical advice, merely sharing our experiences.Welcome the Executive Director of the Lewy Body Dementia Association, Todd Graham . We hope all our listeners have already found the LBDA.org website where you will find much information on LBD as well as links to many resources.We talk about Todd's background and what led him to the LBDA as well as how the organization started. We talk about the many ways the organization provides educational information about LBD and hope you will have a better understanding of all the r...
2021-05-191h 04Lewy Body Roller CoasterCaring for a sibling with LBDJust a reminder- we are not giving medical advice, merely sharing our experiences.This week Tedde shares her journey caring for her brother who has Lewy Body Dementia. We know caregiving takes on many faces and you will feel the love she has for her brother as she cares for his needs. Many good suggestions are shared.We always say it is different caring for a spouse versus a parent or sibling with dementia but by all of us sharing... we can help each other be the best caregivers we can be.Should you w...
2021-05-1244 minLewy Body Roller CoasterAmazing the difference in someone with the right diagnosis and meds.Just a reminder- we are not giving medical advice, merely sharing our experiences.Welcome back Susan Lavoice. Susan was on very early in the start of this podcast and she was struggling to get a diagnosis and meds to help symptoms. It is amazing how well she is doing now since she has medicines to help her symptoms. Please listen so you understand that there is hope and more life left after a diagnosis of LBD as you will hear from Susan and Curry.We always tell Susan she is like a different person now and...
2021-05-0541 minLewy Body Roller CoasterLewy in the family and now me?Just a reminder- we are not giving medical advice, merely sharing our experiences.This week we heard from Brian. Both of his parents had a different form of dementia and now he is fighting to get a diagnosis for himself. We hope by each of our guests sharing their stories that we can help those seeking a diagnosis find one sooner as we need the medical fields to listen to these stories and know that it is unacceptable for anyone to have to fight for a diagnosis or for it to take years to get a proper...
2021-04-2859 minLewy Body Roller CoasterLewy Terms Defined with Sara pt 2Just a reminder- we are not giving medical advice, merely sharing our experiences.This week is to part two of Lewy terms as Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent me to discuss that we needed to break her recording into 2 parts. This...
2021-04-2147 minLewy Body Roller CoasterLewy Terms Defined with Sara pt 1Just a reminder- we are not giving medical advice, merely sharing our experiences.This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then hear examples from personal experiences which helps us have a better understanding for each terms discussed. There were so many terms many of you sent me to discuss that we needed to break her recording into 2 parts. This is definitely our most educational episode and one...
2021-04-1439 minLewy Body Roller CoasterBonnie and Randy's storyWelcome Bonnie Weber this week. She is a caregiver for her husband Randy. She shares her journey getting Randy his diagnosis but also shares with us how Randy participated in a few studies. Randy was a trooper with all the testing done with the studies but we also thank him for doing this because it could help doctors find a cure for this disease.Should you wish to bless us with your support you can go to:Copy and paste link, if neededhttps://patreon.com/lewybodyrollercoasterpodcastthe GoFundMe page at
2021-04-0750 minLewy Body Roller CoasterBut, there's nothing wrong...the long road to diagnosis but there is hopeWelcome Nancy this week. She shares with us her journey and long road to get a diagnosis after being told nothing was wrong only to be told that her husband has Lewy Body Dementia. She will share with us how she was an advocate for her husband which everyone with LBD needs. Be that squeaky wheel and don't let doctors tell you nothing is wrong when you know there is. Join our support group meets each week -Monday and Friday at 11:30 est. and you will meet others on this journey and see there is hope after diagnosis as Curry a...
2021-03-3147 min