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Showing episodes and shows of
Saida L Mahoney
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WONDERGIRLSAIDA
My Life: Having The Moment Of Working With My Neurogenetics Doctor
Hi everyone it’s me Saida in this episode I will be talking about how I been working with my awesome Neuro genetics doctor and how she been helping me and so much more etc
2024-08-27
02 min
WONDERGIRLSAIDA
Overcoming My Challenges: Living With Foot Drop
Hello everyone it’s me Saida and in this episode I will be talking about why I wear my AFO Braces and so much more etc
2023-08-31
04 min
WONDERGIRLSAIDA
Shining A Light: Honoring My Idol Lyle Lovett
Hello everyone its me Saida and in this episode I will be honoring my remarkable inspiring idol Lyle Lovett :)
2023-08-21
05 min
WONDERGIRLSAIDA
Shining A Light: My Life Having My AFO Braces
Hello everyone its me Saida and in this episode I will be talking about how I received my AFO Braces and how they help me and so much more etc
2023-08-21
07 min
WONDERGIRLSAIDA
Welcome To The Premiere Of Season 12!!
Hello everyone its me Saida and I want to welcome you all to season 12!!!!!
2023-08-21
01 min
WONDERGIRLSAIDA
Uplifting The Impact: Honoring Those Who Are Disabled Female Survivors
Hello everyone its me saida and in this episode I will be talking about and explaining the importance of helping female survivors who have disabilities and rare diseases and medical conditions and so much more etc
2023-05-20
07 min
WONDERGIRLSAIDA
Overcoming The Pain: The Road To Returning Back To Life After Healing
Hello everyone it’s me Saida and in this episode I will be talking about my journey returning to everything full time after getting my recovery and healing and so much more etc
2023-05-18
06 min
WONDERGIRLSAIDA
Showcasing Your Abilities: My Journey Returning To School With My Disabilities/Medical Conditions
Hello everyone it’s me Saida and in this episode I will talk about the journey of going back to college with my conditions and so much more etc
2023-05-18
06 min
WONDERGIRLSAIDA
Thank You So Much Everyone, Happy Holidays(End Of Season 10)
Hello everyone it’s me Saida I want to say a huge thank you to each and every single one of you all I hope you have a wonderful holiday season and Happy New Year thank you for all the love and thank you for supporting me,
2022-12-30
03 min
WONDERGIRLSAIDA
My Life: Journey Of Learning Of Abnormalities Due to my RD
Hello everyone it’s me Saida and in this episode I will be talking about everything that happened during my appointment with my genetic doctor and so much more etc
2022-12-30
04 min
WONDERGIRLSAIDA
My Life: Being Honored The Opportunity To Do Church Choir
Hello everyone it’s me Saida in this episode I will be talking about being honored with the opportunity to do church choir and so much more etc
2022-12-30
03 min
WONDERGIRLSAIDA
On The Road: My Moment Being Able To Become A RD Delegate
Hello everyone its me saida in this episode I will be talking about how I worked my way up to be able to become a Rare Disease Delegate and so much more etc
2022-12-28
05 min
WONDERGIRLSAIDA
My Life: The Road To Getting Honored Hometown Recognition
Hello everyone its me saida in this episode I will be talking about how my local news channel have honored me and recognized me and so much more etc
2022-12-28
05 min
WONDERGIRLSAIDA
Shining A Light:Bringing Change For Rare Diseases & Disabled
Hello everyone it’s me Saida in this episode I will be talking about how I will be graduating from my wonderful Masterclass session classes and so much more etc
2022-12-07
07 min
WONDERGIRLSAIDA
Shining A Light: On The Road Of Joining Survivors Leadership
Hello everyone its me saida and in this episode I will be talking about how I got to join the wonderful Survivors Leadership institute program and so much more etc
2022-12-07
07 min
WONDERGIRLSAIDA
Shining A Light: The Road To Overcoming Difficulties
Hello everyone its me saida in this episode I will be talking about why it is so important to overcome your struggles and so much more etc
2022-12-01
06 min
WONDERGIRLSAIDA
Shining A Light: Why Education Matters For Rare Disease
Hello everyone it’s me Saida in this episode I will be talking about why it is so important for the Rare Disease community to be able to access a full on education and so much more etc
2022-10-25
04 min
WONDERGIRLSAIDA
Welcome To Season 9!!!
Hello everyone it is me saida I want to welcome each and every single one of you all and welcome to season 9!!!!
2022-10-25
02 min
WONDERGIRLSAIDA
My Moment: Shining A Light On My Education Journey
Hello everyone it’s me saida and in this episode I will be talking about how I will be starting my college journey and so much more etc
2022-10-25
03 min
WONDERGIRLSAIDA
Thank You So Much For Listening: End of season 8
Hello everyone thank you so much for all the love and support you give me thank you so much for supporting my podcast this is the end of season 8 tune in for season 9 Tuesday!!!! Take care love you all, Saida :)
2022-10-16
00 min
WONDERGIRLSAIDA
Welcome to The Premiere Of Season 7
Hello everyone it’s me saida I want to welcome each and every single one of you all to season 7
2022-09-18
01 min
WONDERGIRLSAIDA
A Survivor Speaks: Honoring And Shining The Light For Disabled Survivors
Hello everyone it’s me Saida In this episode I will be talking about honoring survivors honoring disabled survivors and so much more etc
2022-06-30
11 min
WONDERGIRLSAIDA
A Survivor Speaks: Honoring And Shining The Light For Disabled Survivors
Hello everyone it’s me Saida In this episode I will be talking about honoring survivors honoring disabled survivors and so much more etc
2022-06-30
11 min
WONDERGIRLSAIDA
Respect The Disabled: End Disability Discrimination
Hello everyone it’s me Saida in this episode I will be talking about how you should respect the disabled and so much more etc
2022-06-30
06 min
WONDERGIRLSAIDA
Respect The Disabled: End Disability Discrimination
Hello everyone it’s me Saida in this episode I will be talking about how you should respect the disabled and so much more etc
2022-06-30
06 min
WONDERGIRLSAIDA
Welcome To The Season 6 Premier
Hello everyone it’s me saida and welcome to Season 6 of my podcast I thank you so much for all the love and support
2022-06-30
01 min
WONDERGIRLSAIDA
Welcome To The Season 6 Premier
Hello everyone it’s me saida and welcome to Season 6 of my podcast I thank you so much for all the love and support
2022-06-30
01 min
WONDERGIRLSAIDA
Guiding The Way Of Becoming A Thriver:Journey Of Miss Amazing
Hello everyone in this episode I will be talking about how my Miss Amazing journey has made a huge impact on me and so much more etc
2022-06-03
04 min
WONDERGIRLSAIDA
My Reflection: My View Of My Life With CranioFacial Abnormalities (CFA)
Hello everyone in this episode I will be talking about myself living with my CranioFacial Abnormalities and so much more etc
2022-06-03
05 min
WONDERGIRLSAIDA
Navigating Life: Living Life With Chromosomal Abnormalities
Hello everyone in this episode I will be talking about living life with chromosomal abnormalities and how it affects me and so much more etc
2022-06-03
05 min
WONDERGIRLSAIDA
Living Right And Living Rare: Being Honored With A Huge Moment
Hello everyone in this episode I will be talking about how I got the honor to work with such a wonderful and prestigious TV network and educating the rare disease community and so much more etc
2022-06-02
06 min
WONDERGIRLSAIDA
Living Life With Different Abilities & Challenges
Hello everyone in this episode I will be talking about numerous things I will be talking about how you should treat those who are disabled and so much more etc
2022-06-02
05 min
WONDERGIRLSAIDA
Gaining Freedom: Journey Of Graduating From Survivor To Thriver
Hello everyone in this episode I will be talking about how I have graduated from being a survivor to becoming a Thriver and so much more etc
2022-06-02
06 min
WONDERGIRLSAIDA
The Journey Of Thriving: Attending The CSFSJ Event
Hello everyone in this episode I will be talking about how I was thankful and honored to attend the CSFSJ event ceremony in my state I am forever grateful and honored that I got to attend such a wonderful event and so much more etc
2022-06-02
05 min
WONDERGIRLSAIDA
Thankful For All The Support And Love
Hello everyone I want to say a huge thank you to each and every single one of you all Welcome to Season 5 of my podcast I use my voice to help raise awareness to important matters and so much more etc I am thankful to all of you who have supported me and my journey from Day 1 I love you all so much.
2022-06-02
02 min
WONDERGIRLSAIDA
Thankful For All The Love
Hello everyone I want to say a huge huge thank you to each and every single one of you all I love you all so much I really appreciate all the love and support thank you for helping me get through everything thank you for helping me get through my struggles and thank you so much for supporting my podcast channel wherever you are in the world and country I’m so thankful for you all I do these episodes to help others everywhere and so much more you are not alone please stay strong and stay safe
2022-04-19
03 min
WONDERGIRLSAIDA
How the song “Independence Day” helped me
Hello everyone in this episode I will be talking about how my idol Martina McBride song “Independence Day” have helped me and so much more
2022-04-19
04 min
WONDERGIRLSAIDA
How my Jewish Culture & Faith Helped Me
Hello everyone in this episode I will be talking about how my Jewish culture and faith has helped me and so much more
2022-04-19
08 min
WONDERGIRLSAIDA
Living Life With Auditory Processing Disorder (APD)
Hello everyone in this episode I will be talking about myself living with the condition Auditory Processing Disorder (APD) and so much more
2022-04-19
04 min
WONDERGIRLSAIDA
Living Life With Social Anxiety
Hello everyone in this episode I will be talking about my life living with social anxiety and so much more
2022-04-19
03 min
WONDERGIRLSAIDA
Unbroken: My Journey Of Living With Depression
Hello everyone in this episode I will be talking about my journey of living with my depression I was diagnosed with Major Depression Disorder (MDD) when I was a teenager after all the things I went through and struggled with I will also be talking about many more other things as well
2022-04-19
09 min
WONDERGIRLSAIDA
Living Life With PTSD
Hello everyone in this episode I will be talking about my life living with my mental health condition Post Traumatic Stress Disorder for short PTSD I will also be covering other things in this episode as well
2022-04-19
05 min
WONDERGIRLSAIDA
My Journey Of Joining The AYSO soccer organization
Hello everyone in this episode I will be talking about how I got involved with getting involved and joining the AYSO soccer organization and so much more etc
2022-04-18
05 min
WONDERGIRLSAIDA
My Journey Of Becoming A Ice Hockey Player
Hello everyone in this episode I will be talking about how I got involved to play ice hockey and play ice hockey on my local ice hockey team
2022-04-18
03 min
WONDERGIRLSAIDA
Using My Voice: Power Of Using My Voice With Loved Ones & Friends
Hello everyone in this episode I will be talking about how it is very important to use your voice to talk with your loved ones and or friends and so much more etc
2022-04-18
04 min
WONDERGIRLSAIDA
Unbroken: Journey Of Gaining Self Worth And Rebuilding Myself
Hello everyone in this episode I will be talking about the importance of self worth and having love and respect for yourself and so much more etc
2022-04-15
08 min
WONDERGIRLSAIDA
Going To School: Journey Of Returning Back To School
Hello everyone in this episode I will be talking about how I will be starting my performing arts studies at school and the schools I will be attending and so much more etc
2022-04-14
02 min
WONDERGIRLSAIDA
Breaking Free: Becoming Free from suffering silently from other forms of abuse I went through
Hello everyone in this episode I will be talking about the other forms of abuse I went through with my then boyfriend I had a relationship with it was a very toxic and abusive relationship the relationship had contained Child Sexual Exploitation, Child Sex Trafficking, Domestic Violence and Sexual Assaults it was a painful experience for me I am using my voice and raising my voice because I don’t want anyone to go through what I went through. I will no longer be silent I’m free!
2022-04-14
08 min
WONDERGIRLSAIDA
Finding My Voice: Power Of Using My Voice in Health
Hello everyone in this episode I will be talking about how I got the strength to use my voice in the healthcare settings and so much more etc
2022-04-08
05 min
WONDERGIRLSAIDA
Living Life With HS: Overcoming The Struggles
Hello everyone in this episode I will be talking about what it’s like to Live with my HS and so much more etc
2022-04-08
06 min
WONDERGIRLSAIDA
Finding My Voice: Journey Of Becoming Free Part 4
Hello everyone in this episode I will be talking about all the things I have found helpful for me and how I was able to find a way for me to raise my voice and use my voice and so much more etc
2022-04-05
06 min
WONDERGIRLSAIDA
Finding My Voice: Journey Of Becoming Free Part 3
Hello everyone it’s me Saida in this episode I will be continuing and talking about everything where I have left off at
2022-04-05
05 min
WONDERGIRLSAIDA
Finding My Voice: Journey Of Becoming Free Part 3
Hello everyone it’s me Saida in this episode I will be continuing and talking about everything where I have left off at
2022-04-05
05 min
WONDERGIRLSAIDA
Finding My Voice: Journey Of Becoming Free Part 2
Hello everyone in this episode I will be continuing everything where I left off at in Part 1
2022-04-05
05 min
WONDERGIRLSAIDA
Finding My Voice: Journey Of Becoming Free Part 1
Hello everyone in this episode I will be talking about my experiences of going through all the traumatic experiences I went through from when I was ages 9 and 12 and how I found my voice to break free from my silent sufferer chains and so much more
2022-04-05
10 min
WONDERGIRLSAIDA
Living With My CHD Diagnosis
Hello everyone in this episode I will be talking about my diagnosis of my Rare heart disease my condition is called Vascular Ring the formal name for my disease is called Congenital Heart Disease (CHD) I had to do CT Scans and I also did a Echocardiogram I found out from my most recent CT Scan that I have CHD I want raise my voice on this condition Vascular Ring is a very very rare condition that affects the heart
2022-04-05
06 min
WONDERGIRLSAIDA
Thankful For All The Love & Support
Hello everyone in this episode I will be talking about how I am thankful and grateful for all the love and support from all of my friends and my medical team and all of my other programs and organizations and so much more etc
2022-02-04
03 min
WONDERGIRLSAIDA
Living Life With Panic Disorder
Hello everyone in this episode I will be talking about my life and living with my anxiety condition called Panic Disorder and so much more etc
2022-02-03
06 min
WONDERGIRLSAIDA
Living Life With ADHD
Hello everyone in this episode I will be talking about my life living with ADHD also known as Attention Deficit Hyperactivity Disorder and how it affects me and so much more etc
2022-02-03
06 min
WONDERGIRLSAIDA
Living Life With Partial Trisomy 8q
Hello everyone in this episode I will be talking about my life living with my rare genetic disease called Partial Trisomy 8q Duplication Syndrome for short my genetic disease is called Partial Trisomy 8q I will be talking about how it affects me and so much more etc
2022-02-03
10 min
WONDERGIRLSAIDA
Living Life With Dyslexia
Hello everyone in this episode I will be talking about the struggles I have with my Dyslexia and so much more etc
2022-02-03
05 min
WONDERGIRLSAIDA
My Journey To Doing Advocacy For Rare Diseases
Hello everyone in this episode I will be talking about how I am starting my 16 week advocacy journey to become a better and stronger advocate for those who have rare diseases and so much more etc
2022-02-03
07 min
WONDERGIRLSAIDA
Living Life With A Intellectual Disability (ID)
Hello everyone in this episode I will be talking about my life living with my intellectual disability (ID) and so much more etc
2022-02-02
05 min
WONDERGIRLSAIDA
Living Life With Mental Health Conditions & Struggles
Hello everyone in this episode I will be talking about my struggles I have with my mental health conditions and struggles and so much more etc
2022-02-02
05 min
WONDERGIRLSAIDA
Living Life With TS
Hello everyone in this episode I will be talking about my life living with my Tourette’s Syndrome for short (TS) and all the struggles I have with my TS and so much more etc
2022-02-02
05 min
WONDERGIRLSAIDA
Helping Others Have Love and Kindness
Hello everyone in this episode I will be talking about how I love to travel and help others and so much more etc
2022-02-02
04 min
WONDERGIRLSAIDA
Why I chose Dance and Performing Arts
Hello everyone in this episode I will be talking about why I chose to do Dance and performing arts and so much more etc my performing arts have been so healing for me and so much more
2022-02-02
03 min
WONDERGIRLSAIDA
My Journey Battling To Become Resilient
Hello everyone in this episode I will be talking about my journey to becoming strong and fighting the big fight to become stronger and resilient and battling getting through all my difficulties and so much more etc
2022-02-02
08 min
WONDERGIRLSAIDA
Surviving Self Harm And Suicide Attempts
Hello everyone in this episode I will be talking about self harming and Suicide and Suicide Attempts I am a survivor of self harming and Suicide Attempts it was very hard to deal with and I don’t want anyone to feel the same way that I felt if you or if you know anyone that is struggling with self harming and Suicide Attempts there’s help and support you are not alone
2022-02-01
09 min
WONDERGIRLSAIDA
Rare Disease 101
Hello everyone in this episode I will be talking about rare diseases and how it affects many when it comes to emotional health and mental health and so much more etc a rare disease diagnosis is really hard for all everywhere
2022-02-01
06 min
WONDERGIRLSAIDA
Living Life With a ASD
Hello everyone in this episode I will be talking about my life being diagnosed with Autism Spectrum Disorder (ASD) it gets really hard for me and so much more etc I wanted to share my story and bring awareness and so much more etc
2022-01-29
05 min
WONDERGIRLSAIDA
Life With HS
Hello everyone in this episode I will be talking about how I was diagnosed with my chronic rare disease called Hidradenitis Suppurativa (HS) it is a very very hard condition to live with and handle I was diagnosed with my HS when I was 23 years old and I learned that I had to fight hard with the disease and so much more etc I dedicate this episode to all of those who are diagnosed with HS and or have the symptoms of HS and is afraid to speak up about it
2022-01-29
10 min
WONDERGIRLSAIDA
What I Do When I Am Struggling With My Emotional & Mental Health
Hello everyone in this episode I will be talking about all of the things that I do when I am having a very rough time with my emotional and mental health and so much more etc
2022-01-29
05 min
WONDERGIRLSAIDA
The Journey Of My Healing And Recovery
Hello everyone in this episode I will talk about how all of the wonderful organizations that I have has helped me so much in my healing and recovery journey and so much more etc
2022-01-28
04 min
WONDERGIRLSAIDA
Honoring Rare Disease Day
Hello everyone in this episode I will be talking about Rare Disease Day and how Rare Disease affects others and so much more etc
2022-01-28
08 min
WONDERGIRLSAIDA
Honoring Jewish Disability Awareness Month
Hello everyone in this episode I will be talking about Jewish Disability Awareness Month and how this is celebrated and so much more etc as a Jewish disabled person I want to say thank you so much for accepting me and welcoming me and so much more etc
2022-01-28
04 min
WONDERGIRLSAIDA
WONDERGIRLSAIDA (Trailer)
2022-01-28
00 min
WONDERGIRLSAIDA
Becoming Part Of Miss Amazing
Hello everyone in this episode I will be talking about how I got involved with the wonderful miss amazing organization and so much more etc miss Amazing have helped me become a better and stronger woman and much more I am forever thankful, Honored and Grateful that I got to get involved with miss amazing and I want to continue for the rest of my life
2022-01-28
07 min
WONDERGIRLSAIDA
My Athletic Journey
Hey Hey Hey it’s me Saida in this episode I will be talking about my athletic journey and talking about everything in this episode
2022-01-28
04 min
WONDERGIRLSAIDA
My Athletic Journey
Hey Hey Hey it’s me Saida in this episode I will be talking about my athletic journey and talking about everything in this episode
2022-01-28
04 min
WONDERGIRLSAIDA
Joining Friendship Programs
Hello in this episode I will talk about how joining friendship programs helped me get amazing friends from all over and how I got to participate with them and so much more etc
2022-01-28
04 min
WONDERGIRLSAIDA
Honoring those For The Holocaust Remembrance Day
Hello in this episode I will be honoring all of those for the Holocaust Remembrance Day I will discuss everything in this episode and so much more etc
2022-01-28
03 min
WONDERGIRLSAIDA
Giving Back To Help Others
Hello everyone in this episode I will be talking about how I love to help others and giveback and all of the many ways I love to help the community and so much more etc
2022-01-28
03 min
WONDERGIRLSAIDA
How I became a stronger advocate
Hello everyone in this episode I will be talking about how I have became a stronger advocate and how I love to help others and so much more etc
2022-01-28
06 min
WONDERGIRLSAIDA
My Journey To Becoming Jewish
Hello everyone in this episode I will be talking about my exciting journey of how I became Jewish and did my conversion and so much more etc my journey to becoming Jewish has been the most exciting and rewarding journey ever in my life I am thankful I had the experience in this episode I will be covering everything
2022-01-27
08 min
WONDERGIRLSAIDA
Surviving A Difficult moment and Becoming Resilient Part 3
Hello my name is Saida I am disabled and I am a survivor I wanted to raise my voice and talk about everything I went through from ages 9,12, 16 and 17 I want other survivors to feel and know that they are not alone at all I also want those who are in the disability community and rare disease community to know that they are not alone as well if you are a survivor I hope this help you know that you are not alone and that you are heard (This is part 3 of my surviving 3 part segments parts 1 and 2 are also...
2022-01-27
16 min
WONDERGIRLSAIDA
Surviving A Difficult moment and Becoming Resilient Part 3
Hello my name is Saida I am disabled and I am a survivor I wanted to raise my voice and talk about everything I went through from ages 9,12, 16 and 17 I want other survivors to feel and know that they are not alone at all I also want those who are in the disability community and rare disease community to know that they are not alone as well if you are a survivor I hope this help you know that you are not alone and that you are heard (This is part 3 of my surviving 3 part segments parts 1 and 2 are also...
2022-01-27
16 min
WONDERGIRLSAIDA
Surviving A Difficult moment and Becoming Resilient Part 2
When I was 9 years old I have went through a very big difficult moment in my life and I have learned to become a stronger advocate for not just myself but for all everywhere I want to help others become stronger and feel supported.
2022-01-27
07 min
WONDERGIRLSAIDA
Surviving A Difficult moment and Becoming Resilient Part 1
Hello everyone it’s me Saida and on this episode I will be talking about how I am both a survivor of all things I have fought through all of my struggles and difficulties (This is part 1 of my surviving segment)
2022-01-27
09 min
WONDERGIRLSAIDA
Surviving A Difficult moment and Becoming Resilient Part 1
Hello everyone it’s me Saida and on this episode I will be talking about how I am both a survivor of all things I have fought through all of my struggles and difficulties (This is part 1 of my surviving segment)
2022-01-27
09 min
WONDERGIRLSAIDA
My Journey To Healing And Becoming Stronger
Hello everyone it’s me Saida in this episode I will be talking about my healing journey and becoming a stronger person my healing journey has been hard and sometimes overwhelming and so much more I have learned how to get through my difficulties without getting the urge to self harm I have learned how to reach out to my resources for help and I have help and support from all of my wonderful friends & so much more etc
2021-12-22
06 min
WONDERGIRLSAIDA
My Journey To Healing And Becoming Stronger
Hello everyone it’s me Saida in this episode I will be talking about my healing journey and becoming a stronger person my healing journey has been hard and sometimes overwhelming and so much more I have learned how to get through my difficulties without getting the urge to self harm I have learned how to reach out to my resources for help and I have help and support from all of my wonderful friends & so much more etc
2021-12-22
06 min
WONDERGIRLSAIDA
My Love For My Idol Glenn Frey
Hello everyone in this episode I will be talking about all my love I have for my idol Glenn Frey he has inspired me so much over the years my mother introduced me to Glenn when I was a baby he inspired me musically, Lyrically and as a a person as well He also inspired me to get involved with performing arts and music and so much more he inspired me to be strong and to have my advocacy projects started up as well and so much more etc I will always and forever love Glenn Frey
2021-12-07
05 min
WONDERGIRLSAIDA
How Music Has Helped and Healed Me
Growing up my mom introduced me to so many wonderful artists and bands from when I was a baby. My mother introduced me to bands such as The Eagles, The Doobie Brothers, Poco, Def Leppard, Lynyrd Skynyrd, Led Zeppelin, Boston, Alabama, The Allman Brothers, ZZ Top, Foghat and so many more etc. My mother have also introduced me to many amazing music artists such as Don Henley, Glenn Frey, Timothy B Schmit, Joe Walsh, Vince Gill, Amy Grant, KT Oslin, Reba Mcentire, Martina McBride, Dolly Parton, Pat Benatar, Conway Twitty, Tammy Wynette, Loretta Lynn, Patsy Cline, Peter Cetera, Elvis Presley...
2021-12-07
07 min
WONDERGIRLSAIDA
Living with my Rare Diseases and Living Life
Hello my name is saida mahoney I am 25 years old and I am diagnosed with 2 chronic rare diseases I was born with my rare genetic disease Partial Trisomy 8q Duplication Syndrome for short it is called Partial Trisomy Of 8q Syndrome My genetic disease has caused me to have so many difficulties over the years I learned how to fight harder through all the struggles and I learned how to fight through all the ups and downs as well I am also diagnosed with another rare chronic disease called Hidradenitis Suppurativa (HS) for short my HS have caused me to...
2021-11-30
03 min
WONDERGIRLSAIDA
Living with my Rare Diseases and Living Life
Hello my name is saida mahoney I am 25 years old and I am diagnosed with 2 chronic rare diseases I was born with my rare genetic disease Partial Trisomy 8q Duplication Syndrome for short it is called Partial Trisomy Of 8q Syndrome My genetic disease has caused me to have so many difficulties over the years I learned how to fight harder through all the struggles and I learned how to fight through all the ups and downs as well I am also diagnosed with another rare chronic disease called Hidradenitis Suppurativa (HS) for short my HS have caused me to...
2021-11-30
03 min
WONDERGIRLSAIDA
Definition of “Living Right and Living Rare”
Hello everyone it’s me saida I wanted to reach out to let you all know what it means when I say that I am “Living Right and Living Rare” I am thankful that I am able to live my life and enjoy myself given the fact of my diagnosis that I have I don’t let my conditions stop me from doing anything in my life
2021-08-24
04 min
WONDERGIRLSAIDA
Definition of “Living Right and Living Rare”
Hello everyone it’s me saida I wanted to reach out to let you all know what it means when I say that I am “Living Right and Living Rare” I am thankful that I am able to live my life and enjoy myself given the fact of my diagnosis that I have I don’t let my conditions stop me from doing anything in my life
2021-08-24
04 min
WONDERGIRLSAIDA
Introduction
Hello my name is saida Mahoney I am 24 years old and I am a full time student in college and I am involved in numerous activities projects and programs and so much more etc
2021-07-21
02 min
WONDERGIRLSAIDA
Introduction
Hello my name is saida Mahoney I am 24 years old and I am a full time student in college and I am involved in numerous activities projects and programs and so much more etc
2021-07-21
02 min