Shows
Included: The Disability Equity Podcast43: Decolonizing Social Science MethodsThis episode features Dr. Autumn Asher BlackDeer, a queer decolonial scholar from the Southern Cheyenne Nation and an assistant professor in the Graduate School of Social Work at the University of Denver. She discusses how social science methods can be reshaped to learn from communities and implement this knowledge into practice. Our conversation centers on how evidence mapping and practice-based evidence can address and challenge Western research structures. Dr. BlackDeer discusses these methods and her recent publication, "Evidence Mapping: Interventions for American Indian and Alaska Native Youth Mental Health." Her conclusions reveal that reconnecting Indigenous youth to their culture...2023-02-1621 min
Included: The Disability Equity Podcast42: Reproductive Health and DisabilityDr. Willi Horner-Johnson takes a cross-disability approach to pregnancy and health in her work as Associate Professor at Oregon Health and Science University's School of Public Health, director of the Oregon Office on Disability in Health, and co-PI of the National Center for Disability and Pregnancy. Her work studies both pregnancy of people with disabilities and the birth of people with disabilities from preconception to post-partum health. She calls for a culture shift in reproductive care to respect people with disabilities, and for more accessible healthcare settings. Episode Transcript: here Episode transcripts can be found at...2022-10-2023 min
Included: The Disability Equity Podcast41: Web AccessibilityJared Smith, associate director of WebAIM, shares his expertise from over 20 years of working in web accessibility. In this episode, Smith highlights how online access means equity to information and ecommerce for all. He describes his team’s systems to search websites for a wide variety of barriers, even with few federal guidelines in place. Tune in to hear how he views the future of technology, and how you can do your part to ensure an equitable online environment. Episode Transcript: here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ ...2022-09-1624 min
Included: The Disability Equity Podcast40: Making Their Days Happen: Personal Assistant ServicesIn this episode, we welcome back Dr. Lisa Iezzoni, a professor of medicine at Harvard Medical school and an internationally recognized health services researcher, to discuss her new book, Making Their Days Happen: Personal Assistant Services Supporting People with Disability Living in Their Homes and Communities. Learn about the research findings and personal anecdotes that motivated Dr. Iezzoni’s book about policy, interactions with the disability community, and more. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ The book is available at any bookseller https://www.am...2022-05-0532 min
Included: The Disability Equity PodcastDisability Health Equity and Health Implementation ScienceDr. Megan Morris is a University of Colorado-Anschutz Associate professor, certified speech-language pathologist, and founding director of the Disability Equity Collaborative, a community aimed at advancing equitable care for patients with disabilities through practice, policy and research. Dr. Morris focuses on understanding, identifying and addressing disparities in care delivered to patients with disabilities and uses patient-informed data to address disparities via pragmatic and sustainable changes such as documenting disability in the electronic health record to inform accommodations. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Link...2022-04-0736 min
Included: The Disability Equity PodcastDisability and Emergency Management During COVID-19Linda Mastandrea, Director of the Office of Disability Integration and Coordination at the Federal Emergency Management Agency (FEMA), shares her work as a disability law and civil rights attorney. She discusses her role in the COVID-19 response, the lack of data on how emergencies impact people with disabilities, and the barriers for people with disabilities to access emergency assistance. This episode highlights the importance of including people with disabilities in the decision-making process. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Resource Links Learn more abo...2022-03-1724 min
Included: The Disability Equity PodcastHealth and Social Equity for People with Disabilities Dr. Kimberly Phillips, Research Assistant Professor at the Institute on Disability at the University of New Hampshire, provides an overview of her broad range of projects on increasing equity for people with disabilities through employment and community participation. She differentiates the medical and social models of Disability and provides insight and evidence from her research aiming to improve disability awareness and inclusion via new training programs with an aim to ultimately reduce barriers and improve healthcare for people with disabilities. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/...2022-03-0328 min
Included: The Disability Equity Podcast36: Allyship and Education to Combat Disability Bias Dr. Kathleen Bogart, Director of the Disability and Social Interaction Lab at Oregon State University, discusses her research on congenital and acquired disabilities, ableism, and stigma-related stress management. She describes the disability self-concept as an individual's disability identity and how someone navigates the world in relation to that identity. Dr. Bogart additionally outlines the importance of allyship for people with disabilities, the role of education to combat ableism, and a need to create better metrics for disability research. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ U...2022-02-1743 min
Stories of Community ResilienceThe Journey of Coming Out : Prateek GajwaniThe LGBTQ+ community needs to be loved, accepted and acknowledged by the global community. On that note, our next guest provides massive hope, support and resilience through his journey of coming out as Gay. Prateek Gajwani, was born and raised in a slightly different family structure in the capital city of India and was re-raised in the American Society in a BIG (Brown Immigrant Gay) way. He is still learning and unlearning his privileges and disadvantages. Working in Public Health and Healthcare research sector, Prateek views life as constantly evolving and believes that endpoints are changing based...2022-02-1319 min
Included: The Disability Equity PodcastDisability EconomicsDr. Sophia Mitra, Professor of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the association between disability and economic outcomes. She describes how the current economic system contributes to economic deprivation for people with disabilities, including unemployment, lack of health insurance, low educational attainment, and more. Dr. Mitra explains that people with disabilities have higher costs of living, and describes policies that could help reduce economic inequities for Americans with disabilities. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth...2022-02-0323 min
Included: The Disability Equity PodcastHealthcare During the COVID-19 Pandemic and BeyondMaryBeth Musumeci, associate director of the Program on Medicaid and the Uninsured at the Kaiser Family Foundation, discusses how states are expanding access to behavioral healthcare, including the role of telehealth. She also describes the ethical issues behind COVID-19 mandates, the rights of nursing home residents during the pandemic, and new opportunities in the American Rescue Plan. In this compelling episode, Musumeci highlights the importance of making these improvements to healthcare access permanent. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: https://www.k...2022-01-2037 min
Included: The Disability Equity PodcastDisability Data Initiative Dr. Sophie Mitra, professor in the department of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the disability data initiative. Dr. Mitra shares her findings that people with disabilities are often not included in national surveys, not asked meaningful questions, and can be stigmatized. Dr. Mitra's work emphasizes that disability is common and that the inequalities associated with disability vary across countries. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: Di...2022-01-0624 min
Included: The Disability Equity PodcastDisability Moral AsymmetryIn this episode, the Director of the Institute for Ethics and Public Affairs at San Diego State University, Dr. Joe Stramondo, discusses his paper "Causing Disability, Causing Non-Disability: What's the Moral Difference?". In this conversation, he describes society's standard view of disability and the reasons why there is a moral asymmetry between causing a disability and not causing a disability. This important conversation gets to the core of many debates about disability, especially in medical settings. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: ...2021-12-1639 min
Included: The Disability Equity PodcastMusic and HearingMusic producer, composer, and hearing technology consultant Richard Einhorn describes his diverse experiences from creating award-winning music to advocating for adults with hearing loss worldwide. Einhorn tells his story of suddenly losing hearing and experimenting with powerful hearing assistance technologies. He shares his optimism for universal design to destigmatize hearing assistance and allow music to be accessible to all. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Learn more at: www.richardeinhorn.com Other links Preventing and Negating Hearing Loss Sound on Sound...2021-12-0130 min
Included: The Disability Equity PodcastDisability and EmploymentThis episode features Taryn Williams, the Assistant Secretary of Labor for Disability Employment Policy at the United States Department of Labor. She shares the mission of the Office of Disability Employment Policy (ODEP) and this office's policies and programs aimed at increasing employment opportunities for people with disabilities. She discusses the interconnection between COVID-19 and employment for people with disabilities, including a focus on long-COVID and mental illness, and provides perspective on how the pandemic has created a possibility of more flexible work arrangements and higher education to advance disability inclusion in the workforce. Episode Transcript: Click here2021-11-1034 min
Included: The Disability Equity PodcastDisability and Intersectionality Sandy Ho, a White House Champion of Change in 2015, returns to discuss her work supporting the inclusion of people from intersecting backgrounds in disability research and advocacy. She shares a brief history of the connection between intersectionality and the disability justice framework and why an intersectional approach is key to combating ableism. Sandy is the co-founder of the Disability and Intersectionality Summit, and she discusses this initiative's aim to uplift disabled people of color who experience compounded marginalization. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Im...2021-11-0419 min
Included: The Disability Equity PodcastDisability Civic Engagement In this episode, we talk with Sandy Ho, a disability activist, policy researcher at the Lurie Institute for Disability Policy at Brandeis University, and co-founder of Disability and Intersectionality Summit. Sandy shares details from the report, Civic Engagement and People with Disabilities, which she co-authored. She discusses how ableist attitudes and physical barriers can prevent civic engagement for the disability community. Sandy highlights the importance of cross-movement collaboration and ensuring the disability community is included in all policies and not just "disability issues". Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth...2021-10-2824 min
Included: The Disability Equity PodcastL. Miché AaronA Planetary Science graduate student at Johns Hopkins University, L. Miché Aaron describes both her research studying minerals on Mars and her grassroots efforts to diversify science. Miché shares the story of her ADHD (attention deficit hyperactivity disorder) diagnosis and how society conditioned her to internalize stigma related to neurodiversity. She highlights the importance of empowering minority women with disabilities, including neurodiversity, to success in STEM. Miché explains that it is not enough to increase the representation of minority women in STEM. Rather, we should provide the tools to guard against attrition and ensure that research environments are conducive to their...2021-10-141h 04
Included: The Disability Equity PodcastKeyonna Mayo Keyonna Mayo, a Baltimore City disability community leader, and Corey Warren, an attorney from Disability Rights Maryland, describe the obstacles faced by the disability community in Baltimore City. Keyonna discusses gaps in community accessibility within Baltimore City, including sidewalks, and describes how both people with disabilities and the community at large benefit from accessible spaces. And we talk about the need for better systems of accountability and input from the disability community in order to ensure our communities are accessible and inclusive for everyone. Episode Transcript: Click here Episode transcripts can be found at http://d...2021-09-3022 min
Included: The Disability Equity PodcastAbleism in Healthcare - Part 2 Assistant Professor at UNC School of Medicine and pediatric neurologist at the Carolina Institute of Developmental Disabilities, Dr. Diana Cejas discusses how ableism impacts patients and physicians in this two-part episode. She explains how disability is more than pathology, and shares how the culture in medicine pressures physicians to hide their disabilities. Dr. Cejas calls for the improvement of disability awareness and representation in medicine. This is the second part. Episode Transcript: Click here2021-09-1640 min
Included: The Disability Equity PodcastAbleism in Healthcare - Part 1 Assistant Professor at UNC School of Medicine and pediatric neurologist at the Carolina Institute of Developmental Disabilities, Dr. Diana Cejas discusses how ableism impacts patients and physicians in this two-part episode. She explains how disability is more than pathology, and shares how the culture in medicine pressures physicians to hide their disabilities. Dr. Cejas calls for the improvement of disability awareness and representation in medicine. The discussion continues in the next part. Episode Transcript: Click here 2021-09-1636 min
Included: The Disability Equity PodcastAdvocacy for Physicians with Disabilities University of California San Francisco Internal Medicine resident, Dr. Justin Bullock, shares his journey through medical training with bipolar disorder and explains how it drives his advocacy for disability inclusion among physicians, particularly those with a mental illness. Dr. Bullock compares residency to a marathon, highlighting how it can push physicians past their limits, harm their mental health, and end in burnout. Dr. Bullock aims to break down cultural and structural barriers for physicians with disabilities, such as views that physicians are super-human, bias in fitness-for-duty evaluations, and stereotypes about disability. Dr. Bullock discusses the importance of trauma-informed care...2021-08-2747 min
Included: The Disability Equity PodcastDisability within the Health Profession Dr. Lisa Meeks is focused on promoting equal access in health professional education for trainees with disabilities. Dr. Meeks aims to change the paradigm from focusing only on individuals accommodations for people with disabilities to removing ableist barriers and creating inclusive environments that are accessible for all. Dr. Meeks highlights how creating inclusive environments for people with disabilities in health professions advances health equity more broadly. Episode Transcript: Click here 2021-08-1231 min
Included: The Disability Equity PodcastDisability Law - Part 2In part two of this episode, Dr. Doron Dorfman describes his work identifying the "disability con", and the burden of proof for people with disabilities. He explains the importance of expanding understanding of disability law to combat these misperceptions and discusses how his work shows that disability equity must stem from the recognition that disability is contextual and fluid. Episode Transcript: Click here2021-07-2929 min
Included: The Disability Equity PodcastDisability Law - Part 1Associate Professor of Law at Syracuse University College of Law, Doron Dorfman shares his work examining how ideologies, stigma, and stereotypes of disability impact policies, and the high stakes implications during the COVID-19 pandemic. Dr. Dorfman shares examples of how disability advocacy has been critical in combating these biases and changing policy. The discussion continues in the next part. His Publications: Click here Episode Transcript: Click here2021-07-2924 min
Included: The Disability Equity PodcastDisability and Aging with DignitySarah Szanton is the professor for health equity and social justice and director of the Center for Innovative Care in Aging at the Johns Hopkins School of Nursing. In this episode, Dr. Szanton describes her innovative model, Community Aging in Place—Advancing Better Living for Elders (CAPABLE), which combines multifactorial interventions focused on helping people age with dignity and independence at home. Dr. Szanton discusses how we can take public health from an epidemiologic inference to the clinical trial level before reaching an effective policy approach and, finally a cost-effective benefit. Visit Website: CAPABLE Episode Tra...2021-07-1527 min
Included: The Disability Equity PodcastDisability and the Arts Molly Joyce, a nationally acclaimed composer, joins us to discuss the intersection of disability and music. Molly highlights what she calls a false social constriction — artists being limited by normative standards of performativity and virtuosity. She delves into the meaning of her debut album, Breaking and Entering, and how it promoted her creative development. Molly invites us to question the assumptions and traditions of music and make it more accessible to perceive and perform. Visit her website: https://www.mollyjoyce.com/ Episode Transcript: Click here2021-07-0122 min
Included: The Disability Equity PodcastHealthcare and DisparitiesDr. Lisa Iezzoni is a professor of medicine at Harvard Medical school and an internationally recognized health services researcher. Dr. Iezzoni, with her decades of work on health inequities for people with disabilities, discusses disparities in healthcare and why the needle has not moved on closing these gaps for the disability community. She shares findings from her recent work examining physician perspectives of patients with disabilities and insight on how to remove bias and improve access during health care interactions. Dr. Iezzoni's work on PubMed: Click here Episode Transcript: Click here2021-06-1636 min
Included: The Disability Equity PodcastDisability & PolicyIn this episode, we talk with Andrés Gallegos, chairman of the National Council on Disability (NCD), about his recent commentary in Health Affairs, “Misperceptions of People with Disabilities Lead to Low-Quality Care: How Policymakers Can Counter the Harm and Injustice.” He shares insight on the impact of gaps in disability data, the underrepresentation of people with disabilities in leadership positions, disability cultural competency, and how quality-adjusted life years (QALYs) are barriers to equitable health care. Learn more about the National Council on Disability (NCD) here: https://ncd.gov/ Episode Transcript: https://documentcloud.adobe.com/link...2021-06-1034 min
Included: The Disability Equity Podcast15: Disability in Medicine Dr. Ruffin describes his experiences as a medical provider with a disability during the COVID-19 pandemic, such as how masks have hindered his ability to communicate with patients. He also talks about his own experience with hearing loss and how it gives him a more complete understanding of hearing care. Lastly, Dr. Ruffin advocates for more inclusion of disabled people in medicine. Learn more about Dr. Ruffin here: https://www.chadruffinmd.com/ Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ 2021-04-2925 min
Included: The Disability Equity PodcastDisability Services in Higher EducationDr. Terri Massie-Burrell, the Director of Student Disability Services at Johns Hopkins, shares her journey to working in disability services and how her experience as an African American woman with a disability informed her trajectory. She discusses how her field has changed and her hopes for a future where accommodations are no longer stigmatized. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ 2021-04-2227 min
Included: The Disability Equity PodcastDisability Data Dr. Scott Landes is an Associate Professor of Sociology at Syracuse University. Dr. Landes has recently published multiple research articles characterizing the greater risk of poorer COVID-19 outcomes faced by people with intellectual and developmental disabilities (IDD). His work highlights the vulnerability of this group during the COVID-19 pandemic. In this episode, he delves into this research and its broader implications for the COVID-19 pandemic and health equity. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Learn more about Dr. Landes here: https://www.maxwell.syr.edu/soc/Landes,_Scott/ 2021-04-1529 min
Included: The Disability Equity PodcastCovering Disability During COVID-19 Sara Luterman, a journalist focusing on disability issues, talks about her coverage of the COVID-19 pandemic. Topics include COVID-19 in nursing homes, medical rationing, and quality of life metrics. Sara delves into specific issues facing long-term care settings during the pandemic and potential alternatives to nursing homes, particularly through Medicaid policy. Follow Sara on Twitter: https://twitter.com/slooterman Sign up for Sara’s substack newsletter: https://nosletter.substack.com/ 2021-04-0816 min
Included: The Disability Equity PodcastDisability Health Trainees In this episode, Nick and Bonnie talk with three trainees at the Disability Health Research Center: Caroline Cerilli, Jessica Campanile, and Sabrina Epstein. The three share their experiences with the lack of disability inclusion in public health and pre-medical education. They discuss their experiences with the DHRC, including creative ways to make research accessible, informing research with their lived experiences, and their future career aspirations. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Follow Caroline, Jessica, and Sabrina on Twitter: https://twitter.com/CarolineCerill1 https://twitter.com/jesscampanile ...2021-04-0221 min
Included: The Disability Equity PodcastCOVID-19 and Equity Andy Imparato, Executive Director of Disability Rights California, shares his work on disability issues during the COVID-19 pandemic. In addition to his California work, Andy is a member of the Biden-Harris Administration COVID-19 Health Equity Task Force, and he discusses his national work to include disability in diversity conversations. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Learn more about Disability Rights California: https://www.disabilityrightsca.org/ Follow Andy on Twitter: https://twitter.com/AndyDRC 2021-03-2519 min
Included: The Disability Equity PodcastBioethics and Disability Dr. Mildred Solomon, President of the Hastings Center, joins Bonnie and Nick to discuss her leadership at the Center and how it relates to disability issues. She reviews several historical and current projects on bioethics. Additionally, Dr. Solomon explores COVID-19 and disability, particularly her piece in the New England Journal of Medicine around crisis triage and disability rights. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Learn more about the Hastings Center here: https://www.thehastingscenter.org/ Read her article in the NEJM: https://www.nejm.org/doi/full/10.1056/NEJMp2008300 2021-03-1830 min
Included: The Disability Equity PodcastThe Economic Cost of Ableism and Racism Nanette Goodman researches economic outcomes of people with disabilities, and she recently examined this issue through the lens of intersectionality. She shares her staggering findings in this episode: people with disabilities are twice as likely than those without to live in poverty, and this proportion increases substantially for disabled people of color. Nanette expertly guides the hosts through her data to expose the inequities and injustices facing multiply-marginalized people with disabilities. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ 2021-03-1124 min
Included: The Disability Equity PodcastDisability IdentityIn this episode, Bonnie and Nick interview Dr. Anjali Forber Pratt, assistant professor at Vanderbilt University, Paralympian and disability rights activist. She talks about disability identity from both a personal and academic research perspective. Drawing on the disability justice framework, Dr. Forber-Pratt also reflects on the importance of intersectionality in disability identity. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included Learn more about Dr. Forber-Pratt's work: https://peabody.vanderbilt.edu/bio/anjali-forber-pratt2021-03-0427 min
Included: The Disability Equity PodcastDisability Rights in Psychiatric Hospitals and Long COVIDKathy Flaherty, Executive Director of the Connecticut Legal Rights Project, discusses how the COVID-19 pandemic has affected people with psychiatric disabilities, particularly those in inpatient facilities. Kathy shares her work in Connecticut advocating for the rights of patients in psychiatric hospitals as well as her own experience with the flaws in our mental healthcare system. Additionally, Kathy delves into long COVID-19 the long-term impacts of the pandemic on the disability community. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included Kathy is on Twitter @ConnConnection and is on Instagram at @reddevilsfan8332. ...2021-02-2535 min
Included: The Disability Equity PodcastDr. Nick Reed - His Story In this episode, Bonnie interviews her co-host, Dr. Nick Reed, in this bonus episode. Nick shares his personal story of how he became interested in hearing research. You’ll learn about Nick’s journey in academia and medicine and how he balances his passion for public health with his own mental health. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included Learn more about the Cochlear Center for Hearing and Public Health at https://www.jhucochlearcenter.org/ Follow Dr. Reed on Twitter at https://twitter.com/NickSReed. 2021-01-2927 min
Included: The Disability Equity PodcastDr. Bonnielin Swenor - Her StoryIn this episode, Nick interviews Bonnie about her research and disability advocacy. She discusses her own experience with disability and her journey to public health. Learn more about the Johns Hopkins Disability Health Research Center here: https://disabilityhealth.jhu.edu/ Episode transcripts can be found at http://disabilityhealth.jhu.edu/included 2020-11-0315 min
Included: The Disability Equity PodcastVoting: Crip the VoteIn this episode, Andrew and Gregg talked about founding #CripTheVote in 2016 with Alice Wong out of a shared frustration with disability not being mentioned in the presidential debates. They gave specific examples of barriers to voting and how they vary for people with different access needs, emphasizing that the goal is for voting to be as easy as possible for all voters. They offered some tips on being an ally to voters with disabilities. Andrew and Gregg concluded by discussing how all political issues are disability issues. Episode transcripts can be found at http://disabilityhealth.jhu.edu...2020-10-2133 min
Included: The Disability Equity PodcastVoting: Plan Your VoteIn this episode, Sarah Blahovec discusses the work of disability nonprofits to organize the disability vote. From voter registration to polling sites, disabled people experience barriers at every step of the voting process. Problems with the US Postal Service have been highlighted in the news recently, and Sarah and the hosts dive into the implications of the USPS for the disability community. The conversation concludes with resources for how to plan your vote when COVID-19 and gaps in accessibility create so many obstacles. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included NCIL...2020-10-1626 min
Included: The Disability Equity PodcastVoting: National and State PerspectivesIn this episode, our guest Maureen van Stone discusses educating candidates about disability policy, increasing the disability vote, and addressing issues specific to Maryland. With her expertise in advocating for children with disabilities, Maureen explains what's at stake in this election for the disability community and shares some key state and national resources on accessible voting. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included Learn more about Project Heal: https://www.kennedykrieger.org/community/initiatives/maryland-center-developmental-disabilities/project-heal New York Times article on voting with a disability: https://www.nytimes.com/2020/09/25...2020-10-0816 min