Shows
Mindset MattersMy Final Reflections on My Dad's ALS Journey and LegacyIn this final episode of "Mindset Matters," I, Ronan Rupesh Kotiya, wear my own shirt representing the journey we've embarked on together through this podcast series.
As I share the invaluable lessons learned from my dad's courageous battle with ALS, I reflect on the insights gained from the incredible guests who've joined me along the way. From understanding the depth of ALS to appreciating the strength and resilience of those around me, especially my mom, Siobhan Pandya, this series has been a profound journey of discovery, grief, and ultimately, hope.
I delve into how this...2024-02-2910 minMindset MattersMom Reflects on Dad's Courageous ALS FightIn this deeply personal episode of "Mindset Matters," I sit down with the strongest person I know, my mom, Siobhan Pandya. Wearing my dad's Scotland jersey, a symbol of the incredible memories they created together, we dive into our family's journey through ALS.
Mom shares the heart-wrenching story of dad's diagnosis, the battle we fought as a family, and the resilience and love that saw us through the darkest times. From the initial symptoms to the challenges of caregiving and the immense void left by dad's passing, mom opens up about the pain, the strength, and the...2024-02-2917 minMindset MattersFacing ALS Together with My Dad's Best Friend Dr. Gaurav KhatriIn this deeply personal episode of "Mindset Matters," I'm joined by Dr. Gaurav Khatri, not just a leading radiologist at UT Southwestern, but more importantly, one of my dad's closest friends.
Dr. Khatri, or Gaurav Uncle as I fondly call him, opens up about his decade-long friendship with my dad, from their shared passions to facing the daunting challenges of ALS together. We delve into the heart-wrenching moments of diagnosis, the battles fought side by side, and the unwavering support that defined their bond. Gaurav Uncle shares touching stories that highlight my dad's incredible spirit, humor, and...2024-02-2910 minMindset MattersAdriana Gonzalez Discusses the Emotional Journey of ALS CaregivingIn this heartfelt episode of "Mindset Matters," I have the honor of welcoming Adriana Gonzalez, who was not only our cherished nanny but also became my dad's primary caregiver during his battle with ALS.
Adriana, who has been part of our family since I was a baby, shares her journey from caring for me and my brother to supporting my dad through his ALS diagnosis.
She opens up about the challenges of juggling caregiving duties, the resources that helped her cope, and the unique ways we communicated as my dad's condition progressed. Through laughter and...2024-02-2908 minMindset MattersUnlocking Mobility and Comfort for ALS Patients with Tom SimonIn this touching episode of "Mindset Matters," I sit down with Tom Simon, an expert in providing essential equipment for ALS patients. Tom played a crucial role in helping my dad navigate his ALS journey, offering solutions to maintain mobility, comfort, and communication.
We delve into the technical and emotional aspects of ALS, the critical equipment that supported my dad, and how it transformed our daily lives. Tom shares invaluable insights on acquiring and utilizing devices that significantly impact ALS patients and their families, making everyday tasks more manageable.
Join us as we explore the...2024-02-2811 minMindset MattersHopeful Treatments for ALSIn this episode of "Mindset Matters," I dive deep into the world of ALS, sharing my dad's personal journey and the various treatments we explored together, from traditional medications like Rilutek and Radicava to breathing and physical therapies that helped him fight longer and stronger.
I also touch on the innovative approaches we considered, including acupuncture, naturopathy, and the promising potential of stem cell therapy. Join me as I unfold the challenges of diagnosing ALS, the impact of cutting-edge research, and the blend of hope and resilience that guided us through.
This is a story...2024-02-2809 minMindset MattersMiss Sarah Sutton Guides Kids and Families Through ALS ChallengesIn this episode of "Mindset Matters," I am joined by Miss Sarah Sutton, a compassionate child therapist who has been a guiding light for my brother Keaton and me through our journey with ALS.
Sharing both personal experiences and her professional expertise, Dr. Sarah offers invaluable advice on coping mechanisms, understanding the impact of ALS on families, and finding ways to communicate and support each other through challenging times. Join us as we explore the power of resilience, love, and the importance of open communication in navigating life with ALS.
How to Support and Share...2024-02-2815 minMindset MattersUnderstanding ALS with Dr. Won LeeIn a heartfelt episode of "Mindset Matters," I sat down with Dr. Won Lee, the pulmonologist who cared for my dad during his ALS journey. Dr. Lee shared invaluable insights into ALS, a devastating neurological disease affecting voluntary muscles, leading to severe physical challenges. We discussed the symptoms, progression, and the current state of treatments aimed at improving quality of life despite the absence of a cure.
Dr. Lee highlighted the importance of support, understanding, and small acts of kindness that can significantly impact those living with ALS. He also touched on the promising avenues of ALS...2024-02-2813 minMindset MattersThe Heart of Resilience: My Dad's Battle with ALSWelcome to 'Mindset Matters,' my very own podcast that shines a light on ALS (amyotrophic lateral sclerosis) from my perspective. At just 13 years old, I've embarked on a mission to honor my father, Rupesh Kotiya, and to raise awareness about this challenging disease.
How to Support and Share: I encourage listeners to subscribe and share the podcast to help spread awareness and support the ALS community.2024-02-2809 min