Shows
Impacting careListening, Learning, Leading TogetherOver the past 15 years, Denise Braendgaard, General Manager at the NNHF, has witnessed great progress in access to haemophilia care in countries where the NNHF has been supporting projects. 2023-06-1400 min
Impacting care - the haemophilia podcastListening, Learning, Leading TogetherOver the past 15 years, Denise Braendgaard, General Manager at the NNHF, has witnessed great progress in access to haemophilia care in countries where the NNHF has been supporting projects. She has also seen the growth in people and organisations she has worked with. In this episode she shares her experience and reflects on the importance of receiving constant feedback, listening to partners’ ideas, being inspired on ways to develop as an organisation to be more efficient and benefit more people.2023-06-1423 min
Impacting carePodcast highlights 2022In 2022 we have talked to people with haemophilia, healthcare professionals, members of patient organisations or expert volunteers, learning how they are impacting care in their country or region.2023-03-1000 min
Impacting care - the haemophilia podcastPodcast highlights 2022Impacting Care podcast: Hear from our partners
In 2022 we have talked to people with haemophilia, healthcare professionals, members of patient organisations or expert volunteers, learning how they are impacting care in their country or region.
Listen to special episode presenting you with highlights from three guests’ episodes in a bitesize format.
2023-03-1011 min
Impacting careChanging the landscape of blood disorders care in AfricaAfter attending a scholarship programme in France, early in his career, Prof Saliou Diop realised that a lot had to be done to improve haemophilia care in his home country of Senegal.2022-09-1400 min
Impacting care - the haemophilia podcastChanging the landscape of blood disorders care in AfricaAfter attending a scholarship programme in France, early in his career, Prof Saliou Diop realised that a lot had to be done to improve haemophilia care in his home country of Senegal.
Since then, he has been a key contributor to changing the landscape of haemophilia care in Africa over the past years, having co-authored more than 80 peer-reviewed articles, trained healthcare professionals from African countries and collaborated with numerous international experts, to share knowledge for the benefit of haemophilia and sickle cell patients. Hear from Prof Diop how haemophilia patients can benefit from an integrated management of...2022-09-0619 min
Impacting careEmpowering nurses to take on an active role in the haemophilia care teamOver a broad and distinguished career in the UK and more than a decade volunteering in Africa and Asia, Dr Kate Khair has become an important champion for haemophilia nurses.2022-07-0600 min
Impacting care - the haemophilia podcastEmpowering nurses to take on an active role in the haemophilia care teamOver a broad and distinguished career in the UK and more than a decade volunteering in Africa and Asia, Dr Kate Khair has become an important champion for haemophilia nurses. Dr Kate shares about her experience as a volunteer and articulates how nurses play a crucial role not only in delivering care but also educating, training and communicating, to ensure people with haemophilia and family members can benefit from a holistic approach.2022-07-0526 min
Impacting careNational Women’s Group: empowering women with blood disorders to blossom (EP6)Ms Wajiha Javaid has been working with the Haemophilia Foundation – Pakistan (HFP) since she was 16. She is currently Executive member of HFP and coordinator of the National Women’s group, which was officially formed in 2017.2022-05-1900 min
Impacting care - the haemophilia podcastNational Women’s Group: empowering women with blood disorders to blossomMs Wajiha Javaid has been working with the Haemophilia Foundation – Pakistan (HFP) since she was 16. She is currently Executive member of HFP and coordinator of the National Women’s group, which was officially formed in 2017.
She shares her experience as a woman living with Von Willebrand disease and part of the core team at HFP which worked on developing the National Women’s group to provide a safe place for women to meet, exchange and learn from each other. She is proud to have seen a lot of girls empowered to blossom over the years.2022-05-1922 min
Impacting careBuilding a patients’ organisation in Indonesia (EP5)When Novi Riandini got married to her husband, it was the day a close relationship with haemophilia started.2022-04-2700 min
Impacting care - the haemophilia podcastBuilding a patients’ organisation in IndonesiaWhen Novi Riandini got married to her husband, it was the day a close relationship with haemophilia started. At the time, it was very difficult for her to find any source of information related to haemophilia. Novi has been instrumental in building the patients organisation, from a parents’ support group to a multi-sector organisation in 2005, when the Indonesian Hemophilia Society, formed by doctors, nurses, people with haemophilia and families was established and officially recognised by the Ministry of Health.2022-04-2719 min
Impacting careShaping the next generation of haemophilia leaders (EP4)Clerment Masoabi Sefojane is an active young adult, living with severe haemophilia A in Bloemfontein, South Africa.2022-03-1500 min
Impacting care - the haemophilia podcastShaping the next generation of haemophilia leadersClerment Masoabi Sefojane is an active young adult, living with severe haemophilia A in Bloemfontein, South Africa.
He got involved with the South African Haemophilia Foundation (SAHF) at a very young age, at about 14 years old when he was invited to share is journey as a boy living with haemophilia at a National Youth Dialogue. He realised how important it is to have a platform to share knowledge and learn. He became actively involved activities organised by the patient organisation, to then be elected Chairperson of the SAHF Youth Council and until recently he was also the...2022-03-1521 min
Impacting careHow a team from Transylvania impacted haemophilia care across Romania (EP3)Just a few years ago, people with haemophilia in the northern part of Romania had to travel 6 to 9 hours by bus or train to receive diagnosis and care. But thanks to a young doctor, Ciprian Tomuleasa, and his team in the city of Cluj Napoca the situation has significantly improved. The laboratory in Cluj Napoca has been upgraded to provide quality diagnosis, a new national registry has been established and haemophilia care in north Romania has been standardised.2021-12-1200 min
Impacting care - the haemophilia podcastHow a team from Transylvania impacted haemophilia care across RomaniaJust a few years ago, people with hemophilia in the northern part of had to travel 6 to 9 hours by bus or train to receive care and treatment. But thanks to a young doctor Ciprian Tomuleasa and his team in the city of Cluj Napoca the situation has significantly improved. The laboratory in Cluj Napoca has been upgraded to provide quality diagnosis, a new national registry has been established and haemophilia care in north Romania has been standardised.2021-12-1221 min
Impacting care - the haemophilia podcastBuilding a multidisciplinary haemophilia care centre from scratch (EP2)Dr Laura Villarreal, paediatric haematologist and professor at the Faculty of Medicine at the University in Nuevo León - Mexico, has built up the haemophilia clinic at the University Hospital in Monterrey from scratch. In this episode you will hear about her vision of a multidisciplinary care team, how she was able to build it, and what it means for people with haemophilia and their families.
https://nnhf.org/wp-content/uploads/2021/10/NNHF-Podcast-Impacting-Care-EP02-Dr-Laura-Villarreal_Spanish.pdf2021-10-1923 min
Impacting careBuilding a multidisciplinary haemophilia care centre from scratch (EP2)Dr Laura Villarreal, paediatric haematologist and professor at the Faculty of Medicine at the University in Nuevo León - Mexico, has built up the haemophilia clinic at the University Hospital in Monterrey from scratch. In this episode you will hear about her vision of a multidisciplinary care team, how she was able to build it, and what it means for people with haemophilia and their families.2021-10-1523 min
Impacting careKenya’s journey to build the future of haemophilia care (EP1)Kenya has come a long way since its first project supported by the NNHF in 2012. Dr Kibet Shukuku walks us through the journey he has undertaken with his team at Kenya Haemophilia Association, and lately joining forces with the sickle cell community and with Tanzania to build the future of haemophilia care. In this podcast he talks about the steps to build up care in Kenya, the challenges on the way, the achievements and how joining forces can accelerate access to care for people living with bleeding disorders.2021-09-0922 min
Impacting care - the haemophilia podcastKenya’s journey to build the future of haemophilia care (EP1)Kenya has come a long way since its first project supported by the NNHF in 2012. Dr Kibet Shukuku walks us through the journey he has undertaken with his team at Kenya Haemophilia Association, and lately joining forces with the sickle cell community and with Tanzania to build the future of haemophilia care. In this podcast he talks about the steps to build up care in Kenya, the challenges on the way, the achievements and how joining forces can accelerate access to care for people living with bleeding disorders.2021-09-0922 min