Shows
The Charles Bonnet Syndrome PodcastEpisode 48: Understanding Syndromes: Definitions, History, and ImportanceIn this episode of the Charles Bonnet Syndrome Podcast, host Shaimond explores the concept of syndromes in medicine. The episode delves into the definition of a syndrome, its history, and how it differs from diseases and disorders. Key characteristics of syndromes are discussed, along with examples like Down Syndrome and Charles Bonnet Syndrome. The importance of pattern recognition in diagnosing syndromes, the evolution of their study, and their impact on patient care are also covered. This comprehensive overview aims to enhance understanding of syndromes for patients, caregivers, and curious listeners.Contact me at info@cbsyndromepodcast.com 2025-05-1010 min
It Started SomewhereEpisode 21: The History of Ice CreamJoin host Shaimond in this episode of 'It Started Somewhere' as we delve into the rich history of ice cream. From its ancient origins in China and Persia to the indulgent treats enjoyed by royalty, and the evolution into the beloved dessert we know today. Discover how innovations like Nancy Johnson's hand-cranked ice cream freezer and Jacob Fussel's ice cream factory revolutionized the availability of ice cream. Learn about the global variations and why this delightful treat has endured through the ages. Subscribe and leave your suggestions for future episodes!My contact info itstartedsomewhere@gmail.com 2025-05-0304 minThe Charles Bonnet Syndrome PodcastEpisode 47: Caring for a Loved One with Charles Bonnet Syndrome: Jo Hill's StoryIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Jo Hill, who shares her experiences as a caregiver for her husband, Frankie. Frankie has been dealing with glaucoma for over 20 years and started experiencing CBS symptoms in December 2018. Jo discusses the challenges they faced, the path to discovering CBS through resources like Esme's Umbrella, and how they found support from Dr. Gary Cusick. She highlights the importance of patience, support groups, and finding activities that help manage symptoms. Additionally, Jo reflects on the role of family support and shares tips for other caregivers dealing with...2025-04-2651 min
It Started SomewhereEpisode 20: The History of Dentistry: From Ancient Practices to Modern InnovationsJoin host Shaimond on 'It Started Somewhere' as we explore the journey of dentistry from ancient rudimentary dental work in 7000 BCE to today's advanced techniques. Discover early dental practices, like flint-tipped drills in the Indus Valley and gold wire prosthetics in ancient Egypt, through to groundbreaking milestones such as the first dental school in 1840 and the rise of cosmetic dentistry in the 20th century. Learn how dentistry has evolved over millennia, shaping the precision and comfort of modern oral health care.My contact info itstartedsomewhere@gmail.com https://itstartedsomewhere.com/ 2025-04-1907 minThe Charles Bonnet Syndrome PodcastEpisode 46: Exploring Intracortical Visual Prosthesis with Dr. Phil TroykIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Phil Troyk, a professor and leading research innovator in the field of biomedical engineering at the Illinois Institute of Technology. Dr. Troyk discusses the FDA-approved Intracortical Visual Prosthesis (ICVP) project, which aims to help blind individuals perceive artificial vision by bypassing the eyes and optic nerve, directly stimulating the brain's vision centers through wireless implants. The conversation covers the history of the project, its technological advancements, participant recruitment, and the future potential of this groundbreaking research.Dr. Troyk and his team are actively recruiting...2025-04-1236 min
It Started SomewhereEpisode 19: The Evolution of Recorded Music: From Phonautographs to StreamingIn this episode of 'It Started Somewhere,' host Shaimond takes listeners on a historical journey through the evolution of recorded music. The episode begins with the 1857 invention of the phonautograph by Edward Leon Scott de Martinville, a device that could trace sound waves but not play them back. The narrative progresses to key milestones such as Thomas Edison's phonograph in 1877, Emile Berliner's gramophone in 1887, and the shift from wax cylinders to discs. The episode also highlights significant advancements including the development of electrical recording techniques in 1925, the advent of stereophonic sound in 1931, the introduction of magnetic tape in 1928...2025-04-0509 minThe Charles Bonnet Syndrome PodcastEpisode 45: Exploring Vision Restoration with Functional Neurosurgeon Dr. Nader PouratianIn this episode of The Charles Bonnet Syndrome Podcast, host Shaimond interviews Dr. Nader Pouratian, a professor and chair of neurological surgery at UT Southwestern Medical Center in Dallas. Dr. Pouratian discusses his work on experimental treatments aimed at restoring vision for individuals who have lost it, specifically through the use of neural devices and deep brain stimulation. The conversation delves into the intricacies of the Orion Visual Cortical Prosthesis Trial, touching upon the experimental process, patient outcomes, and future prospects in the field. Dr. Pouratian also emphasizes the importance of integrating technology and patient engagement to enhance research...2025-03-2939 min
It Started SomewhereEpisode 18: The Evolution of Money: From Barter to BitcoinIn this episode of 'It Started Somewhere,' host Shaimond explores the fascinating history of money, tracing its evolution from ancient bartering systems to modern cryptocurrencies. The episode delves into the origins of bartering around 6000 BC, the development of commodity money, the revolutionary invention of coinage in 1000 BC, the introduction of paper money in China, the rise of banking in medieval Europe, the gold standard, and the significant shifts in the monetary system during the 20th century. The narrative concludes with the advent of digital payments and the emergence of cryptocurrencies like Bitcoin, highlighting the continuous innovation in our...2025-03-2208 minThe Charles Bonnet Syndrome PodcastEpisode 44: Living with CBS: Frank Hill Sr.'s StoryIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Frank Hill Sr., who has experienced visual hallucinations caused by CBS for six years due to glaucoma. Frank shares his initial confusion about the condition and describes the vivid and intrusive visions he encounters daily seeing animals, unclear human figures and more. He credits his faith in God for helping him cope. Throughout the discussion, Frank discusses the persistence of these hallucinations, the methods he uses to manage them, and his belief that understanding and unwavering faith are key to dealing with CBS. The conversation also...2025-03-1526 min
It Started SomewhereEpisode 17: Microwaves: From Accidental Discovery to Kitchen EssentialWelcome to 'It Started Somewhere,' where host Shaimond explores the extraordinary history behind ordinary objects. In this episode, discover the fascinating journey of the microwave oven, from its accidental invention by engineer Percy Spencer in 1945 to becoming an indispensable part of modern kitchens. Learn how this technology evolved from a 750-pound commercial machine to the sleek, user-friendly appliance we know today. Join us as we delve into the innovation, perseverance, and sheer curiosity that transformed a melted chocolate bar into a revolutionary kitchen appliance.My contact info itstartedsomewhere@gmail.com https://itstartedsomewhere.com/ 2025-03-0808 minThe Charles Bonnet Syndrome PodcastEpisode 43: Bettie Stanger-Black's CBS Caregiving ExperienceIn this episode of The Charles Bonnet Syndrome Podcast, Shaimond interviews Bettie Stanger-Black, who shares her journey as a caregiver for her mother who has CBS. Bettie recounts the initial signs of hallucinations, the diagnostic process, and her challenges as a caregiver. They discuss the importance of proper diagnosis, the emotional toll of caregiving, and various coping strategies. Bettie emphasizes the need for awareness, understanding, and support from medical professionals and the community. This episode provides valuable insights and practical advice for caregivers and those affected by CBS.Contact Bettie at bblack0266@gmail.comContact...2025-03-0154 min
It Started SomewhereEpisode 16: The History of Popcorn: From Ancient Civilizations to Modern DayIn this episode of 'It Started Somewhere,' host Shaimond delves into the rich history of popcorn, tracing its origins back to ancient civilizations in the Americas around 3600 BCE. Discover how popcorn was first cultivated from wild grass, its cultural significance among the Aztecs, and its rise in popularity in the 19th century with the invention of the first commercial popcorn machine by Charles Cretors. Learn how popcorn became a staple snack in movie theaters during the Great Depression and exploded in popularity during World War II. The episode also covers modern innovations like Orville Redenbacher's gourmet popcorn and...2025-02-2208 minThe Charles Bonnet Syndrome PodcastEpisode 42: The Journey and Mission of Mary Carmel's LightIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Eva and Kevin Potts, co-founders of Mary Carmel's Light. The organization, named in honor of their mother, was recently designated a 501(c)(3) nonprofit. They share their deeply personal and challenging journey of identifying and coping with Mary Carmel's Charles Bonnet Syndrome (CBS), including medical misdiagnoses and the lack of available resources. They discuss the importance of believing and validating the experiences of those with CBS and their caregivers, as well as the urgent need for better awareness and diagnosis procedures within the medical community. The episode also...2025-02-151h 16
It Started SomewhereEpisode 15: A History of SoapIn this episode of 'It Started Somewhere,' host Shaimond delves into the history of soap, tracing its origins back to 2800 BCE in ancient Babylon. Discover how early soaps were made from animal fats and ashes and their initial use in textile cleaning. Learn about the advancements in soap making by the Egyptians and Romans, the decline during the Dark Ages, and its resurgence in medieval Europe. The episode also covers the industrial evolution of soap production, the rise of synthetic detergents in the 20th century, and the modern shift towards eco-friendly, handcrafted soaps. Packed with fun facts and...2025-02-0808 minThe Charles Bonnet Syndrome PodcastEpisode 41: Art Beyond Sight with Selene CarboniIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Selene Carboni, an art educator from Italy who specializes in teaching visually impaired individuals how to create and appreciate art. Selene discusses her journey from an art historian to advocating for the artistic capabilities of blind individuals. She shares her experiences working at the Francesco Cavazza Institute for the Blind and her research on drawings made by blind individuals at the University of Toronto. The conversation explores how visually impaired people can engage in artistic activities, the stages of drawing development, and the importance of tactile art...2025-02-0125 min
It Started SomewhereEpisode 14: Congestion Pricing: From Theory to Global ApplicationIn this episode of 'It Started Somewhere,' host Shaimond explores the history and implementation of congestion pricing. The concept originated with economist William Vickrey in the 1950s and has since evolved into a critical tool for managing urban traffic. The episode traces the journey from Vickrey's initial ideas to modern applications in cities like Singapore, London, Stockholm, and New York City. Despite challenges and controversies, congestion pricing has shown positive results in reducing traffic, improving air quality, and boosting public transit use. The discussion also highlights the mixed reception and the potential future of congestion pricing as cities...2025-01-2508 min
It Started SomewhereEpisode 13: The History of the Internet and World Wide WebIn this episode of 'It Started Somewhere,' Shaimond explores the history of the Internet and the World Wide Web. Discover how the 1960s Cold War era led to the creation of ARPANET, the first computer network, and the birth of the internet. Learn about pivotal developments, including email by Ray Tomlinson, TCP/IP protocols by Vinton Cerf and Bob Kahn, and the groundbreaking work of Tim Berners-Lee at CERN, which gave rise to the World Wide Web. Explore the rise of the web in the 1990s with the Mosaic browser, and the emergence of tech giants like Amazon...2025-01-1806 minThe Charles Bonnet Syndrome PodcastEpisode 40: Guide Dogs 101 with Guiding Eyes for the Blind’s Melissa CarneyIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Melissa Carney, Community Outreach and Graduate Support Manager at Guiding Eyes for the Blind. Melissa shares insights into her role, the criteria for obtaining a guide dog, the training process for guide dogs, and her personal experiences as a guide dog handler. She discusses the application process, the importance of teamwork between the handler and the dog, and the benefits and challenges of using a guide dog. Melissa also touches on the use of AI in mobility aids, the personalized support Guiding Eyes provides to their graduates...2025-01-1840 min
It Started SomewhereEpisode 12: Antibiotics: From Ancient Remedies to Modern MedicineJoin host Shaimond on 'It Started Somewhere' as we delve into the fascinating history of antibiotics. Discover how these life-saving drugs transformed from ancient moldy bread treatments to groundbreaking scientific breakthroughs. Learn about the pivotal figures like Paul Ehrlich and Alexander Fleming, whose work laid the foundation for modern antibiotic therapy. Explore the Golden Age of Antibiotics, the challenges of antibiotic resistance, and the innovative future of this vital medical field. Stay curious and uncover how accidental discoveries can lead to revolutionary advancements.Contact me at itstartedsomewhere@gmail.com 2025-01-1109 min
It Started SomewhereEpisode 11: From Clickety Clack to Digital: The Evolution of TypewritersJoin host Shaimond in this episode of 'It Started Somewhere' as we explore the rich history of typewriters. Learn about early prototypes, notable inventors like Henry Mill and William Burt, and the significant breakthroughs by Christopher Sholes and Remington that laid the foundation for modern typing. Discover how the QWERTY keyboard was designed to solve key jamming issues and how electric typewriters, including IBM's Selectric, revolutionized typing. We also delve into typewriters' cultural impact, especially in empowering women in the workforce, and share intriguing trivia about these iconic machines. Tune in to appreciate the legacy of typewriters in our...2025-01-0411 minThe Charles Bonnet Syndrome PodcastEpisode 39: Phyllis Stanger’s Journey with CBSIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Phyllis Stanger, who discusses her experiences living with CBS. Phyllis describes her journey from being diagnosed with macular degeneration to later developing CBS symptoms, which include visual hallucinations. She shares the challenges she faces, such as giving up driving and coping with daily hallucinations, and offers insight into how she manages her condition. Phyllis also speaks about the role of support groups and family and emphasizes the importance of changing environments and staying involved in activities. Her story offers hope and practical advice for others living with...2025-01-0439 min
It Started SomewhereEpisode 10: The Evolution of Trains: From Wagonways to Bullet TrainsJoin host Shaimond on It Started Somewhere as we explore the history and evolution of trains. Discover how they evolved from horse-drawn carts to modern high-speed marvels, igniting progress and unifying nations. This episode delves into early wagonways, the advent of steam power by pioneers like Richard Trevithick and George Stephenson, the emergence of diesel and electric trains, and the game-changing introduction of high-speed rail. Learn how trains have shaped industries, cultures, and our world, symbolizing innovation and efficient connectivity from ancient times to the present day.Contact me at itstartedsomewhere@gmail.com https://itstartedsomewhere...2024-12-2108 minThe Charles Bonnet Syndrome PodcastEpisode 38: Exploring Art Beyond Vision with Eriko WatanabeIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond talks with Eriko Watanabe, a blind artist from Augsburg, Germany. Eriko, originally from Japan, shares her compelling journey from losing her sight due to pediatric cancer to becoming an artist specializing in tactile line drawings. Despite her blindness, Eriko creates detailed artworks using raised line drawing kits and other methods, translating her sensory experiences such as touch, sound, and smell into visual art. They discuss the unique processes behind Eriko's creations, her inspirations from traveling, and the challenges and joys of being a blind artist. Eriko emphasizes the...2024-12-2136 min
It Started SomewhereEpisode 9: The Evolution of Social Media: From ARPANET to TikTokIn this episode of 'It Started Somewhere,' host Shaimond explores the rich history of social media, tracing its roots from the early days of ARPANET in the late 1960s to the explosive rise of modern platforms like TikTok. The discussion covers pivotal moments such as the creation of Six Degrees, the dominance of MySpace, and the transformative launch of Facebook. The episode also examines the impact of mobile technology, with the introduction of the iPhone, and the rise of Instagram and Snapchat. Additionally, he delves into the societal ramifications of social media, encompassing both its positive effects on...2024-12-1407 min
It Started SomewhereEpisode 8: From Tesla to Smart Homes: The Fascinating History of Remote ControlIn this episode of 'It Started Somewhere,' host Shaimond explores the fascinating history of remote control technology. Starting with Nikola Tesla's groundbreaking wireless controlled boat in 1898, the episode traces the development of remotes through key inventions and advancements, including Zenith's Lazy Bones and Flashmatic, Robert Adler's ultrasonic Space Command, and the transition to infrared technology in the 1980s. The episode highlights the impact of remote controls on consumer electronics, particularly in television, and examines the latest innovations in smart home technology, voice control, and AI integration.Contact Me at itstartedsomewhere@gmail.com https://itstartedsomewhere...2024-12-0710 minThe Charles Bonnet Syndrome PodcastEpisode 37: Dr. John Kennedy Discusses Imagery, Perception and CBSIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. John Kennedy, a psychologist and senior investigator from the University of Toronto. Dr. Kennedy shares his extensive research on imagery, perception, and the fascinating abilities of blind individuals in creating art. He discusses his encounters with various visually impaired artists, elaborating on their experiences and his findings on Charles Bonnet Syndrome. The episode delves into the nature of visual and mental imagery, and the potential therapeutic role of art and drawing for those with visual impairments. Dr. Kennedy also highlights the importance of curiosity, passion, and...2024-12-0750 min
It Started SomewhereEpisode 7: The Evolution of Video Games: From Turing's Chess to Modern EpicsIn this episode of 'It Started Somewhere,' host Shaimond explores the fascinating history of video games. The journey begins in the 1940s with Alan Turing's AI-informed chess game, moves through the groundbreaking creation of 'Spacewar!' at MIT, and heads into the explosive era of arcade games in the 1970s with hits like Pong. It delves into the home gaming market's rise, the crash of 1983, and discusses Nintendo's NES in 1985. The episode also covers the 1990s console wars, the impact of 3D graphics, and the advent of online gaming with Microsoft's Xbox. Finally, it highlights the enduring influence...2024-11-3008 min
It Started SomewhereEpisode 6: The Evolution of Lawnmowers: From Shears to Smart RobotsIn this episode of 'It Started Somewhere,' we explore the fascinating history of lawnmowers, tracing back to the 1700s when lawns were maintained using grazing animals, shears, and scythes. The invention of the first lawnmower by Edwin Beard Budding in the 1830s revolutionized lawn care, followed by significant advancements such as the lightweight and quieter Silent Cutter, the first real lawnmower in the U.S., and engine-powered models. The 20th century introduced innovations like self-propelled riding mowers, lightweight rotary mowers, and zero-turn mowers. Today, we see a surge in electric, solar-powered, and AI-driven robotic mowers, highlighting how far...2024-11-2305 minThe Charles Bonnet Syndrome PodcastEpisode 36: Kim Kimberley's Journey with Charles Bonnet SyndromeIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Kim Kimberley who shares her personal experiences of living with CBS after sustaining a head injury from being assaulted. She discusses the nature of her hallucinations, interactions with medical professionals, and the coping mechanisms she has developed, including the use of LED lights and support from online communities. The conversation sheds light on the challenges of diagnosing and managing CBS, as well as the importance of support and self-advocacy.Contact Kim at kimikimberley@outlook.comFor help with CBS call 1-704-389-0160 2024-11-2357 min
It Started SomewhereEpisode 5: The History of ElevatorsIn this episode of It Started Somewhere, host Shaimond delves into the fascinating evolution of elevators, from primitive hoists in ancient times to the sophisticated, computer-controlled systems of today. Learn about key milestones, including the Roman architect Vitruvius' mentions, King Louis XV's counterweighted personal elevator, and Elisha Graves Otis' revolutionary safety brake. Discover how the Industrial Revolution and the advent of electricity transformed vertical transportation, leading to the birth of modern skyscrapers and the significant impact elevators have had on urban life and architecture.Contact me at itstartedsomewhere@gmail.com https://itstartedsomewhere.com/ 2024-11-1606 minThe Charles Bonnet Syndrome PodcastEpisode 35: Neuro-Ophthalmologist Andrew G. Lee, MDIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Andrew G. Lee, a neuro-ophthalmologist and the Herb and Jene Lyman Centennial Chair of Ophthalmology at Blanton Eye Institute, Houston Methodist Hospital. They discuss Charles Bonnet Syndrome, a condition involving visual hallucinations due to vision loss, and explore why it is often misunderstood and stigmatized. Dr. Lee shares insights on the importance of awareness, patient support, and available treatments while emphasizing the need for holistic approaches and ongoing research. The conversation also touches on the role of neuro-ophthalmologists and the complexities of diagnosing and managing this...2024-11-0939 min
It Started SomewhereEpisode 4: The Airline Deregulation Act of 1978This episode of 'It Started Somewhere' delves into the transformative effects of the Airline Deregulation Act of 1978. Host Shaimond examines how the act shifted the US aviation industry from stringent government control through the Civil Aeronautics Board to a more competitive landscape. The episode discusses the reasons behind the push for deregulation, including economic theories and political influences, and explores both the immediate and long-term changes such as increased competition, lower fares, the emergence of low-cost carriers, and the challenges faced by legacy airlines. It also touches on how the act has led to ongoing innovations in the airline...2024-11-0306 min
It Started SomewhereEpisode 3: The Evolution of Traffic Lights: From Gas Lamps to AI SystemsIn this episode of 'It Started Somewhere,' host Shaimond delves into the fascinating history of traffic lights. From the world's first gas-lit traffic light invented by J.P. Knight in 1868 to modern AI-powered systems, discover the innovations that have made our roads safer and more efficient. Learn about key milestones such as the development of the first electric traffic light by Lester Wire, the introduction of the amber yellow light by William Potts, further advancements by Garret Morgan, and the standardization of traffic signals worldwide. Join us on this journey through time and technology.Contact me...2024-10-2605 minThe Charles Bonnet Syndrome PodcastEpisode 34: CBS Researcher Aysha KinakoolIn this episode of The Charles Bonnet Syndrome Podcast Shaimond interviews doctoral candidate Aysha Kinakool from York University, the discussion covers various aspects of CBS. Topics include the complexity of studying CBS, patient experiences, and the necessity of raising awareness and education among healthcare providers. The conversation highlights the role of advanced neuroimaging techniques, such as fMRI, in understanding brain connectivity in CBS and the need for collaborative efforts in research. Diagnostic challenges and the scarcity of research in Eastern countries are also discussed. The episode emphasizes the urgent need for effective treatments and policy changes, advocating for a...2024-10-261h 04
It Started SomewhereEpisode 2: The Evolution of Broadway: From 1750 to TodayIn this episode of 'It Started Somewhere,' Shaimond delves into the rich history of Broadway, tracing its roots from the opening of the first significant theater in New York City in 1750 to its current status as a global cultural phenomenon. The episode covers the movement of the theater district uptown, the impact of the New York City Subway, key theaters like the New Amsterdam and Lyceum, challenges during the Great Depression, the Golden Age of Broadway in the 1940s and 1950s, the revitalization efforts in the 1980s and 1990s, and Broadway's enduring influence on American popular culture and...2024-10-1905 minThe Charles Bonnet Syndrome PodcastEpisode 33: The Vivid World of Ruth BieberIn this episode of the Charles Bonnet Syndrome podcast, Shaimond interviews Ruth Bieber, a retired social worker and artist living with Charles Bonnet Syndrome (CBS). Bieber, who was diagnosed with legal blindness at age 6, shares her journey of losing central vision and later experiencing CBS. At 67, she reflects on her 25-year experience with CBS, during which she began seeing vivid, colorful hallucinations in her 40s. Embracing her CBS, Bieber relates her experiences to the energy fields known as chakras, influencing her art, theater work, and travels. She discusses how the syndrome's visual phenomena varied depending on her environment—from th...2024-10-1252 min
It Started SomewhereEpisode 1: The Evolution of PhotographyIn this episode of 'It Started Somewhere,' host Shaimond, explores the fascinating journey of photography from its inception to current advancements. Starting with Nicéphore Niépce's first permanent photograph in 1826, the episode traces key developments such as Louis Daguerre's daguerreotype, William Henry Talbot's calotype, and Frederick Scott Archer's wet plate collodion process. It highlights George Eastman's influential Kodak company and innovations like Kodachrome and instant photography by Polaroid. The episode concludes with the dramatic shift brought by the digital age and the integration of photography into smartphones, showcasing how the medium continues to revolutionize visual storytelling and me...2024-10-1106 minThe Charles Bonnet Syndrome PodcastEpisode 32: Cognitive Neuroscientist Dr. Robin WalkerIn this episode of The Charles Bonnet Syndrome Podcast, host Shaimond welcomes Professor Robin Walker, a cognitive neuroscientist from Royal Holloway, University of London. They discuss Dr. Walker's extensive research on visual perception and macular degeneration, and his current focus on Charles Bonnet Syndrome. The conversation delves into a reading app he developed to aid people with macular degeneration, ongoing studies on Charles Bonnet Syndrome, the effects of the COVID-19 lockdown on hallucinations, and the importance of technology and awareness in supporting those with visual impairments. Listeners are encouraged to participate in Dr. Walker's latest study to help advance...2024-09-2838 minThe Charles Bonnet Syndrome PodcastEpisode 31: Patient Advocate Richie KahnIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Richie Kahn, a public health professional, clinical researcher, and patient advocate. Richie shares his personal journey with optic atrophy and Charles Bonnet Syndrome. With a background in public health and a passion for patient advocacy, Richie talks about his career in clinical research, his efforts to reduce inefficiencies in drug development, and his work through Canary Advisors to incorporate the patient perspective into clinical trials. Richie also discusses his coping strategies for Charles Bonnet Syndrome, the importance of laughter, running, using a white cane, and the critical...2024-09-141h 07The Charles Bonnet Syndrome PodcastEpisode 30: Cognitive Appraisal Theory and Reframing Your ThoughtsIn this episode of the Charles Bonnet Syndrome podcast, host Shaimond delves into Cognitive Appraisal Theory, a psychological framework that explains how our interpretations of events shape our emotional responses. He explains the two stages of cognitive appraisal—primary and secondary—and provides therapeutic techniques such as cognitive restructuring, mindfulness, and several other therapies like CBT, ACT and DBT, which can help individuals, particularly those with CBS, reframe their thoughts and improve emotional wellbeing. For help with CBS call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr...2024-08-3109 minThe Charles Bonnet Syndrome PodcastEpisode 29: Unraveling CBS: Dr. Kat Da Silva Morgan's Neuroscientific InsightsIn this episode, Shaimond interviews Dr. Kat Da Silva Morgan from Newcastle University's Translational and Clinical Research Institute. Dr. Morgan discusses her extensive research into Charles Bonnet Syndrome (CBS), explaining her journey from psychology to neuroscience and her focus on visual hallucinations. She elaborates on the unique aspects of CBS compared to other conditions that cause hallucinations, such as Lewy body dementia and psychosis. Dr. Morgan also covers her research findings on brain activity differences in CBS patients, the potential of transcranial direct current stimulation (TDCS) as a treatment, and the challenges of conducting large-scale trials. Finally, she shares...2024-08-1738 minThe Charles Bonnet Syndrome PodcastEpisode 28: Neuroscience of CBS with Dr. Jennifer K. SteevesIn this episode, Shaimond and guest host Duchess Antoinette McDonald-Ellis welcome cognitive neuroscientist Dr. Jennifer K Steeves from York University. Dr. Steeves discusses visual and sensory processing, emphasizing her research on Charles Bonnet Syndrome (CBS). She recounts her discovery of CBS through collaborative research and shares insights into non-invasive brain stimulation techniques like Transcranial Magnetic Stimulation (TMS) that show promise in treating visual hallucinations. Dr. Steeves elaborates on the complexities of brain function, the importance of individualized medical treatments, and explores the role of other sensory systems in compensatory vision loss. The discussion deepens into emerging medical treatments, including...2024-08-0356 minThe Charles Bonnet Syndrome PodcastEpisode 27: Living with and Researching CBS: Dr. Anica Zeyen's Dual PerspectiveIn this episode, Shaimond welcomes Dr. Anica Zeyen, a UK-based researcher who has CBS and cone-rod dystrophy. Dr. Zeyen shares her experiences with vision loss and the onset and development of her CBS symptoms. She offers insights into coping mechanisms and discusses how trust, relationships, and communication play a crucial role in managing the condition. The conversation also delves into Dr. Zeyen's extensive research on disability inclusion, her work in making public spaces more accessible, and her advocacy for disability rights across various countries. Despite dealing with nearly continuous hallucinations, Dr. Zeyen has made significant strides in academia and...2024-07-201h 08The Charles Bonnet Syndrome PodcastEpisode 26: The Blind Life: Sam Seavey's Tech Tips for Visual ImpairmentIn this episode, Shaimond and guest host Dr. Gary Cusick welcome Sam Seavey, an online health advocate for the blind community and owner of the popular YouTube channel 'The Blind Life.' Sam shares his journey with Stargardt's disease and how it took him decades to fully accept his visual impairment. He discusses his work at the Bluegrass Council of the Blind and his YouTube channel, The Blind Life, an invaluable resource where he shares assistive technology and tips for the visually impaired community with over 9 million views and counting. The conversation touches on the importance of accessibility, emotional...2024-07-0644 minThe Charles Bonnet Syndrome PodcastEpisode 25: From Viral Infection to CBS: Nina Chesworth's Visual OdysseyIn this episode, Shaimond welcomes Nina Chesworth, a volunteer with Esme's Umbrella, to share her personal journey and insights into living with Charles Bonnet Syndrome (CBS). Nina discusses the complexities of her vision loss stemming from a viral infection and subsequent accidents, leading to her current state of blindness. She candidly describes her CBS experiences, including persistent and sometimes frightening hallucinations, and offers coping strategies such as mindfulness, yoga, and acceptance. The episode delves into the importance of support systems, education, and awareness to better manage this condition. Nina also highlights the broader efforts to raise awareness about CBS...2024-06-2257 min
The Charles Bonnet Syndrome PodcastEpisode 24: Coping Mechanisms, General Tips, Natural Remedies and MoreIn this episode, Shaimond shares a comprehensive guide to coping with Charles Bonnet Syndrome (CBS). He covers general tips, coping mechanisms, natural remedies, and innovative treatments gathered from people with CBS and experts in the medical and research field. Key topics include recognizing hallucinations, stress management, utilizing support groups, and various therapeutic techniques. Listeners are advised to consult healthcare professionals before trying any new remedies or treatments.For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S...2024-06-0814 min
The Charles Bonnet Syndrome PodcastEpisode 23: Lucia Ricardo from the CNIBIn this episode, Shaimond and Antoinette interview Lucia Ricardo, a program lead at the Canadian National Institute for the Blind (CNIB). They explore the condition's history, personal experiences, the importance of awareness among medical professionals, and the impact of peer support. Lucia shares insights into the CNIB's efforts in supporting individuals with CBS, including the creation of a support group called 'Seeing Things.' The episode also delves into the challenges caregivers face, coping mechanisms for those experiencing CBS, and the significance of spreading awareness through various platforms, including arts and academia.Contact Lucia at Lucia.Ricardo...2024-05-251h 12
The Charles Bonnet Syndrome PodcastEpisode 22: Visualizing CBS: Vicky Hamilton's Artistic ResearchIn this episode, Shaimond interviews Vicky Hamilton, a PhD candidate performing research on Charles Bonnet Syndrome (CBS) at Griffith University, Queensland College of Art and Design in Brisbane, Australia. Hamilton shares her journey with CBS. Utilizing art and digital technology, Hamilton's research focuses on recreating the visions experienced by those with CBS, aiming for a broader understanding and awareness of the condition. The podcast explores the historical interpretation of hallucinations and the potential connections between personal experiences and hallucinations. Hamilton's research aims to create a digital and interactive exhibition to simulate CBS visions, fostering empathy and understanding among the...2024-05-1159 min
The Charles Bonnet Syndrome PodcastEpisode 21: Low Vision Occupational Therapist Meagan ChapmanIn this episode, Shaimond interviews Megan Chapman, an occupational therapist specializing in low vision, from Low Vision Works in Sarasota, Florida. They discuss the role of occupational therapy in helping individuals with low vision, including those suffering from Charles Bonnet Syndrome (CBS). Chapman explains the broad scope of occupational therapy. She also shares her journey into specializing in low vision, the impact of CBS on patients' lives, and ways to manage its symptoms. Key to her approach is educating patients about CBS to alleviate fear and isolation, advocating for greater awareness among healthcare professionals, and improving patients' quality of...2024-04-2749 min
The Charles Bonnet Syndrome PodcastEpisode 20: Illustrating CBS with Graphic Novelist Gareth BrookesIn this episode, Shaimond and guest co-host Dr. Gary Cusick interview graphic novelist and researcher Gareth Brookes. Brookes discusses his graphic novel, “A Thousand Coloured Castles” which features a main character with Charles Bonnet syndrome (CBS). Inspired by his grandmother's experiences with the condition, Brookes aims to raise awareness and empathy by portraying the visual hallucinations associated with CBS. He describes the nuances of CBS and its impact on people living with the condition and their families. The conversation also covers Brookes' research into comics, his creative process, and the potential of graphic novels in educating about medical conditions.2024-04-2138 min
The Charles Bonnet Syndrome PodcastEpisode 19: Advancing CBS Research with Dr. Jasleen JollyIn this episode, Shaimond interviews Dr. Jasleen Jolly, Associate Professor in Vision and Eye Research at Anglia Ruskin University in Cambridge, England and Director of Jolly Vision Science. Dr. Jolly discusses her extensive work and research on Charles Bonnet Syndrome. She explains the misconceptions about the syndrome, its prevalence and highlights the importance of asking patients proactively about symptoms to overcome the stigma that might prevent them from coming forward. Additionally, she touches on her motivations for founding Jolly Vision Science and the need for greater inclusion and diversity in the medical field. Dr. Jolly offers practical advice for...2024-04-1339 min
The Charles Bonnet Syndrome PodcastEpisode 18: Scot Muirden from the Charles Bonnet Syndrome FoundationIn this episode, Shaimond interviews Scot Muirden, Director at Charles Bonnet Syndrome Foundation AU. He explains the mission of the Foundation, which includes providing direct services to those affected by CBS and raising awareness within the medical and healthcare sectors. The conversation covers the importance of a multidisciplinary approach to diagnosis and support, potential triggers of CBS, and strategies for managing symptoms. Additionally, Scot emphasizes the need for more research on CBS, including its causes and potential treatments. The episode also touches on the difficulties faced by caregivers and the importance of self-care and reaching out for support.2024-04-081h 25
The Charles Bonnet Syndrome PodcastEpisode 17: Blindness and CBS: Robin's Story of ResilienceIn this episode, Shaimond interviews Robin Davies who is totally blind and shares his journey with Best disease and Charles Bonnet Syndrome. The episode emphasizes resilience, the value of community and support, and how remaining engaged with life and passions can help navigate the challenges of visual impairment and Charles Bonnet syndrome.Contact Robin at robindavies18@gmail.comFor help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group an...2024-03-3048 min
The Charles Bonnet Syndrome PodcastEpisode 16: CBS Support with Chris WilsdonIn this episode, Shaimond interviews Chris Wilsdon a representative from the Kent Association for the Blind, to discuss Charles Bonnet Syndrome (CBS) and how his organization supports the visually impaired in Kent and parts of London, UK. Wilsdon shares his personal journey from experiencing vision problems to dedicating over 15 years to aiding those with vision impairments. The episode highlights the collaborative efforts within the sight loss community, the significance of addressing CBS openly, and the impact of cognitive therapies and medication adjustments on managing CBS hallucinations.Contact Chris Wilsdon at chris.wilsdon@kab.org.uk ...2024-03-2336 min
The Charles Bonnet Syndrome PodcastEpisode 15: Empowering Caregivers with Tanya StrakerIn this episode, Shaimond interviews Tanya Straker, who shares her journey as a caregiver and discusses her book “6 Life Hacks For Family Caregivers,” her weekly caregiver support group, Coffee with Caregivers, and shares tips to help caregivers manage, among other things she does to support people on their journey to being their best self.For more information about Tanya and for a link to join her support group, Coffee with Caregivers visit https://tanyastraker.com Contact Tanya at tstraker@outlook.comFor help with Charles Bonnet Syndrome call 1-704-389-0160 2024-03-1844 min
The Charles Bonnet Syndrome PodcastEpisode 14: Retinitis Pigmentosa to CBS: Susan's Visual JourneyIn this episode, Shaimond and Eva interview Susan Michel who shares her journey with Retinitis Pigmentosa, Macular Degeneration and Charles Bonnet Syndrome.For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk.For support or...2024-03-0923 min
The Charles Bonnet Syndrome PodcastEpisode 13: CBS Through an Ophthalmologist's Lens: Dr. Leonid Skorin Jr.In this episode, Shaimond and Eva interview Dr. Leonid Skorin, an ophthalmologist at the Mayo Clinic. He gives an ophthalmic view of Charles Bonnet Syndrome.Contact Dr. Skorin at Skorin.Leonid@mayo.edu For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visit ht...2024-03-031h 03
The Charles Bonnet Syndrome PodcastEpisode 12: Macular Degeneration and CBS with Irvine HarrisIn this episode, Shaimond and Eva interview Irvine Harris who shares his journey with Macular Degeneration and Charles Bonnet Syndrome.Contact Irvine at harrisfl@gmail.com Irvine’s website https://savinghumanity.net/ For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at info@cbsyndromepodcast.com For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at garymcusick@icloud.com For support or resources for CBS in the UK, please visi...2024-02-2549 min